Mental Health Medication And Dangerous Side Effects In The Heatwave by Eleanor

(image: Roman Odintsov)

In the words of Motown singers Martha Reeves and the Vandellas,

‘Just like a heatwave
Burning in my heart
Can’t keep from cryin’
It’s tearing me apart’

Temperatures yesterday here in the UK reached 40 degrees celsius, the hottest day here on record ever! Some people love the heat- ‘Oh it reminds me of being on the beach on holiday’, ‘It’s not that hot- just put a cold flannel on your face’ and ‘Why are people moaning, we go abroad to get this weather?’ are things i have heard this week. However, for people like myself who take strong mental health medication, in a country not used to these temperatures, this weather is quite literally no picnic.

Firstly, my parents and sister are redheads with pale skin. I am the same and am not built for the heat or humidity. Then, we can add in the fact that I have bipolar disorder and take daily medication- which if not managed correctly can send my blood and body toxic. This has never happened as I stay indoors, don’t do strenuous exercise and drink constantly (and eat enough) in the heat. Yesterday though was a big risk as it became SO hot.

(image: Karolina Grabowska: Pexels)

The risks of Lithium, a mood stabilising medicine, in the heat are fairly well known. It is a natural salt, dehydrating the body so if you don’t drink enough water or eat enough salt, the level of Lithium in the blood saturates and becomes too high- toxic.

Signs of lithium toxicity include: nausea and vomiting, abdominal pain and diarrhea, confusion, drowsiness, slurred speech, increased thirst and lack of coordination of muscles. Severe toxicity signs are: blurred vision, severe muscle spasms, seizures and coma. It is no joke. So trying to cope with Lithium in 40 degree weather and in most places, lack of air con, meant I was confined to my home as I didn’t want to feel like I was melting or run out of water. Thankfully, I didn’t go toxic!

Additionally, I take the anti psychotic Quetaipine which stops me developing mania and psychosis. This and another such medications can impair the body’s ability to regulate it’s own temperature. I am therefore at risk of developing hyperthermia- excessive body temperature- which can be fatal. (scary right??)

So you can imagine that when I hear we are having a heatwave, I instantly think ‘stay indoors, cool showers, ice lollies, sit by air con unit, drink lots and lots’ . I worry about commuting or travelling in the heat. I still can be out in some heat- but 40 degrees was too much!

Something that has troubled me as i wrote this blog is this. My employers have been amazing and let me work from home yesterday. I am able to hydrate myself and eat and keep myself cool. But for those who are ill and unable to, I imagine many were rushed to A and E with the above symptoms yesterday. As a vulnerable adult, my GP didn’t even call to check on me or highlight the side effects of my meds… I only know all this from Dr Google!

There is still a long way to go with proper care for those of us living with (as termed by my doctor) ‘severe mental illness’ whether we live in remission/recovery or whether we have a support network…..I may be 34, not 94- but I could be at risk and they wouldn’t know.

I hope by writing this blog and highlighting these side effects that more people will be aware of this too- which affects people with bipolar, schizophrenia/ schizoaffective disorder, psychosis, depression and other illnesses where anti psychotic meds are used.

One positive- when the heat broke last night and the summer rain fell as Rob and I watched on our balcony.. it reminded me of being in India during monsoon season and in Ghana having a shower in the rain so I suppose not all bad! I admitted I cheered when I saw the rain.

Lastly, I can’t finish this blog without highlighting we had a family bereavement yesterday- a cousin (but more like an uncle) passed away after illness. I will miss him terribly but learnt so much from him- kindness, humility and faith.

Stay safe in this heat! Do your meds affect you?

Love,

Eleanor

xx

Taking Mental Health Medication Doesn’t Make You ‘Weak’: Fighting the Stigma by Eleanor

(image: Matthew Ball for Unsplash)

Disclaimer: All medication must only be prescribed by a psychiatrist or GP dealing with you individually. Advice from medical professionals must be sought before taking any medication., Never take someone elses medication or try to cure yourself!

This week, I had a conversation with someone about being on mental health medication, in this case, anti depressants for clinical depression. We reminisced that as teenagers, we just weren’t taught properly by school or in society about mental illness. It wasn’t talked about here in the UK back in the 2000s and everything was really hushed up, cloak and dagger, as if you had to be ashamed of it. As if anything to do with our mind was shameful- no one really had much education, unless it happened in your family.

I know that for many people, even in 2022, taking medication for their mental health carries this sense of shame.

