The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

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(image: Eleanor Mandelstam (Segall))

 

Trigger Warning: sexual assault, details of assault and severe mental illness

 

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

My crippling Anxiety once floored me. Now I wouldn’t be without it : Guest blog by Emma Johnson at Worry Knot Jewellery

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(image: Emma Johnson at Worry Knot)

Trigger warning: talks about self harm, anxiety, depression and mental illness 

 

For 10 or so years, throughout adulthood, I have battled on and off with something invisible and something I still don’t fully understand myself.

Generalised Anxiety Disorder. 

I’m now 29 but my illness started at about the age of 21. In my third year of University, I started to dread things, I started to worry about everything I said, did and I started to question if anyone liked me. I have always been apologetic but this was different. I felt like apologising for walking into a room. 

I was unable to switch off, unable to focus on my University work and I withdrew a lot socially. Life moved quite slow back then. 

For me I knew this was out of character. I’ve always been fun loving and outgoing, with a smile on my face. I became confused about who I was. I developed an uneasy feeling that would take almost 8 years to learn to sit with.

During the first few years of my disorder, I definitely still achieved a lot. I often feel my disorder makes me thrive more, sort of like overcompensation, a little bit like proving people and myself wrong. I graduated with a BSc in Psychology and at the age of 24, I went on to gain my MSc in International Development.

I don’t think I truly recognised these achievements until about the age of 27. 

Whilst studying my MSc life changed quite a lot for me. I had gone through a bad break up in my younger years but then I finally met someone who lifted me back up, who challenged my thoughts, someone who was completely different to me in every way. This was oddly comforting for me, a bit like escapism from my own ruminating thoughts. 

Then I entered the world of professional work. I started out as a fundraiser, and in my most recent role I tried my hand at facilitating group therapy. In 5 years I have moved through 4 jobs within the charity sector. Sometimes part time.

During this time my anxiety disorder would often become too much. I often sunk low and developed bouts of depression. I would cry and sob. I was back and forth to the GP, often teary, often red in the face and always a bit embarrassed, even though I didn’t need to feel embarrassed.

At one point I was signed off sick from work, bed bound for 3 months, with no motivation at all, just me, myself and my catastrophic thoughts. I was pretty exhausted, shaky, drained and more confused than ever. My physical symptoms manifested as sweating, chest pains, palpitations, shortness of breath and the odd panic attack. 

One thing I started to do was open up, I began to share things with my partner and colleagues. They let me cry if I needed and at the same time my GP was stabilising and finding the right medication to suit me. But I was clearly still unwell.

I quit another job I enjoyed through my inability to cope and my lack of self esteem. My Imposter Syndrome led me down another uneven path.  Always overworking. Always overthinking. Always overcompensating. I didn’t slow down until I was forced to.

Another behavioural symptom of my anxiety is skin picking and nail biting. In early adulthood I would sit for 3 hours picking at my face and over the years I have made the skin around my thumbnail so sore it would bleed. It is now scarred.

My need to fiddle with something to ease anxiety is always apparent. Earlier this year, I was talking to my friend about making jewellery and how cool it would be to make my own. I have always been into accessories, fashion and jewellery so I said I’d love to make something I can wear and carry with me discreetly but also fiddle with, to stop me from picking so much. 

She mentioned worry beads and I was intrigued. I wanted to make my own twist on them. A prettier version, merging them with jewellery design that I would more likely wear, so I did and my life has changed. I have started a small business called Worry Knot.

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(image: Emma Johnson at Worry Knot)

Alongside selling calming jewellery, I’m blog writing. I’m advocating more widely about the importance of opening up when confusing and sometimes debilitating symptoms develop. Not only is it therapeutic for me to make my jewellery but it’s extra therapeutic playing with this jewellery a few times a day. 

Having something to focus on, things to make and to write about has been crucial in managing my own anxiety, especially at such an anxious time for the world. I hope my jewellery can go on to help those feeling anxious not only now but going forward into the future too.

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(Images: Emma Johnson)

For more information please visit:  www.worryknot.co.uk and instagram.com/worryknotuk

You can also find me @worryknotuk on Facebook and Instagram.

