Taking Lithium for Bipolar Disorder: Side Effects by Eleanor

Pre Lithium in 2010 (skinny minny)

Post Lithium (on my wedding day in 2019)

I first heard about Lithium carbonate, a natural salt and the ‘gold standard’ medicine for bipolar disorder, when I was in my teen years. My dad was taking it to help his bipolar episodes- Lithium is known to stabilise mood and stop mania and depression from occurring or lessening their impact. I knew then that it was quite a strong drug, that you would need blood tests and that it caused weight gain. But it really helped my dad with his illness.

Fast forward to 2004, I was just 16 and had been diagnosed with bipolar in hospital. My brain was still growing and both I and my psychiatrist were reluctant to try Lithium at that stage, so I was started on Carbamazepine, another mood stabiliser. It was only when this medicine stopped working about 10 years later in 2014, when I was struggling with suicidal depression and anxiety (which then turned into a manic episode that I was hospitalised for), that I seriously considered taking Lithium to help me, like it helped my dad.

Lithium was first found to have benefits for patients with bipolar disorder in the 1950s, with a discovery by psychiatrist John Cade. Even today, we still don’t know what causes the disorder, but it is believed that Lithium stabilises mood – particularly mania. The psychiatrist.com notes this,

The real breakthrough in lithium therapy came in 1952, when Erik Stömgren, a Danish psychiatrist and head of the Aarhus University psychiatric clinic in Risskov who had read Cade’s article, suggested to a staff psychiatrist at the hospital, Mogens Schou, that he undertake a randomly controlled study of lithium for mania. Random controls were just being introduced to psychiatric drug trials at that time, and Schou randomly assigned patients to lithium or placebo by the flip of a coin. His results were published in a British journal with the article concluding, “The lithium therapy appears to offer a useful alternative to [electr[electroconvulsive therapy] since many patients can be kept in a normal state by administration of a maintenance dose.”

For me personally, Lithium treatment has changed my life in a number of ways- both good and not so good. Lets start with the good, I havn’t had an episode of mania and psychosis or suicidal severe depression in 8 years, which is largely down to medication helping my bipolar brain chemistry. It has worked for me- which is amazing- and I never thought I would find an effective treatment to help me. I have bipolar 1, the most severe type and although Dad has the same and was helped, I never thought it would lead me to remission. In fact, in 2014 when I was under the home treatment team after hospital, one of the nurses asked me to consider whether Lithium might not work for me and I might have to live with episodes… needless to say I cried as was very fragile and asked her to leave! She was wrong, thankfully.

On to the bad things: Lithium in combination with an antipsychotic Quetaipine has caused me to put on a lot of weight, as it slows metabolism. I also have to have 3 monthly blood tests to check my lithium level is within the correct range as too much is toxic to the body. Thankfully, I drink enough water and eat enough salt so I have never had a toxic reading but its a very careful balance..I have to always look after myself. Another bad side effect is skin sensitivity and acne- Lithium causes spots- so I have had to adapt my skincare regime and diet accordingly. Sometimes certain foods plus Lithium can trigger this too. Again, I have to pay more attention to my physical health as a result of taking Lithium and Quetaipine

The weight gain in particular has been a worry for me and is something I am working on., especially as diabetes runs in my family. Then there is the Lithium thirst…

Lithium as mentioned is a salt, and as it metabolises in the body, makes you incredibly thirsty. You have to be careful not to get dehydrated. Hence my love affair with Robinsons squash and the occasional ice cold fruit juice. No matter how much I drink, I can never fully quench my thirst, even if well hydrated. Lithium thirst is not the easiest… but Robinsons is my friend as its lower in calories and more delicious than plain water! And now I am thirsty again… haha

So I have a love-hate affair with Lithium. Brilliant for my mental health, not so great for my physical health at times. There is also a concern because over time Lithium can cause kidney and thyroid issues, which is why I have blood tests too. So its not perfect, but it really helps me to live my life and have stable mental health. Over time, its important i am monitored. I have been on it 8 years, but it could start causing problems at some point.

Additionally, when I please G-d get pregnant one day, my lithium levels will need to be monitored (but thats a blog for another time).

I don’t have nausea or trembling on Lithium which is good, but the other side effects (particularly weight) have not been so pleasant. I am so grateful though to have a medicine that keeps me well and out of hospital, able to live a life that some others take for granted.

Thanks to all who voted for this blog. If theres anything else you’d like to know, just ask a question and I will respond.