For me personally, I was so ill that there really was no choice for me as a 15 year old, but to be started on medication. My symptoms of bipolar disorder first appeared at the age of 15 with depression and anxiety episodes, followed by mania and psychosis. So, I was on anti psychotic medications as well as what is known as a mood stabiliser, a medicine for mood disorders that stabilises moods (in this case, the bipolar poles). I also took regular anti depressants and anti anxiety medications and still do daily. My medicine regime is pretty intense but it means that my bipolar is well controlled and in remission- and that I am stable. My family has a hereditary illness that can be severe- so medication was the right choice for me.

However, for those without a severe mental illness like bipolar or schizophrenia, you may be recommended to try anti depressants first. There are varying different types which work on seretonin reuptake in the brain and help to balance brain chemistry.(although scientists cannot pinpoint the cause for depression fully yet). These can be used in combination with therapy and exercise to help treat depression and anxiety.

Some families and cultures hold great shame to be seen taking mental health medication and so hide it from loved ones. Others stop taking it, believing they are stable and well because the medication has balanced them out- and then crash into depression. For some though, anti depressants are a shorter term thing. The point is, its all so individual and there is no one size fits all medicine- you must do what is right for your recovery but definitely do not suddenly stop them.

In my family, my Dad was already on mental health medication- Lithium for bipolar, when I became ill. So, I was lucky that I had a loving supportive and accepting family, including plenty of medical professionals who understood. It was a steep learning curve for everyone though. And yes, as a teenager, I did hold some shame for taking medicines because I just wanted to ‘fit in’ and be a ‘normal’ teen. Coupled with the fact no one openly talked about mental illness at school or in general (this was just before social media!) and I felt this overwhelming sense of shame that my brain chemicals had let me down. I never once skipped taking medication though.

The thing is with mental health is that you can’t see it. But, you can absolutely feel when something is wrong and when you feel chemically depressed or other mental illness. This is usually depression unlinked to a life event- you wake up with it and you know its back, you feel despondent and unable to cope.

Yet, because you can’t see it- shame is even greater because how do you explain it to others? And are you ‘weak’ or ‘crazy’ to need medication to function?

The answer is No. To have to take the correct prescribed medication for you daily is an effort. You have to commit to it and to seeing how some medicines go. To go through episodes of mental illness makes you stronger and more resilient, surviving each day. You are not weak, your brain just needs help (like helping diabetes or a heart problem) and the words ‘crazy’ or ‘unhinged’ just serve to reinforce stigma. There is no need to be afraid or filled with shame or self loathing- but it is valid to feel this way as you are human!

In 2017, it was estimated that 792 million people worldwide lived with a mental health disorder (one in 10 globally). 46 million of those had my disorder, bipolar. However, this is the tip of the iceberg because mental illness is often underreported due to stigma. So- you are not alone. There is treatment out there to help you.

Remember not to be ashamed of needing medication to cope with life’s challenges (alongside therapy etc). The stigma is slowly falling and I will continue to write and share to this end.

You are not weak! You are powerful beyond comprehension .

Do you take medication? Does it help you?


Love,

Eleanor x

9 Years Undiagnosed: My Life with Bipolar Disorder, for Time to Talk Day: Guest blog by Mike Segall

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(image: Time to Change)

*Trigger warning: discusses thoughts of suicide and mania, please read with care *

This blog has been courageously written by my Dad, Mike, about his journey with bipolar disorder and the hurdles he faced in getting a diagnosis. For those of you who have read my book, you’ll know some of this. This is the first blog that Mike has written for us and I want to share it on today, Time to Talk Day by the charity Time to Change.  So here is Mike’s story….

 

My experience of Bipolar 1 Disorder was that I was undiagnosed for 9 years. I was never sent to a psychiatrist and was put on the wrong medication (I hadn’t heard of mood stabilisers and seemingly neither had my doctor).

So- What is Bipolar Disorder? (formerly known as Manic Depression)

To me, Bipolar symbolises the two extreme poles of mood- mania and depression. The North Pole is Mania. Mania is wonderful for me- you think you can be anyone, you think you can do anything, achieve anything, You are flying. You think ‘why can’t everyone be like this and experience everything?’. You are much more uninhibited. You may shop more, you spend more money, You think you can FLY!

But you can’t fly and you fall, you fall off a cliff into varying degrees of  deep, dark depression, which can last for months.

Bipolar disorder is  a chemical imbalance in the brain that causes periods of depression and periods of abnormally elevated mood, mania. The elevated mood is significant, known as mania or hypomania depending on its severity and whether symptoms of psychosis are present. Psychosis means when your mind lose touch with reality, with delusions or hallucinations.

During mania, someone feels abnormally, happy, energetic, irritable and not requiring sleep they often appear to be bouncing off the walls, starting new projects, trying to achieve too much. In some cases, addictions during mania may also present.

