Petition with Bipolar UK: Speed up Bipolar Diagnosis to Save Lives. Lets Talk Bipolar by Eleanor

(image: Bipolar UK charity)

Please sign this petition to the NHS to speed up bipolar diagnosis to save lives. As I write in my book, my Dad Mike was diagnosed 9 years after he got ill and just 4 years before me. I believe I was only diagnosed at 16 years old because my Dad received his diagnosis. Additionally, my Dad was pushed to the brink of suicidal ideation (thoughts and plans of suicide) but was able to control this once he saw a psychiatrist finally after nearly 10 years- so many can’t. My Dad was saved just in time. He often says the love for his family stopped him, but for some, they are even more ill and cannot focus on this.

A new campaign by the amazing Bipolar UK charity and the new government Bipolar Commission to tell the NHS:

Speed up bipolar diagnosis to save lives
· There’s an average delay of 9.5 years between people first contacting a health professional about symptoms and getting an accurate diagnosis of bipolar
· 60% of people said this delay had a significant impact on their life
· 84% of people said a diagnosis was ‘helpful’ or ‘very helpful’

A diagnosis makes it possible for someone to get effective treatment and support, and to live well with bipolar.

It’s estimated that at least 5% of people who take their own life have a diagnosis of bipolar. The shorter the delay in diagnosis, the sooner someone can empower themselves with effective self-management and foster a positive circle with fewer relapses in both the short and long-term.

In my own family, myself and other relatives here and abroad have been diagnosed with this condition. It is so important to get correct treatment.

#letstalkbipolar

Please sign here, thank you:

‘The Meaning of Normal’: Living with a sibling with mental illness : Guest post by Shira

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(image: Thought Clothing)

It hasn’t been normal for so long that sometimes I forget what normal should feel like. When I try to think about it, it feels like a glimpse into someone else’s life, and I am an invasive stranger, trying to reach something that doesn’t belong to me.

What is normal?

Sometimes I think I remember it.

Sometimes I think that normal is that time when I was six and you were three and we didn’t fight. When we played hand in hand like every other child, and our entire world was pink and purple, and the most important thing to us was that our dolls had shiny blonde hair.

And we would play every game under the sun, from barbies to dollhouse to the convoluted imaginary ones that only we knew the rules to, and even then did we ever really know the rules?

I was a witch and you were the princess. We were both witches. We were both princesses. I stole your magic time machine but you found another one, and our living room became the entire universe as we ran through it, believing wholly in the pictures we created, the way that only children can.

But did we ever really exist like that? Were we ever those idyllic children, the children that every parent wishes to have?

Maybe our normal is all the times when I was ten and you were seven and we would push and shove and slap. You were my younger sister who could do no wrong and I was the older one, always blamed for both our shares of misdemeanours.

“You should know better!” They would shout

“But she started it!” I would pout.

“It’s not true!” your bottom lip would stick out.

I think we all know that I probably did start it.

We would fight and yell and cry and shout, never giving in, never admitting that we were wrong. Because we weren’t wrong. We were both right, all the time, every time, and the other was always painfully mistaken. And we roared and yelled and scratched each other, but knew only to cry when a parent was looking. And if nobody was looking, well then nobody would see if we punched back just one more time.

But were we ever really like this? Two demonic screaming children who were never silent and never content with just each other? Were we really the children that every parent dreads to have?

Maybe our normal is the way we grew apart as we grew older. When I was 15 and you were 12 and I would pretend not to know you as I walked past you in school. And maybe our normal is the way we would come home from the same school at the same time separately, both of us walking different routes from the bus because being seen with one another would be unacceptable. Maybe that’s what all teenagers do. Maybe that really was our normal.

Maybe our normal was what came next.

Maybe the years we didn’t talk to each other was what we were always heading towards. Because one day we would put down the dolls, and one day we would run out of things to fight about and we would just…exist.

One next to the other.

Sitting in silence.

Neither speaking.

Neither bothering to reach out first.

Because now I’m 18 and you’re 15 and I don’t remember the last time I spoke to you. The house is thick with anger, so thick that it poisons every interaction, and I couldn’t even tell you what I’m angry about. Because the sister I played with, the sister I happily fought with but would jump on anyone else who dared fight with her is in pain. So much palpable pain, and for the first time I couldn’t just make it go away.

Was I angry with you?

Yes.

Was I angry with myself?

Yes.

And so I let this become our normal. A normal where two siblings exist side by side, but don’t even know how to speak without offending. Where everything I say hurts you and everything you say angers me.

So we made this our new normal.

And I don’t care.

I don’t care.

I don’t.

I care.

And now I’m 20 and you’re 17 and I’m 3000 miles away. But this is our normal now. We don’t speak. We can’t speak. But it doesn’t even matter because there’s nothing to speak about anymore. How can I ask how you are when I already know the answer, and I know it’s not an answer I want to hear. How can you ask how I am when you’re too focused on making it through your own day without worrying about mine?

And anyway, it’s been a long time since we told each other how our day was. Not since I was 14 and you were 11 and we would awkwardly walk home from the bus stop together, backpacks moving up and down and up and down as we compared notes about school, neither of us loving it, neither of us willing to admit that out loud.

But we are not those children anymore, and we don’t have any shared experiences to talk about anymore.

I wonder if you miss me like I miss you. I wonder if you count down the days to my birthday too, hoping that we will both make it past 17 and 20, willing time to hurry up even though maybe all I really want to do is turn back the clock.

And then you are 18, and it’s been 18 years since I sat by your tiny cradle in the hospital and cried when we left, maybe because I wanted another chocolate bar from the hospital vending machine, or maybe because secretly I don’t want to leave my baby sister in a cold hospital far far away.

But now you are 18 and I’ve still left you in a hospital far away and it’s still just as hard to leave you there as it was all those years ago. But a 21 year old can’t lie down on the floor and have a tantrum so I keep going and keep going and this is our normal now.

A normal where you’re there and I’m here. A normal where we won’t speak for months on end but then I text you and tell you I miss you and now you answer me too, and I think you miss me too. A normal where we joke and laugh at stupid posts we see on Instagram,  tentatively, both of us till remembering when you were 14 and I was 17 and we ripped each other apart with words until neither of us said anything at all. Is this our normal now?

What is normal?

I looked it up for you.

 

NORMAL:

  • Conforming to a standard, usual, typical, or expected

 

But who gets to decide what that standard is? How do we know when something that once wasn’t normal now is, and if what was once normal is now anything but? Do we decide that? Or do others who stand by and watch get to decide that for us?

I’m sure someone could tell you the scientific answer. I’m sure there is a video out there with a detailed and meticulous answer laid out for us to study.

I’m sure somebody could tell us the answer. Maybe we haven’t even been normal, maybe we always were.

Maybe the imaginary games of our childhood were always meant to turn into imagined grievances causing real rifts. Maybe we were meant to grow apart and then come back together again, a little rougher but a little kinder. Maybe none of it was normal, or maybe all of it was.

Sometimes I wish I could change all of it. If I hadn’t said what I said that one day, or if I hadn’t slammed my door that one time, or if you hadn’t called me that name under your breath, things would all be different now.

But sometimes I know I can change none of it. And maybe that’s ok. Maybe if we hadn’t played all those games as children, if we had never walked down the road together from school, if I had never sent the texts you eventually answered, things would all be different now.

Normal isn’t for us to decide, it isn’t for me to determine. All I know is our normal is all we have, and I wouldn’t change us for the world.

About:

Shira is a writer living in Israel, drawing on every day life experiences. Her sibling lives with a diagnosed mental illness and she has bravely shared their story here.