Coming Home For The Mental Health Awareness Shabbat And Self Care by Eleanor

Happy new year everyone! Gosh its nearly the end of January and I havn’t written a blog for a while so thought I would share some things that have been happening here and talk a bit about mental health stuff too.

Firstly, my mental health is fairly stable at the moment, as has been the case for a number of years. I don’t get typical bipolar depressive or manic episodes on my medications and this year is my 9th year out of hospital , which is always a positive. However, I still suffer with anxiety and stress and get overwhelmed so have to pace myself! I have bad days too where things feel too much but thankfully they don’t escalate into a depression.

So for the positives- I have achieved some huge anxiety wins for me. Since November, I have been on the tube (first time in 3 years), I have gone up to the West End with Rob to the theatre using public transport, my panic attacks have been lessening, I have been able to see more people in person and I also passed my probation at work and have been made permanent (huge win!). I am someone who struggles with agarophobia when I feel more anxious and stressed and going out alone can still be a challenge.

I have been allowing myself to venture into previously anxiety provoking situations- for example, I get cabs alone home from work. I had to start doing this last year and it helped me get back into the world again. It wasn’t easy due to many fears I had but I have been able to do it, slowly. My job is also hybrid so I can work from home too- but getting back out into the world and having kind work colleagues at an office has been such a vital part of my recovery too. My therapist has been so helpful in dealing with the panic attacks and anxiety and I do still get triggered but at the moment on a lesser scale. I still find blood tests, hospitals and general health stuff scary because of what I have been through. I really recommend therapy.

I sometimes do have to cancel arrangements when things feel too much so am sorry to anyone I have had to postpone… its not easy and I hate doing it as I feel bad… but I am learning the balance of looking after me and socialising too. I don’t always get it right but I am trying.

Then, my friend in Bushey, Lee, texted me a few weeks back and asked if I would like to speak in my childhood community for the Jami (Jewish charity) Mental Health Awareness Shabbat. I hadn’t done public speaking about my story since before Covid in 2019, when I spoke with my Dad Mike at Limmud and at Chigwell shul (synagogue, my husbands community). I have had drama training so for me speaking publicly as someone else is OK, but when I have to stand up and share my own story, I get nervous as its so personal. The first time I was asked to speak in a shul at Belsize Square, I made it to the community but my Dad had to give the talk by himself as i was too panicked to attend the service. I managed in time to dip my toe in slowly, always with the support of my Dad and my therapist.

This talk in Bushey felt significant. It’s the Jewish community I grew up in and was a part of until I was 23. I felt like I was going home. The Bushey team told me they had two other speakers, but would I like to speak and share my story with bipolar disorder?

I thought to myself… I am ready, my panic attacks and social anxiety are more under control. To me being asked to come home to Bushey shul was a sign. My Grandpa Harry passed away in 2021 from Covid- and he and Grandma had lived in Bushey since the 1990s, when we were little. Our family lived in both Bushey and Bushey Heath and I studied at Immanuel College, across the road from our home and my grandparents. The area contains so many happy memories for me. I knew the new senior Rabbi and Rebbetzen, as he had officiated at my grandparents funerals and was so kind to our family. My Dad is also still a member of the shul and I still know a lot of people who live in the community too. Its a very special community and one I am proud to be from (and still feel.a small part of despite not being a local anymore).

So, I decided, with my Dad and Rob’s support on the day (and anxiety meds), that I could stand up in shul and speak with the other two speakers on the Shabbat (sabbath) morning. My Mum and step dad were supporting from afar and looking after our guineapigs.

The senior Rabbi and Rebbetzen hosted us for the Friday night which was wonderful as we got to meet lots of new couples and see the Ketts, the other Rabbi and Rebbetzen! For lunch after the service, we went to Lee’s house, which was very special as she was my batmitzvah teacher and is a good family friend.

I was initially told the talk was going to be in a break out room- but on the day it was decided that it would be from the pulpit. Last time I ventured to that pulpit and stood up there was when I was 12 years old, sharing my batmitzva portion of the Torah. The year my Dad was very ill and diagnosed with bipolar. I became ill just 3 years later.

Now, here I was back as a married woman of 34, revealing about the mental illness that had found its way into my family and caused a lot of devastation. However, the main reasons I wanted to stand up and talk about bipolar disorder are because I know that this illness runs in families, many Jewish families struggle with it. I wanted to give the message that you can live with this illness but you can have periods of remission, recovery, you can find hope.

And as I spoke to the audience of people – many of whom I had known since my childhood, who saw me grow up and saw my family eventually leave Bushey for Edgware, I felt humbled. I felt honoured to be asked to speak and I hoped that by sharing my own journey with bipolar (being diagnosed at 16, in hospital twice, the last time in 2014 for a very serious manic episode), that I could touch someone who needed to hear it. My Dad gave me permission to tell his story too.

