Category: psychosis

Befriending My Brain: A Psychosis Story. Exciting New Book by James Lindsay and Cherish Editions

~ Eleanor Segall ~ 3 Comments

(image: James Lindsay/Cherish Editions)

I first ‘met’ my Twitter friend James Lindsay online when he was first starting to talk about his schizoaffective disorder and psychosis. James also works for Mind doing important work in the mental health sphere and we both live locally to one another. I am really proud of James’s determination, not only in his own life, but to help others through his writing and his new book ‘Befriending My Brain’ with Cherish Editions (Trigger Publishing).

An eye-opening memoir about a young man’s descent into schizoaffective disorder– and the steps he took to regain control of his life.


It’s no secret that, in recent years, mental health has become a major topic of conversation. But just because many people feel comfortable discussing their depression, anxiety or other mental health conditions, doesn’t mean that we have removed all stigma from such diagnoses. This is especially true when it comes to psychotic disorders, which affect less than 1 in 100 people in the UK each year (Mind), thus leaving these disorders shrouded in mystery. It doesn’t help that what the media portrays as schizophrenia or psychosis is not always what the sufferer experiences in real life.


As such, it’s vital that we start to bring psychotic disorders, including psychosis, to the forefront. According to a 2016 report from Public Health England, “psychosis is one of the most life-impacting conditions in healthcare.” But with the proper treatment and understanding, it doesn’t have to be life-altering. The same report states that the sooner someone
is treated for their psychosis, the better the chances that they will recover and return to their normal
lives.


James Lindsay has experienced the ups and downs of schizoaffective disorder first-hand, and his book does the vital work of removing some of the mystery surrounding such a diagnosis. It includes the red flags he recognises in hindsight after psychosis landed him in hospital for the better part of a month, but it also retells the inspiring journey he took to recovery in all aspects of his life.

In his case, psychosis and his path to better mental health gave him a new passion in life: helping others through their own diagnoses and getting their lives back, just as he did. No matter where readers are on their journeys, James’ memoir will resonate and remind them, as he puts it, that “recovery is always possible, and hope is never far away.”

(image: Trigger Publishing/ Cherish Editions/James Lindsay)

I can’t wait to read it and review it too!

You can buy a copy of Befriending My Brain: A Psychosis Story by James Lindsay at Amazon, Trigger, Waterstones, WH Smith and all good bookshops.

MORE ABOUT THE AUTHOR
Hailing from Watford, Hertfordshire, James Lindsay works for Hertfordshire Mind Network and uses his free time to advocate for mental health care by blogging and appearing on podcasts and TV. James enjoys playing football, going to the cinema, spending time with friends and family, and exploring new places, with his partner, Holly. Befriending My Brain is his first book.


How To Tell If You Or A Loved One Needs Psychiatric Help by Brooke Chaplan.

~ Eleanor Segall ~ 2 Comments

(image: free image)

Mental illness can affect anyone, regardless of age, gender, or background. It is important to recognise the signs and symptoms of mental illness in order to get help as soon as possible. Knowing what to look for can be tricky, so here are some common warning signs that you or a loved one may need psychiatric help.  

Unexplained Changes in Mood and Behaviour  

One of the most common signs of mental illness is a sudden and unexplained change in mood or behaviour. This could include changes in sleep patterns, eating habits, energy levels, attitude towards others, or motivation levels. If you notice any sudden shifts in these areas that last more than two weeks and cannot be attributed to a specific event or life change, it may indicate an underlying mental health issue.  

Negative Self-Talk or Rumination  

Another sign that someone needs professional help is if they frequently engage in negative self-talk or ruminate on the same thoughts over and over again. For example, if they often say things like “I’m not good enough” or “I can’t do anything right” without any basis for those statements, this could be a sign that something more serious is going on beneath the surface. Additionally, if someone spends hours every day thinking about their mistakes from the past without being able to move forward—this could also be an indication that professional help is necessary.  

Isolation from Friends and Family  

Finally, if someone begins isolating themselves from friends and family members more often than usual—or does not seem interested in having conversations with them—this could be another indicator that something more serious is happening mentally. It’s normal for people to want some alone time once in a while—but if you notice your loved one consistently avoiding social activities and interactions with others over long periods of time—it may mean they need extra emotional support from a professional psychiatrist before they can get back on track.   

