Last few days: UK Blog Award Voting, Aftermath of Mind Article and Working on my Anxiety

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Its been a really busy few days on Be Ur Own Light blog. My first blog for Mind Charity on living with bipolar disorder was posted (you can read it in the below post) and I had the most amazing, positive reaction to it. I had emails and Twitter messages, some from people who are struggling and who wanted advice, others with bipolar who just wanted to chat because they didn’t know anyone else with the illness and some who wanted to help me to fight stigma via writing on the blog. Others merely expressed dissatisfaction with their own care. I’ve heard every single voice on all the different platforms and want to thank all of you for responding to my article in such a wonderful and important way. I have tried to respond to everyone who has written to me, liked or commented. I write to fight stigma and to break those barriers down and thank Isobel at Mind for helping me to share my story.

Then, in true Eleanor style, this week would be the week too that the voting for the UK Blog Awards 2018 opened! I have been nominated in the Health and Social Care Individual Category and need you all to VOTE for me to be shortlisted and get to go to the awards as a top 10 blog in my category (or a potential winner).

So please click here  https://www.blogawardsuk.co.uk/ukba2018/entries/be-ur-own-light-mental-health-recovery-blog    

Then type in your name, email and the health and social care category. Voting closes on December 22nd so thank you so much! I appreciate any votes. Thank you too to everyone on my Facebook (and my Dads), Whatsapp, LinkedIn, Instagram and Twitter who have voted for Be Ur Own Light, it means the world.

Lastly, I am still job hunting but still experiencing some anxiety around work situations. I know that things will improve if I just do as much as I can. I am also working with a therapist to tackle this. I am now on Day 9 of Holly Matthews 21 Day Smile Happy Me Project and it helps me to look at things more positively, so will keep up with that.

Have a great weekend friends- new guest blogs are being posted next week 🙂

Eleanor x

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‘Bipolar Disorder: What I wish someone had told me’- my first blog for Mind Charity

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(image by Mind Charity)

Original post at Mind website: https://www.mind.org.uk/information-support/your-stories/bipolar-disorder-what-i-wish-someone-had-told-me/#.WiUudVVl-M-

When I was 15, I started suffering from depression and anxiety. My heart would race, I couldn’t sleep and it was so debilitating I had to take six weeks off school in my GCSE year. I still got my GCSEs and I recovered for a while. However the following months were filled with a manic, high episode and then a depressive episode featuring psychosis which led me to be hospitalised voluntarily on an adolescent mental health unit. It was there, aged just 16 years old, that a psychiatrist diagnosed me with bipolar affective disorder, which runs in my family.

Bipolar is a serious mood disorder where sufferers can experience depression and low phases lasting for months and manic, high phases which can make sufferers feel out of control due to the symptoms.

I am now 29, but when diagnosed at 16, this felt like a life sentence. I was a shy teenager, always wanting to fit in and now I was told I would have a chronic mental illness, have to take constant medication to keep well and keep regular tabs on my moods. What I didn’t know was that due to the severity of my illness, the doctors told my parents they didn’t know if I would be well enough to go to university. I proved them wrong, but this is what I wish I had been told when first diagnosed

Not everyone with Bipolar rapid cycles

I go for months between episodes and on my medication sometimes have no Bipolar episodes at all. In society, people think being bipolar means your mood changes a hundred times a day. This is not the case. Often months and years pass between episodes because everyone with the illness is different.

Some people do rapid cycle with their moods and for others it’s much slower. Let’s change that stigma.

You can do whatever you want to do, just make sure you set realistic goals

Whether it’s going to University, starting a new job, travelling around the world- you can do it if you are feeling well. Make sure you look after yourself and ask for reasonable adjustments in the work place, if need be. It’s ok to disclose a disability- but as long as your episodes are fairly under control (and in this everyone is different) you can still achieve. Small achievements are just as important, just make sure it’s achievable and realistic for you at the time.

Medication can help keep your moods on an even keel, but it is trial and error

It took me almost 11 years of living with the disorder before I found the right medication to keep my episodes at bay, and my moods properly stabilised. I experienced severe depressive and manic episodes when on the wrong medication for me.

Mood stabilisers, such as Lithium, really can help. When I changed from a teenager into a woman, my previous mood stabiliser Carbamazepine stopped holding me and I became unwell. Make sure you chat with your psychiatrist about the right medicine for you, and don’t be afraid of drugs like Lithium- it has saved my life.