Eleanor x

Looking to the Future and Life Dreams: by Eleanor

 

Dream big lettering on watercolored background

(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

Living with PCOS and Managing Mental Health: Guest blog by Jasveer Atwal

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(image: Jasveer A)

I have lived for over 2 decades with PCOS (Polycystic Ovary Syndrome), yet I had not been diagnosed until in my 30’s. PCOS means you have many follicles on your ovaries, which are underdeveloped sacs. These sacs are unable to release eggs and so ovulation does not occur. There is no medication to cure PCOS but there are alterations, you can make to your life, to make it somewhat manageable.

The indicators for PCOS normally follow the lines of acne, excess hair and irregular periods. All of which I have had since my teenage years (quite obviously). These symptoms were considered separately and the dots were not connected until I went to India to see a dermatologist. As soon as I discussed the aforementioned symptoms, she asked me whether I had been diagnosed with PCOS to which I said no and looked completely dumbfoundedShe asked me to get this checked out and to cut out dairy and sugar, as this was part of the cause of my acne and also helped in my diet. Luckily, I don’t like cheese anyway (how could I not? I know) and so this wasn’t too taxing on me.

Diagnosis

I, then returned to the UK and insisted on having an ultrasound and within 30 seconds it was quite clear I had PCOS. I didn’t really look into it much further, as I was told the only way to look into managing it was with birth control and being active. I didn’t want to use any medication and I was already considering going to the gym. There wasn’t much around PCOS at the time except for the NHS diagnosis.

Little did I know that there was more to PCOS, than the anxiety inducing symptoms of acne and excess hair. For years, I had always had trouble losing weight from my belly and this was after changing my diet to include more wholegrains and less sugar.  But, even after making these changes I had always found that it was really easy for me to put on weight and then extremely hard to lose it. Which I know, is a common problem for most but I found this, even when I was really conscious of what I was eating.

Management and Mental Health

I started going to the gym but this was really hit and miss, as I found it really hard to be consistently active. There would be some points where there wouldn’t be much difference to my weight that just led me to give up. But after some time I decided, I wanted to strengthen my body and started going to the gym to work on my strength.

Working on my strength meant, I was also losing weight as I was more active, however I have still not been able to shift the belly fat. This started becoming extremely frustrating and after looking into it more, PCOS also impacts weight because another symptom is insulin resistance. In short, this means that the body doesn’t respond properly to insulin it makes. Which in turn raises your blood sugar levels and your weight is then affected. It is more common that PCOS sufferer’s bellies, want to hold onto the fat more dearly!

I am now on a mission to get those highly coveted abs. It is a tougher journey than someone without PCOS but it’s about figuring out what works well for your body. I have found that overall exercise is an integral part of my everyday life.

I currently exercise many times a week, which is excessive for some but I find that I need it to manage my mental health and weight. I am finding this difficult at the moment for a number of reasons:

  1. It’s the winter and I suffer from SAD
  2. PCOS also means I have anxiety, low mood and fatigue
  3. Its cold outside and sometimes have to spend 10 minutes scraping my car

So I am trying to battle through these hindrances by going as much as I am able because the exercise helps with my low mood. Trying to be consistent is the best thing for me, otherwise I become entangled in a catch 22 situation which derails the work I have put in place to manage my PCOS.

However, I have also realised that listening to my body and taking a break now and again may be all I need to ease the impact on my mood/anxiety. You constantly have to be aware of how you are feeling which I have found difficult as, I don’t always want to give into the low moods. But sometimes staying in the duvet longer in the morning, may help my mood more than dragging myself to the gym.

Living

Though I am able to manage the effects of PCOS on my body, changing my diet made changes to my body and skin. With my hair I have had to resort to laser treatment. I have recently started to look more into managing my stress, a lot of the stress when I was younger was due to the acne and excess hair.

There were days my acne would cause me not to go out or really dread it. Constantly having to get rid of hair which is conventionally not seen as ‘ladylike’ became tiring. And there were many days, which turned into weeks where I didn’t want to have to manage this anymore. I slowly started making changes and started to see some results. My acne reduced and I was able to work off the weight. However, my anxiety and low mood remained.

For this, I realise I need to manage my stress more intentionally and work on what affects me, my triggers and how I can reduce stress and anxiety. It’s different for each individual. I have found it is something you can manage and I have become more persistent and resilient as a result of having anxiety and low mood related to PCOS.

 

This guest blog was written by blogger Jasveer Atwal, who lives in the UK. She blogs at https://shelved.blog/ and you can find her on Instagram  @shelvedblog .