During depression, someone with bipolar disorder may be crying, experiencing negative thoughts and giving poor eye contact. You will notice this if you ever have a conversation with someone who is depressed. They may also be suicidal or talk about self harm.

My Story:

My first manic episode occurred in 1991 and I went to the doctor and was prescribed Valium (an anti anxiety calming medication), which was handed out like sweets in those days.

The Valium didn’t do me any harm but they certainly didn’t do me any good. In the next 9 years, I had three manic episodes followed by three increasingly devastating depressive and suicidal episodes, the last of which lasted 5 months.

In my first manic episode I was going out a lot late at night to clubs and bars and spending too much money. My second and third manic episodes were much more controlled as I recognized what was going on but I was still much more outgoing than usual and spending too much money.

My depressive episodes were serious and eventually suicidal and lasted 3, 4 and 5 months respectively. I often stood on the edge of a London Tube platform thinking about ending it all. I would drive down the motorway at speed not turning the corners until the last possible moment. I would stand in the bathroom with hands full of tablets thinking about overdosing and ending my life. Mostly, I was at home in bed doing nothing but sleeping , eating and surviving.

The person you would meet today is not the person you would have come across at that time.

Looking back there was no real connection made between these episodes and I wonder 1. Why I was never hospitalised and 2. Why I wasn’t diagnosed more quickly.

First of all, 30 years ago far less was known about Bipolar Disorder so the doctors weren’t quick to diagnose it. Secondly, it was only after 9 years that my GP reviewed my file and noticed that I had never been referred to a psychiatrist.

This was the breakthrough that changed and saved my life.

I went to The Priory hospital to see a psychiatrist, describing my episodes. Within 45 minutes I had a diagnosis,

”You have a mental illness. It has a name, It is Bipolar 1 Affective Disorder. You have it for life and it is treatable with the drug Lithium.”

Lithium balances out the chemical imbalance so you end up between the poles and mood is then stabilised. I am pleased to say that in the past 20 years, the medication has worked for me and has stabilised my bipolar disorder, so I no longer get episodes of mania or depression.

I am also pleased to say that as quite an emotional person I still experience the normal feelings and emotions that come with everyday life.

Starting on Lithium is not easy as you have to be weaned onto it. There are side effects, the most common being weight gain and you have to have regular blood tests to make sure the level of Lithium in your bloodstream is correct (non toxic) and it is not affecting your kidneys.

I do wish that I had been diagnosed earlier and not had to suffer manic and depressive episodes as I did.

These are the 4 takeaways I would like you to have from reading this, this Time to Talk Day:

1. With mental health it’s good to talk about it , It’s good to fight stigma and it’s good for your own healing.

My journey started in 1991 and I would hear things like ”you’ve got a weakness. Why don’t you pull yourself together?”, which were unhelpful

2. Think about how you can help people in your community by recognizing the signs that someone has depression or mania.

3.  Live a positive life- I am an example of a bipolar sufferer who can maintain a positive life. Bipolar is an illness that needs treating. It is treated with medication but it can take time for the medication to be right as each person has individual brain chemistry.

4. Listen to those who are struggling. Most of us listen to reply. If you watch two people deep in a conversation or you are in one yourself your focus will be very much on the other person and you will be listening at 90%.

But if you are listening to understand and you are feeling and sharing their emotions then you are truly listening at 100%. Check out the Samaritans help line too.

 

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(image: Mike Segall)

Mike Segall is a professional speaker and mental health advocate, sharing his lived experience with bipolar disorder to groups in the UK. He is also the father of the founder of this blog, Eleanor.

4 Helpful Treatment Options for those who suffer from PTSD- Guest post by Rachelle Wilber

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Post-traumatic stress disorder (PTSD) is a serious mental health condition that affects people who’ve experienced major trauma events. Common among military service members who’ve fought in combat zones, PTSD can also affect people who’ve lived through other terrifying episodes that have resulted in physical and/or mental harm. If you believe that you suffer from PTSD, you can work with a therapist and try any of these four different treatment methods to overcome the condition.

Cognitive Behavioural Therapy (CBT)

This type of therapy works to alter thought patterns that often cause people to relive the traumatic events in their minds. As Mayo Clinic states, the goal of cognitive behavioural therapy is to make you more aware of negative or inaccurate thoughts so that you can adopt a healthier perspective of challenging situations and respond in a better way. Undergoing this therapy may also help prevent relapses that could jeopardise your mental health.