Everything is trial and error and you may also need to be on a combination of anti-depressants or anti-psychotics. These medications all have side effects but if it helps your mental health significantly it can be worth it, just make sure you do it under the guidance of a psychiatrist.

You can live and live well

In 2014, I was hospitalised for a severe manic episode and was very unwell. It took me the best part of a year and a half to recover from the affect. However, since recovery I have worked for mental health charities, started a blog Be Ur Own Light (www.beurownlight.com) to tackle mental health stigma and blogged for Rethink Mental Illness, Time to Change, Bipolar UK and other publications such as the Huffington Post UK. Living with bipolar disorder means you have to be resilient. You can live. Yes, you may have other mental health challenges (I suffer from anxiety) but you can still achieve what you want, however big or small. Live your dreams.

When you are first diagnosed with bipolar disorder or suspect you may have it due to your moods and symptoms, you can feel incredibly out of control and overwhelmed. The most important thing to do is to take it day by day and get the right support. You don’t have to live a miserable, reduced life, rather with the right help and combination of medication, therapy and support networks – including a good medical team- you can thrive.

Things may feel bleak and scary. However, you can move forward into the light. Be kind to yourself. Your illness is not your fault and you can recover again. That’s what I wish I had known when my journey began and what I want to share with you.

Raising our Voices: Stigma and Bipolar Disorder (For Equilibrium Magazine Issue 63)

I was asked by Equilibrium magazine, an online magazine dedicated to mental health and wellbeing by those with lived experience, to write an article for them. I chose to write it on stigma and bipolar disorder and here it is. You can also read it online at :   https://issuu.com/antz333/docs/equilibrium_2063

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I am very excited to be writing my first article for Equilibrium. In this article I
will discuss stigma and life with bipolar.

I have lived with bipolar disorder for thirteen years, having been diagnosed at just
sixteen years old. The illness runs in my family, but it was still a shock when I
found myself unwell in hospital as a teenager. Bipolar disorder is a mood disorder,
which means moods can oscillate between depressive lows and manic highs that
can be treated with medication and therapies. When depressed, one might find
oneself feeling extremely negative and unable to do activities previously enjoyed
or, in bad cases, suicidal and unable to cope with life. When in a manic state, one
may be in a heightened hyperactive state, talking fast/not making sense and
unable to sit still. A person may act in ways they would not usually behave when
in a typical state. This can then spill over into psychosis, with delusions and a loss
of touch with reality, which can eventually lead to hospitalisation in severe cases.
There is currently no cure for the disorder; however, mood stabilising medications
such as Lithium, prescribed by a psychiatrist, and courses of therapy can very
much help. It is believed that bipolar may be caused by a chemical imbalance in
the brain, but there is still so much we do not know. It is for this reason that
stigma about the disorder and other mental health conditions, pervades across
the world.

So, what is stigma? Stigma can be defined by the Oxford dictionary as a ‘mark of
disgrace associated with a circumstance, quality or person’. In terms of mental
illness, people fear what they have not experienced, do not know and do not
understand. It is the fear and ignorance that then perpetuates myths about those
who struggle with their mental health.

Due to the sometimes unpredictable nature of mental illness, in our case, bipolar
disorder, fear and stigma are most definitely generated. When people haven’t
been through the suicidal, heart-wrenching lows, and the sometimes equally
terrible highs, they will comment that the person is ‘attention-seeking’ and just
doing it to get a reaction from other people. We have seen this recently when
depressed celebrities, for example singer Sinéad O’Connor (who has bipolar), open
up to the world about their demons. They get criticised, shot down, told they are
being drama queens, silenced, as if their problems are trivial. There is nothing
trivial about serious mental illness or how the brain can trick you into feeling.
There is nothing trivial about feeling so unwell you can’t get out of bed, wash,
live. There is nothing trivial about experiencing suicidal tendencies and not having
support, because support networks are the one thing that keep bipolar sufferers,
and those with other conditions, going. Without my support network, I know I
would find things so much harder.

So, how do we tackle this stigma? In one word: talking. Telling people about our
experiences. Sharing the world of people who have mental health issues and
reflecting it back to wider society, through explaining to non sufferers what its
like to live with a mental health condition. It Is so important to show wider
society the world inhabited by people with mental health conditions. Everyone
is different. Its vital to explain the unexplainable. Talking about our symptoms
but showing how we can reach recovery or what recovery means to us.