Happy Third Blog Anniversary! : On Our Third Birthday by Eleanor

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(image : etsy)

Earlier this week, on the 1st March, Be Ur Own Light turned 3 years old! I still remember starting this blog as an outlet for my fears, thoughts and emotions after leaving a job in 2016 due to acute anxiety and panic ( part of my bipolar) . Writing the blog and sharing thoughts has been so therapeutic and it has taken me on  a journey that I could not have imagined when I started writing. As many of you know, this blog led to me writing for big media outlets and to my book deal (book hopefully will be out in November) and I am so grateful for the confidence it has given me too- and the chance to connect with people all over the world.

However, this year (as with the past 2), the blog has attracted a horde of talented writers wanting to spread their messages about mental health and wellness. Some have shared their personal stories of hope and recovery, others have given useful tips on health and wellness  and we have covered topics as wide ranging as Borderline Personality Disorder (BPD), Post Traumatic Stress Disorder (PTSD) and addictions to drugs and alcohol. We have talked about pet therapy, writing therapy, mindfulness and yoga, amongst other therapies.

My guest bloggers have written about their recovery from mental illnesses like anorexia and bipolar disorder. National campaigns like the Diana Award also got in touch with us to discuss bullying and LGBT issues too and Jami charity asked us to cover their mental health awareness campaign (which I helped set up). Furthermore, Be Ur Own Light has also covered World Mental Health Day and Time to Talk Day this year, featuring personal mental health stories as a way to raise awareness and fight misconceptions.

Thank you to my amazing guest bloggers March 2018-2019 for your fantastic content:   

Donna at Wildwoman Book Club for Self care

Lynn Crilly- Hope with eating disorders (book)

Cordelia Moor- Living with Quiet BPD for Time to Talk Day

Sarah- On Depression for Time to Talk Day

Peter McDonnell-  Managing anxiety and psychosis for TTD

Cara Lisette- Recovery from anorexia and bipolar disorder for TTD

David Welham- Depression and Recovery/  Being a parent of children taking exams

Rachelle Wilber- Treatment for PTSD (post traumatic stress disorder)

Brandon Christensen- What is mental health stigma?

Charlotte Underwood- Overcoming Adversity/ The Saviour Complex

Ralph Macey- Managing Bipolar in the workplace

Manmohan Singh- Benefits of Yoga

Alex Sabin- Enjoying the Holidays after Addiction

Spela Kranjec- How to Accept Yourself/ My Journey in surviving Anorexia

Jami charity- Mental Health Awareness Shabbat campaign

Brookman- Avoiding a relationship crisis at Christmas

Sarah Cardwell-  Womens health awareness

Anti Bullying Week, the Diana Award and Everyones Talking about Jamie

Allen- Recovery from alcoholism and mental illness

Lizzie Weakley- How to combat your eating disorder

Posy and Posy- Flowers for wellness

N- Poem on depression- Copy of my Mask

Dan Brown at My Therapy- Suicide prevention on social media- World MH Day

Lydia- On complex PTSD and recovery

Ashley Smith- how Physiotherapy helps with stress and anxiety

Amy Hutson- How Writing Therapy helps

Christine H- What family therapy is really like

Meera Watts- How Yoga enhances your lifestyle

Dawn Prime- How can Animal and Pet therapy help

Bill Weiss- Mental Health Stigma and Drug addiction

Dr Nancy Irwin- Signs your loved one is abusing drugs

Eve Crabtree- The MIND diet for Dementia

James Kenneth- Overcoming mental health challenges

Ellie Willis- A guide to mood disorders

AXA PPP- is social media bad for our health?

Lori Longoria- How baths and spas help relaxation

Tomas Sanchez- can alcohol raise stress levels and affect mental health

Dr Janina Scarlet- Therapy quest book

Cloe Matheson- tips to reduce stress

Paul Matthews- fitness and how it helps depression

Katie Rose- How to help anxiety and panic attacks

Anonymous- on sexual abuse

Kayla Clough- coping with post partum depression

Kara Masterson- 4 tips to begin the fight against drug addiction

Michelle Hannan- 5 tips to boost your immune system

Kevin Morley- Satori Mind- Tips to boost mindfulness

Sara Whitehouse at Stadia Sports-How sport can help mental health

Amy Boyington- How holistic medicine helps mental health

 

Thank you so much to all of you and I am excited to see what 2019 brings for the blog!

2018 was a very special year for me and my writing- being published in Metro.co.uk, Glamour, The Telegraph, Happiful magazine, the Jewish News and several other media outlets. I was featured in articles in Cosmopolitan, Elle, Prima, Yahoo News, Prevention magazine and Refinery29 and guest blogged on other mental health blogs too.

