A year or two ago, I recorded this webinar with Bipolar UK talking about our family story (mine and my Dads) with bipolar disorder, suicidal ideation, depression and both of us finding recovery.
Suicide is a terrible but common outcome of bipolar and acute mental health episodes. I also know what it is like to lose a loved one to suicide and mental illness and the pain that brings.
I share this webinar today to raise awareness, but also to encourage people to go to their GP/psychiatrist/ family/ spouse and talk, if safe, about what is going on for you.
Watch here, with care, trigger warning : discusses bipolar episodes, suicidal ideation
In this webinar, Bipolar UK CEO Simon Kitchen shares the findings of the Bipolar Commission on the critical link between bipolar and suicide. He is joined by Ashley Brice, an experienced crisis negotiator with the British police specialising in suicide prevention, and Eleanor Mandelstam, author and freelance writer who lives with bipolar. Together, they explore the risk factors, warning signs, and practical strategies to prevent suicide, offering crucial insight for anyone living with bipolar, supporting someone with bipolar, or wanting to better understand how bipolar impacts mental health and suicide risk.
More than one million people (including myself) are living with bipolar in the UK and, despite the summer meaning excitement and positivity for most, for many living with bipolar this is not always the case.
Common challenges in summer can impact people living with the condition- including high temperatures which can interfere with certain medications (including Lithium and anti psychotics or anti depressants), the longer daylight hours which can disrupt mood stability, and travelling which can sometimes trigger symptoms.
There are ways to manage seasonal challenges, and Bipolar UK is now sharing its top tips to help people navigate the summer months!
Top tips for navigating the next few summer months if you have bipolar from Bipolar UK:
Sleep
Maintaining a regular sleep routine is an important way to support mood stability. Lighter nights can make it more difficult to switch off and wind down; and early sunrises can cause disruptions to sleep. Blackout curtains or an eye mask might help.
Heat
Hot weather can affect both physical and mental wellbeing. Certain medications used to treat bipolar can make it harder for the body to regulate its own temperature, leading to overheating. Staying cool, drinking plenty of water and staying out of the sun during the hottest parts of the day can help reduce the risk of overheating and becoming dehydrated. Rest is important so communicate with friends and family about how you’re feeling and if you need to rearrange plans.
Travel
Be mindful when travelling to different time zones. Jetlag can have an impact on bipolar symptoms. Try to make time to sleep and rest whilst on the plane and when you arrive so you can acclimatise. Set a reminder on your phone of when you need to take your medication so you can stick to your schedule.
Sensitivity
Some bipolar medications can increase sensitivity to sunlight so protecting your skin with a high factor suncream when outside is important, as well as seeking shade when possible. Continue to take your medication as prescribed but do speak to your medical professional if you have any concerns.
Socialising
There are often more social activities during the summer, with people wanting to make the most of the better weather. If it all feels too much, learn to say “no” and preserve your energy. Pick and choose which activities you’d like to do, but don’t feel obliged to do them all.
Routine
Longer days can lead to changes in routine which can trigger shifts in mood. Some people with bipolar feel their mood can shift more easily into hypomania and mania during the summer months, whereas others notice their mood dips into depression. Noticing the signs early and speaking to your mental health team, family or other support network can ensure you get help when you need it and potentially avoid a relapse.
Christmas can be a stressful time for many, but for those living with bipolar disorder, it is a time of year when symptoms may be exacerbated, and overspending can become an issue.
According to national charity, Bipolar UK, the increased pressure to attend social occasions alongside material pressures around Christmas/Chanukah can trigger manic or depressive episodes in some living with the condition, resulting in an increased risk of overspending.
Dr Thomas Richardson, clinical psychologist at Southampton University, who has lived experience of bipolar and has researched the topic of bipolar and overspending, “impulsive or compulsive spending means spending more money than you planned and regretting it.”
He added: “There’s definitely something about that sense of urgency that I must buy it right away – the feeling like you can’t stop yourself and it’s a little bit out of your own control.
“There is a lot of guilt and feelings of being a burden associated with bipolar, and we know that people living with the condition can sometimes feel that excessive generosity is a way to pay back loved ones for their support. Overspending can also feel like a comfort at the time.
“Christmas is a time where we’re surrounded by adverts encouraging us to buy things and there’s the additional pressure of feeling the need to socialise. All of this can potentially be very triggering for some people living with bipolar.”