 

Emma Johnson is a writer with lived experience of mental health issues. She is the founder of Worry Knot, a jewellery brand to help others who have anxiety.    worryknot

 

Mental Health Tips to get you through Coronavirus Lockdown: Guest blog by Chantal Shaw

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(image: Self Care Pursuit)

If you’re stuck at home during the Coronavirus outbreak and need some tips to help with your mental health, you have come to the right place.

Being on lockdown can make us all feel depressed and more anxious. Self care for ourselves and our families are more important than ever.

Here are some suggestions of things to do to help your mental health and self care at the moment:

– Follow an exercise video- Listen to guided relaxation (I recommend channels ‘Relax for a while’ and ‘Michael Sealey’ on Youtube).

– Write down your thoughts and feelings in a journal- this helps to clear your mind.

– Nourish your body with healthy food and stay hydrated, so important to get help with groceries if possible and drink lots of water.

– Have a bath to help relax you and keep you feeling good.

– Watch stand up comedy on Netflix, Amazon Prime or on TV. 

– Do a puzzle, if you enjoy them.

– Play a board or card game.

– Limit your exposure to the news to once a day if you are able to stop anxious thoughts. 

– Bake/ cook – good for being mindful and creating something delicious, with a sense of achievement.

– Read a book and let your mind imagine.

– Go for a walk in nature (responsibly and if your country’s guidelines allow you to!).

– When you get up- make your bed and don’t stay in pyjamas all day, to get you into a good routine and positive mindset.

– Have a phone or zoom chat with positive influences in your life.

– Tidy your home as best you can.

– Play upbeat music (and dance or sing).

– A few drops of pure lavender oil in your bath or a lavender pillow spray to help you fall off to sleep and help reduce anxiety.

– Learn a new skill- many online courses are being offered.

– Break down the tasks that are overwhelming you in to small achievable chunks.

 

If you are having persistent overwhelming negative thoughts or feelings please tell someone- speak to a trusted friend or family member, your GP, the Samaritans on 116 123 (UK- you can also email them if you prefer), a counsellor.

Things can and will get better.

Our mental health is just as important as our physical health, look after it.

 

Chantal Shaw is a guest writer from the UK and the sister of our founder Eleanor.

Looking to the Future and Life Dreams: by Eleanor

 

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(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

Talking for the Jami Mental Health Awareness Shabbat 2020 by Eleanor

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As some of you will be aware, back in 2017-2018, I helped as a volunteer with fellow volunteers (Lisa Coffman and others) to found the Mental Health Awareness Shabbat (Jewish sabbath) in our communities across the country here in the UK. The initiative, led by the mental health charity Jami and conceived by Rabbi Daniel Epstein, now runs in 150 Jewish communities.

This year, my dad Mike and I were delighted to be asked to share our father and daughter journey with bipolar disorder to Chigwell and Hainault Synagogue.

I have social anxiety- which includes at times a fear of public speaking. In December, I had a breakthrough, where I spoke for a short time at a conference called Limmud alongside my Dad and read from my book Bring me to Light. So, when we were asked to do this talk at Chigwell, I felt it could be possible.

I armed myself with the fact that I knew kind people in the community including the Rabbi and his wife and friends of my husband Rob (its the community he grew up in). I also wanted to share my story to help other people.

So, we stayed with a lovely lady in the community and had friday night dinner with the Rabbi and his family. On Saturday morning, I woke up feeling a little nervous but took my trusted anxiety medication for when I need it- Propranolol, and walked to the synagogue with Dad.

I managed not to have a panic attack and the thought of speaking to help others got me through (as did distraction, deep breathing and drinking a glass of water).

So, at the end of the service, we were called up to speak. Dad went first and talked about his journey with bipolar disorder from when it started for him in 1991 to finding recovery. Then, it was my turn.

I stood up there in the pulpit speaking to a packed audience with a prepared speech. I felt scared but also empowered and began to relax into the talk. I knew that by sharing what happened to me, being sectioned and so ill and talking openly, that I could break stigma and touch others. I was also so proud of my Dad for speaking so openly.

