Mental Health Medication And Dangerous Side Effects In The Heatwave by Eleanor

(image: Roman Odintsov)

In the words of Motown singers Martha Reeves and the Vandellas,

‘Just like a heatwave
Burning in my heart
Can’t keep from cryin’
It’s tearing me apart’

Temperatures yesterday here in the UK reached 40 degrees celsius, the hottest day here on record ever! Some people love the heat- ‘Oh it reminds me of being on the beach on holiday’, ‘It’s not that hot- just put a cold flannel on your face’ and ‘Why are people moaning, we go abroad to get this weather?’ are things i have heard this week. However, for people like myself who take strong mental health medication, in a country not used to these temperatures, this weather is quite literally no picnic.

Firstly, my parents and sister are redheads with pale skin. I am the same and am not built for the heat or humidity. Then, we can add in the fact that I have bipolar disorder and take daily medication- which if not managed correctly can send my blood and body toxic. This has never happened as I stay indoors, don’t do strenuous exercise and drink constantly (and eat enough) in the heat. Yesterday though was a big risk as it became SO hot.

(image: Karolina Grabowska: Pexels)

The risks of Lithium, a mood stabilising medicine, in the heat are fairly well known. It is a natural salt, dehydrating the body so if you don’t drink enough water or eat enough salt, the level of Lithium in the blood saturates and becomes too high- toxic.

Signs of lithium toxicity include: nausea and vomiting, abdominal pain and diarrhea, confusion, drowsiness, slurred speech, increased thirst and lack of coordination of muscles. Severe toxicity signs are: blurred vision, severe muscle spasms, seizures and coma. It is no joke. So trying to cope with Lithium in 40 degree weather and in most places, lack of air con, meant I was confined to my home as I didn’t want to feel like I was melting or run out of water. Thankfully, I didn’t go toxic!

Additionally, I take the anti psychotic Quetaipine which stops me developing mania and psychosis. This and another such medications can impair the body’s ability to regulate it’s own temperature. I am therefore at risk of developing hyperthermia- excessive body temperature- which can be fatal. (scary right??)

So you can imagine that when I hear we are having a heatwave, I instantly think ‘stay indoors, cool showers, ice lollies, sit by air con unit, drink lots and lots’ . I worry about commuting or travelling in the heat. I still can be out in some heat- but 40 degrees was too much!

Something that has troubled me as i wrote this blog is this. My employers have been amazing and let me work from home yesterday. I am able to hydrate myself and eat and keep myself cool. But for those who are ill and unable to, I imagine many were rushed to A and E with the above symptoms yesterday. As a vulnerable adult, my GP didn’t even call to check on me or highlight the side effects of my meds… I only know all this from Dr Google!

There is still a long way to go with proper care for those of us living with (as termed by my doctor) ‘severe mental illness’ whether we live in remission/recovery or whether we have a support network…..I may be 34, not 94- but I could be at risk and they wouldn’t know.

I hope by writing this blog and highlighting these side effects that more people will be aware of this too- which affects people with bipolar, schizophrenia/ schizoaffective disorder, psychosis, depression and other illnesses where anti psychotic meds are used.

One positive- when the heat broke last night and the summer rain fell as Rob and I watched on our balcony.. it reminded me of being in India during monsoon season and in Ghana having a shower in the rain so I suppose not all bad! I admitted I cheered when I saw the rain.

Lastly, I can’t finish this blog without highlighting we had a family bereavement yesterday- a cousin (but more like an uncle) passed away after illness. I will miss him terribly but learnt so much from him- kindness, humility and faith.

Stay safe in this heat! Do your meds affect you?

Love,

Eleanor

xx

Taking Mental Health Medication Doesn’t Make You ‘Weak’: Fighting the Stigma by Eleanor

(image: Matthew Ball for Unsplash)

Disclaimer: All medication must only be prescribed by a psychiatrist or GP dealing with you individually. Advice from medical professionals must be sought before taking any medication., Never take someone elses medication or try to cure yourself!

This week, I had a conversation with someone about being on mental health medication, in this case, anti depressants for clinical depression. We reminisced that as teenagers, we just weren’t taught properly by school or in society about mental illness. It wasn’t talked about here in the UK back in the 2000s and everything was really hushed up, cloak and dagger, as if you had to be ashamed of it. As if anything to do with our mind was shameful- no one really had much education, unless it happened in your family.