I began speaking about my experiences online via my WordPress blog ‘Be Ur Own
Light’ (www.beurownlight.com) about a year and a half ago. The blog began as a
diary, as I was navigating life with a difficult anxiety disorder which made it
difficult for me to hold down a job long term. I still live with this anxiety and am
learning how to manage it. When I first began writing, I did it secretly and only
showed it to close family members and wrote under pseudonyms. I was effectively
testing the waters to see the reaction. I was frightened I would get negative
feedback.

I began writing for charities such as Rethink Mental Illness, Time to Change and
Bipolar UK, under pseudonyms, because I didn’t yet feel able to associate my name
with the illness. I was scared, and I suppose was experiencing some self-stigma. In
thirteen years I had never written about my illness or mental health online,
though I had explained it to close friends. I remember the day when my first
article for Rethink was published –‘Being Jewish and Bipolar’- and getting hundreds
of likes, shares and positive comments. This built my confidence, and, over the
course of a year, I wrote for more charities and even started writing for the
Huffington Post Lifestyle blog and other websites/magazines under my real name.

A month or two ago, I decided to write all my mental health blogs under my real
name. There is still so much work for us all to do to bring down the stigma, but it
starts from raising our voices. We deserve to be heard and we need to talk in order
to make mental health issues ‘normal’ in society and to fight for better treatment.
One in four people suffer, although I would argue the figure is more like one in
two. Together we can battle, speak out and one day beat the stigma.

Eleanor Segall is a mental health writer and advocate, who has written for many
charities and magazines. She currently works for mental health and learning
disability charity The Judith Trust. Her blog ‘Be Ur Own Light’
(www.beurownlight.com) is read globally and tackles her life with mental health
issues and those of guest bloggers. Eleanor can be found on Twitter and Instagram

Living with Bipolar Disorder: my True story- for Counselling Directory Website

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Be Ur Own Light author Eleanor tells her story for Counselling Directory. 

Article: http://www.counselling-directory.org.uk/experience_236.html

I was diagnosed with bipolar affective disorder at just 16 years old. I had been admitted to hospital after a year of depressive and anxious episodes, followed by a hypomanic episode (a lesser episode of mania). People with bipolar have a mood disorder which means our moods can become extreme and oscillate between low and high.

After a year of not understanding what was happening, I finally came to accept the diagnosis. You see, bipolar runs in my family. There is evidence it can be genetic but, as I was so young, no one suspected that my depression and hypomania could be bipolar disorder. I was hospitalised as a teenager in 2004 due to a mixed state of depression and psychosis (where your mind loses touch with reality).

Luckily, with medication and support, I was able to live a fairly ‘normal’ life for several years. Despite having to go down a year at school, I made it to University and completed a Bachelors and Masters degree. I went travelling with friends to India and Ghana, regularly took my medication – mood stabilisers and antidepressants – and was supported by various psychiatrists and therapists, as well as my wonderful family and friends.

But the trauma of what I went through caused an increase in my anxiety levels and I developed social anxiety, fearing what others thought of me. I also became slightly agoraphobic and suffered from panic attacks. Bipolar is such a complex disorder and sometimes anxiety can be a part of the depressive side of the illness.

Over time, I believe that my main medication stopped working. This coupled with several life events, meant I became unwell fast. In 2013, I began to sink into a very low depressive state which led to suicidal thinking. I became very unwell, but supported by my family and upped dosages of medicine, I got better again. However, this was short lived.

In 2014, I spiralled into the worst manic episode of my life. I had racing thoughts and pressured speech, was very fearful of those around me and began to experience delusions (false beliefs about the world). I was incredibly vulnerable and unwell. Unfortunately, the episode happened very quickly and although I hadn’t been in hospital for 10 years, suddenly I found myself there, waiting to be treated.

Being in hospital this time was hard; it took a while for the psychiatry team to bring me down from the manic state. I was in hospital for four months, attending therapy groups (I loved art therapy) and working with occupational therapists, nurses and a wonderful psychiatrist who believed I would get well again.

I did get better again in time. I had a further four months of support when I left hospital, where I was put on the correct mood stabiliser for me – Lithium – which has helped keep the moods at bay. I attended day therapy sessions on anxiety management, recovery, art and social groups and I slowly came out of my shell again. I was in shock and quite traumatised at what had happened to me. However, over time and with support, I accepted it and began to recover.

Since that difficult time, I have worked for and volunteered with mental health charities and supported communal projects. I also started my blog, Be Ur Own Light, in 2016 to explain to family and friends about my mental health. It has been read worldwide and its aim is to tackle mental health stigma and share real-life stories.