Exposure Therapy

Your therapist may also try exposing you to things that trigger traumatic thoughts as a way to alleviate them. This is done in a safe way, and your mental health care provider will be there to help you process your thoughts and feelings and give you tools to overcome your anguish. You may be shown pictures, see writings or even revisit a place where the traumatic episode occurred. Gradually, these negative thoughts should lose their power and cause you less mental grief the more that you’re exposed to them.

Eye Movement Desensitizing and Reprocessing (EMDR)

Also known as EMDR therapy, this treatment method involves recalling distressing thoughts while a therapist’s fingers move in front of your face. You’ll be asked to follow these finger movements with your eyes while discussing your feelings, however, you generally won’t be required to talk about your thoughts in great detail.

Some therapists use foot or hand tapping or musical notes instead of finger movements in front of the face. This more active approach to therapy is intended to minimise the effects of bad thoughts.

Medication

Medication is sometimes prescribed by mental health professionals to work in conjunction with other types of therapy. Prozac, Zoloft and similar antidepressant medications are formulated to boost serotonin levels in the brain to alleviate negative thoughts and emotions. Your doctor may also prescribe Depakote to stabilize your moods. Prazosin often works well in stopping nightmares.

You don’t have to continue letting PTSD dominate a large part of your life. Seeking professional help and undergoing any of these therapies will likely give you positive results.

 

This article was written by freelance writer Rachelle Wilber from San Diego, California

A Guide to Mood Disorders: Guest blog By Ellie Willis

Mood disorders encompass many disorders of how you feel from day-to-day, whether that is abnormally elevated (mania) or depressed and in low mood. They can include depressive illness such as major depressive disorder, dysthymia, postnatal depression and the bipolar spectrum disorders. They also feature anxiety and panic disorders. These are often down to brain chemistry and sometimes environment.

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(image: Pinterest/ Healthyplace.com)

 

Major Depressive Disorder

Major depression is defined as a depressive illness where you experience a significantly lowered mood and a loss of interest in activities that you would normally enjoy. While it is normal to feel sadness and grief when your life significantly changes, such as when a loved one passes away, when it doesn’t go away or gets worse, it may evolve into major depression. Some of the symptoms of depression are:

• Feelings of helplessness or hopelessness • Feeling guilty over insignificant things • Withdrawing from family and friends • Drinking alcohol or taking drugs as a coping mechanism • Having problems with concentration • Being unproductive • Having a lack of confidence • Feeling irritated or frustrated • Having a lack of interest in sex.

While sometimes a depressive episode seems to come out of the blue, there are often things that can trigger them. These may include: Genetic risk factors • Alcohol or other substance abuse • Medical problems such as thyroid issues or chronic pain • Certain medications such as steroids • Sleeping problems • Stressful life events 

Studies have shown that there appears to be a genetic component to depression. That is, if one of your parents has a depressive illness, you may end up suffering from depression yourself.

Dysthymia is a chronic form of depression that occurs when you suffer from a mild to moderate depression for at least two years. Although dysthymia causes problems in everyday life, dysthymia is often not severe enough to warrant hospitalisation. The chronic nature of the disorder means that you may believe that you have always felt like this.

The good news is that there are a wide range of medications to treat major depressive disorder, such as antidepressants. There are many kinds of medications around, and you may have to try a few until you and your psychiatrist find the perfect one with little to no side effects.

As of the time of writing, the antidepressants most commonly used are SSRIs and SNRIs (selective serotonin reuptake inhibitors and serotonin-norepinephrine reuptake inhibitors). These refer to the types of neurotransmitters (chemicals in the brain that affect mood, among other things) that they affect.

With antidepressants, it is extremely important not to stop medication all at once, unless there are serious side effects and even then, only under medical advice. This is because of discontinuation syndrome. Simply put, this means that your body gets used to the medication being in your system (different to addiction where you crave the drug) and you experience symptoms such as nausea, dizziness and insomnia, to name a few.

Another important way to treat depression is psychotherapy in one form or another. This can help you by learning coping skills to deal with depressive thoughts and negative thinking, as well as having someone to speak to with complete privacy. There are a few other ways for you to combat depression in adjunct to medications or therapy.

These are: • Maintaining good sleeping habits • Exercising more • Seeking out activities that bring you pleasure • Being around caring and supportive people

Postnatal Depression

Postnatal depression is a depressive illness where a new mother experiences depression in the first few months after giving birth to a child.

