Coming Home For The Mental Health Awareness Shabbat And Self Care by Eleanor

Happy new year everyone! Gosh its nearly the end of January and I havn’t written a blog for a while so thought I would share some things that have been happening here and talk a bit about mental health stuff too.

Firstly, my mental health is fairly stable at the moment, as has been the case for a number of years. I don’t get typical bipolar depressive or manic episodes on my medications and this year is my 9th year out of hospital , which is always a positive. However, I still suffer with anxiety and stress and get overwhelmed so have to pace myself! I have bad days too where things feel too much but thankfully they don’t escalate into a depression.

So for the positives- I have achieved some huge anxiety wins for me. Since November, I have been on the tube (first time in 3 years), I have gone up to the West End with Rob to the theatre using public transport, my panic attacks have been lessening, I have been able to see more people in person and I also passed my probation at work and have been made permanent (huge win!). I am someone who struggles with agarophobia when I feel more anxious and stressed and going out alone can still be a challenge.

I have been allowing myself to venture into previously anxiety provoking situations- for example, I get cabs alone home from work. I had to start doing this last year and it helped me get back into the world again. It wasn’t easy due to many fears I had but I have been able to do it, slowly. My job is also hybrid so I can work from home too- but getting back out into the world and having kind work colleagues at an office has been such a vital part of my recovery too. My therapist has been so helpful in dealing with the panic attacks and anxiety and I do still get triggered but at the moment on a lesser scale. I still find blood tests, hospitals and general health stuff scary because of what I have been through. I really recommend therapy.

I sometimes do have to cancel arrangements when things feel too much so am sorry to anyone I have had to postpone… its not easy and I hate doing it as I feel bad… but I am learning the balance of looking after me and socialising too. I don’t always get it right but I am trying.

Then, my friend in Bushey, Lee, texted me a few weeks back and asked if I would like to speak in my childhood community for the Jami (Jewish charity) Mental Health Awareness Shabbat. I hadn’t done public speaking about my story since before Covid in 2019, when I spoke with my Dad Mike at Limmud and at Chigwell shul (synagogue, my husbands community). I have had drama training so for me speaking publicly as someone else is OK, but when I have to stand up and share my own story, I get nervous as its so personal. The first time I was asked to speak in a shul at Belsize Square, I made it to the community but my Dad had to give the talk by himself as i was too panicked to attend the service. I managed in time to dip my toe in slowly, always with the support of my Dad and my therapist.

This talk in Bushey felt significant. It’s the Jewish community I grew up in and was a part of until I was 23. I felt like I was going home. The Bushey team told me they had two other speakers, but would I like to speak and share my story with bipolar disorder?

I thought to myself… I am ready, my panic attacks and social anxiety are more under control. To me being asked to come home to Bushey shul was a sign. My Grandpa Harry passed away in 2021 from Covid- and he and Grandma had lived in Bushey since the 1990s, when we were little. Our family lived in both Bushey and Bushey Heath and I studied at Immanuel College, across the road from our home and my grandparents. The area contains so many happy memories for me. I knew the new senior Rabbi and Rebbetzen, as he had officiated at my grandparents funerals and was so kind to our family. My Dad is also still a member of the shul and I still know a lot of people who live in the community too. Its a very special community and one I am proud to be from (and still feel.a small part of despite not being a local anymore).

So, I decided, with my Dad and Rob’s support on the day (and anxiety meds), that I could stand up in shul and speak with the other two speakers on the Shabbat (sabbath) morning. My Mum and step dad were supporting from afar and looking after our guineapigs.

The senior Rabbi and Rebbetzen hosted us for the Friday night which was wonderful as we got to meet lots of new couples and see the Ketts, the other Rabbi and Rebbetzen! For lunch after the service, we went to Lee’s house, which was very special as she was my batmitzvah teacher and is a good family friend.

I was initially told the talk was going to be in a break out room- but on the day it was decided that it would be from the pulpit. Last time I ventured to that pulpit and stood up there was when I was 12 years old, sharing my batmitzva portion of the Torah. The year my Dad was very ill and diagnosed with bipolar. I became ill just 3 years later.

Now, here I was back as a married woman of 34, revealing about the mental illness that had found its way into my family and caused a lot of devastation. However, the main reasons I wanted to stand up and talk about bipolar disorder are because I know that this illness runs in families, many Jewish families struggle with it. I wanted to give the message that you can live with this illness but you can have periods of remission, recovery, you can find hope.

