The Flowers that bloom in Adversity: by Eleanor

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(image: Roxi Roxas Art)

I have wanted to write this post for several weeks, but so much has been going on personally and I have been really emotionally drained (and launching my new business too). Let start at the beginning.

At the end of May, my mother in law (who is carer for my father in law with terminal brain cancer) was taken very unwell. She was rushed to hospital with stroke like symptoms and put into an induced coma on a ventilator as her lungs were collapsing. We were super scared it was Covid as she was shielding anyway and it came completely out the blue, on the day of her 60th birthday after we had celebrated.

She is the main carer for my father in law and so my husband Rob had to move in to their house to care for his Dad and support his brother. (cue frantic phone calls to the doctors surgery, hospitals, Macmillan nurses and Jewish Care, all done by my incredible husband).

Thankfully, my MIL came off the ventilator to breathe unaided and she tested negative for Covid 19. We think she caught a severe bacterial infection and she then got pneumonia in her lungs. She was in hospital for 4 weeks and discharged 2 weeks ago and is making amazing progress with her physio team and her speech. She is still frail but she is recovering slowly.

This blog post I don’t want to make about my in laws because they are private people. Dealing with all these scary changes has been tough on my mental health (and everyones).

We are slowly slowly coming out the other side, although we know my FIL will worsen in time due to the nature of his illness.

So what flowers are blooming during this adversity?

-On Saturday will be our first wedding anniversary and we will spend it together. Its been a rollercoaster year but I am so thankful to have Rob by my side!

-I am loving my new Body Shop at Home business and my team and incredible managers. It really has been keeping me sane throughout this time of family lockdown and I can’t thank Sarah Cardwell enough for introducing me to the business. The products are so good for self care and healing too, which has been so needed and I have made lots of new friends. It keeps my mind stimulated and earns me income too- I am so grateful.

-Yesterday, Robs kind family member went over so we could spend some proper quality time together (thank you). We went for a walk in our favourite little village near by where there are cottages and flowers and village green and pond- I took lots of pictures of my dream cottages and gardens. Then, we got vanilla chocolate milkshakes (first time in a café post lockdown) and visited family. It was so special just to have US time, so rare in this current time for our family.

-This blog is continuing to grow and turning into a side business and for that I am ever grateful. I am also loving sharing peoples personal stories and hope it is a useful resource.

-Our guineapigs Midnight and Nutmeg are a source of joy and give great cuddles.

-Friends and familys kindness and messages help so much. I havnt had a therapy session in a while but will do.

I am feeling positive but there will be rough days ahead in the coming months. Today though, I am enjoying slightly more calm and peace again before the potential storm, and watching the flowers that are blooming in adversity.  

 

The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

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(image: Eleanor Mandelstam (Segall))

 

Trigger Warning: sexual assault, details of assault and severe mental illness

 

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

The UK went into Lockdown and I went into Meltdown: Guest blog by Nicole

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(image: Nicole_no_filter)

The UK went into lockdown and I went into meltdown.

When I heard the announcement on the news, I was on my Mum’s sofa and I immediately felt the usual sick way that I do when I get anxious. I needed to get out of the house, so I quickly escaped on a walk with my dog. My thoughts were far from pleasant and I silently cried while I slowly paced around my local area. This marked the start of a tough couple of weeks.

I fell into the behaviours that you would probably expect from a person with anxieties, I was obsessed with updates on the lockdown, it became my most frequently searched term on Google! My skin condition, urticaria, flared up which happens when I experience stress. My sleeping got worse than usual and I was easily irritated by silly things. Most of all, I fixated on the negatives of my situation, such as the impact living alone would have on me.

I’m not going to pretend that I had an epiphany on day fifteen and I’m now thriving in my new life of one daily walk and it being a glam day if I put on jeans!

However, I’ve now established a flexible routine and I’ve settled into working from home.

I check the news once a day and I appreciate that I am lucky to be healthy and still have my job. However, I don’t give myself a hard time when I have a bad day and I don’t pay attention to unhelpful comments online, criticising people for struggling as there are others with more serious struggles. Of course, this is true, but I heard recently that, ‘you wouldn’t tell someone not to be happy, because there is someone happier’ and that has stuck with me ever since.

The most positive outcome of this situation for me, is that I am in touch with my thoughts, emotions and my behaviour, more than ever.