Other Behaviours

Other behaviours you should watch out for is frequent tearfulness, self harm thoughts or ideas, suicidal thoughts and ideation- as this indicates someone is reaching a crisis point with their mental health. In some there may be an increase in activity or mania. This can lead to psychosis- where your mind loses touch with reality, common in bipolar disorder and schizophrenia (but can also happen outside these conditions).

Mental health issues are complex and often difficult to recognise at first glance. However, it’s important to understand that early intervention can make all the difference when it comes to managing mental illness effectively. If you notice any of these warning signs in yourself or a loved one—don’t hesitate to reach out for help!

Professional psychiatric services should always be sought out when necessary as this will create better outcomes for everyone involved in the long run. In the UK, that may be via the NHS but due to overwhelmed services, if you can afford private treatment, go down this route as it will be quicker!

This article was. written by Brooke Chaplan, freelance writer.

What It Means To Have An NHS Perinatal Psychiatry Planning Meeting.

~ Eleanor Segall ~ 3 Comments
(image: Oprah Daily)

Yesterday was the first NHS meeting with the Perinatal (pre conception/birth) Psychiatrist. I didn’t know what to expect from it, though a few weeks ago I had the non NHS meeting with a very good consultant psychiatrist. They were both lovely women who are very good at their jobs- I had had to initially try for a private referral due to NHS waiting lists, but then managed to get an NHS appointment.

I was a bit nervous to see how the NHS would handle it, as they will be who I have care with going forward, so I was pleasantly surprised to be treated with respect and insight and kindness. I know that sounds weird, but those of you who know what my hospital admission in 2014 was like, will know that it wasn’t all plain sailing. Due to lack of insight, decisions happened about me and not always with me and so to feel empowered for me and my husband is very important.

Essentially these meetings now I have been well for a long time, are to plan ahead and discuss psychiatric history, what medications are needed, how it can be managed and what this would mean for a foetus and baby too. Birth carries a strong risk of relapse with the bipolar disorder, including the risk of psychosis and depression and so medication particularly for me needs to be planned carefully. I will need to be monitored once pregnant.

I am on 3 different types of psychiatric medication and also a contraceptive pill. Before we start trying to have children, I will need to have a time of withdrawal from the pill, which could send my hormones all over the place (i used to have PMDD symptoms where I felt very depressed and suicidal on periods so this is a slight concern). Then I may need to taper down one of my medicines (possibly sertraline) with the assistance of the mental health team, to reduce the effect on a baby. As baby will have a time of withdrawal from medications after birth while in hospital- which scares me too that they will be affected temporarily so want to make sure any baby is safe, as do the team I will work with.

The Dr also mentioned I would need to be in hospital for 5 days after birth so my Lithium level can be monitored (too high it can be toxic to humans) and I will need regular blood tests also- which are a source of anxiety, I hate hospitals due to past trauma. There was also a mention of needing to stop Lithium pre Labour and my Lithium levels as a result being quite high from birth too. So this information is good, knowledge is power but its also a bit terrifying to factor this all in.

I am scared but its also…. exciting in a weird way. Despite not yet trying to fall pregnant for a number of reasons so far- (which include possible bipolar relapse and changing meds/ time frames and starting a new job role), I have wanted to be a mother my whole life and I have more challenges than most due to the psychiatric and hormonal changes and how the baby would be. I question whether I am doing the right thing too by trying for a natural pregnancy in future and thats really hard. But egg harvesting and surrogacy is not easy either.. and its like going between a rock and a hard place at times with the best thing to do.

The doctors also mentioned I should visit a mother and baby hospital unit during my pregnancy to see what its like and what support is given- as my worries about it being like a severe psychiatric ward are high. Apparently, its a much calmer, supportive and therapeutic environment. I don’t want to be in hospital but these are the types of things one has to factor in with the bipolar being biological with mood changes.

Rob is endlessly supportive – we are embarking on a somewhat unknown journey – but are now armed with way more information from both psychiatrists and are very thankful to live in the UK.