It was only after, when talking to people after the service, that we realised that about 150 people came to listen to our talk! We had some important conversations with people after our talk including someone very newly diagnosed and someone else whose niece had bipolar and is currently very ill.

I couldn’t and still can’t believe I was able to do that. However, since I have been very tired so trying to de-stress and rest as much as I can!

We just want to thank everyone who came to hear our talk and supported us, to every person who thanked us for coming and shared their stories with us. We are so grateful for such a positive reception and thank Rabbi Davis and the Chigwell community for having us.

The Mental Health Awareness Shabbat has had events in communities all across the country. It runs yearly and you can find out more here 

Anxiety, Low mood,Winter and Me. By Eleanor

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(image: Istock)

I have sat down many times in the past few weeks to try and compose this blog and I havn’t felt able, the weight of it felt too much to put down on ‘paper’. The past month has been a lot more challenging for me, I have had an increase in my anxiety, particularly the social anxiety, fear of judgement and the world in general.

This has meant I have had to cancel media appearances and my book launch for friends and family and I sadly missed an old friend’s beautiful wedding and another old friend’s hen weekend 😦  (as well as missing going to the theatre to see Waitress with a wonderful friend). I have been having panic attacks again about socialising when feeling so vulnerable. This has been really, really hard because I hate letting anyone down, I have just been feeling ill at times and having to cope with the heightened anxiety and its ‘fun’  accompaniment (insomnia, racing thoughts, negative thoughts and chest pain).

My book got published and while that was amazing and a lifelong dream, it also felt exposing as I revealed a lot about my life that many wouldn’t know. So I felt like hiding away because it felt scary (social anxiety again).

Additionally, I started therapy 7 weeks ago to give me tools to a) understand but b) deal with the underlying anxiety about life and while it is helping (I am doing a type of trauma therapy called EMDR), I think it might be bringing issues I have buried to the surface from past trauma. This could be why I am getting triggered in social situations at present. I have a fear of negative judgement and also of crowds. I am working on this in therapy as I have been through a lot so far in my 31 years on this planet!

This time of year is also not helping me at all- the nights drawing in and the gloomy mornings. I struggle with SAD (seasonal affective disorder) and I start feeling lower this time of year. I am well medicated so my depression is mild in comparison to what it gets like when my medication doesn’t work but it is the anxiety I need to work on and expose myself to feared situations slowly.

To my friends, thank you for your kindness and for trying to support me (and coax me out) through this difficult patch again- you know who you are. If anyone wants to come round for a Disney night with chocolate- please do! 

Despite the negatives, there have been some successes in the past few weeks- seeing family, going to the cinema with Rob to see Last Christmas, going to the garden centre with my sister and bro in law, attending my therapy sessions, promoting the book online, job applying (exhausting but I’ve been doing it), speaking to friends regularly and trying to socialise even if I don’t always make it. I am working on that.

Oh and I have been volunteering for Christmas4CAMHS charity- that provide presents for ill children on mental health wards. I have been helping them gain awareness and raise funds via social media. This has been one of the most rewarding things I have managed to do in the past 2 weeks. Thank you Ro for letting me be involved and giving me some purpose to help others.

Social anxiety and depression are hard things to live with, but I know it will pass again in time and to reach for support if I need it. I am already on anti depressants and anti anxiety meds (as well as the therapy), so will have to wait and see what helps. I have an SAD lamp so need to use it when I wake in the mornings. Perhaps I should push myself to go for walks, although I am currently enjoying being a doormouse. If anyone else is struggling, please reach out- we are stronger together.

 

Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

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(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x

 

Guest Interview with Mark Simmonds: Author of ‘Breakdown and Repair’ mental health book.

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(image: Mark Simmonds and Lucy Streule)

 

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What inspired you to write a book about yours and your daughter’s journey with mental health?

It was July 2017 and I was attending a summer party, hosted by the Marketing Society, the organisation that brings together business people working together in the areas of marketing and advertising. Gemma Greaves, the CEO, was delivering a speech, during which she announced that the Society was going to join the mental health crusade. This seemed odd, slightly incongruous. But then it dawned on me that times had changed. Mental health was no longer the taboo topic it was when I suffered my mental breakdown back in 2001.