Some of the symptoms of postnatal depression include:

• Feeling sad or empty • Lowered self-esteem • Changing appetite (usually a decrease) • A loss of enjoyment in everyday activities • Changes in sleep patterns such as insomnia • Not being able to concentrate • Feeling cut off from the baby • A loss of interest in sex • Feeling ashamed, guilty or inadequate • Withdrawing from family and friends • Mood swings • Thoughts of harming yourself or the baby

There are a number of factors that make postnatal depression more likely. Some of these may include: • A history of depression, especially postnatal depression in the past • If the baby is sick or colicky • If you are in an abusive relationship • If you are suffering from stress • If you have little support from family and friends •

Treatment for postnatal depression is essentially similar to that for major depression, such as antidepressants and therapy and in some cases intervention from a psychiatrist or hospital team is required.

 

Bipolar Disorder Spectrum

Bipolar disorder is a mental illness characterised by periods of extreme mood states known as mania and depression. It is one of the most serious mental illnesses and is the sixth most disabling condition in the world at the time of writing. It is chronic and potentially life threatening. However, those with it can go on to recovery and live happy and fulfilled lives between episodes. 

According to some studies, one in fifty people may suffer from a form of bipolar disorder. In many cases, there is a family history.

Mania is one pole of bipolar disorder – an extremely elevated or depressed mood, sometimes accompanied by psychosis. You may have racing thoughts or speak so quickly it is difficult for others to understand. You may also have trouble getting to sleep at night or suffer from insomnia. There is a danger of reckless behaviour such as overspending, unsafe sexual activity or aggression. You may feel a sense of grandiosity, making unrealistic plans. Despite mania feeling great at the time, the consequences of mania can be destructive.

Some of the signs of depression include a lowered mood, self-esteem or interest in enjoyable activities, pessimism, reduced energy and changes in appetite. Suicidal thoughts are also possible and must be monitored closely. As bipolar disorder is a recurrent illness and there isn’t any known cure, you may need to take medications to maintain your mood at a normal level.

Hypomania is the hallmark of bipolar II where the patient might feel euphoria or agitation. Hypomanic episodes are similar to manic episodes except they are less severe and sometimes pleasurable to you. There is never psychosis in a hypomanic episode. Despite hypomania increasing productivity, or making you feel increased self-esteem, the consequences can be major, especially as your mood goes down to depression.

A mixed state is a combination of manic and depressed symptoms. In a mixed state you may feel very sad or hopeless while feeling extremely energised. These can be dangerous, because of the suicide risk from being depressed as well as impulsive. If you feel you are heading into a mixed state, you should contact your psychiatrist as soon as possible.

Bipolar disorder type I is characterised by at least one episode of full-blown mania as well as depressive episodes. There is also a chance of psychosis (delusions/ hallucinations)  accompanying a manic episode. Bipolar type II features only hypomania and never mania or psychosis. While these manias are less destructive, the depression tends to be worse, and there is often a high suicide risk.

Cyclothymia is a bipolar spectrum disorder where you may have long periods of minor depression lasting at least two years alternating with hypomania. These depressive periods tend to be irritable and agitated rather than melancholic and lacking in energy.

Bipolar NOS (not otherwise specified) simply refers to bipolar disorders that do not strictly meet the criteria of any of the previously mentioned types of bipolar disorder.

The treatment of bipolar disorder involves medications such as Lithium carbonate, lamotrigine, sodium valporate, and quetiapine, as well as psychotherapy to help overcome negative thoughts that exacerbate depression or after effects of mania. 

As bipolar disorder is a recurrent illness and there isn’t any known cure, you may need to take medications for life to maintain your mood at a normal level. Despite this, many patients continue to do well as long as they stay compliant with treatment and keep aware of their changing mood states.

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(image: MTVFORA: http://fora.mtv.ca/words-of-wisdom-celebrity-quotes-on-mental-wellness/)

 

Anxiety Disorders

The term anxiety disorder covers a wide range of illnesses from panic disorder to post-traumatic stress disorder (PTSD). Despite the wide range of diseases, many share similar treatment options. There is a stigma affecting some anxiety disorders due to stereotypes in the media.

 

Generalised Anxiety Disorder

It is normal for people to feel some anxiety over normal life events such as exams, work problems or family issues. However, when it causes problems in your everyday life or is particularly severe you may have an anxiety disorder. Generalised anxiety disorder involves having irrational fears, such as being afraid harm will come to you or your loved ones, financial issues, health, relationships and work.

Physical symptoms when experiencing anxiety may include: • Light-headedness • Becoming tired easily, or being unable to sleep properly • Feeling tense or restless, or losing your temper easily • Nausea • Shortness of breath • Headaches • Trembling • Muscle tension Treatment generally involves medications or therapy.

Psychological treatments may involve: • Learning relaxation techniques such as muscle relaxing exercises or meditation • Therapy to teach you how to solve problems that cause anxiety with anxiety disorders, psychological treatments are generally more effective than medication, however it can still be useful.

