Category: ocd

Letter to my MP: On Mental Health and Talking Therapy Waiting Lists

~ Eleanor Segall ~ 10 Comments

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(image: Imperial College)

I have just responded to a letter that my MP replied to me today. The other day I wrote to my MP here in London about the Mental Health Units (Use of Force) Bill which aims to stop dangerous restraint in mental health hospitals. This was a campaign through the charity Rethink Mental Illness.

I was sadly less than impressed with the response I received even though it was quick, my MP quoted a lot of figures at me. Now, one of these figures, ‘750,000 more people accessing talking therapies since 2009/10’ really got to me. In 2015, I had a short course of NHS cognitive behavioural therapy which was useful but didnt help my anxiety. However, since late 2015/ early 2016, I have been on the therapy waiting list for talking therapy to help me process the trauma I have been through, Almost 2 years later, I am still on the list and have had to go privately which is less than ideal as you will see in my letter below. I hope it resonates with you and that my MP will use my case study in parliament ( one can only hope):

Dear MP,

Thank you for your swift response to my letter regarding the Mental Health Units Use of Force Bill. In your letter to me, you stated ‘more people accessing mental health services every day….as well as around 750,000 more people accessing talking therapies since 2009/2010’.

As someone with Bipolar disorder who was hospitalised (and sectioned) in 2014 for 4 months, with another 4 months in day hospital due to psychosis and mania, I have been on the waiting list for talking therapy since 2015- almost 2 years ago. When I recently went to a review with my psychiatrist, he said he would speak to psychology for me but that because the service is over stretched I may have to seek therapy via local charities or go privately. Being that I am currently waiting to start work and on ESA, I couldn’t afford private therapy without help from my family and I have had to go private which is grossly unfair due to the trauma I have faced. However, as you state, more people are accessing mental health services meaning that even in someone with a case such as mine, I have had to wait for talking therapy and effectively given up on NHS support in that regard.

I hope you will use my case study as an example in parliament when discussing mental health with Theresa May and your party and would appreciate a response. 

Yours sincerely,

Eleanor Segall

Guest post: How nOCD App helps thousands with OCD- Obsessive Compulsive Disorder by Stephen Smith

~ Eleanor Segall ~ 2 Comments

stephensmith
In the summer of 2014, I was tired of struggling with OCD, Obsessive compulsive disorder, so I decided to do something about it and begin my app, nOCD. nOCD, standing for “No OCD”, is an online platform that I believe would have helped me during the worst of my struggles and that currently is already helping thousands of others with OCD today. The platform is designed to help people with OCD during all four phases of treatment: 1) coping with the onset of OCD symptoms, 2) selecting a care team, 3) actively managing OCD treatment, and 4) maintaining OCD treatment progress.

My team and I at nOCD are able to address each phase of treatment using a unique combination of highly vivid content and 21st century technology. For instance, people with OCD can view our content on Instagram or Twitter at @treatmyocd and download nOCD for free on the App Store (m.treatmyocd.com/saveslives).

People with OCD say the app has been a major difference maker. It gives people guidance in the moment of OCD episodes, a structured platform to do Cognitive Behavioural Therapy (CBT) exercises, a community to talk with others (in beta), and real-time data 24/7. Here is more information about how it works:

  1. SOS Guidance: nOCD offers members clinically effective guidance in the moment of any OCD episode, using OCD specific Cognitive Behavioural Therapy. During an episode, members can hit the button “SOS” on their phone, which tells the app to immediately provide Mindfulness Based Cognitive Therapy and Acceptance Commitment Therapy (Response Prevention). For instance, if the member is obsessing, nOCD will ask questions such as: “Are you experiencing an Obsession or a Compulsion?”,  “What Obsession are you experiencing?”. “What triggered the Obsession?” And “How intense is your anxiety?” Then, based on the answers, nOCD will offer specific Acceptance Based Therapy guidance, to help the member effectively respond to the obsession without doing a compulsion. We believe the SOS feature can empower people with OCD to live their lives fully, knowing help is always in their pocket.

  2. Structured ERP Exercises : nOCD provides members with the tools and organization needed to consistently do planned OCD treatment exercises regularly and effectively, acting like a mental gym. The main challenge with doing these planned mental exercises is that they instigate anxiety. Since the anxiety alone can reduce OCD treatment adherence rates, the app attempts to remove all pain point. It offers members the ability to create loop tapes, scripts, and drawings. It also has built in exercise reminders and educational tips.

  3. Custom Therapy : nOCD customizes the entire treatment process to each member, helping augment therapy with licensed clinicians. Patients can customise their hierarchies, their compulsion prevention messages (acceptance based messages), their ERP schedule, and more.

  4. 24/7 In-App Support Group :Inside the nOCD app, people with OCD can join different support groups and anonymously post to each groups wall. We’ve created a platform where people can support each other through treatment and learn quickly that they are, in fact, not alone.
  5. Real-Time Data Collection: It collects real-time data about every aspect of the patient’s condition and treatment. It also longitudinally displays the data for every patient and clinician to see at any time. nOCD protects each users PHI data to the highest degree possible. For example, it uses a dedicated (encrypted) Ec2 instance on Amazon Web Services, SSL connection, Touch ID login access, LastPass Password security, and new, monthly, VM keys. nOCD is a HIPAA compliant commercial enterprise.