Category: psychiatrist

Learning to Accept and Embrace Having Schizoaffective Disorder This Mental Health Awareness Week by James Lindsay

~ Eleanor Segall ~ 7 Comments
(image: Mental Health Foundation)

I do often wonder how long I had schizoaffective disorder before my diagnosis, but I guess I will never know. Back in 2016, I had my first experience of displaying symptoms of Schizophrenia (such as delusions), when I suffered from my first psychotic episode.

Before that, I had not really heard of any of these medical terms. I used to wrongly associate schizophrenic people with characters from the film ‘One Flew Over the Cuckoo’s Nest’. I thought they were lost causes who needed constant care, I didn’t think they could be functioning members of society like everyone else, and I feel bad that I used to think that. But I had a lack of education and personal experience.

In late 2019, I suffered from a relapse and had another experience with psychosis (which can be defined as losing touch with reality with delusions and/or hallucinations).. In early 2020 I was finally diagnosed with Schizoaffective Disorder. For those who are unsure, this condition is where symptoms of both psychotic and mood disorders are present together during one episode. ‘Schizo‘ refers to psychotic symptoms and ‘affective’ refers to mood symptoms. It is often described as a cross between Bipolar Disorder and Schizophrenia, as it includes symptoms from both of those conditions.

For me, it is currently something I am able to keep at bay, mainly thanks to my medication but also through being self-aware and looking after my mental wellbeing. I take Quetiapine (200mg slow release) every single day and I am more than happy with that. I have my tablet in the evening, which then helps me fall asleep without much struggle.

Without my meds, I can tell you now that I would be in all sorts of trouble. Every now and then I might forget to take it until just before bed, which means I need much longer to fall asleep because it takes a couple of hours to kick in.

That is ok though, as long as it’s not every night. But I know for a fact that without the medication, I am much more likely to start having delusions (irrational thoughts) and have an episode. Both my 2016 and 2019 episodes happened because my sleep was terrible and at times non-existent. I used to take sleep for granted, which is easy for anyone to do, but if you don’t let the brain repair itself it can lead to all sorts of problems. Just remember that psychosis can happen to absolutely anyone, I would not wish it on my worst enemy.

I am learning new things about my Schizoaffective Disorder all the time. I have joined a few Facebook groups which are supportive communities full of people with (or supporting those with) the same condition, such as this one which has nearly 18k members. For example I discovered through this group that some people who take meds before dinner (e.g. 4/5pm), find themselves waking up around 3am when they’ve worn off. They realised taking them an hour or so after dinner can give them a better sleep.

I have read books by authors with mental illness and they really help normalise it and give me peace of mind. I recently read ‘The Stranger on the Bridge’ by Jonny Benjamin (who is also Schizoaffective) and this gave me so much comfort. When you read a story that has parallels to yours, it gives you so much more hope and confidence that you can overcome your own adversities. Podcasts are a great source of help too and there are plenty out there that cover all kinds of mental illnesses.

I am also fortunate that my job gives me more opportunities to enhance my understanding of the disorder. I am proud to work for Hertfordshire Mind Network (my local mental health charity) as Fundraising & Marketing Officer, who are really supportive and always ask if there is anything they can do to help with my condition. I would advise anyone with mental illness to make your employer aware, because that’s the first step to them being able to support you and make any adjustments you might need.

I think ever since I changed my attitude to being schizoaffective, I have been able to befriend it and realise it’s not my enemy, but part of who I am. I used to feel embarrassed and was maybe even in denial at first. When I had the shame, I was never in the right mindset to go out and learn what this illness actually is, what is it doing to me, what should I look out for, what are my triggers/warning signs, what help can I get from other people.

The reality is – millions of people are schizoaffective and they are some of the best people you can encounter. They are incredible for living through it every day and I am proud to be one of them.

I hope you found my post useful and big thank you to the wonderful Eleanor Segall for the opportunity to contribute to her fantastic blog! If you’d like to connect over mental health you can find me here –

(image: James Lindsay)

@JamesLindsay23– Twitter

What It’s Like To Go Through Severe Depression as a Bipolar Episode: Looking Back by Eleanor

~ Eleanor Segall ~ 14 Comments
(image of Eleanors book Bring me to Light: Eleanor Segall/ Trigger and Welbeck publishing)

TRIGGER WARNING- DISCUSSES SUICIDAL IDEATION, SELF HARM AND BIPOLAR DISORDER. PLEASE READ WITH CARE

This weekend, I went home to my mums to celebrate the Jewish festival of Pesach (Passover) and have some quiet, family time. It was wonderful and because our religious laws mean we don’t use the internet, our phone on our festivals, it meant I had time for digital detoxing and switching off. But with that silence, came space. To think and reflect.