The most common treatments are antidepressants or benzodiazepines such as alprazolam or diazepam. Generally, benzodiazepines shouldn’t be taken long-term, as there is a risk of becoming dependent on them.

Anxiety disorders are relatively common in the population, with statistics that approximately 25% of the people suffer some kind of anxiety disorder that may warrant treatment in their lifetime. Anxiety is treatable, and therapy or medication may minimise the effects on your life and relationships.

Panic Disorder

Panic disorder is a mental health condition where you experience a feeling known as a panic attack recurrently.

Some of the symptoms of a panic attack include: • Shortness of breath • Dizziness or light-headedness • Tightness or pain in the chest • Trembling or shaking • Dry mouth • Muscle tension • Difficulty gathering thoughts or speaking • Tingling fingers or feet • A choking or smothering feeling • Hot or cold flushes • Nausea or butterflies • Blurred vision • Fear of dying, losing control or going mad

When you have panic disorder, you may also worry about the implications of a panic attack such as humiliation or feeling of going crazy.

You may try and flee from the situation hoping the panic attack will stop. Panic disorder is generally treated via therapeutic methods rather than medications. This may involve your doctor teaching you about panic disorder, for example, that a panic attack is distinguishable from other mental illnesses such as other anxiety disorders or psychosis – this is known as psycho education.

A therapist may instruct you not to avoid any situations where a panic attack may occur. This may be unpleasant at first, but slowly you will not feel anxious in the situation. This will help prevent agoraphobia and the disability it causes.

A common treatment for anxiety disorders is CBT – but there are many types too including exposure therapy and talking therapies. They can be incredibly helpful for you to overcome feelings of anxiety.

This guest blog was written by Ellie Willis, an expert in mental health.

 

Extract from Cosmopolitan UK Article by Olivia Blair on Anti Depressants- featuring our founder Eleanor

I was so excited to be featured in Olivia Blair’s article for Cosmopolitan UK on anti depressants- 6 women share what its really like to be on Anti depressants.

I am so thrilled to be in this article with 4 other brave women. My first time in Cosmo! Thank you Olivia.

Below is my part of the article but please click here to read the others experiences too:  https://www.cosmopolitan.com/uk/body/health/a18720313/women-on-antidepressants-working/

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(image: Getty Images/ Cosmopolitan)

I become suicidal when depressed, it’s vital I take medication for my health”

Eleanor Segall, 29, mental health blogger

“I started taking antidepressants when I was 15 after an acute depressive episode where I had to take time off school. A year later I was diagnosed with bipolar disorder and was hospitalised so I was prescribed a mood stabiliser as well to keep me on an even keel.

I was concerned about some of the side effects but the positives for my mind and brain chemistry outweighed the negatives. Over the years, I have been on different antidepressants including fluoxetine, duloxetine and now sertraline. I also continue to have psychodynamic therapy and have tried CBT, art therapy and meditation.

There is a big stigma around anti depressants, particularly against bipolar and other chronic conditions. But I think this new study offers proof that, for some of us, they are vital.”

Dispelling the Online stigma: Twitter, Antidepressants and #MedsWorkedforMe

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(image: amyransom.com)

I wasnt going to write a blog on this because it might feed the Twitter trolls. But I have decided that its really important that I speak out about whats been going on this week on there, in realm of mental health on social media. Theres been a lot of stigma against medication as well as much support for it.

This week, a study by Oxford University and published in the psychology medical journal the Lancet, found that anti depressants work and are effective in a large number of cases. It was hailed as the first major study to prove this. Some medications were found to be more effective than others, but it provided a fantastic proof- that anti depressant medications do help relieve depression in many cases. They are not just a placebo pill.

However, of course, there are a large number of people who have had bad experiences with anti depressants and want to make their voices heard- yet often at the expense of those of us who it works for.

On Twitter, using the trending hasthtag #antidepressants and #medsworkedforme, I shared that anti depressants coupled with my mood stabilisers, have very much helped my bipolar disorder. My brain chemistry and illness is such that unmedicated I can have episodes of suicidal depression, psychosis and mania. My medication keeps my moods balanced and well, so I can function and live a normal life. I have been on anti depressants for almost 15 years now. I have been on fluoxetine, duloxetine and now sertraline.

The only bad experience I ever had with them is when my previous mood stabiliser stopped working and due to an increased dose of duloxetine to relieve my depression (which it did), I tipped over into a fast and unpredictable manic episode. This is the risk that those of us with bipolar run.

Yet, by and large my experiences with meds have been hugely positive. They keep me stable and well.