So, this will be the last update from me on this for a while but knowledge truly is power and I know that with the help of our healthcare system- mental health teams and perinatal psychiatry/ obstetrics, my family, medication, self care etc I should be safeguarded and cared for well.

When the time is right, we pray our miracle will manifest.

Thanks for reading,

Eleanor x

PS shout out to my parents, Rob and family for their constant support.

Learning to Accept and Embrace Having Schizoaffective Disorder This Mental Health Awareness Week by James Lindsay

~ Eleanor Segall ~ 6 Comments
(image: Mental Health Foundation)

I do often wonder how long I had schizoaffective disorder before my diagnosis, but I guess I will never know. Back in 2016, I had my first experience of displaying symptoms of Schizophrenia (such as delusions), when I suffered from my first psychotic episode.

Before that, I had not really heard of any of these medical terms. I used to wrongly associate schizophrenic people with characters from the film ‘One Flew Over the Cuckoo’s Nest’. I thought they were lost causes who needed constant care, I didn’t think they could be functioning members of society like everyone else, and I feel bad that I used to think that. But I had a lack of education and personal experience.

In late 2019, I suffered from a relapse and had another experience with psychosis (which can be defined as losing touch with reality with delusions and/or hallucinations).. In early 2020 I was finally diagnosed with Schizoaffective Disorder. For those who are unsure, this condition is where symptoms of both psychotic and mood disorders are present together during one episode. ‘Schizo‘ refers to psychotic symptoms and ‘affective’ refers to mood symptoms. It is often described as a cross between Bipolar Disorder and Schizophrenia, as it includes symptoms from both of those conditions.

For me, it is currently something I am able to keep at bay, mainly thanks to my medication but also through being self-aware and looking after my mental wellbeing. I take Quetiapine (200mg slow release) every single day and I am more than happy with that. I have my tablet in the evening, which then helps me fall asleep without much struggle.

Without my meds, I can tell you now that I would be in all sorts of trouble. Every now and then I might forget to take it until just before bed, which means I need much longer to fall asleep because it takes a couple of hours to kick in.

That is ok though, as long as it’s not every night. But I know for a fact that without the medication, I am much more likely to start having delusions (irrational thoughts) and have an episode. Both my 2016 and 2019 episodes happened because my sleep was terrible and at times non-existent. I used to take sleep for granted, which is easy for anyone to do, but if you don’t let the brain repair itself it can lead to all sorts of problems. Just remember that psychosis can happen to absolutely anyone, I would not wish it on my worst enemy.

I am learning new things about my Schizoaffective Disorder all the time. I have joined a few Facebook groups which are supportive communities full of people with (or supporting those with) the same condition, such as this one which has nearly 18k members. For example I discovered through this group that some people who take meds before dinner (e.g. 4/5pm), find themselves waking up around 3am when they’ve worn off. They realised taking them an hour or so after dinner can give them a better sleep.

I have read books by authors with mental illness and they really help normalise it and give me peace of mind. I recently read ‘The Stranger on the Bridge’ by Jonny Benjamin (who is also Schizoaffective) and this gave me so much comfort. When you read a story that has parallels to yours, it gives you so much more hope and confidence that you can overcome your own adversities. Podcasts are a great source of help too and there are plenty out there that cover all kinds of mental illnesses.

I am also fortunate that my job gives me more opportunities to enhance my understanding of the disorder. I am proud to work for Hertfordshire Mind Network (my local mental health charity) as Fundraising & Marketing Officer, who are really supportive and always ask if there is anything they can do to help with my condition. I would advise anyone with mental illness to make your employer aware, because that’s the first step to them being able to support you and make any adjustments you might need.

I think ever since I changed my attitude to being schizoaffective, I have been able to befriend it and realise it’s not my enemy, but part of who I am. I used to feel embarrassed and was maybe even in denial at first. When I had the shame, I was never in the right mindset to go out and learn what this illness actually is, what is it doing to me, what should I look out for, what are my triggers/warning signs, what help can I get from other people.

The reality is – millions of people are schizoaffective and they are some of the best people you can encounter. They are incredible for living through it every day and I am proud to be one of them.