Some things that have helped me are:

  • Reawakening my passion for writing: As a Careers Coach, I regularly create resources and assist others with writing about themselves. However, it had been so long since I wrote for pleasure. I now record my thoughts in a journal, you are currently reading my second blog post and I rediscovered my love for writing poems. Writing has felt a bit like offloading to my best friend; I get out my thoughts and I then feel better. 

 

  • Walking: I think it’s amazing that so many people are focusing on their fitness, but I was previously anxious about my weight, so I don’t put pressure on myself to follow a rigid exercise routine. Pre-lockdown, when I had a crap day, I benefitted from getting out of the house and being around others; walking isn’t a substitute for this, but it helps me to get rid of negative energy by doing something active. 

 

  • Keeping my space tidy: This won’t work for everyone but a clear space, means a clearer mind for me. I also find cleaning quite therapeutic as it helps me to focus on the task in hand and not overthink. 

 

  • Paying it forward: I have been trying to spread some positivity remotely, for example, I suggested to my colleagues that we each send a card to another person in the team with a positive message. I also started an Instagram account to raise awareness of mental health and share experiences and strategies with others. As a people person, helping and connecting with others always lifts my mood. 
  • Revisiting coping mechanisms for anxiety: I have done a lot of research into cognitive behaviour therapy techniques over the last few years, as some of the principles are useful for my job in supporting young people. I have also personally been through this type of therapy; this helps me to reframe negative thoughts and therefore gain better control of my feelings and actions. 

I’d be lying if I didn’t say that I still regularly think that I can’t wait for this to be over! I miss the little things in my life, but the lockdown has caused me to have a deeper appreciation for all the good aspects of it.

I have also realised that the little things ARE the BIG things. Being forced into this situation that I have no control over, has helped me to put less focus on other things that I can’t control.

I was previously anxious about being single as I am about to approach my 30th birthday, but I have gained a more positive perspective on this. I may not be able to control what happens TO me, but I can control what is IN me, which are my thoughts and how they make me feel and react.

Nicole is a careers coach and freelance writer in the UK and is on Instagram @nicole_no_filter

My crippling Anxiety once floored me. Now I wouldn’t be without it : Guest blog by Emma Johnson at Worry Knot Jewellery

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(image: Emma Johnson at Worry Knot)

Trigger warning: talks about self harm, anxiety, depression and mental illness 

 

For 10 or so years, throughout adulthood, I have battled on and off with something invisible and something I still don’t fully understand myself.

Generalised Anxiety Disorder. 

I’m now 29 but my illness started at about the age of 21. In my third year of University, I started to dread things, I started to worry about everything I said, did and I started to question if anyone liked me. I have always been apologetic but this was different. I felt like apologising for walking into a room. 

I was unable to switch off, unable to focus on my University work and I withdrew a lot socially. Life moved quite slow back then. 

For me I knew this was out of character. I’ve always been fun loving and outgoing, with a smile on my face. I became confused about who I was. I developed an uneasy feeling that would take almost 8 years to learn to sit with.

During the first few years of my disorder, I definitely still achieved a lot. I often feel my disorder makes me thrive more, sort of like overcompensation, a little bit like proving people and myself wrong. I graduated with a BSc in Psychology and at the age of 24, I went on to gain my MSc in International Development.

I don’t think I truly recognised these achievements until about the age of 27. 

Whilst studying my MSc life changed quite a lot for me. I had gone through a bad break up in my younger years but then I finally met someone who lifted me back up, who challenged my thoughts, someone who was completely different to me in every way. This was oddly comforting for me, a bit like escapism from my own ruminating thoughts. 

Then I entered the world of professional work. I started out as a fundraiser, and in my most recent role I tried my hand at facilitating group therapy. In 5 years I have moved through 4 jobs within the charity sector. Sometimes part time.

During this time my anxiety disorder would often become too much. I often sunk low and developed bouts of depression. I would cry and sob. I was back and forth to the GP, often teary, often red in the face and always a bit embarrassed, even though I didn’t need to feel embarrassed.

At one point I was signed off sick from work, bed bound for 3 months, with no motivation at all, just me, myself and my catastrophic thoughts. I was pretty exhausted, shaky, drained and more confused than ever. My physical symptoms manifested as sweating, chest pains, palpitations, shortness of breath and the odd panic attack. 

One thing I started to do was open up, I began to share things with my partner and colleagues. They let me cry if I needed and at the same time my GP was stabilising and finding the right medication to suit me. But I was clearly still unwell.

I quit another job I enjoyed through my inability to cope and my lack of self esteem. My Imposter Syndrome led me down another uneven path.  Always overworking. Always overthinking. Always overcompensating. I didn’t slow down until I was forced to.

