On World Bipolar Day I Hope For: The Road to Remission by Eleanor

(image: World Bipolar Day)

Today is World Bipolar Day and for those of us living with bipolar disorder we know that living with it every day, year round is more accurate. However today is our day to talk about life with mental illness and to try and eradicate the stigma around the illness… ‘crazy lady’ ‘nuts’ ‘drama queen’.

World Bipolar Day is designed to raise awareness worldwide of bipolar conditions and to work to eliminate social stigma whilst providing information to educate and help people understand the condition.

Even though I live in remission/recovery with the illness, I am medicated daily to be this way, and I have undergone years of therapy and learnt coping methods too, with support from family.

Well, before I found medication that stabilises my bipolar highs and lows, life looked very different.

There were times I couldn’t work. I was so depressed I lay in bed in all day, only getting up to eat. I was scared to have a shower and wash my hair.

Life looked bleak. All I wanted was my duvet and oblivion. I had intrusive thoughts about ending my life, I was in a lot of emotional pain and this would last for weeks, sometimes months on end.

Bipolar isn’t just a bit high or a bit low…. its depression and mania, suicidal ideation and psychosis, self harm thoughts, hypersexuality, hyper activity, believing delusions that aren’t real…..SO much. Its episodic but it can ruin your life. Some turn to drugs, alcohol, sex to cope. Some hear voices too.

I have been in hospital twice for fairly long stays. I have been sectioned under the mental health act and held in a hospital unit against my will. I have been injected with sedatives to calm my mind and body when I couldn’t consent. I have met people in hospital who were suicidal, anxious, depressed, high on drugs, in psychosis. I lived on a ward where I heard people being restrained.

So, not much fun really. Luckily this month I am celebrating 9 years of remission out of hospital! I also came out of hospital as a nervous wreck and thankfully, therapy has helped.

(Image: speakingbipolar.com)

This blog is inspired by one of my followers who asked me what was my ‘Aha’ moment in recovery.

As well as finding the medicine Lithium, a salt that controls the mood fluctuations, the biggest thing I did for my own healing was go through therapy for my panic attacks and PTSD like symptoms. This was done with the support of my husband and family and because I has been on an NHS waiting list for 2 years, I needed help. My therapist and I have done EMDR trauma therapy which has helped me to process things.

In fact, I still do get anxiety attacks – just less. I have been in a very good place generally in the past year. Finding support at home, at work and from friends and family has been the most stabilising part.

I have had bipolar since I was 15, I am 34 and can tell you that this has not always been the case and my mental health has and will fluctuate.

I learnt recently that bipolar brains are neurodiverse, meaning our brain chemicals act differently to a neurotypical brain. Always good to understand the biology behind it too as this illness can be inherited and run in families- my Dad and I and other relatives have it.

On World Bipolar Day I hope:

-Employers adhere to the disability act and make reasonable adjustments to help those of us with bipolar to work in a better way for them, including hybrid working.

-People with mental illness aren’t fired because they can’t get to a physical workplace.

-Mental health services need better funding, so that people with bipolar can get a correct diagnosis sooner and get the help they need.

-People not in the Western world will get access to mental health medication and therapies that they desperately need.

Thank you for your ongoing support,

Eleanor

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Read more about my journey with bipolar in my book Bring me to Light

World Bipolar Day: Extract from my blog for the Centre for Mental Health by Eleanor

 

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(image: Centre for Mental Health)

‘Like so many sharing their stories this World Bipolar Day, I have lived experience of bipolar disorder. I am now 30, but was just 16 when I was diagnosed with bipolar 1 (the most severe form of the mood disorder) as an inpatient at the Priory Hospital North London. It was hard to deal with this diagnosis at such a young age and I didn’t know then what my future would hold. I was hospitalised due to having three episodes of illness: mania and depression in one year, which led to psychosis, where my mind lost touch with reality.

Bipolar is a serious mental illness that causes a change in mood states to either big manic highs or devastating depressive lows, with a normal state of functioning between episodes. As someone living with this, I also have experienced psychosis during my mania which needs quick hospitalisation as my mind spirals wildly out of control. I have been hospitalised twice for my bipolar (in 2004 and 2014), both times due to an extreme episode of mania and psychosis.

As a teenager in hospital, I was depressed, anxious, fearful and vulnerable. I believed (falsely) that I had been sexually abused and my reality became based on this false belief (delusions). The doctors got me back to full health through a combination of starting on new medicine (mood stabilisers) and giving me anti-psychotic medication to bring me down from the mania. Over four months I also had one to one therapy, group therapy with the other teenagers in the adolescent unit and was supported by an incredible team of nurses and a psychiatrist who believed I could get well. I eventually went home once my mind was stable and started a long process of counselling and recovery.

I was able to go to university and get my degrees, travel, make friends, date and live my life. However, in 2013, after some life stressors, I began to experience a depression which featured suicidal thinking. It was very scary and we believe it is because my medicine Carbamazepine wasn’t working any more as I got older.

Depression of this kind is incredibly hard to deal with. I stayed in bed all day most days with breaks for meals. I had no energy, no hope, no reason to get up. I was unmotivated and couldn’t cope with life. I barely washed or spoke to friends. Luckily, due to my fears about the suicidal thoughts, I shared this with my family and medical team. I didn’t want to act on it, just escape from the pain my mind was in.

Unfortunately, a few months later, the depression turned into a period of mania, possibly caused by my mood stabiliser not working and taking anti-depressants. This is always a risk with bipolar, that medicine can send you high. I was agitated, speaking very fast, with racing thoughts, raised libido and was vulnerable as a result. The psychosis then started, with my mind starting to believe falsely that I was being held by a criminal gang orchestrated by my family. It was so scary. I was sectioned, treated with medication again and over several months engaged with therapy in hospital, while they tried to bring my mood and mind back to lucidity.’

Read full blog here: 

https://www.centreformentalhealth.org.uk/blog/centre-mental-health-blog/bipolar-disorder-eleanor

 

World Bipolar Day is Tomorrow!

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Tomorrow, join in and learn what you can about bipolar disorder.

As many of you know, I have bipolar 1 disorder and when not on medication, have episodes of high mood- mania/ psychosis and low mood- severe depression. Thankfully I am in recovery but it affects so many people and is thought to run in families.

Remember you are not alone.

Bipolar UK-  https://www.bipolaruk.org/

Bipolar in USA: http://www.mentalhealthamerica.net/conditions/bipolar-disorder