Schizophrenia

(image of Ardmore, Scotland by http://scotlandwildlife.blogspot.com/2011/07/tobermory-to-ardmore-bay-isle-of-mull.html )

My name is Graham Morgan. This is my story of how I’m coping under lockdown.

I have just got back from walking Dash the dog round Ardmore. There was not a person in sight; just the sound of the curlews and the crows, the roar of the cold wind in the trees and the sound of the waves on the seashore. It gave me a chance to think and ponder on this first day of lockdown. It blew my tiredness away. As I reached the point; I looked along the Clyde to Dunoon; where my sister works as a midwife and hoped she was ok and thought about my brother, a medical director and psychiatrist; having to make decisions about the future that no one should have to make.

Driving the two minute journey home I passed the post office van ; strange to see the postie with his mask and blue gloves. I felt slightly guilty for being out and had to remind myself that we are allowed one exercise session a day; that walking the dog counts as that.

I am so lucky compared to others. My friend phoned last night to say he had just managed to get home after breaking the news to his friend’s sister that that friend had killed himself days ago. Back to an email saying he was sacked from his job and that his tenant. who he shares his house with, was leaving the house as London, feels too unsafe. To deal with that?

I found out recently a Twitter friend was passing round my book on a psychiatric ward. The thought of being back in hospital but with no visitors and all the restrictions that happen now, fills me with horror; makes my last hospital stay feel pleasant.

Yesterday a young man contacted me on Facebook to say how much he enjoyed my book START and how he was now in self isolation. I remembered he had been in hospital for months and months; was just getting used to his first flat; getting back to education, finding joy in his creativity. I remembered the loneliness I felt when I lived alone; those days when there was no one to speak to, to share a smile with. How it tore at me! Slapped me to the ground with sadness. I think of so many friends who are already lonely; lost in their lives, lacking the energy to even make a cup of tea.

I am indeed lucky. So far in our tiny household we have got over the twin’s meltdowns when we took them out of school last Monday. How frightened they were and how much they miss their friends. Home schooling for the moment is fun, I imagine, as the weeks go, by it will get harder. We are lucky we still have perspective; not to get angry and argue because of our own anxiety.

I am used to being awake in the early hours, yet somehow I am sleeping OK at the moment and have decreased my drinking.

My understanding of the world (due to my beliefs at the moment) is that I am evil and bringing about its destruction; I think I am partly responsible for the fires and floods; the wars but, for some reason, coronavirus seems to have nothing to do with me. I have no idea why, but it is a relief.

I have more realistic worries, like the special care my Mum made to get a long tight hug when I left her in England to go back up to Scotland.

We have been working from home and have been more or less self- isolated since Monday because my partner has asthma and yet her separated husband is a key worker and looks after the kids too. There is relief that these are ‘real’ worries that I can grasp; not my usual ones.

The most pressing concerns are how to work from home as well as home schooling the children; how to get bread and eggs. The biggest inconvenience has been having to queue outside the chemist for my anti depressants; thankful that my GP realised I was taking them too infrequently and that now I am back up to the required dose I feel so much more relaxed.

I have one quandary; a minor one. I went to get my jag (injection) yesterday for my mental illness. The CPN (community psychiatric nurse) who gave me it had no more protection than normal. It was quick and painless.

He said he didn’t know where the community mental health team would be soon; they may be based with another more urban one by my next appointment. He said that if I, or anyone else near me, got any symptoms I was to phone in but that he had no idea what they would do if I did; that I might have to take oral medication.

At that I was lost because, of course I would have to; not doing so at such a time would cause so much trouble but, at the same time; I am on a community section because I cannot make myself take medication, how can I agree to that, if it happens?

I have my work, I have food, my lovely family and Dash the dog who cuddles tightly up to me every night. I have my writing, my books, my music. So many people I know have nothing approaching that.

I think I am glad I don’t have the imagination to see the scale of what is happening and am not torturing myself with the ‘what ifs’. Good luck to all of you who may not be in such a good place. Let us all help each other as best we can over the coming weeks.

Graham Morgan has an MBE for services to mental health and is the Author of START (by Fledgling Press) a memoir of compulsory treatment, love and the natural world. Available from Amazon and Waterstones on line.

He can be found at @GrahamM23694298 on twitter and at Graham Morgan – author; on facebook or at the Scottish Booktrust Live Literature database at https://www.scottishbooktrust.com/authors/graham-morgan

by Rhona Mackenzie, Clinical Director, Deepdene Care

For more please clink link above or see http://www.deepdenecare.org.uk/

Be Ur Own Light is happy to partner with Deepdene Care,a health provider in the UK

At Deepdene we support people with severe mental health issues such as psychosis.

As mental health problems are often complex and involve an array of factors, the best course of action for any case is structured, multi-faceted approach that is rolled out over months and possibly years with the primary objective of reducing the impact of the condition on an individual’s life.

As a service provider we have to look at the bigger picture:

Staff have a deeper understanding

A high level of staff training is an intrinsic part of any treatment and care plan.

We train staff to understand and increase their knowledge of all mental health conditions. In the case of psychosis, they are taught to be aware of what hallucinations and delusions are, so that they can act in a proper, effective manner, and are also taught how brain chemicals can affect people. This gives them an educated insight, which not only helps with treatment, but allows them to understand what an individual is going through, ensuring empathetic responses.

In addition, staff have to have an understanding of the side effects of medication. So, again, they are properly equipped to be able to help the service users and approach them with understanding.

Therapies and activities

Therapies and activities are also a key factor in the recovery process, especially occupational therapies, where service users are able to fill their time with meaningful activities. This helps individuals gain routine in their lives, bringing a sense of direction back into what they do and acting as a representation of everyday life.

Getting to know the person and their symptoms

It is essential that anyone with psychosis under our care is supported and treated as an individual, as each case is completely different from another and symptoms can vary quite dramatically. This is why we place a great deal of focus on listening to patients, observing their behaviours and supporting them in every way possible.

We also promote therapeutic relationships between staff and service users, with the central goal being to build trust and respect among them.

Destigmatising mental illness

As a mental health provider, we have to advocate and educate people to destigmatise mental illnesses and accept the person the way they are – promoting empathy among team members and throughout the service as a whole.

If a person has had a mental illness they are usually more understanding and empathetic towards another mental health sufferer. If a service user/person is being discriminated against, we may need to support them on how to deal with that.

Outside support

We also support those with psychosis through outside professionals like psychologists.

But, and we can’t stress this enough, none of our work would be effective, if we don’t support, respect and accept the individual for the way they are.

Mental Health Recovery

Our ultimate goal is to have individuals be responsible for their own behaviours, which is why we look to educate them to self-support their own physical, emotional and social needs, while we are on hand to offer support when necessary. Almost like a safety net to cushion any falls individuals may have on their personal journey to recovery.

It’s important to dispose of any one-size-fits-all solution. This is about treating the person as an individual, accepting their illness as part of their individuality while at the same time seeing them as a whole person and not just defining them by their mental health condition.

Self-belief is a huge part of the recovery process and we’re able to help individuals develop their esteem, empowering them by educating them on relationships, finance, occupation, choices, diet, exercise and lifestyle. Placing control back into their own hands through guidance and advice.

It’s important to understand individuals so that we know when they are at their best, at which point we can work with them to develop crisis and relapse plans and find out exactly how they’d like to be treated. Essentially it’s a two-way street, and we place a great deal of importance on working with individuals to find the best path.

Tag: Schizophrenia

Guest Post: How Deepdene Care helps support people with psychosis.

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