This year on the blog I wrote about my life with social anxiety and work anxiety, winter blues and SAD/ depression, I shared my articles about being plus size and a bride and about my recovery from bipolar disorder. Furthermore, I wrote about the Twitter hashtags I started #mydepressionmeans and #myanxietymeans, to help people feel less alone and share their own experiences online.

On the blog I also reviewed the brilliant book ‘Love and Remission‘ by Annie Belasco by Trigger Publishing, about breast cancer and mental health. Triggers mental health books are great and I read so many that I was unable to review due to time constraints including Depression in a Digital Age by Fiona Thomas and books by Paul McGregor and Ruth Fox.

This year we were given the accolade of being a Top 10 UK Mental Health Blog by Vuelio and were a shortlisted finalist in the 2018 UK Blog Awards (Health and Social Care category). I was also invited to the Mind Media Awards which was an incredible experience and this year, we have been nominated for Blogger of the Year in the Mental Health Blog Awards.

Be Ur Own Light continues to be read globally and I love receiving your messages about the blogs and finding new writers too.  Blogging makes me happy and I hope it helps so many of you too and you love what we do here.

Heres to a productive, wonderful, fun and exciting year of educating and battling mental health stigma too 🙂

Happy 3rd birthday Be Ur Own Light!  ❤ May this be a special year for us

Love and gratitude,

Eleanor    

xxx

eleanortwit

 

Lifestyle Changes: How to Combat your Eating Disorder: Guest Post by Lizzie Weakley

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Recognising you have an eating disorder is one of the biggest (and hardest) steps you can take to combat your disorder. It’s important to make sure you know how to combat the disorder so you don’t find yourself fighting a losing battle.

Don’t Expect Huge Changes

Just the idea of helping yourself get better from an eating disorder is important, but it won’t bring about the change you really need. You won’t get to see the results of the change until you start making changes. Be prepared for things to stay the same for a long time after you start trying to fight this battle.

Seek Professional Help

It’s almost always necessary to get professional help with eating disorders. There are many eating disorder center options you can choose from that have intensive processes. These centers can make things easier for you and can give you the specific tools you need to start getting better.

Try Something New

Not all eating disorders are the same. There may be differences from person to person so it’s important to keep that in mind when you start this battle. Your eating disorder probably won’t be like anyone else’s battle. Just like you are a unique person, the way you handle your eating disorder will be unique. You can try different things and new techniques to try and help yourself through the eating disorder. Things may change, but it’s important to keep trying new things that might help you.

Recognize Your Struggle

The struggle to combat an eating disorder can be one of the hardest things you do. You should recognize that struggle and work with it to help yourself. If you know it will be difficult to overcome the eating disorder, you’ll be better prepared to fight it when you’re dealing with issues that come from eating disorders.

Continue Fighting

Fighting an eating disorder is a battle you’ll have to deal with for the rest of your life. Even when things do get easier for you, you might still struggle with the issues that come from the eating disorder. Keep that in mind before you start the process. It’s a good idea to know that you’ll be in this fight for the rest of your life, but it does get easier.

Eating disorders are hard. Trying to figure out how to combat one on your own can be even harder. It’s important to know what to expect and take the steps necessary to help yourself get better.

Lizzie Weakley is a freelance writer from Columbus, Ohio. She went to college at The Ohio State University where she studied communications. In her free time, she enjoys playing with her Husky, Snowball, camping, and binging on Netflix.

Twitter: @LizzieWeakley

Facebook: facebook.com/lizzie.weakley

 

 

‘What its like wedding dress shopping as a curvy bride to be’ (focusing on mental health and body image) for Glamour UK by Eleanor


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(image: Glamour UK)

Here it is, my GLAMOUR UK article on being a curvy or plus size bride.

 
This one is understandably a very personal one but I wanted to investigate about body image, self esteem and how it affects mental health. As women we get taught what is ‘correct’ in terms of body shape and what isn’t- especially with the rise of social media.
 
I have put on weight over the years due to medication for my bipolar and its not easy. I am yet to go wedding dress shopping (going soon) but the brides I spoke to often had.
 
Thank you to the brides Rachel, Emma, Lauren and Reva for telling me their own courageous stories.
Thanks to the expert psychologists Nicola Walker and Jessica Valentine and Karen at Smashing the Glass wedding blog. And to my editor Bianca London at Glamour.
 
Happy reading, click here: