New #ChangetheStory Campaign by Hope Virgo and The Hearts Minds and Genes Coalition shows rise in Eating Disorder Stereotypes.

(image: Change the Story Campaign)

#ChangeTheStory and Anybody and Everybody is a new campaign launched this month by The Hearts Minds and Genes Coalition which is chaired by Multi-Award winning campaigner and Author, Hope Virgo. Hope is a friend of mine who has campaigned for years for help for those with eating disorders and she is a force to be reckoned with and an amazing woman!

Eating disorders are serious, biologically based mental illnesses deserving of equal clinical and research funding to that given to other complex diseases. They want to ensure that no-one with an eating disorder need experience shame or guilt, and everybody should have timely access to specialist services.

Author and Multi-Award winning campaigner, Hope Virgo who chairs the coalition says;“When we think of eating disorders we often immediately think of a white teenage, emaciated girl and fail to realise that eating disorders are so often hidden in plain sight amongst all ages, genders races, ethnicities, body shapes and weights, sexual orientations and socio-economic statuses. The campaign is working to remove the stigma and misunderstanding that surrounds these illnesses, ensuring that nobody should experience shame or guilt for suffering from an eating disorder and to make sure that everybody has prompt access to specialist services.”

(image on Twitter: Change the Story campaign, Hope Virgo and FEAST outside the Houses of Parliament)

Eating disorders are not new illnesses, but there has been a massive rise in cases during the pandemic. Unacceptable delays before treatment means we are also seeing a rise in avoidable chronic long-term illness and loss of life. We need to ensure that we are no longer hiding behind the global pandemic but ensuring that the right support is in place for everyone because no one should be dying of an eating disorder in 2022. They are working to remove the stigma and misunderstanding that surrounds these illnesses, ensuring that nobody should experience shame or guilt for suffering from a biologically based illness and everybody should have timely access to specialist services.

To raise awareness of the campaign they have created a video supported by Instagram. For a long time, people have used Instagram to challenge stereotypes about body size, share their journeys with overcoming body image issues, and celebrate different body types. 

 Renee McGregor, leading Sports and Eating disorder specialist dietitian said;“We need to change the images, narrative and practices presently associated with eating disorders in order to ensure that no further lives are lost to this illness in 2022 or beyond.” 

Suzanne Baker, CarerRepresentative for F.E.A.S.T. (www.feast-ed.org)in the UK, said;“timely access to sustained, specialist treatment is key to recovery from an eating disorder at any age or stage. Currently too many people are not able to access this treatment often due to misconceptions about what an eating disorder ‘looks’ like. There is no one look – eating disorders are serious biologically influenced illnesses and are often hidden in plain sight.

Dr Agnes Ayton, chair of the Eating Disorders Faculty at the Royal College of Psychiatrists, said: “No one chooses to have an eating disorder. An eating disorder can affect anyone at any age and can be caused by a range of factors including genes, mental or physical health conditions and social pressure. The stigma around having an eating disorder prevents many people from asking for help when they need it. No one should feel embarrassed to ask for help. An eating disorder can have very serious long-term effects on the body, but with treatment, people can fully recover. Raising awareness of this issue is an important first step in helping people to get the help they need. If you think you may have an eating disorder, speak to your GP who can refer you to a specialist counsellor, psychiatrist or psychologist. You can also visit the NHS Choices website to find out what additional support is available, including confidential helplines.”

Gerome Breen, Professor of Psychiatric Genetics at King’s College London says: “Research and its dissemination are essential to dispelling the unhelpful myths and stigma that surround eating disorders and compound their long-lasting and devastating impacts. By understanding more about why and how eating disorders develop we can improve society’s conceptualisation of these conditions and hopefully enable more people to seek and receive the support they need.”

(image on Twitter: Jeremy Hunt MP with Hope Virgo)

You can help by posting a selfie to support this campaign with the hashtag #changethestory.

Watch the video here to discover more about the campaign:

#MyDepressionMeans: How my hashtag inspired others fighting depression : Jewish News Article extract by our founder Eleanor Segall

jewishnews

On 17 December, I was sitting at home thinking about my depression. I have bipolar disorder, which is well controlled on medication; however, often in the winter I am prone to depression, partly owing to the lack of light. This means things start to feel hopeless and I have less energy. Symptoms of depression affect everyone differently. I had started feeling low and my job is not the most social, so I felt a little isolated.

I’ve been active on Twitter for a while, posting about mental health, bipolar, anxiety and sharing my story with the world via Metro and other newspapers, to battle the stigma. I had a brainwave – why not start a hashtag that can help others share their own experiences of depression? There had to be lots of us out there, feeling the same way and feeling like they needed to talk.

Seeing as waiting list times for therapy are growing longer and longer, I decided to see if others wanted to share what their depression means to them. So, the hashtag #MyDepressionMeans was born.

I shared this message:

‘I’ve been struggling with depression lately but I know how supportive the twitter community is. Thought we could use the hashtag #MyDepressionMeans and share experiences to help everyone feel less alone. #MyDepressionMeans I get up later than normal and feel hopeless. Please Retweet’

To drum up support for the hashtag, I messaged my fellow mental health campaigners and charities to see if they would get behind it.

Amazingly, charities Rethink Mental Illness, the Mental Health Foundation, the Shaw Mind Foundation and mental health publisher Trigger Publishing all got behind it and retweeted to their thousands of followers asking people to share their own experiences.

People from all over the world began sharing their symptoms of depression and what it meant for them. I am amazed that my tweet has been liked nearly 400 times and retweeted over 150 times, with around 450 responses of people sharing about their mental health.

It was important to me that when sharing this, it was done in a safe space. You can never predict if Twitter trolls will hijack the thread, but amazingly there was so much love, support and understanding.

There was an outpouring of hundreds of people, most whom I had never met, sharing about their illness, some of whom had never done so before.

What touched me the most was a video recorded by a woman who was sharing about her depression for the first time – and who was empowered to keep on sharing, owing to the phenomenal response.

By creating the hashtag, I had something people could share. This is down to the incredible mental health community and unique online support network.

 

Read the rest at: https://blogs.timesofisrael.com/mydepressionmeans-how-my-hashtag-inspired-others-fighting-depression/