Another behavioural symptom of my anxiety is skin picking and nail biting. In early adulthood I would sit for 3 hours picking at my face and over the years I have made the skin around my thumbnail so sore it would bleed. It is now scarred.

My need to fiddle with something to ease anxiety is always apparent. Earlier this year, I was talking to my friend about making jewellery and how cool it would be to make my own. I have always been into accessories, fashion and jewellery so I said I’d love to make something I can wear and carry with me discreetly but also fiddle with, to stop me from picking so much. 

She mentioned worry beads and I was intrigued. I wanted to make my own twist on them. A prettier version, merging them with jewellery design that I would more likely wear, so I did and my life has changed. I have started a small business called Worry Knot.

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(image: Emma Johnson at Worry Knot)

Alongside selling calming jewellery, I’m blog writing. I’m advocating more widely about the importance of opening up when confusing and sometimes debilitating symptoms develop. Not only is it therapeutic for me to make my jewellery but it’s extra therapeutic playing with this jewellery a few times a day. 

Having something to focus on, things to make and to write about has been crucial in managing my own anxiety, especially at such an anxious time for the world. I hope my jewellery can go on to help those feeling anxious not only now but going forward into the future too.

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(Images: Emma Johnson)

For more information please visit:  www.worryknot.co.uk and instagram.com/worryknotuk

You can also find me @worryknotuk on Facebook and Instagram.

 

Emma Johnson is a writer with lived experience of mental health issues. She is the founder of Worry Knot, a jewellery brand to help others who have anxiety.    worryknot

 

Mental Health Blog Awards 2020- Vote for Us! : by Eleanor

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(image: Mental Health Blog Awards)

Hi friends,

Voting is now open (first round) for the Mental Health Blog Awards 2020 and we have been nominated in the Blogger of the Year Category.

We would love you to vote for us, to recognise all of our hard work- including that of our guest bloggers, in battling mental health stigma.

I started the blog 4 years ago and it is an honour to be nominated.

You can vote for us- listed as Eleanor at Be Your Own Light here and please also vote for others in other categories if you are aware of their work! There are some incredible people nominated.

From Mike Douglas, founder of the awards:

“I am delighted to welcome you to the Mental Health Blog Awards. 

I look forward to continuing to celebrate the amazing work, effort, energy, emotion and so much more you all put into raising awareness, supporting, signposting, explaining and comforting in 2020.”

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(image: Mental Health Blog Awards)

First round voting closes on 1st May and you can vote here: https://s.surveyplanet.com/bG5vzH_q

 

With love and thanks,

Eleanor 

x

5 Ways you can reduce Anxiety in Every Day Life: Guest blog by Samantha Higgins

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(image: Picuki.com)

Reducing anxiety at the moment in our every day lives is so important.

Having anxiety is something that many people have challenges with. It is estimated that about 1 in 5 adults have an anxiety disorder and that more than that will experience an anxiety disorder at some point in their life.

The symptoms of anxiety include feeling restless or on edge, being easily irritated, difficulty controlling feelings of worry and having difficulty sleeping, amongst others. 

If you feel that you may be experiencing symptoms of anxiety, there are many things you can do to help reduce and manage those feelings. 

 

1. Look at Lifestyle Choices

A number of different lifestyle behaviours could contribute to your anxiety. Drinking alcohol, taking drugs, eating junk food will all play a big role in how you feel. For example, excessive drinking or the use of drugs can cause a multitude of health problems including liver and kidney damage. It also causes mental illness such as drug and alcohol addictions. You may need further support from a psychiatrist or rehab unit if you are struggling with addiction or mental illness.

On the opposite side, exercising regularly and eating healthy foods are proven to boost your mood, increase the chemicals in your brain that make you feel happy and improve your overall physical health. 

If you want to manage anxiety, consider looking at your current lifestyle choices and if there is anything you have the power to change. Be honest in your assessment but know you have options for assistance.  Making a big lifestyle change is hard but if there is something you know is causing your mental health and anxiety to worsen, it is a good idea to remove that from your life if possible. 

 

2. Talk to Your Family and Friends

Even if you think your family and friends would not understand, you might end up getting some of your most valuable support from them. You should not ever feel you have to hide any of your mental health concerns from them, unless you know that they would react badly.

Try to avoid shutting people out, being secretive about your mental illness or becoming defensive when people ask. 

True friends will listen and care. There is still a stigma to mental illness but it is important to find someone you trust.