Unfortunately, on Twitter, I got trolled for the first time by people sharing the following ‘helpful’ opinions (they were not helpful and highly stigmatised):

1) You should reduce your sugar intake as sugar causes highs and lows and is addictive as cocaine. If you reduce your sugar, your bipolar will improve.

(To this I had to reiterate that no medication and less sugar will make my illness worse… and that excess sugar does not cause bipolar 1 disorder.. i.e. it does not have that impact on my mood swings.. bipolar is a real illness in the brain. Reducing sugar may help with overall health but seriously you are going to tell me this?)

2) Others asked what alternative therapies I had tried- eg exercise instead of medication. I reiterated the above re psychosis and suicidal ideation. Which unfortunately cant be treated with exercise alone.

3) People shared their own stories eg the man who had multiple severe illnesses and takes no medication because ‘it shortens life span’ and its a medical fact apparently that these medications cause psychosis. (Some psychiatric meds cause side effects but psychosis- really? Also why would you tell me it will shorten my life?)

There was a lot of what I would call militant stigma against medication, either by people who fear it or have experienced negative effects.

While medication is not for everyone, we shouldn’t be shaming people for taking it. I shouldn’t be shamed for keeping my brain healthy and well through taking meds. And neither should any of you.

Make sure you fight this stigma (and the block button is always useful).

Love,

Eleanor

My article for Metro.co.uk: ‘What I wish people knew about Mental health medication and Weight gain’

Today I was published for the first time on the Metro.co.uk website, with quotes from my friend Jonny Benjamin MBE, Dr Amy Jebreel- psychiatrist and Dr Clare Morrison, GP at Med Express UK. I enclose a snippet here and link to the full article. This is an intensely personal article for me, about weight gain on mental health medication and I know so many of you can relate to this. I would love to hear your feedback!

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(image: Ella Byworth for Metro.co.uk)

‘At age 15, I was referred to a psychiatrist for a serious episode of depression and anxiety (later known to be bipolar disorder). With parental permission, I was put on an anti-psychotic medication olanzapine, to calm my mind. 

What I didn’t know then, was that olanzapine is one of the worst drugs for weight gain, and although the drug calmed my mind, I put on several stone in weight. As a vulnerable teenager, being overweight was upsetting for my body image and self-esteem.’

Read full article: http://metro.co.uk/2018/01/16/what-people-dont-understand-about-mental-health-medication-and-weight-gain-7231252/?ito=cbshare

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Psychiatric Medication and Weight Gain- a Journey to taking back control.

This post is intensely personal for me as it encompasses 3 years of recovery from  a severe bipolar manic episode that left me hospitalised. Weight gain is a side effect from more than one of my medications and in this article I will explain my journey and why now I want to take control back.

I have (up until the past few years) always been tall, slim and curvy and never had to worry about my weight. It simply didnt register to me that I couldn’t eat carbs or ice cream or pizza (or my favourite food in the world- pasta)- my height, at 5 foot 10, meant I could carry my weight more than the average short person.

The first time I put on significant amounts of weight due to psychiatric medication was after going on the anti psychotic Olanzepine, aged 16 after an acute episode of depression. I ballooned in weight (due to cravings) and put on maybe 2 stone (not sure what that is in kilos)- but at the time as I was a teenager with a fast metabolism, I was able to lose the weight once I came off the Olanzepine and go back to being a size 12 . My first mood stabiliser- Carbamazepine, that I was on for 10 years didn’t cause the weight gain I have now seen and I went back to being slim.

Over the years as I was put on different anti depressants and experienced suicidal depressions and social anxiety, I comfort ate- pasta, chocolate, cheese to take away the pain of the depression. Still, in 2013, I was maybe only a UK size 14-16 (having been an average 12-14). As mentioned, my tall frame meant I didn’t look big.

Then, in 2014, I was hospitalised due to mania and psychosis and given many medications for psychosis and anxiety- Haloperidol, Benzodiazepines, Upped dosage of Quetaipine in addition to my mood stabiliser and anti depressants . Also during the mania, my mind was so busy that I constantly craved food and snacks and couldn’t regulate my appetite. So weight gain was inevitable.

I put on a lot of weight over my time in hospital, day hospital and at home when recovering afterwards- I wasn’t working, was very anxious and low and the comfort eating began. Add to the lack of exercise- I became overweight and unfit fast. I also found that my new stabiliser Lithium, plus the Quetaipine and anti deps, meant I had bad sugar cravings and became addicted to sugar. I still am, but I am trying to regulate it. This meant I was drinking a lot of juice and eating chocolate.