April Kelley, an award-winning actress and producer living with bipolar, has a history of overspending. She said: “My biggest achilles heel is spending money on others, and I think that’s a combination of buying love and the rush that buying things for others gives me.
“Last Christmas I bought flights from my home in LA back to the UK at the last minute to surprise my parents, but I’ve also been known to buy an entire bar’s worth of Jager bombs for everyone.
“I now use digital banking as a way to help me budget by splitting money into pots and my parents are really supportive and help me to keep control of my finances.”
Dr Richardson says there are several ways you can protect yourself from overspending at Christmas and beyond. He says that digital banking is good to helo you budget, move money into different pots and set spending limits. He advises making a list of what you really need to buy, versus what you’d like to buy, unsubscribe from marketing emails if it helps you, be mindful of who you follow on social media, make gifts instead of buying and return unnecessary things you have bought.
(image: Bipolar UK)
Simon Kitchen, CEO of Bipolar UK, said: “Advance Choice Documents (also known as ACDs) are a great way to ensure your voice is heard during a period of relapse.
“The idea is to write an ACD with your loved one or doctor when you’re well to put into action if you recognise you’re experiencing the early signs of an episode. You can include a line to protect yourself from overspending – planning to have limited access to a credit card or only using a basic mobile phone without internet, for example.
“This is why it is so important to monitor your mood so you can be aware of the warning signs if you are heading towards a relapse when you might be more prone to overspending. Many people in our community say using our free Mood Tracker app is a simple way to notice early symptoms.
“Finally – please don’t feel that you’re alone. We provide 1-1 peer support, support groups, a 24/7 eCommunity that is open 24/7, 365 days a year, even on Christmas Day, and invaluable resources on managing common seasonal triggers of bipolar.”
This World Mental Health Day, clinical experts in bipolar have today announced that successive failings in government policy could have led to a significant reduction in quality of care for those living with bipolar in the UK.
Despite vast improvements in key areas of mental health, the average age for people to get a diagnosis of bipolar is 34 if someone was diagnosed within the past five years, compared to 26 if someone was diagnosed 30 or more years ago.
“It is shocking that today people are living with undiagnosed bipolar for longer than they were when the charity was formed 40 years ago. The current average delay to diagnosis is 9.5 years. That’s nearly a lost decade where people are struggling with confusing symptoms without getting the vital bipolar-specific treatment and support they need,” said Simon Kitchen, CEO of leading charity Bipolar UK.
“This delay is having catastrophic consequences, with the Bipolar Commission finding that more than a third of the 2,458 people surveyed had attempted suicide because of this delay. This is backed up by research which shows that ‘time to treatment’ is significantly associated with hospitalisations and lifetime suicide attempts.
Tragically, global research estimates that up to 1 in 5 people will take their own life and 60% of people with bipolar will attempt suicide at least once during their lifetime.
It is well established that bipolar has the highest risk of suicide of any mental health condition, yet it is only mentioned once in the Government’s recently published national suicide prevention strategy.
CEO of Bipolar UK CEO, Simon Kitchen, said, “Since Bipolar UK was founded as a charity 40 years ago, we have never stopped campaigning on behalf of those living with bipolar and their families.
“To help prevent the high rate of suicide in those with bipolar and to reduce this unacceptable waiting time for a diagnosis, we are currently campaigning for the Government to commit to prioritising bipolar in the implementation of their national suicide prevention strategy and to commit to reducing the average delay to diagnosis to five year within five years.”
The Bipolar Commission’s Bipolar Minds Matter report launched in parliament in November 2022 includes several recommendations that experts in bipolar and clinicians believe will reduce diagnosis time, improve the quality of life and reduce the high risk of suicide for those living with bipolar.
Kitchen added; “The current care system for bipolar is broken, resulting in an ineffective and inaccurate pathway to diagnosis.
“It is shocking that diagnosis delays are worse now than when Bipolar UK was founded 40 years ago.
“Although we are providing as much support as we can, we desperately need the government to sit up and take action before we lose even more people to suicide.”
On Monday 11th September, I am looking forward to being on a webinar on Bipolar and Suicide prevention for Bipolar UK charity, with their CEO Simon Kitchen and a police officer, Ashley Brice (pictured), who specialises in suicide prevention for people in crisis in Wales. This is a difficult topic to discuss and one that will be tackled with empathy.
