Category: Dreams

Looking to the Future and Life Dreams: by Eleanor

~ Eleanor Segall ~ 7 Comments

 

Dream big lettering on watercolored background

(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

2020: New Year Round Up by Eleanor

~ Eleanor Segall ~ 8 Comments

 

(image: Prevention.com)

New year posts are always hard to write aren’t they? We start the year in a midst of optimism about goals and achievements and working towards our dream/s. But it can so easily get derailed as life gets overwhelming or busy. However, this post is to say ‘do not give up!’ (to me and to you).

2019 was an amazing, busy, emotional, whirlwind of a year for me. I started the year engaged and half way through wedding planning. In March, my step grandpa sadly passed away at the age of 96. Then, my father in law has stage 3 brain cancer and earlier this year was hospitalised for pneumonia (due to chemotherapy weakening the immune system), which then rapidly became sepsis (poisoning) which can be life threatening. We didn’t know if he would make the wedding and at one point we didn’t know if he would make it through the night.  There was a lot of praying, a lot of fear, a lot of emotion. That was April.

Thankfully, he survived and recovered over months at home. But he is still unwell- we are just lucky he is still here and he made our wedding too.

In May, I started a new job in PR and Communications and met the best colleagues ever. I also spent the year writing my book ‘Bring me to Light’ with Trigger editors Stephanie and Katie. I submitted the manuscript 2 weeks before our wedding.

In late June, I was bridesmaid for my best friends wedding and it was wonderful.

In July, I married my best friend in front of loved ones (including father in law), we moved in together and we went on honeymoon to Sicily, Italy in August to a beautiful place and made good memories. In September, Rob’s cousin got married and that was a lovely family wedding.

In October, I left my new job for personal reasons- although I loved it. The stress of the year, the changes of life had got to my mental health. I am currently working freelance as a writer but applying for jobs too.

Sometime in October/ November, I started EMDR trauma therapy with a wonderful therapist and I hope it continues to help me.

In November, my book was published and sent out to the world and I did some press for it, although I experienced heightened anxiety with it coming out which affected me for a while. Good friends got married too at this time.

In December, I went to Limmud Festival (a conference) with my Dad for our first talk about it and managed to speak, despite my anxiety.

Now, its 2020.

I have some goals for this year. Mainly to be happy, healthy and confident and to give to other people.

This year I would like:

–To publish my children’s stories

-To seek out amazing opportunities to promote my book

-To work as a writer and in social media. I would also love the opportunity to work in schools again part time to develop my skills in early years. For me to be financially independent is something I would love again.

-Manage my panic attacks through therapeutic techniques.

-To raise more mental health awareness

-To be more healthy and look after my body

-To be kind and give to others more.

 

Here’s to a new year of health, happiness and prosperity. How was your 2019/ new year?

Eleanor x

 

5 Years, Anxiety and Keeping Well (by Eleanor)

~ Eleanor Segall ~ 7 Comments

hopedark1

(image https://mandibelle16.wordpress.com/2016/08/10/poem-free-verse-hope-scarred-amwriting-poetry/:)

Thanks to all who voted for this article on Facebook and who have supported me these past 5 years and beyond. I love you all.

I cannot believe that this year (in March) is 5 years since I was hospitalised as a 25 year old for my bipolar disorder. For those of you who know my story, I became unwell with an episode of severe mania within a number of days, which featured psychosis-losing touch with reality and agitation. Its likely that my old medicines stopped working and I started believing delusions that werent real.

When I was hospitalised, I eventually went to the QE2 hospital in Welwyn, Hertfordshire (which has now been knocked down and now based in Radlett!). The support I had from the psychiatrist, nursing team, OTs, ward manager and all the staff was incredible and they   really believed that I would get well again. I cannot have been easy to deal with, due to the mania and the fact I was pacing around all the time, singing and in my own little world. Their kindness and help really helped me recover properly- as did the visits and love from family and friends.

I spent 4 months as an inpatient at Welwyn and then a further 4 months in outpatient treatment at a Day Hospital unit in Watford. The day hospital was very beneficial to me and helped me to start on my new medication and process all that had happened. I had help from a very special care coordinator and support worker once I had been discharged from day hospital. My care coordinator helped me so much and was so kind and caring.