This week I went to the Doctor and was weighed. I have put on 5 stone in 3 years since Ive been unwell. This was a huge wake up call. The Doctor told me that reducing the Quetaipine would help my weight loss as it causes increase in appetite.

I have bought the Slimming world cook book and Exercise DVDS and really need to find the willpower to just start my diet and exercise regime. Being the size I am- I need to lose weight for health reasons and this is what is spurring me on to begin.

Guest post by Marcus – 7 Tips to Improve the Symptoms of Bipolar Disorder

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Bipolar disorder (formerly referred to as manic depression) is a condition characterized by mood oscillations- moving between high and low mood. A person suffering from bipolar disorder experiences mood changes and these changes are often erratic and unforeseen.

Symptoms of this disorder regularly change and that is one of the reasons why it can be such a difficult condition to treat and keep a consistent state of mood and activity for sufferers. However, it is possible!

Little things can help and here are 7 tips that might just help make symptoms slightly better:

  1. Make sure you get the Right Amount of Sleep

People who suffer from bipolar disorder often have erratic sleeping patterns. It is believed that one-quarter of these cases sleep too much at night while about a one-third experience difficulty in falling sleep, thereby suffering from insomnia.

As irregular sleeping patterns may precipitate depressive episodes, experts advise setting up an alarm to ensure one gets up at the same time each morning as well as setting fixed hours for sleep in the evening so that the body can adapt to this necessary function.

  1. Consistently take your prescribed Medication

According to Cara Hoepner, a nurse practitioner who also has this condition, discipline is the key when it comes to taking medication prescribed for bipolar disorder. However, she also agrees this can be a difficult task, seeing as some of the medications commonly prescribed (such as Lithium) require constant monitoring via blood tests to ensure they do not become harmful to the patient. Lithium can be toxic in rare cases and so its important to work with a good medical team.

Coupled with the fact that skipping medication will often trigger a relapse, she advises that all patients with this condition should exercise diligence and discipline in taking their meds. Tablet boxes can be very helpful for multiple medications.

  1. Shun Drugs and Alcohol

An expert in bipolar disorder, Bearden, claims that nearly half of patients of bipolar disorder have problems with substance abuse. He also states that this is one of the major reasons why many treatments do not succeed, due to it impeding recovery.

He therefore advises that while alcohol may appear a welcome refuge for bipolar patients in that it temporarily relieves depression, the mere fact that it triggers a depressive state in the brain as well as erratic sleeping patterns and mood oscillations, goes against the purpose. In addition, alcohol and drugs may impair cognitive functioning and hinder chances of  recovery- they exacerbate high and low episodes in the condition.

  1. Invest in Therapy

One of the best ways to improve bipolar disorder symptoms is to invest in therapy, including talking therapies, CBT, art therapy and more. While it may seem unappealing to many patients, therapy actually goes a long way in improving their chances of recovery.

Cognitive behavioural therapy helps patients understand and interpret events and thoughts, thereby enabling them to get back to their normal routine. There are other therapies which assist recovery and maintaining stable relationships .

  1. Learn the Triggers

Learning the triggers of bipolar disorder may help the patient nip the episode in the bud by actually dealing with these triggers before they develop into a full-blown episode.

Some of the triggers that make people unwell include sleep deprivation, social isolation and stressors eg divorce, death, change or job or having a baby . Other major changes in your life may also trigger depressive or manic tendencies, especially if they disrupt your routine so be careful to look after yourself in times of high stress.

  1. Learn the Side Effects

The most common side effect of taking Lithium or other anti psychotic medication  is metabolic syndrome, a side effect that majorly involves the impairment in the functionality of the kidney and the pancreas. A spectrum of effects such as high cholesterol, insulin resistance and weight gain would ensue, and this is where you need to deal with the to keep optimal health. A healthy diet and exercise is always important.

  1. Connect with Friends and Family (Support Network)

If you have a good support network, its so important to share how you are feeling with    close relations or best friends. By discussing your problems with those you trust, they hopefully will provide the emotional support needed to get through difficulties and help recommend further treatment or come with you to the Doctor.

In a nut shell, do not sit back and let your mood disorder take over without help. Speak out and let your friends and family help you out. In some families, there is a stigma so please do be careful as to who you let in when you are unwell.

Living with bipolar disorder is not an easy experience. However, by understanding how to deal with the symptoms, you can certainly improve your symptoms to keep you healthy and well. Read widely and remember that however debilitating episodes can be, Bipolar can be managed on medication and with therapy and. support. You are not alone.

Marcus regularly blogs at psysci, a psychology, science blog that examines the latest research and explains how findings can impact and improve people’s lives