When I grew up in. the early 2000s, talking about mental illness and particularly in Jewish spaces, was not the norm. I hope that through sharing my own journey and my Dads (he was undiagnosed for 9 years until he was 44), that I will have helped someone.

Most importantly, I felt I had come home. The kindness and warmth shown to me by the members of the Bushey community who I have known since I was a little girl was something so incredibly special and touching. People confided in me after the service about their own struggles. Others thanked me for sharing my story. I was hugely touched by the other two speakers who spoke after me about their own journeys with mental health and their children’s. I won’t name them here in case they want to be anonymous but I learnt so much from them and their experiences.

So I want to say a huge thank you to Lee, to the Rabbis and Rebbetzens and to everyone in Bushey who I have known for years and have loved- for hosting us, for inviting me to talk about something so personal in such a special community. It touched my heart. I really hope it helps.

I genuinely did not know how I stood up there to speak to 90 odd people- what kept me going is knowing I was doing this to help eradicate the stigma of mental illness but also I hope that the words I spoke gave comfort to anyone going through mental illness, that it does get better. It can improve. You won’t be ill forever.

When I was unwell in 2014, Jonny Benjamin MBE was speaking and sharing about mental illness. He taught me that sharing your story to help others is vital. So thanks Jonny for all your support too (whether you knew you gave me the courage or not :).

I also want to thank Jami charity, Laura Bahar and Rabbi Daniel Epstein. I was part of the volunteering team that helped set up the first mental health awareness shabbat. The project has blossomed and is now annual and it is truly wonderful to see.

What I want to clarify is that although I am currently a lot better with my anxiety, it is very much a grey area, day by day thing. That can be hard for people to understand- how one day you can be great with loads of energy and the next you have to stay home and recuperate- self care. But I think knowledge of mental health is increasing now, so do check in with your friends and family and offer a safe space without judgement- its so helpful.

Thank you again for reading this if you got this far. You can do whatever you put your mind too- reach for help from medical teams, medication, therapists and never give up.

With gratitude and love,

Eleanor

x

Jami Charity See Mental Health Campaign: 36 Hours to Raise £1 Million

(image: Jami)

My dad Mike and I have been fundraising in the past day for a cause which is close to our heart. Jami mental health charity serves our community, the Jewish community here in the UK and beyond.

We have been asking people to donate to Jami’s match funded campaign to raise £1 million to support existing services and also to pilot a new service for secondary school age children. Referrals during the pandemic have risen and mental health support is much needed for under 18’s too.

We are fundraising because we ourselves have been affected by mental health (bipolar disorder) in our family. I was diagnosed at just 16 and had good NHS care in hospital but at the time, there was little support in the Jewish community available for me as a child. Mike was diagnosed at 44, a few years before me, and was thankfully helped to recovery.

We are both great supporters of Jami’s work (I am a Jami volunteer and we have both spoken at the mental health shabbat) and we believe this service will be vital for caring for secondary school children. Services are stretched and children are put on long waiting lists.. this is where Jami would come in to support a child and their family.

Today,, the campaign hit over its £1 million pound target and it is just incredible to see our community funding (badly needed) mental health support ! Its been wonderful to play a small part in this campaign- we have hit over £2000 of funding on our page!

This is so very close to our hearts due to our experiences and those in our community who are struggling. We want to raise as much as we can to support this service- every pound you donate will be doubled so please give as generously as you can. Thank you so much!

Please donate here, we so appreciate it : https://www.charityextra.com/jami/151

Coronavirus Thoughts: Acts of Kindness and Mental Health by Eleanor

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(image: Readers Digest)

Dear friends,

This has to be the strangest time in all our lives. Not being able to leave the house for fear of passing on a deadly virus, all the family working from home, worrying that symptoms are indeed Covid 19.

This outbreak has already infected friends and potentially family. I think I may have had a mild version and have been isolating for at least a week already, and now until the danger passes. Thinking of all my friends who are affected and anyone who has the virus or whose life is being disrupted because of it.

There are good things happening- acts of kindness, communities pulling together, sunshine and flowers and spring blooming. Supermarkets opening for NHS workers and the vulnerable, the homeless being housed in hotels, financial help from the government (although can we please help our self employed workers more?).

I do worry though about the impact the virus will have on those with mental health conditions. My appointment with a psychologist to help me with my PTSD has been postponed and no new date given. I can’t go to see my therapist either but I think will organise a Skype call so that we can continue the EMDR trauma therapy I have been having. Medication supplies are so far unaffected.