Simon Kitchen, CEO of UK mental health charity Bipolar UK, says:
“Today’s announcement by the Prime Minister that mental health will receive £40.2 million in funding is a positive step in the right direction for the one in four adults experiencing mental illness in the UK.
Although the Government funding announcement does not include bipolar specifically, we are hopeful that the high prevalence and the enormous burden of the condition will mean the bipolar research community receives much needed boost from this announcement.
The Bipolar Commission Report we took to policy makers on 8th November, found that bipolar accounts for 17% of the total burden of mental health but traditionally only received 1.5% of mental health research funding. This needs to change.
There are over a million people living with bipolar in the UK and every day one person with the condition takes their own life. Ensuring bipolar gets its fair share of mental health research funding is critical for reducing the 9.5 years it takes on average to get a diagnosis and for improving patient outcomes.
Bipolar UK is the collective voice for people living with bipolar. Our clear position is that it is vital those living with the condition have as many treatment options available to them as possible and receive greater continuity of care so they can have a better quality of life.
It is possible for everyone with bipolar to live well and fulfil their potential.
Strong long-term relationships between individual clinicians and patients is a critical factor in this and there are currently not enough specialists in bipolar in the UK which leads to symptoms often being missed.
People living with bipolar have a suicide risk that’s 20 times higher than people without bipolar, a figure that could be significantly reduced with adequate funding.
There are more than a million people with bipolar in the UK — 30% more than those with dementia and twice as many as those with schizophrenia. Millions more are impacted through close friends and family.
Re-allocation of the funding that is already available will provide a significant improvement to people’s lives which is why we are asking for bipolar to be seen as a standalone mental health condition that requires its own share of the overall funding allocated to mental health.
People can live well with bipolar, but only if they have access to a clinician who knows them, their symptoms, their triggers, medical history, their family situation and their living arrangements to ensure on-going, effective care.”
(image: Bipolar UK: Simon Kitchen, CEO with this pledge )
Dr Guy Goodwin, Emeritus Professor of Psychiatry, University of Oxford and co-chair of The Bipolar Commission adds: “I have been treating people with bipolar for more than 40 years. Over that time, I have frequently been astonished by the stories of patients who have been poorly served by services ostensibly designed to help them live better lives.
“Bipolar accounts for 17% of the total burden of disease attributable to mental illness and yet there is no priority given to its specialist treatment in policy documents produced by the Department of Health.
“Instead, since the 1999 National Service Framework, bipolar has been lumped into policy documents as the invisible twin of schizophrenia. Worse still, bipolar gets a mere 1.5% of research resources.
Ignorance of the price paid for this policy neglect is no longer a defence.”
Please go to bipolaruk.org/bipolarcommission to read more about the work of the commission, fighting to get fair funding for bipolar disorder- Bipolar Minds Matter.
Please sign this petition to the NHS to speed up bipolar diagnosis to save lives. As I write in my book, my Dad Mike was diagnosed 9 years after he got ill and just 4 years before me. I believe I was only diagnosed at 16 years old because my Dad received his diagnosis. Additionally, my Dad was pushed to the brink of suicidal ideation (thoughts and plans of suicide) but was able to control this once he saw a psychiatrist finally after nearly 10 years- so many can’t. My Dad was saved just in time. He often says the love for his family stopped him, but for some, they are even more ill and cannot focus on this.
A new campaign by the amazing Bipolar UK charity and the new government Bipolar Commission to tell the NHS:
Speed up bipolar diagnosis to save lives · There’s an average delay of 9.5 years between people first contacting a health professional about symptoms and getting an accurate diagnosis of bipolar · 60% of people said this delay had a significant impact on their life · 84% of people said a diagnosis was ‘helpful’ or ‘very helpful’
A diagnosis makes it possible for someone to get effective treatment and support, and to live well with bipolar.
It’s estimated that at least 5% of people who take their own life have a diagnosis of bipolar. The shorter the delay in diagnosis, the sooner someone can empower themselves with effective self-management and foster a positive circle with fewer relapses in both the short and long-term.
In my own family, myself and other relatives here and abroad have been diagnosed with this condition. It is so important to get correct treatment.
beurownlight.com 