And as I spoke to the audience of people – many of whom I had known since my childhood, who saw me grow up and saw my family eventually leave Bushey for Edgware, I felt humbled. I felt honoured to be asked to speak and I hoped that by sharing my own journey with bipolar (being diagnosed at 16, in hospital twice, the last time in 2014 for a very serious manic episode), that I could touch someone who needed to hear it. My Dad gave me permission to tell his story too.

When I grew up in. the early 2000s, talking about mental illness and particularly in Jewish spaces, was not the norm. I hope that through sharing my own journey and my Dads (he was undiagnosed for 9 years until he was 44), that I will have helped someone.

Most importantly, I felt I had come home. The kindness and warmth shown to me by the members of the Bushey community who I have known since I was a little girl was something so incredibly special and touching. People confided in me after the service about their own struggles. Others thanked me for sharing my story. I was hugely touched by the other two speakers who spoke after me about their own journeys with mental health and their children’s. I won’t name them here in case they want to be anonymous but I learnt so much from them and their experiences.

So I want to say a huge thank you to Lee, to the Rabbis and Rebbetzens and to everyone in Bushey who I have known for years and have loved- for hosting us, for inviting me to talk about something so personal in such a special community. It touched my heart. I really hope it helps.

I genuinely did not know how I stood up there to speak to 90 odd people- what kept me going is knowing I was doing this to help eradicate the stigma of mental illness but also I hope that the words I spoke gave comfort to anyone going through mental illness, that it does get better. It can improve. You won’t be ill forever.

When I was unwell in 2014, Jonny Benjamin MBE was speaking and sharing about mental illness. He taught me that sharing your story to help others is vital. So thanks Jonny for all your support too (whether you knew you gave me the courage or not :).

I also want to thank Jami charity, Laura Bahar and Rabbi Daniel Epstein. I was part of the volunteering team that helped set up the first mental health awareness shabbat. The project has blossomed and is now annual and it is truly wonderful to see.

What I want to clarify is that although I am currently a lot better with my anxiety, it is very much a grey area, day by day thing. That can be hard for people to understand- how one day you can be great with loads of energy and the next you have to stay home and recuperate- self care. But I think knowledge of mental health is increasing now, so do check in with your friends and family and offer a safe space without judgement- its so helpful.

Thank you again for reading this if you got this far. You can do whatever you put your mind too- reach for help from medical teams, medication, therapists and never give up.

With gratitude and love,

Eleanor

x

The Book of Hope is Out Now!

I have written here before but I am so excited to say that the Book of Hope, which features my essay ‘Of Hope and Sunflowers’ and put together by my friends Jonny Benjamin MBE and Britt Pfluger is out now!

Happy Publication Day!


It is such an honour to be in a book with so many incredible people in their own fields talking about overcoming their own adversity and mental health issues.

As I write, the book is currently 16th in the bestsellers chart for all books on Amazon.

Hugely thankful to Jonny and Britt for including me in such a great project.

You can get your copy here: https://www.amazon.co.uk/dp/1509846379/ref=cm_sw_em_r_mt_dp_3VAKJ0JC6HV05ZYMNHW2

The Book of Hope- 101 Voices in Overcoming Adversity by Jonny Benjamin MBE and Britt Pfluger. by Eleanor

To readers of my blog,

(image: Pan Macmillan/ Jonny Benjamin)

I don’t really know where to start! I have been keeping this secret for almost two years.

Nearly 2 years ago, my friends, mental health campaigner/author Jonny Benjamin MBE and author and editor Britt Pfluger, approached me to be a part of their second book entitled ‘The Book of Hope: 101 Voices on Overcoming Adversity‘ (published with Bluebird/ Pan Macmillan in April 2021!).

They asked me to write a piece on how I found hope and recovery after being unwell and my (ongoing) journey with bipolar disorder that I wrote about in my own book Bring me to Light.

I won’t give too much away about the piece I wrote, but it does include my Dad’s story too and talks about life after being sectioned for a manic episode in 2014. It talks about hope, healing, recovery and living with mental illness. It talks about being afraid of the future, but finding light in the darkness.

Heres what Macmillan say about the book which is available for pre order on Bluebird Pan Macmillan website and Amazon. It also contains anecodotes from famous faces including Lemn Sissay, Zoella (Zoe Sugg), Joe Wicks and Dame Kelly Holmes.

There is always hope, even when we cannot seem to seek it within ourselves.