I am lucky to live with family at the moment and have the support of my husband, mum and step dad and wider family too. For those living alone, having to buy groceries and navigate this new and scary world alone is terrifying for them. I was heartened to see this week, the Jami appeal for the vulnerable in the Jewish community. Mental illness does not discriminate and with all the pressures at present, suicide remains a real risk. We can combat this through checking in on friends and family regularly and signposting them to emergency support such as the Samaritans or crisis teams.

It is a scary time but we all must pull together and reach out to each other, by video call, phone call, whatsapp message or more and try, from our homes, to look after the vulnerable and our neighbours.

Most importantly, we must look after ourselves and our households and try to stay well.

How are you coping?

Love,

Eleanor x

We are 4! On Be Ur Own Light’s Fourth Blog Anniversary by Eleanor

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Its Today- 1st March 2020 and Be Ur Own Light is 4 years old! (cue the streamers!)

I still remember starting this blog as an outlet for my fears, thoughts and emotions dealing with my bipolar and anxiety. The blog started as a way to tell my friends and family how I was feeling and has evolved into working with guest bloggers and now brands/ partners on sponsored wellness posts too! Writing the blog and sharing thoughts has been so therapeutic and it has taken me on  a journey that I could not have imagined.

In November 2019, I published my first book Bring me to Light with Trigger Publishing which is the book of my life story with bipolar disorder, anxiety and my life in general (travelling, going to drama school, starting a career as a writer). The blog has also grown so much this year and is currently nominated in the Mental Health Blog Awards for Blogger of the Year, thank you to our nominee!

Additionally, Vuelio awarded us as a Top 10 UK Mental Health Blog for the second year running and interviewed me (Eleanor) about working as a blogger!  Thanks also to Feedspot.com and My Therapy App for listing us in their mental health blog lists too for social anxiety and bipolar!

This year, I have written about World Bipolar Day for the Centre of Mental Health, about my search for EMDR therapy on the NHS, living with depression in winter, about writing my book and new life changes (getting married) and 2020 new year round up with hopes for the future. We also promoted mental health campaigns such as Shout UK text line (founded by the Duke and Duchess of Cambridge and Prince Harry and Meghan),  Christmas 4 CAMHS, Time to Talk Day and Mental Health Awareness Week. Additionally, I spoke in Essex with my Dad about our joint story with bipolar for the Jami Mental Health Awareness Shabbat and we also spoke at Limmud Conference in Birmingham!

This winter I did some interviews for the book which can be seen on the Book tab above and also received some lovely reviews. It was amazing to appear in Happiful Magazine’s bonus wellness Mag this January (edited by campaigner Natasha Devon) and to write for Glamour and Bipolar UK. I also enjoyed being interviewed for the Jewish News and Jewish Chronicle! Hopefully at some point I will do podcasts about it too and more interviews.

From March 2019-2020, the blog has attracted wonderful and talented guest bloggers wanting to spread their messages about mental health and wellness.

We have also worked with the following brands on sponsored and gifted posts and hope to work with many more this next year :  YuLife, Nutra Tea, Essential Olie, Loveitcoverit on mental health apps, I-sopod floatation tanks, Core Wellness Maryland, Wellbeing Escapes Holidays.

My guest bloggers have written about their recovery and living with mental illnesses, as well as advice on how to improve your mental health. There a posts for whether you are going through a divorce, a bereavement, are stressed or have anxiety. We also had posts with people’s first hand experiences of mental illness including a brave post about being a sibling of someone with mental illness and one of living with an eating disorder. Furthermore, Be Ur Own Light has also covered World Mental Health Day and Time to Talk Day this year, featuring personal mental health stories as a way to raise awareness and fight misconceptions.

We have also covered new books coming out, a mental health fashion brand and a song about social anxiety, as well as posts about different therapies to help you.

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Thank you to my amazing guest bloggers (non sponsored) March 2019-2020 for your fantastic content:   

Ashley Smith- How Massage Therapy helps Anxiety Disorders

Emily Bartels- 5 tips for a mental health emergency plan

Dale Vernor- Understanding PTSD by Gender 

Tan at Booknerd Tan- How audio books and walking has helped anxiety

Emma Sturgis- Loving yourself, tips for a body positive life

EM Training Solutions- How to maintain mental health at work

David Morin- On social anxiety and talking to others

Lyle Murphy- How equine therapy can help those with mental health issues

Charlie Waller Memorial Trust- Best of Musicals event

A Time to Change Hypnotherapy-  Hypnotherapy for self esteem

Nu View Treatment Center- The connection between anxiety and substance abuse

Shout UK- Royal family launches mental health text line

Mental Health Foundation – Mental Health Awareness Week  May 2019 Body Image

Emerson Blake- Coping with the stress of becoming a single parent

The Worsley Centre- A guide to therapies and finding the right one for you

Byron Donovan at Grey Matter – How I recovered from depression to form a fashion brand 