I also began to write for the Huffington Post UK, Rethink Mental Illness, Time to Change and Bipolar UK, amongst others. Writing is therapy for me.

My message would be that the right medical team, coupled with support networks, psychotherapy, medication and doing things you love to do, can help you feel much better and find recovery. I, like so many with mental health issues, am still a work in progress but to reach any form of recovery is a big milestone and I will fight to remain well. You can too.

We are a Top 100 Bipolar Disorder Blog!

Thank you to Feedspot.com for giving us another Blog award! As well as being a Top 30 social anxiety blog, we are listed as a Top 100 blog for people with Bipolar disorder, at number 49!

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We have been listed amongst some amazing, informative websites! Take a look at the full list here: http://blog.feedspot.com/bipolar_disorder_blogs/

Thanks to Anuj and all at Feedspot for recognising our work!

Guest post: Bipolar 2- Wading through depression and loss of motivation by Jessica Flores

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This article is about Bipolar 2 disorder, a mood disorder where sufferers can cycle between high and low moods. Jessica writes about her experiences: 

If you have been diagnosed with Bipolar II, you know that it differs from Bipolar I disorder in that you still cycle between high and low, but you never experience complete mania (high mood), which is good. Instead, you get hypomania (a lesser form). Yet, more often than not, you are trying to cope with long periods of substantial depression; which can be more severe and long lasting . Roughly six million people in the United States  and millions around the world, suffer from some form of bipolar disorder, so you aren’t alone.

When I am hypomanic, I find myself excited to go out and have conversations and stay up all night. I want to make friends and craft furniture and redecorate. I end up buying things online for some new life I plan to begin living. It’s why half of my living room has been filled with boxes of mid-century housewares for the last two years. However, I spend most of my time being depressed.

My life often feels like it is happening underwater. Every action I attempt to take exhausts me. Showering daily is impossible. I sleep for half the day and sit in front of the computer to do my job without the energy to move forward or the cognitive wherewithal to make sentences. I don’t have urges to harm myself, but I wonder why I need to keep feeling this way every day. I lose hope for the future- it can be very difficult.

Lately, I have begun to wonder if I am depressed or if I am simply losing motivation.  I feel sluggish. I don’t feel motivated. My house is a wreck. I can’t remember the last time I cleaned the kitchen floor. I thought about getting a maid service last week, but I didn’t want anyone to see my apartment.  Sometimes I have negative self talk and think I am lazy, not depressed.

As it turns out, I am not alone in my thoughts about this. Many people with clinical depression reach a point where they attach negative descriptors to themselves. If people hear they are lazy often enough during depressive episodes, it’s not unusual for them to question whether or not it’s true.

Mute Everyone Out

A depressed person isn’t simply dealing with a lack of motivation, they deal with changes in their sleep patterns, hopelessness, loss of pleasure in things they used to enjoy, changes in weight and/or appetite, and so much more. All of these are potential symptoms of bipolar depression and they can be treated. There are a number of medications that have proven effective in treating Bipolar II and many forms of therapy that are a critical element of a complete treatment plan.

Regardless, that’s a lot to handle all on your own. And what makes it especially difficult is the fact that it’s all being caused in your own mind.

Which is why it’s time to stop thinking of yourself as unmotivated or lazy, and it’s time to stop listening to anyone around you who does. You have a diagnosed medical condition. You are managing as well as you can in the given circumstances. I know it’s hard, but you’re going to need to learn to tell yourself that that’s all there is and you shouldn’t put yourself down for the resulting actions that you choose to take because of your condition. Instead of feeling ashamed, you need to make sure you are getting all of the treatment that you can and learning skills to help you control what you are able to.

Eleanor Roosevelt once said that nobody can make you feel inferior without your consent. This is your battle. To make sure that you yourself don’t make yourself feel bad for how you spend most of your days. By being proud of who you are and accepting your condition, you close yourself off from any hurtful comments any uninformed person could ever tell you. And it’s important for you to be able to do that. Because you’re not any of the negative things you just said. You’re amazing, capable, and strong. Remember that.

 

Jessica Flores is a wife, mother, writer, and woman diagnosed with bipolar II. She knows that her disorder affects her entire family and she works to lessen the impact as best she can. However, she also gives herself permission to experience changes in mood. Her drastic experience motivates her to blog about it and help others who are experiencing trying times.