Something you may not know about me is that as well as being a writer, throughout the years I have been a prolific diary (journal) writer. The act of putting pen to paper and type to keyboard has always been therapeutic for me in my darkest moments. I found a diary I had written in 2013, when I was living with depression, suicidal ideation and self harm thoughts and actions.

The journal was covered in butterflies- always my symbol of hope. I don’t want to trigger anyone so I will say this carefully- essentially, I was so unwell that for me, my symptoms were: sleeping until the afternoon with a slight break for a meal or tablets, not socialising, finding it hard to wash due to increased anxiety and lethargy, feeling like I didn’t want to wake up the next day and wanting to harm myself in various ways- but being so frightened by these thoughts (because i knew they weren’t really Eleanor) that i had to vocalise them to my family and psychiatrist to keep myself safe. Thats what I did and its why I am still here today, in recovery.

I lived with this depression for about 6 months- my psychiatrist was encouraging me to try Lithium to stablise the bipolar but I wasn’t ready and wanted to see if Quetaipine could halt that. As we know, I became hospitalised for mania soon after in 2014 which led me to recovery and writing my book Bring me to Light.

When you live with an illness like bipolar disorder, you can sometimes forget the nuances of all the details of how you were when you were unwell. For me, I always felt that I handled the depressive episodes ‘better’ than the mania- just because I was able to keep myself as safe as possible by telling my family and doctor and changing medication. My psychiatrist had to come out to see me at home with a nurse as I was so unwell and I wrote out how I felt for him to know.

So many people live with terrible episodes of depression so this blog is just looking back and giving you some knowledge of how it manifested for me. Essentially, depression is a slowing down of the mind towards inactivity, darkness, misery, anxiety, agitation and it is often triggered due to changes in hormones and brain chemistry (if you have a family history its more likely to happen). Depression is not just low mood. Its paralysing. Its not wanting to be in the world and being in so much emotional pain. You may think of ways to harm yourself and you may dream of not being in the world. Or you may be ‘high functioning’. I somehow managed to go to friends weddings during this time despite spending the other days in bed til 5pm- I have no idea how- anti depressants and support helped greatly. However, my depression was dark and invasive.


Now, I had forgotten a lot of these finer details. For me, I never truly wanted to die- I wanted the uncontrollable bipolar to go! The suicidal ideation was my bipolar brain chemistry but also an expression of not coping with life and the bipolar moods I had been given- I was 24 and I couldn’t enjoy life- i was wracked with anxiety too. My mental health was fragile and unstable and it is no way to live- but what saved me, was being hospitalised and finding medication and therapy that has helped me to live in remission (thank God) for 7 years now.

I can say now that my brain chemistry is balanced and even if i ever get sad or frustrated, I don’t have those awful thoughts and if they ever come up, I can deal with them. I have such a supportive partner and family- my family and psychiatrist saved me as well as me trying to save myself- I frightened myself with my thoughts and I had some semblance of being able to keep myself going, which is not possible for everyone. It helped that my Dad has bipolar and could really understand what was going on for me too- he understood exactly how I was feeling but he knew it was the illness and not Ellie. I feel so lucky for that because not everyone has this. My mum, step dad and sister and wider family also were so supportive and never blamed me for being unwell. That helped too. My faith also has helped me dearly,

(Me at 25 when I was going through depression. This photo was a selfie taken when I was dressed up to go to a friends wedding and my sister had done my make up. There were no photos with messy hair or red eyes and tears. I never looked this good when I was in bed til 5pm most days in my PJs).

If youve got this far thank you for reading. My mission is to help others with these conditions feel less alone, through sharing my own experiences. I have been careful not to reveal what certain thoughts were here so I don’t trigger anyone.

If you live with depression and a host of other issues, you can recover again. Hold on. You will not feel like this forever and you can find a level of happiness and stability again. Reach for help, someone you trust, a help line, a psychiatrist and don’t give up.