 

 3. Set Boundaries

If necessary you can set boundaries for yourself. This could mean letting people know there are certain activities you don’t participate in. It could also mean a limit on how much time you spend with friends and family, in order to practise self care and recuperate. 

Many people who struggle with anxiety disorders find that setting up a schedule for themselves that they are consistent in keeping can greatly reduce feelings of anxiety. It helps them to feel more in control and gives them a structure that feels secure.

Setting boundaries is a way for you to have control over your situation and environment, although these should not be too rigid. There are certain things that can’t be controlled that can increase anxiety. 

 

4. Let Go of Things You Can’t Control

If something is out of your control that is causing your anxiety there are ways that you can cope with these feelings.  One suggestion is to write down how you are feeling to help let those emotions go. The BACP tells us that, “It can help to express this anxiety in a way that you can control. That could be writing down what you feel, or keeping a journal.”

You can also try making a list of things you are grateful for, or use breathing and relaxation techniques. 

If you are still struggling to cope with things out of your control seek help from a professional. 

 

5. Get Professional Help

You could turn to all types of mental health professionals to get help, including GPs (physicians), psychiatrists, psychologists, counsellors and therapists. You may be referred for talking therapies, cognitive behavioural therapy, mindfulness or EMDR therapy for trauma.  They may also recommend medication for you too.

In the UK, you would go via your NHS GP who can refer you on to see a psychiatrist or to IAPT for counselling.  Also check out the Counselling Directory website.

When searching for a good therapist in the USA, Karen Whitehead, who does counseling in Alpharetta, GA tells us that, “Psychologists (PsyD), Licensed Social Workers (LMSW/LCSW), Licensed Professional Counsellors (LPC), and Licensed Marriage and Family Therapists (LMFT) can all evaluate and treat mental illness, provide talk therapy, support and feedback, and teach coping strategies such as mindfulness.”

Your counsellor will be able to help you better assess your situation and get to the core of your anxieties. Even if you already know why you get anxious, you can benefit from learning coping skills.

Your counsellor can indeed equip you with tools adapted for your specific needs. You will have feedback on what is and what is not working. You can learn to live with, manage and in many cases, recover from anxiety.

 

You Are Not Alone

Do not ever think you are alone when it comes to your anxiety. Try not to beat yourself up if setbacks occur or you have a bad day.

Talk with your therapist about ways that you can help to further reduce your anxiety. They will be able to help you.

 

This blog was written by freelance writer Samantha Higgins.

Pocket Book of Love, Friendship, Hope and Happiness: by Eleanor with Trigger Publishing

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Many of you will know Trigger Publishing, who publish my book and focus on books dedicated to promoting good mental health and wellbeing. At the moment, the world is in turmoil and everything feels uncertain. Sometimes we all need a pick me up and these lovely range of mini pocket books by Trigger do just that!

They are a beautifully designed range of little gift books filled with inspirational quotes to lift the spirits in challenging times. The quotes are from well known figures and so inspiring. The books make great gifts as they are small and visually appealing- the perfect present for yourself or to give to a good friend to cheer them up.

Trigger say that they have published them to coincide with Mother’s Day, Easter and of course International Women’s Day last week.

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The range includes the Pocket Book of Love for when relationships are challenging- to provide much needed wisdom and advice to restore, reset and revive you.

There is also the Pocket Book of Hope, for when things seem bleak and you need to find hope in your life, which is also filled with wise quotes such as,

‘Hope is passion for what is possible’- Kierkegaard

I was gifted these two books and they are beautifully made and so lovely to read! There is a quote for almost any situation.

The books were published on the 5th March and can be bought on Amazon here:

Pocket Book of Love

Pocket Book of Friendship

Pocket Book of Hope

Pocket Book of Happiness 

 

If you need me, I’ll be curled up with one of these in my book nook!

Love,

Eleanor

Eleanor Segall was gifted the pocket books to read, in return for an honest review here. All images are by Trigger Publishing.   

Looking to the Future and Life Dreams: by Eleanor

 

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(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

Living with an Eating Disorder: Guest blog by Sofie

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(image: Pinterest)

This is a first person, brave and honest account by Sofie of her feelings about her eating disorder, which are her personal views. Trigger warning: please be careful as this discusses eating disorders and real emotions around them. We promote healing and recovery, where possible. So here’s Sofie….

    

I miss it every day! My first thought as I wake up in the morning and my last before I drift off for the night. It is a visceral longing. That’s the burden of an eating disorder. It’s an imposter that invites itself into your life and fulfills a need. It seemingly bestows upon you new abilities and strips you of weaknesses. However, with every freedom that it grants, there is a toll to pay.

My story doesn’t begin with a girl unhappy with her body, not many eating disorder stories do. My story starts with a girl lost within her own life. A girl who longed to feel she had a purpose and a direction — a child who yearned to feel an ounce of control. Anorexia gave me that control.

It gave me the power to defy human nature. It gave me a harsh look that proved I was oozing with discipline. Each bone like a spear warding off feelings and disappointments. I was never clueless as to why I starved myself. I never thought I was on a diet gone wrong. I wept many tears over the fact that my death-defying mission for control had made me so susceptible to vanity and left me a slave to the numbers on a scale, but how else was I to measure my discipline?

I miss it every day! I forget the aches, the pains, the fights, the hopelessness. I long for the feeling of achievement and forget the complete and utter sense of THIS IS NOT ENOUGH. STILL, I AM NOT ENOUGH. I long to go back almost every moment. To flee the life I have, to rewind and go back. For me, disappointment is much harder to face without the false comfort of the hunger, without the excuse of the failing body and protective blanket of a hazy mind.

So am I in recovery? I don’t know. I feel a sense of helplessness in my recovery like I have been dragged here by circumstance, and for now, my situation doesn’t sit comfortably with me. However, I know what I have to tell myself when it stings that my body no longer hurts: I can’t be a nice person while starving. I replay in my mind countless occasions where I behaved more like an animal than a human. I so desired to be successful, but I never wished to be a monster.

So, for now, this realisation is the guard I wear against the intrusive longing. It isn’t a bulletproof armour. The thoughts still wound, but for now, I am still standing, and I don’t need to judge the situation further than that.

And so, the greatest gift any therapy has given me is the clarity to place my love of others above my hatred of myself.

I can live a healthier life as a gift to those I love, who don’t deserve to be tortured by my demons. I must try and look after myself for my family and friends.

 

This blog was written by guest blogger Sofie, to discuss the truth around living with an eating disorder. If you are worried someone you love has an eating disorder, you can contact charities including Beat and speak to a GP or psychiatrist.

Talking for the Jami Mental Health Awareness Shabbat 2020 by Eleanor

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As some of you will be aware, back in 2017-2018, I helped as a volunteer with fellow volunteers (Lisa Coffman and others) to found the Mental Health Awareness Shabbat (Jewish sabbath) in our communities across the country here in the UK. The initiative, led by the mental health charity Jami and conceived by Rabbi Daniel Epstein, now runs in 150 Jewish communities.

This year, my dad Mike and I were delighted to be asked to share our father and daughter journey with bipolar disorder to Chigwell and Hainault Synagogue.

I have social anxiety- which includes at times a fear of public speaking. In December, I had a breakthrough, where I spoke for a short time at a conference called Limmud alongside my Dad and read from my book Bring me to Light. So, when we were asked to do this talk at Chigwell, I felt it could be possible.

I armed myself with the fact that I knew kind people in the community including the Rabbi and his wife and friends of my husband Rob (its the community he grew up in). I also wanted to share my story to help other people.

So, we stayed with a lovely lady in the community and had friday night dinner with the Rabbi and his family. On Saturday morning, I woke up feeling a little nervous but took my trusted anxiety medication for when I need it- Propranolol, and walked to the synagogue with Dad.

I managed not to have a panic attack and the thought of speaking to help others got me through (as did distraction, deep breathing and drinking a glass of water).

So, at the end of the service, we were called up to speak. Dad went first and talked about his journey with bipolar disorder from when it started for him in 1991 to finding recovery. Then, it was my turn.

I stood up there in the pulpit speaking to a packed audience with a prepared speech. I felt scared but also empowered and began to relax into the talk. I knew that by sharing what happened to me, being sectioned and so ill and talking openly, that I could break stigma and touch others. I was also so proud of my Dad for speaking so openly.

It was only after, when talking to people after the service, that we realised that about 150 people came to listen to our talk! We had some important conversations with people after our talk including someone very newly diagnosed and someone else whose niece had bipolar and is currently very ill.

I couldn’t and still can’t believe I was able to do that. However, since I have been very tired so trying to de-stress and rest as much as I can!

We just want to thank everyone who came to hear our talk and supported us, to every person who thanked us for coming and shared their stories with us. We are so grateful for such a positive reception and thank Rabbi Davis and the Chigwell community for having us.

The Mental Health Awareness Shabbat has had events in communities all across the country. It runs yearly and you can find out more here