Everyone was talking about it now. I also had another 16 years’ experience under my belt, including caring for Emily, my daughter, who suffered from anorexia from 2012 until 2018. So, I had no excuse but to come out of the mental health closet and leave a legacy of sorts to the world. And even if that book helped just one person, then it would have been worth the effort.

 

How did you manage to recover from your stress, anxiety and break down, what helped you?

It was the 19th July 2001. Extreme stress at work had brought on the panic attacks, which were soon followed by a mental breakdown and the onset of severe agitated depression. I was no longer communicating with my wife or my three young children, even though we were all living under the same roof. That morning, I went cycling down a country road. My brain felt like a jumble of spaghetti when I collided with a 10-ton truck. It appears I tried to take my own life.

That’s how I recovered from the breakdown, because when I woke up in the John Radcliffe Hospital in Oxford a few hours later, the dense fog seems to have lifted. From that point onwards, I began to behave like a normal human being. No idea why. The physical impact caused by the accident to my brain? The awful realisation that I had come within a whisper of losing my life, my wife and my kids. There are far more conventional ways of recovering from breakdowns, but that was mine.

How did I recover from stress and anxiety? To be honest, I haven’t! I have simply learned to manage it over the years. I have put banisters in place that help keep me on the straight and narrow: I pick the right working environments, I manage my own expectations and set realistic goals. I satisfy my needs as an introvert. I take medication. I sleep well, eat well, exercise enough. But like all mental illnesses, be aware that it’s always lurking in the bushes, ready to pounce at moments you don’t expect.

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(image: Mark Simmonds and Lucy Streule)

Did you find that Emily received good care and how did you help support her?

Yes, Emily received excellent help and support both from the NHS (Buckinghamshire Child and Adolescent Mental Health Services, the Highfield Unit and Cotswold House, Oxford) and from the Cardinal Clinic near Windsor. The dedication and professionalism of all the staff was outstanding and they did their absolute best to help Emily through the illness. But here is the thing. The quality of the support and the hours spent coaxing a patient back to health have little effect or impact until that patient wants to recover.

It took Emily 6 years to decide that she had had enough of anorexia. and it was only then she finally got better. Anorexia (or Ana as we ‘affectionately’ called her) was a brutal enemy, unforgiving and merciless. More than a match for even the most qualified, most experienced doctors, psychiatrists and counsellors.

 

As a father, what was it like to see Emily struggle with anorexia and to try and save her at the time?

I have suffered from depression at various stages in my life and have experienced living at the bottom of the dark pit where Emily found herself. So, it was painful to watch her suffer because I knew exactly what she was feeling. The upside was that I was able to empathise and sympathise with her. I got it. And the way in which I talked to my daughter and tried to support her was more in line with what she needed. People who are suffering from mental ill health don’t respond very well to rational or logical arguments because their brains are temporarily ‘broken’. The neurotransmitters are not connecting with one another. They need lots of hugging, hand holding, being listened to and loved. An irrational and emotional approach is more effective than a rational one.

Where are you both now in terms of recovery?

As far as my daughter was concerned, it was just 12 months ago when the full-blown Anorexia Wars came to an end. We are all fully aware that war could break out again sometime in the future. As a good friend described it, all we could hope was “that Ana will get incarcerated and gagged in small section deep in Emily’s brain, a high security area from which she can never escape.”

Thankfully, at the moment, our daughter is flying high. She is living and working in London for ITV, eating well, drinking alcohol in moderation (trust me that is a positive thing!), firmly back on track.

As far as I am concerned, life is great. As I mentioned earlier in this piece, I don’t think that you ever escape fully from either stress or anxiety, but I am determined not to let it get in the way of doing great things, trying new stuff, taking risks, saying things that you might regret, taking on people with whom you don’t agree. I want to make sure I end up under the right tombstone.

 

How has reaction to the book been and how was the writing process?