Luci Larkin at Wooley and Co Law- How to reduce stress and maintain mental health during a divorce

Nat Juchems- How to keep your loved ones memory alive after bereavement

Emily Ilett- on her book ‘The Girl who Lost her Shadow’

Mark Simmonds- an interview about his book ‘Breakdown and Repair’ with Trigger Publishing

Curtis Dean- 5 facts about music for stress relief

Robert Tropp- How quitting illegal drugs helps anxiety in the long term

Aaron James- the difference between psychotherapy and counselling

Dr Justine Curry- 4 ways to help a friend with bipolar disorder

Christmas 4 CAMHS campaign for children in childrens mental health wards

Ani O- 4 ways to ease the fear of doctors appointments

Katherine Myers- Ways that spending time outdoors can improve your mental health

Anita- 5 ways to lift you out the slump of seasonal depression

Chloe Walker- taking care of your child’s mental health

CBT Toronto- how to deal with social anxiety and depression

Katy- a true story with anorexia and OCD

Vanessa Hill- Life changing habits to bring into the new year

Rachel Leycroft- Expressing social anxiety through songwriting

Shira- Living with a sibling with mental illness: the meaning of normal

Capillus- 10 signs you may have an anxiety disorder

Brooke Chaplan- When therapy isn’t enough 

Jami Mental Health Awareness Shabbat 2020 

Mike Segall- Time to Talk Day- 9 years undiagnosed, my story with bipolar disorder

Jasveer Atwal- Living with PCOS and managing mental health

Leigh Adley at Set Your Mind Free- How CBT helps children with anxiety

Lizzie Weakley- How to heal and move forward when you have an eating disorder

Sofie- Living with an eating disorder

Thank you so much to all of you and I am excited to see what 2020-21 brings for the blog!

Be Ur Own Light continues to be read globally and I love receiving your messages about the blogs and finding new writers too.

Heres to a 2020 of positive mental health, of fighting the stigma against mental illness and creating a positive and supportive community here. 

Happy 4th birthday Be Ur Own Light!  ❤ May this be an enlightening year of growth for us.

 

Love and Light always,

Eleanor    

xxx

Talking for the Jami Mental Health Awareness Shabbat 2020 by Eleanor

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As some of you will be aware, back in 2017-2018, I helped as a volunteer with fellow volunteers (Lisa Coffman and others) to found the Mental Health Awareness Shabbat (Jewish sabbath) in our communities across the country here in the UK. The initiative, led by the mental health charity Jami and conceived by Rabbi Daniel Epstein, now runs in 150 Jewish communities.

This year, my dad Mike and I were delighted to be asked to share our father and daughter journey with bipolar disorder to Chigwell and Hainault Synagogue.

I have social anxiety- which includes at times a fear of public speaking. In December, I had a breakthrough, where I spoke for a short time at a conference called Limmud alongside my Dad and read from my book Bring me to Light. So, when we were asked to do this talk at Chigwell, I felt it could be possible.

I armed myself with the fact that I knew kind people in the community including the Rabbi and his wife and friends of my husband Rob (its the community he grew up in). I also wanted to share my story to help other people.

So, we stayed with a lovely lady in the community and had friday night dinner with the Rabbi and his family. On Saturday morning, I woke up feeling a little nervous but took my trusted anxiety medication for when I need it- Propranolol, and walked to the synagogue with Dad.

I managed not to have a panic attack and the thought of speaking to help others got me through (as did distraction, deep breathing and drinking a glass of water).

So, at the end of the service, we were called up to speak. Dad went first and talked about his journey with bipolar disorder from when it started for him in 1991 to finding recovery. Then, it was my turn.

I stood up there in the pulpit speaking to a packed audience with a prepared speech. I felt scared but also empowered and began to relax into the talk. I knew that by sharing what happened to me, being sectioned and so ill and talking openly, that I could break stigma and touch others. I was also so proud of my Dad for speaking so openly.

It was only after, when talking to people after the service, that we realised that about 150 people came to listen to our talk! We had some important conversations with people after our talk including someone very newly diagnosed and someone else whose niece had bipolar and is currently very ill.

I couldn’t and still can’t believe I was able to do that. However, since I have been very tired so trying to de-stress and rest as much as I can!

We just want to thank everyone who came to hear our talk and supported us, to every person who thanked us for coming and shared their stories with us. We are so grateful for such a positive reception and thank Rabbi Davis and the Chigwell community for having us.

The Mental Health Awareness Shabbat has had events in communities all across the country. It runs yearly and you can find out more here