Dispelling the Online stigma: Twitter, Antidepressants and #MedsWorkedforMe

I wasnt going to write a blog on this because it might feed the Twitter trolls. But I have decided that its really important that I speak out about whats been going on this week on there, in realm of mental health on social media. Theres been a lot of stigma against medication as well as much support for it.

This week, a study by Oxford University and published in the psychology medical journal the Lancet, found that anti depressants work and are effective in a large number of cases. It was hailed as the first major study to prove this. Some medications were found to be more effective than others, but it provided a fantastic proof- that anti depressant medications do help relieve depression in many cases. They are not just a placebo pill.

However, of course, there are a large number of people who have had bad experiences with anti depressants and want to make their voices heard- yet often at the expense of those of us who it works for.

On Twitter, using the trending hasthtag #antidepressants and #medsworkedforme, I shared that anti depressants coupled with my mood stabilisers, have very much helped my bipolar disorder. My brain chemistry and illness is such that unmedicated I can have episodes of suicidal depression, psychosis and mania. My medication keeps my moods balanced and well, so I can function and live a normal life. I have been on anti depressants for almost 15 years now. I have been on fluoxetine, duloxetine and now sertraline.

The only bad experience I ever had with them is when my previous mood stabiliser stopped working and due to an increased dose of duloxetine to relieve my depression (which it did), I tipped over into a fast and unpredictable manic episode. This is the risk that those of us with bipolar run.

Yet, by and large my experiences with meds have been hugely positive. They keep me stable and well.

Unfortunately, on Twitter, I got trolled for the first time by people sharing the following ‘helpful’ opinions (they were not helpful and highly stigmatised):

1) You should reduce your sugar intake as sugar causes highs and lows and is addictive as cocaine. If you reduce your sugar, your bipolar will improve.

(To this I had to reiterate that no medication and less sugar will make my illness worse… and that excess sugar does not cause bipolar 1 disorder.. i.e. it does not have that impact on my mood swings.. bipolar is a real illness in the brain. Reducing sugar may help with overall health but seriously you are going to tell me this?)

2) Others asked what alternative therapies I had tried- eg exercise instead of medication. I reiterated the above re psychosis and suicidal ideation. Which unfortunately cant be treated with exercise alone.

3) People shared their own stories eg the man who had multiple severe illnesses and takes no medication because ‘it shortens life span’ and its a medical fact apparently that these medications cause psychosis. (Some psychiatric meds cause side effects but psychosis- really? Also why would you tell me it will shorten my life?)

There was a lot of what I would call militant stigma against medication, either by people who fear it or have experienced negative effects.

While medication is not for everyone, we shouldn’t be shaming people for taking it. I shouldn’t be shamed for keeping my brain healthy and well through taking meds. And neither should any of you.

Make sure you fight this stigma (and the block button is always useful).

Love,

Eleanor

Guest Post: An Introduction to Trichotillomania- Hair Pulling Disorder by Ariel Taylor at trichstop.com

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(image: eleMINT)

Trichotillomania is a hair pulling disorder that affects millions, though many are not even aware of the fact that they suffer from this condition. It’s a well-known emotional illness and if you punch in the keyword Trichotillomania on the Internet, you’ll be bombarded with blogs, journals, and, essays discussing this hair-pulling habit.

However, when it comes to analyzing this disorder, it’s more than just a case of perpetual hair-pulling. This urge to tug or pluck hair defines Trichotillomania but one needs to know the warning signs and instances that could lead to this emotional upheaval.

Trichotillomania comes under the obsessive-compulsive spectrum and is akin to Obsessive Compulsive Disorders – OCD. When it comes to OCD, Trichotillomania too is defined by compulsions i.e. the sudden need to pull or pluck out hair. Nonetheless, Trichotillomania stems more from an impulsive side while OCD is a repetition of a particular habit – more along the lines of obsession.  The main area that’s most affected is the scalp however, people don’t shy away from tearing out their eyelashes, eyebrows or other hair for that matter. A person feels at ease after hair is uprooted or successfully pulled from the skin. Chronic Trichotillomania can lead to hair loss resulting in bald patches. It’s a source of great concern to people who have family members dealing with this condition especially if they have never encountered or been familiar with an issue before.

 

Early Signs Of Trichotillomania

 

Sense Of Comfort

In times of stress and agony, individuals pull their hair inadvertently which is followed by a feeling of relief and comfort. For instance, Sally, a fifteen-year-old, starts pulling her hair when she hears her parents get into a verbal altercation with each other. For some kids, parents who quarrel often can be a reason of great discomfort. Many aren’t aware of ways to deal with such situations and resort to things or activities that give them temporary solutions. Trichotillomania happens to be one of them. The intense tugging and twisting of hair is a sign of silent suffering and pain. Somehow, that very pain turns into relief until the awkward moment of distress has passed.

Perpetual Pulling

The urge gets the better of an individual and they pull away not realizing the pain it would cause. There’s a lot of embarrassment and shame that comes with Trichotillomania. Initially, there’s denial and quite a few take a while to come to terms with accepting the fact that yes, there’s a problem. They resort to covering their bald patches by donning a hat or wearing scarves. Any unevenness on legs or hands is covered with extra layers of clothes or tattoos. People dealing with this problem either pull their hair for brief or long periods of time.  The impulsive behavior cannot be controlled and hair is pulled, no matter what.

Comparatively more than men, women are prone to get diagnosed with Trichotillomania. It brings with itself other emotional problems such as bipolar mood disorders and depression. Uneven patches of hair on the body makes many wary of social interaction since the fear of being bullied or ridiculed tends to seep in.

 

What Causes Trichotillomania?

There isn’t a specific reason that leads to Trichotillomania but there are several biological, psychoanalytical and behavioural theories associated with this disorder. For instance, neurochemical imbalance, as well as trauma connected with childhood or stressful events. Trichotillomania that occurs under psychoanalytic model denotes an unconscious unsettled past – an unfortunate incident of abuse by an acquaintance or a complete stranger.

The behavioural model for Trichotillomania stresses on painful events. For example, loss of a parent, or constant family skirmishes precedes the onset of hair pulling. An attempt to release tension is caused by such distressing instances and moments. This behavior becomes perpetual and later turns into a habit. The person may not even be aware of any initial triggers. However, it only has to be one event in response to what someone may perceive as the urge for pulling hair. The biological model for Trichotillomania purports neuro-chemical imbalance, mostly with serotonin. Levels of altered dopamine too play a vital role in aggravating Trichotillomania. It still isn’t sure if genetics need to be taken into consideration. Although some studies do suggest a rise in the percentage of Trichotillomania in people whose relatives suffer from different psychiatric disorders.

 

Plan Of Action

Continuous tugging of hair needs to be reported medically and if Trichotillomania seems an underlying cause then psychiatric as well as a medical treatment has to be initiated. Not many are aware that the earlier the intervention, the better the probability of the behavior being in control. However, it is essential to note that a person – child or an adult, sometimes do not present for treatment for Trichotillomania until two years since hair-pulling takes place. Psychological behaviour therapy and medication help with treatment for this condition. Habit reversal training as well has done wonders to people who have been suffering from this emotional ordeal.

Lastly, acceptance and patience are key factors in addressing this psychological disorder. With time along with medical help and the support and love of family and friends, Trichotillomania can surely be managed.

For more please see http://trichstop.com

Guest Post: Mental Health in Schools- Support, Goals and Prevention by Jon Manning at Arthur Ellis: School Enterprise

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Last year, 916 children per day in the UK were referred to the Child and Adolescent Mental Health Service. In some areas of the UK, there are mental health appointment waiting times of up to 2 years.

As with everything, we need to learn from this, adapt and solve. Many of our children are subject to a huge amount of information through a variety of channels including social media, news, peers etc, much, much more than if you look at only ten years ago. With these added pressures, we need to ensure they have a more robust support system in place that is ready to react when they need it.

Arthur Ellis: School Enterprise is a non-profit organisation solving mental health issues. Founded through the real life experience of Jon Manning who suffers with Bipolar Disorder. With the help from Medical Professionals, Teachers and Local Authorities, AEforSchools was created, a support system that embeds itself in schools and mentors pupils on those waiting lists and provides empowering workshops for those within school counselling.

Like many things, a mental health issue snowballs, it doesn’t always go away, it may get worse. With the numbers rising, our young people need to understand and be able to differentiate between good mental health and mental illness and know how to take control of their lives to minimise the effects of it. The more children that can take this control at a young age, the more resilient they will become and be able to live fuller lives as they grow.

One thing that I have learnt from my journey to gaining a diagnosis, is that a support network is key. You need to be able to feel comfortable enough to open up to someone who can listen and work with you to support you. Not everyone will be able to help with everything. Personally, my Mum and Dad had different approaches, I would approach one for certain things and the other for something else.

Another main task I took on was exercise, no matter how small. Some days, I didn’t feel able , which is okay. I would however, make sure I did three lots of exercise per week. I found that setting an achievable goal helped so much with giving me a purpose, I could relate that back to how I felt after a jog or a few press ups and it began feeling better…with that, I added a day. This sometimes took so long I felt there was no progress at all but I knew the most important thing was that I was doing it. I found that my Mum was the part of my support network to help push me to not to forget those press ups! You tend to do it when a strong, female is telling you to!

Making little goals and having a support network to help push you to strive towards goals is a great way of tackling issues. You may need medical intervention but this is a good way to help without it (or with it depending on what you need). It is easier to stop a snowball rolling down a hill while it’s still small. The further down it gets, the more help you will need- and that is OK. Be open. Those that are close to you often understand, tell someone you trust.

When I first told people about my diagnosis I often got the reaction ‘Well that makes sense’. We had all been thinking the same thing but hadn’t spoken about it. I was shaking at the thought of telling people, not knowing how they would react, what they would say and what they wouldn’t say- but how they might look. However, because it was the right people, it was fine, liberating in fact to disclose my bipolar!

So use that network you have around you, talk about how you’re feeling and think about something you love, do it in small doses and get your network to help you complete those goals.

Teach your children the same and they will grow up more resilient, more confident and able to handle the ups and downs of life.

Jon Manning, Founder, Arthur Ellis: School Enterprise  https://www.arthurellisltd.com/

This post was featured by Twinkl in their Mental Health in Schools Blog‘.

Life Whirlwind: Mental Health Writing, Blogging and Speaking, Bipolar Disorder and a trip to Romania.

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(image: Pinterest)

The past few weeks have been incredibly busy- but exciting. This month has been a bit of a rebirth in many ways. My writing and blogging have truly taken off and been published in various different places- this month my story is in Happiful Magazine, two articles for Metro on mental health (www.metro.co.uk), I shared my story in the Jewish News here in the UK and online at STOP Suicide. It has been Time to Talk Day (about mental health), Childrens Mental Health Awareness Week and I have also volunteered this month with Jami (Jewish Association of Mental Illness) Mental Health Awareness Shabbat, which this year came to around 97 Jewish communities in the UK. I attended the panel event at a local community centre and discussion was had on mental health here in the UK, by experts including my friend Jonny Benjamin.

This month, I have also been asked by a friend to come in and talk to his work place about living with anxiety and what it means. So that is hugely exciting for me! I am also writing a mental health article for a top womens magazine- which is a dream of mine. I hope to share that with you when its published.  I have been writing sample chapters for a book too and am in the limbo phase of waiting to hear what editors think.

So, its been a total whirlwind really as I have also been running my blog here and sharing peoples stories (and last month this blog was nominated as a finalist for a UK Blog Award). I was also asked last week if a social media editor could turn my story into a video for her 200 thousand followers so that is in process too. I had not ascertained how much interest there would be in my story.

Professionally, a lot is changing and I have to be very much aware to look after my mental health, to get enough sleep and rest, to make sure I take my tablets on time, to eat well and do some gentle exercise and to see and speak to my friends (and boyfriend of course). I have to keep grounded and rested in order to function effectively. Last week, the Jewish News article came out and I know it has had a positive ripple effect in my community- as my Mum was stopped in the pharmacy for people to talk to her about it. So thats exciting.

I am a shy person at heart and I have written extensively on having social anxiety. When my JN article came out, i actually felt very anxious at first and wanted to hide away. Mental health stigma is still present in my community and I felt scared. But I needn’t have worried as the reaction has been very positive!

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I am still processing all thats going on and I am lucky to have a really good therapist and family/ boyfriend support network to help me deal with the changes going on. I am still adjusting to the financial side of being a freelance writer and pitching to editors at different places. My latest Metro article on child grief came out on Friday and you can read it here: http://metro.co.uk/2018/02/02/children-often-get-sidelined-when-a-family-experiences-loss-why-its-important-we-talk-to-pupils-in-schools-about-grief-7270002/

Over the weekend, I went with my Dad to Iasi, Romania (on the border with Moldova) which is where my great Grandpa and his family were from. It was an eye opening trip- the city is grand and full of culture. However, as Jews we had relatives who died in the Holocaust and found this out using the Yad Vashem Holocaust database when we came back. It was great seeing Iasi but also sad as some of our relatives were taken from there to be killed – but an eye opening trip.

Today, I am feeling thankful and grateful for all thats going on and thankful for you who are reading and following and commenting- and enjoying my work.

With love, Eleanor x

Blue Monday- a Message: Day of Mental Health Self Care

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(image: Excellence Assured)

So today is apparently Blue Monday- the most miserable day of the year, according to the media. Its January, Christmas has ended, the days are still short and dark. But, today doesn’t have to be blue in the sad sense of the word. We don’t have to be down today- even if we don’t feel great or strong.

Today can be about a day of self care, recovering, healing, hoping, dreaming and positive actions that can make your day better. Feeling like you can’t get out of bed today. Try just an hour earlier. Feeling anxious, depressed, low, or wanting to harm yourself? Seek support. Seek help. Don’t feel like you have to hide this or go through it alone.

Self care is so important- whether setting small goals to do, or phoning/ texting someone you love, to doing something, eg reading books, making art or listening to music, for the pure joy of it. Maybe you like running or dancing, maybe you like bubble baths and candles? Whatever is your thing- that thing you love, that heals your mind and body? Do it.

If you like meditation, meditate. If you need to talk to someone you trust, open up. If you need to be quiet and watch a movie, do that. If you want to see a therapist or doctor- go. You may not want to talk but you will feel better to get that weight off your shoulders.

Everyone is an individual. If you are struggling on todays Blue Monday (or Blue Self Care Monday)- please seek that help. You are not strange or weird for feeling how you feel. Mental health touches everyone regardless of age, sex, race or religion.

Remember to keep shining your light… even if its a tiny candle to fight the dark. You have this today. We are all here for you.       

Recovery from Bipolar and Achieving despite the odds: Sam

Sam shares her incredible story of living with bipolar disorder and how she recovered and now helps others as a student mental health nurse. As a student, Sam has worked on a child and adolescent unit, has volunteered for Mind with a theatre project for people with mental health issues and shares her amazing story with us here.

Trigger Warning: Piece speaks about self harm and suicide, please read with care.

 

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(image: bphope.com)

I started to experience anxiety at the age of 10. I remember feeling extremely overwhelmed at the thought of moving to secondary school and although I was very bright in other areas, I struggled with maths and this often reduced me to tears. At the age of 11, I started to struggle to fit in with my peers and became increasingly socially anxious. By the age of 13, I began to experience severe emotional bullying within my school. I had many friends and I was a talented dancer but the effects of the bullying eventually led to feelings of low self-esteem and self-worth. I wish I had had the confidence to speak to my parents about the bullying at the time but I felt ashamed and ultimately believed that there was something wrong with me as a person.

Additionally, I was a high achiever in a high achieving school, in a good area, so I felt the pressure of  these expectations. I had big expectations of myself too, which added to my stress and made life difficult. As I turned 14, I had already had three episodes of what I now know to be depression. I would go for weeks without eating and felt physically unable to speak. I would spend hours in bed and did not feel able to attend school. One day, I decided that I could not cope any longer, I felt suicidal and alone, taking an overdose. My parents took me to hospital and I later saw a psychiatrist at the child and adolescent mental health outpatient’s facility.

The attempt on my life made me feel really ashamed but I did not know why I felt that way and had those thoughts. I couldn’t explain everything to the doctor. I continued to have periods of depression and at age 15, I experienced my first manic episode following a break up with my boyfriend and a significant life trauma. I also had my first episode of psychosis (when your mind loses touch with reality) following this. I was taken into hospital and then sent to a psychiatric unit. Here I received a diagnosis of bipolar disorder (type 1) and was prescribed Lithium to stabilise my mood and anti-psychotics to treat the mania and psychosis. I found this diagnosis really difficult to accept but I was relieved to finally know why I had felt the way I did- and what was causing the depression and mania. It would have been very helpful to have someone tell me at this point that recovery is possible. It is possible to have a fulfilling life despite my condition, but I didn’t know it then.

I returned to school for my last year and I had to drop one of my GCSE subjects to catch up on the work that I had missed. I felt ashamed of my situation- I found school and socialising really hard and because of the greater stigma that was attached to mental health back then, many of my school peers were not very understanding or supportive. I failed most of my exams and felt like a failure. I had aspirations to go to university but due to my grades this was not possible so I had to do an NVQ instead.

I decided to study counselling as my experiences had given me an interest in this area. Unfortunately, I found life with my new diagnosis increasingly difficult and fell into the wrong crowd and turned to substances, alcohol and self-harm as a way of coping. I did not take my medication as prescribed- so consequently had another manic episode at age 17. I became so unwell that I was sent to a psychiatric hospital out of area and sectioned under the mental health act. Here I had high doses of rapid tranquilisation to treat my mania and psychosis.

I recovered from this episode and went back to work. At 18, I was working in a call centre and moved out of home into a shared house. I spent large amounts of money maxing out credit cards. I began to sleep around and had unhealthy relationships, putting myself in dangerous situations. Unfortunately, the people I moved in with were also using substances and this exacerbated my mental health symptoms further. I moved onto using harder drugs. I really didn’t care about myself and felt like my life was over before it had begun- I felt like I had nothing to live for. I started to harm myself again – culminating in an overdose. Then, I was admitted to an adult psychiatric unit on a section 3 (a longer hold in hospital).

By the age of 23, I had had several admissions into this hospital and had also lived in supported accommodation. I had many traumatic experiences in hospital as some of the care I received was not positive. Each episode of mania followed an episode of depression.

At 24, I met a boyfriend who did not use substances and he also had had his own mental health experiences, I fell pregnant and we decided to keep the baby. I then stopped taking substances and began to take care of myself for the first time as I realised my actions would now not only affect my life but another’s too. This was a big turning point in my life. I had a baby girl and came off all my medication. I had an emergency caesarean which was traumatic and I tried to breast feed which was unsuccessful.

However, being a mother with bipolar has its own challenges. I became very low after the birth and had an episode of postpartum psychosis, where you can suffer from delusions and/ or hallucinations. I had to spend time in a psychiatric unit for three months to be cared for and to get well again. Fortunately, my family took care of my daughter during this time. I recovered from this episode and my daughter, my boyfriend and I moved into a two bedroomed flat to make a fresh start.

I had some difficult news that year that spurred me in in my recovery and to make positive change for those of us with bipolar and mental health issues. My close friend that I met whilst living in supportive housing, who also had bipolar disorder, passed away from suicide. This inspired me to then start volunteer work within the mental health services and try to use my own experiences to help other people. My support worker at the time put me in contact with MIND and a local theatre group.

At the theatre group, I met many people who became a positive influence on my life. I started a course in mental health at college in the evenings and helped run the hearing voices group at MIND. I also volunteered in secondary schools educating young people about mental health, the effects of bullying and substance misuse. I also took A level psychology at evening school and completed a year’s social science course at university. My mental health improved and so had my self-esteem and confidence. I finally had purpose in my life as a mum and volunteer with positive friends and family around me. I also had a stable prescribing routine of medicaion- Sodium Valproate,  to help keep my moods stable and no longer going between depression and mania.

This spurred me on to apply for a job on the National Health Service (UK) Nursing bank as a Nursing assistant. I worked in different mental health settings including the hospital that I spent time in as a patient. This felt awkward at first but a Nursing assistant who had cared for me in the past took me under her wing. I really enjoyed the work and realised that this was the career for me as I loved working with people and helping them through their distress. When my daughter started pre-school I applied for a permanent job in one of the hospitals that I did agency shifts in.

That year, my boyfriend and I got married. After working in low secure unit, I moved on to working in a recovery unit and eventually applied for a job in a child and adolescent unit. I continued to have an interest in performance arts and my friend told me about a local theatre project which aimed to challenge stigma and discrimination surrounding mental health. This seemed to be right up my street so I volunteered! We devised two plays during the time that I worked with them. I enjoyed acting and spending time with others that had experience of mental health. We also wrote a book with stories and poems related to mental health which was later published. It felt great to be back challenging stigma and using the arts as a way of doing this.

I spent five years working at the child and adolescent unit and really enjoyed working in early intervention with young people. I had my son during this time and although I had another caesarean and a low period post natal, the overall experience was much more positive as I had stability and a good insight into my mental health.

As my son grew up, I decided to start my access to nursing and maths GCSE at evening school. It was hard to look after two children, work and attend college but I passed and gained a place on the mental health nursing degree at University. My manager also advised me to apply for the nursing scholarship and I was successful. My trust is paying for my training and I will have a job as a mental health nurse on qualifying.

15 years ago,  I really didn’t think I would be where I am in my life today. It really does show that with the right support, lifestyle and for some, medication that recovery is possible. Remember your diagnosis is just one small part of you it doesn’t define you and unlike some people in society mental illness does not discriminate – it could happen to anyone of us.

Guest Post by Reviews Bee: How to Prevent the Negative Impact on Child Mental Health

(image: http://acelebrationofwomen.org/2015/02/childrens-mental-health-matters-take-action/)

The physical health of children has always been an important aspect. Nowadays with the increase of stressful situations, modern medicine is concerned about the importance of childrens mental health, as it plays an important role in their personal development, upbringing and growth into adulthood.

There can be negative impacts on a child’s mental  health, which can be demonstrated as depression, anger, addictions or other mental health conditions.  If you notice behavioural changes in your child, you should take important steps to reach out and help them.

First, identify the reasons.

Everyone faces daily problems and children are not an exception, but in contrast to adults, they are not always able to cope with the relevant issues or take steps to get out of the situation. At times, they may be unable to properly express their feelings appropriate to the situation.

It should be noted that psychological health is formed by the interaction of internal and external factors, including environment. Amongst the most common situations causing mental disorder are tense situations in the family, problems at school such as bullying or low grades and sometimes internet bullying via social media.

As soon as the problem is identified, you, as a parent, should go forward and help your child as much as you can . The following steps are good approaches to the problem:

  1. Communicate with your child

Always have time to talk to your child. Be interested in their problems and show that you care, ask them to tell you about their day and try to understand troubling points in their daily life. You should be able to give advice, but understand their rights to make their own decisions and respect their opinions. Learn to treat the child as an equal partner, so they will share their sincere feelings and problems- so you can help.

 

  1. Help your child with their lifestyle

If home or school is a difficult environment, try and make it as calm as possible for your child. It is good to balance work and relaxation for the child. Make sure that they sleep on time, as proper sleep is required for their nervous system to calm down. You can even help the diet of the child with good nutrition and include more food rich in protein, vegetables and fruits. It is also good to encourage positive activities and hobbies.

 

  1. Teach positive thinking

Help your child to find and see sources of positive emotions. Positive thinking will also help the child to find inner peace in different situations. Encourage the child to build plans for the future, set goals and develop ways of reaching them. Being a role model for your child is so important with this.

 

  1. Boost the childs self-esteem

You should help your child to increase self-esteem, as this can be at the core of unhappiness or mental health issues at home or school. Your task is to prove their worth and how good they truly are. You should assist the child in finding their confidence and improving their self esteem so they can thrive. If you struggle with this, it may help to contact a therapist to help them.

 

  1. Work with a psychologist.

Many parents decided to get their child referred to work with a psychologist. If your child is truly struggling, this can be helpful. Some tips and guidance granted on the specific needs of your child may prevent future problems and boost their mental health.

This article was written by Reviews Bee at http://www.reviewsbee.com/