The writing process was a joy! I loved more or less every minute of it. Working closely with Kasim, my editor at Trigger to agree the overall shape and structure of the book, researching stories and expert perspectives/points of view to add colour, collaborating with the wonderfully talented graphic designer, Lucy Streule, around the illustrations. And spending hour after hour with my wife and family editing, tweaking, improving the book. A wonderful experience.

The reaction has been great, both from friends and from people I have never met.

Alastair Campbell comes into the latter category and he kindly agreed to endorse my book. This is what he said: “I loved this book and devoured it in a single day. Whether on his own illness, his mother’s or his daughter’s struggles, Mark writes clearly and without sentimentality. He is brutally honest about the reality of mental illness across the generations with important insights about how to survive it. Though it is filled with sadness and heartbreak, ultimately his story is a testimony to the power of love and of the human spirit.”

 

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Mark Simmonds published his first book, Breakdown and Repair, with Trigger Publishing, in March 2019 (https://www.amazon.co.uk/Breakdown-Repair-Fathers-Success-Inspirational/dp/1912478994). It provides a full account of his daughter’s struggle against anorexia and is illustrated by Lucy Streule. It also talks candidly about his own experiences with mental ill health.

You can also follow Mark on Instagram (mentalhealthmark).

 

Dear NHS: The Search for EMDR Therapy by Eleanor

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(image: Freepik)

Today I am writing because I have had enough with the NHS mental health services.  Firstly, I was told that in my area of London, the NHS- national health service doesn’t fund EMDR (rapid eye movement processing therapy- for trauma and PTSD). Why, I have no idea as it is desperately needed. However, I was referred to IAPT wellbeing service (still under NHS), who do have EMDR therapists. Some telephone questionnaires later and I have found that I have been discharged from IAPT – to another team that doesn’t provide the therapy I so dearly need.

I have had years of therapy- CBT x3 and psychodynamic- most had to be privately funded due to the waiting lists in NHS. I need vital treatment for the trauma I faced of becoming so unwell,being in hospital and all I faced during mania and psychosis. My trauma comes out in anxiety and panic attacks which disrupt my daily living. EMDR helps process trauma and I am hoping it will help me to live fully again.

Due to this, the only option with therapy may be to go privately- which is expensive and not ideal for me- I can’t afford it alone. However, I have found an accredited therapist online so this will have to be the route I go down I think. I will speak to the psychiatrist in the other team but don’t hold out any hope as they don’t fund EMDR and there is a 2 year psychology waiting list. Yup, you heard that correctly, 2 years.

I am not doing so well- I have been feeling lower in the mornings and more anxious since having to leave my job. This was another blow today.

Yet….

I am trying to keep myself positive and focused and going. But some days, I just feel like hiding away.

Some positives- I am grateful for:

  1. My new bright pink cardigan is making me smile
  2. Our wedding photos and video come back today
  3. Finding a therapist
  4. Bipolar UK sharing about my book
  5. Love and support from others
  6. Job interviews and book promotion

When people say fund our NHS mental health services, they mean it. People like me are denied access to vital support and put on waiting lists or fobbed off. Its not OK.

Eleanor x

 

Looking to the future: Life and Positivity by Eleanor

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(image: Pinterest)

‘The only thing constant in the world is change‘- India Arie

In the past few weeks, it hasn’t been the easiest of times. My anxiety has come back on some days, leaving me feeling pretty low and unable to do certain tasks. However, as each day passes it is slowly improving and I am looking towards the future, both in my life and career.

I am making the transition again to being self employed. For me, this is difficult to blog about- but as we look towards the Jewish New Year, I am holding on to hope.

Hope that all will improve.

Hope that good things are on their way.

Hope that the light is coming back again.

My book will be published in just over a month’s time and I am so excited to hold the paperback in my hands! Thank you everyone who pre ordered the book and made it into a best seller.

I am grateful for every blessing that has come my way. I also have more writing projects planned, stay tuned for further details :). I know it all will lead to good in the end.

I’m currently looking into therapy and further support- EMDR therapy if possible, which helps to process trauma through rapid eye movements and images.

Everything will work out for the good, just some days it is hard to see. A note to self: keep positive and keep going. Good, happiness and dreams are on it’s way even if temporarily hidden.