I hope you found my post useful and big thank you to the wonderful Eleanor Segall for the opportunity to contribute to her fantastic blog! If you’d like to connect over mental health you can find me here –

(image: James Lindsay)

@JamesLindsay23– Twitter

Christmas For CAMHS- Helping Children in Mental Health Units this Christmas.

~ Eleanor Segall ~ Leave a comment
(image: Christmas4CAMHS)

Many of you know that I support a charity very close to my heart- Christmas For CAMHS. I volunteered with social media and raising awareness. A few years ago, it got charity status and this is so exciting but it still needs your help and donations, so read on as to why its so important to me and those children in hospital!

In 2004, when I was just 16, i was admitted to an NHS CAMHS (children and adolescent mental health unit) at the Priory Hospital North London for depression and psychosis- part of my bipolar disorder on Christmas Eve. Even though I am Jewish, I remember opening a wrapped present (can’t remember what it was) that the staff had organised for us out of their budget. The other patients also left me notes and cards. But the truth is there was no charity giving us presents and we were away from our families, all very ill- so the staff just did the very best they could under the circumstances.

Then, in 2018, I heard about a charitable enterprise set up by a lovely doctor and trainee child psychiatrist called Ro who wanted to do something about the lack of equality children in mental health units had. She and her volunteers were sending presents to children on CAMHS wards across the UK and asking for donations.

Christmas For CAMHS is a registered charity who provides special Christmas gifts every year for children and young people who are inpatients in child and adolescent mental health (CAMHS) wards across the UK over the Christmas holiday period.

They want to make children and young people who are inpatients over the festive season feel thought-about, special and included – our individual gifts for each young person to keep, as well as gifts for their ward, help us to do this.

They have been hugely supported over the past few years by generous donations from the public and have received much gratitude as a result from inpatient units. However, they are only able to provide gifts with your charitable donations.

To find out how you can donate money or gifts please visit their donations page to see the Justgiving page and Amazon gift list.

They say:

Christmas For CAMHS was originally set up because volunteers saw a huge disparity in the way CAMHS units were treated over the festive period compared to other NHS services for children and young people. They wanted to do something to change that.

Children are admitted to CAMHS units to receive support and treatment for mental health issues, such as psychosis or depression or eating disorders like anorexia. There are no official figures for how many children will spend the festive season in CAMHS units across the UK, though we often give gifts to over 1500 young people. While many members of the public and corporate donors give Christmas gifts to children’s hospitals or children’s wards in general hospitals, CAMHS units, which are usually based away from other services, are often forgotten, or not known about. We don’t think this is right.

Every year they talk to every CAMHS unit in the UK to see what gifts their young people would like. Then, with your generous donations, they buy beautiful and thoughtful gifts for young people in almost every unit across the country.

We also include, where possible, some small fidget toys, a gift for the ward like a board game or sports equipment, some activities to do during the festive period and extra gifts for particularly vulnerable young people who are looked after children or who have a refugee background. We also send them an advent calendar full of inspiring quotes and pictures of cute pets. Sometimes we’re able to include a homemade card or two too.

The gifts are assembled at a packing weekend in Bath by our volunteer elves and then whizzed around the country in plenty of time for Christmas! As a charitable organisation, we rely 100% on fundraising and your generous donations. Each penny goes directly to making the magic happen.

(image: Christmas4CAMHS)

So please, support Christmas For CAMHS- if you can donate a gift or money that would be incredible. As a former child patient, the loneliness you feel is unbearable-lets work together to stop the inequality and forgotten children!

see: https://www.christmasforcamhs.org.uk/

The Difference between a Psychiatrist and a Psychologist. Which can best address your needs? By Anita Ginsburg

~ Eleanor Segall ~ 2 Comments


It’s always important to seek professional help if you are dealing with a mental health issue. Unfortunately, finding a professional can be harder than you might think. Even if you can find someone for you, you’ll still have to decide upon which type of professional with whom you should work. For most, the answer comes down to knowing the difference between a psychologist and a psychiatrist.


What Is a Psychologist?

Generally speaking, a psychologist is a person with an advanced degree in psychology who works with patients on their mental health. These individuals usually use various types of talk therapy to help individuals work through a diverse number of mental health issues. When many people think of the basic idea of therapy, they’re thinking about what a psychologist does.