I know that for many people, even in 2022, taking medication for their mental health carries this sense of shame.

For me personally, I was so ill that there really was no choice for me as a 15 year old, but to be started on medication. My symptoms of bipolar disorder first appeared at the age of 15 with depression and anxiety episodes, followed by mania and psychosis. So, I was on anti psychotic medications as well as what is known as a mood stabiliser, a medicine for mood disorders that stabilises moods (in this case, the bipolar poles). I also took regular anti depressants and anti anxiety medications and still do daily. My medicine regime is pretty intense but it means that my bipolar is well controlled and in remission- and that I am stable. My family has a hereditary illness that can be severe- so medication was the right choice for me.

However, for those without a severe mental illness like bipolar or schizophrenia, you may be recommended to try anti depressants first. There are varying different types which work on seretonin reuptake in the brain and help to balance brain chemistry.(although scientists cannot pinpoint the cause for depression fully yet). These can be used in combination with therapy and exercise to help treat depression and anxiety.

Some families and cultures hold great shame to be seen taking mental health medication and so hide it from loved ones. Others stop taking it, believing they are stable and well because the medication has balanced them out- and then crash into depression. For some though, anti depressants are a shorter term thing. The point is, its all so individual and there is no one size fits all medicine- you must do what is right for your recovery but definitely do not suddenly stop them.

In my family, my Dad was already on mental health medication- Lithium for bipolar, when I became ill. So, I was lucky that I had a loving supportive and accepting family, including plenty of medical professionals who understood. It was a steep learning curve for everyone though. And yes, as a teenager, I did hold some shame for taking medicines because I just wanted to ‘fit in’ and be a ‘normal’ teen. Coupled with the fact no one openly talked about mental illness at school or in general (this was just before social media!) and I felt this overwhelming sense of shame that my brain chemicals had let me down. I never once skipped taking medication though.

The thing is with mental health is that you can’t see it. But, you can absolutely feel when something is wrong and when you feel chemically depressed or other mental illness. This is usually depression unlinked to a life event- you wake up with it and you know its back, you feel despondent and unable to cope.

Yet, because you can’t see it- shame is even greater because how do you explain it to others? And are you ‘weak’ or ‘crazy’ to need medication to function?

The answer is No. To have to take the correct prescribed medication for you daily is an effort. You have to commit to it and to seeing how some medicines go. To go through episodes of mental illness makes you stronger and more resilient, surviving each day. You are not weak, your brain just needs help (like helping diabetes or a heart problem) and the words ‘crazy’ or ‘unhinged’ just serve to reinforce stigma. There is no need to be afraid or filled with shame or self loathing- but it is valid to feel this way as you are human!

In 2017, it was estimated that 792 million people worldwide lived with a mental health disorder (one in 10 globally). 46 million of those had my disorder, bipolar. However, this is the tip of the iceberg because mental illness is often underreported due to stigma. So- you are not alone. There is treatment out there to help you.

Remember not to be ashamed of needing medication to cope with life’s challenges (alongside therapy etc). The stigma is slowly falling and I will continue to write and share to this end.

You are not weak! You are powerful beyond comprehension .

Do you take medication? Does it help you?


Love,

Eleanor x

My article for Metro.co.uk: ‘What I wish people knew about Mental health medication and Weight gain’

Today I was published for the first time on the Metro.co.uk website, with quotes from my friend Jonny Benjamin MBE, Dr Amy Jebreel- psychiatrist and Dr Clare Morrison, GP at Med Express UK. I enclose a snippet here and link to the full article. This is an intensely personal article for me, about weight gain on mental health medication and I know so many of you can relate to this. I would love to hear your feedback!

metro1
(image: Ella Byworth for Metro.co.uk)

‘At age 15, I was referred to a psychiatrist for a serious episode of depression and anxiety (later known to be bipolar disorder). With parental permission, I was put on an anti-psychotic medication olanzapine, to calm my mind. 

What I didn’t know then, was that olanzapine is one of the worst drugs for weight gain, and although the drug calmed my mind, I put on several stone in weight. As a vulnerable teenager, being overweight was upsetting for my body image and self-esteem.’

Read full article: http://metro.co.uk/2018/01/16/what-people-dont-understand-about-mental-health-medication-and-weight-gain-7231252/?ito=cbshare

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