The Book of Hope is an anthology of 101 key voices in the field of mental health, who share not only their experiences with anxiety, psychosis, panic attacks and more, but also what helps them when they are feeling low. Compiled by award-winning activist Jonny Benjamin and author Britt Pflüger, the inspirational contributors in this book range from the likes of Lemn Sissay, Frank Turner and Zoe Sugg, to Elizabeth Day, Hussain Manawer and Joe Wicks; from authors, poets and musicians to charity workers, activists and psychiatrists.

Jonny Benjamin is known for his book and documentary film, The Stranger on the Bridge, which fought to end stigma around talking about mental health, suicidal thoughts and schizoaffective disorder. When his campaign to find the man who prevented him from taking his own life went viral, Jonny was one of a wave of new figures lifting the lid on mental health struggles. In this book, he brings together a range of voices to speak to the spectrum of our experiences of mental health and the power of speaking up and seeking help.”

It is a real honour and privilege to be a part of this project. A dream come true and I am so thankful to be able to share my story on this platform with truly important voices! We all have mental health and our voices deserve to be amplified.

The Book of Hope is available to pre order now and published in 2021.



Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

bringmeinsta1

(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x

 

Extract from my article for Metro UK: How to Improve on-screen depictions of Mental Illness

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This is an extract from an  article our founder Eleanor Segall wrote for Metro.co.uk. To read the full article click here:

http://metro.co.uk/2018/02/21/how-to-improve-on-screen-depictions-of-mental-illness-7315828/

As someone with bipolar disorder, I am often intrigued by depictions of mental illness on TV and film. For many years, mental illness has been stigmatised, and this has been reflected on screen. Thankfully, this stigma is beginning to be broken down, but it is still present.

In her award-winning article, Mental Illness in the Media, for the International Bipolar Foundation, Hosana Tagomori, who was a high school student when she worked on the piece, wrote: ‘The media often portrays characters with mental illness as incomprehensible, tortured and convoluted… the entertainment value often gets in the way of an accurate portrayal. ‘Patients are perceived as dangerous or insane, due to the inaccurate portrayals in media, where the character is almost always hopeless, deranged, and dangerous.’ ‘It is quite easy to subconsciously absorb these misconceptions.’

Indeed, this is a challenge that those of us with mental health issues face. We want our illnesses to be portrayed correctly and accurately on screen, without having to watch stereotypes. Depictions of mental health can be disappointing

Tagomori wrote: ‘In the television series Homeland, the bipolar character always seems to be the pop-eyed, insane mess who is constantly going ballistic: ranting, drinking and screaming’. While this can be true for some people with bipolar in the middle of a manic episode, it is not a balanced approach to the illness. We know that people with bipolar disorder can often be stable and well on medication and that a long time can elapse between episodes.

Portrayals of those with mental illness as ‘insane messes’ raises dangerous misconceptions, including that people with mental health problems will never get well. For me, a brilliant representation of bipolar disorder and postpartum psychosis appeared on EastEnders in 2015.

This centered around a story line for pregnant character Stacey Fowler (played by Lacey Turner), who has the disorder and experiences a psychotic episode after giving birth. Before watching the scenes in which Stacey has psychosis, I was concerned how it would be shown on screen, but I needn’t have worried. Sensitive, accurate portrayals of mental illness on screen can help to educate viewers EastEnders worked directly with the charities Mind and Bipolar UK to create the story line, so the script and performance were as accurate as possible.

In 2015, Dominic Treadwell Jones, producer of the story line spoke to the Radio Times, he said: ‘EastEnders have worked closely with Mind, Bipolar UK, other experts in the field and women with personal experience to show a story that is true and painful, while also filled with the usual twists and turns viewers have come to expect from EastEnders. Lacey is one of the most raw and intuitive actresses on TV.’

Also speaking to the Radio Times about the EastEnders story line, Clare Dolman, vice chair of Bipolar UK, said : ‘As the national charity supporting people with bipolar, we’ve been glad to work closely with the BBC on Stacey’s storyline. ‘There is a very high risk that women with bipolar will become ill when they have a child and 20-25% of them will have a postpartum psychosis, so it’s fantastic that EastEnders are raising awareness of this devastating condition.’

In the scenes where Stacey is experiencing psychosis, the character believes she is the Virgin Mary and that her baby is Jesus. She experiences delusions and auditory hallucinations. I was concerned about how I would feel watching it, but what I most felt was a sense of pride that British television was portraying bipolar correctly, sensitively and appropriately.

Read more: http://metro.co.uk/2018/02/21/how-to-improve-on-screen-depictions-of-mental-illness-7315828/?ito=cbshare

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