When to Choose a Psychologist

It makes sense to choose a psychologist when you’re looking to address your mental health issues without medication. Attempting to change behavior of the long-term is usually best done with the help of a psychologist, especially if you’re looking to get to the root causes of why you feel how you feel. It should be noted, though, that even those who do seek medication can often work with a psychologist as well as a psychiatrist.

What Is a Psychiatrist?

A psychiatrist is specifically an individual who holds a medical degree and specialises in psychiatry. While psychiatrists do conduct many of the same types of therapy as psychologists, they differ from psychologists because psychiatrists can prescribe medication to their patients when needed.

When to Choose a Psychiatrist

The most common reason to choose a psychiatrist is because you are considering the possibility of pursuing some type of medical treatment for your mental health problems. This can range from specific types of medical therapies to medication, but all of these therapies do require a psychiatrist’s oversight. While most do choose psychiatrists because of the medical angle, many psychiatrists do still use talk therapy in a manner similar to psychologists.

It’s important to know what you want from therapy before you make a choice between a psychologist and a psychiatrist. While each type of professional does deal with mental health from a specific angle, whether one is better than the other has everything to do with your personal situation. While you will ultimately need to make the choice between the two, choosing to pursue at least some kind of therapy is a good step on the path to a brighter future.

This article was written by freelance writer Anita Ginsburg

The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

~ Eleanor Segall ~ 15 Comments

Trigger Warning: sexual assault, details of assault and severe mental illness

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

Looking to the Future and Life Dreams: by Eleanor

~ Eleanor Segall ~ 7 Comments

 

Dream big lettering on watercolored background

(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

Talking for the Jami Mental Health Awareness Shabbat 2020 by Eleanor

~ Eleanor Segall ~ 7 Comments

jamimhas1

As some of you will be aware, back in 2017-2018, I helped as a volunteer with fellow volunteers (Lisa Coffman and others) to found the Mental Health Awareness Shabbat (Jewish sabbath) in our communities across the country here in the UK. The initiative, led by the mental health charity Jami and conceived by Rabbi Daniel Epstein, now runs in 150 Jewish communities.

This year, my dad Mike and I were delighted to be asked to share our father and daughter journey with bipolar disorder to Chigwell and Hainault Synagogue.

I have social anxiety- which includes at times a fear of public speaking. In December, I had a breakthrough, where I spoke for a short time at a conference called Limmud alongside my Dad and read from my book Bring me to Light. So, when we were asked to do this talk at Chigwell, I felt it could be possible.

I armed myself with the fact that I knew kind people in the community including the Rabbi and his wife and friends of my husband Rob (its the community he grew up in). I also wanted to share my story to help other people.

So, we stayed with a lovely lady in the community and had friday night dinner with the Rabbi and his family. On Saturday morning, I woke up feeling a little nervous but took my trusted anxiety medication for when I need it- Propranolol, and walked to the synagogue with Dad.

I managed not to have a panic attack and the thought of speaking to help others got me through (as did distraction, deep breathing and drinking a glass of water).

So, at the end of the service, we were called up to speak. Dad went first and talked about his journey with bipolar disorder from when it started for him in 1991 to finding recovery. Then, it was my turn.

I stood up there in the pulpit speaking to a packed audience with a prepared speech. I felt scared but also empowered and began to relax into the talk. I knew that by sharing what happened to me, being sectioned and so ill and talking openly, that I could break stigma and touch others. I was also so proud of my Dad for speaking so openly.

It was only after, when talking to people after the service, that we realised that about 150 people came to listen to our talk! We had some important conversations with people after our talk including someone very newly diagnosed and someone else whose niece had bipolar and is currently very ill.

I couldn’t and still can’t believe I was able to do that. However, since I have been very tired so trying to de-stress and rest as much as I can!

We just want to thank everyone who came to hear our talk and supported us, to every person who thanked us for coming and shared their stories with us. We are so grateful for such a positive reception and thank Rabbi Davis and the Chigwell community for having us.

The Mental Health Awareness Shabbat has had events in communities all across the country. It runs yearly and you can find out more here 

Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

~ Eleanor Segall ~ 4 Comments

bringmeinsta1

(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x