Recovery is never linear and its something I have to work at every single day. There will always be life stresses that can trigger my anxiety and depression (and potentially a lesser manic episode, although the mania hasn’t happened yet thank g-d). I still struggle with my anxiety disorder and panic attacks in the mornings sometimes. I believe this is as a result of all the trauma that is involved with being sectioned, being an inpatient and having to rebuild my life after. I had social anxiety anyway, as part of the depressive part of the bipolar, but I still believe that even though I have had talking therapy, that my brain is still processing the trauma. Mental health wards are not fun places to live, as you can imagine and despite the staff trying to make it as calm as possible.

I will get triggered with my panic by certain things- like social events or job interviews and I may not always know fully why- it could be subconscious, or I realise it after. I am still rebuilding my self esteem and the love for myself. Anyone who goes through a severe episode of mental illness will tell you that its hard to separate the illness from yourself. Bipolar from Eleanor.

I have incredible friends, my fiance and family who can separate it. Yet, there are times where we all don’t feel good enough. Where  we want to hide even though we are capable of more than we know.

So in these 5 years I have been learning to love me, to think and act on hope, recovery and the future. I have learnt to build self care tools and relaxation into my days if I feel overwhelmed or to stop me from getting too stressed. I have been blessed to have found my life partner and developed my career- although my illness has put my career on hold many times and I have had to reinvent myself. However, I am starting slowly to find the light in the dark.

This is where the phrase ‘Be Ur Own Light’ comes from- to find the inner strength to carry on.

There have been many times when I have wanted to give up. Where I have been hurting and have felt inadequate. When I felt no one would want to date me  or that I wasn’t good enough for a career. Because how could I tell people what had happened to me without them thinking I was a ‘fruitloop’? That was my logic.

Thats why I started to write. I write to heal. I write to explain, educate and battle stigma. I write to make sense of my own mind. I write as a job but also to make a difference in the world and I hope I will do that through my book and blogs/ articles.

In the past 5 years, aside from work and my mental health advocacy, I have been travelling again which always brings me joy. I have been to Rome (Italy) , Prague (Czech Republic), Madeira (with Charlotte), Israel (with Rob), Portugal and Romania. I have stayed at my Dads and explored the Cotswolds and gone on holiday to the beach at Broadstairs with Anna and family. I have seen theatre shows, amazing movies and read some fantastic books. I have found a life partner. I have secured a book deal, volunteered for Jami to launch their mental health shabbat, worked with the Judith Trust and my blog is growing. Being published in Glamour, Metro, Happiful, the Telegraph and the Jewish News were major highlights and finding an incredibly supportive community on Twitter too.

Life is not all hard and sad. Yes, there are times when I have found it a nightmare with my anxiety disorder. I am 100% still a work in progress- recovery isnt easy.

I have had to work on my self esteem in therapy. I have had 6 months of psychodynamic therapy. I read self help books. I should exercise and go out more (working on this).

But:

I am not severely depressed or manic. I can hold down part time work, often from home. These 5 years have taught me that I may always have some degree of anxiety- particularly about past events which effect how I react currently. I need to learn how to heal from this and I hope in time I will.

If you had told me 5 years ago I would be writing a book of my life story and been published in national newspapers I would have laughed at you. I am getting married in July and I can’t wait (and also would have probably laughed at you too).

Anxiety is horrible by the way. Your heart races, you get flooded with adrenaline, you fixate on the fear and want it to go away. You feel sweaty and clammy and you may shake. You need to rush to the toilet. It stops you from sleeping. It stops you from living your best life. So I don’t want to trivialise it here. Its a struggle at times and its disruptive to life.

The pain of anxiety, depression and bipolar is matched by my hope and my belief that I will still achieve despite it. Yes there will be difficulties and bumps along the way, but today I am choosing to look towards the sun. 

          

2018 Round up: The year that has been: New Year by Eleanor

~ Eleanor Segall ~ 6 Comments

 

newyear

When I look back at this year, 2018, I don’t fully know where to start. It has been one of the most meaningful, eventful, and wonderful years of my life so far, but there have also been sad times.

Outside of work, this year was a very special one as back in April, my fiance Robert proposed to me at the Shard, overlooking London. I said yes and 8 months later we are in the middle of wedding planning and planning for our future (and I found my wedding dress!). The proposal was the most amazing thing to happen this year. Also, two of my best friends got engaged and for one we were involved in the proposal and got to see him propose so that was fantastic!  I am looking forward to the weddings 🙂 We also celebrated other friends 30th birthdays, engagements and weddings this year as well as many births of their children which was so wonderful.

Sadly this year, we lost my beloved Grandma in June to Parkinsons disease and I miss her every single day- we were very close.  A month ago, my Grandpa (on the other side of family) passed away after a short battle with cancer, but I was able to fly to Portugal where he lived and see him before he passed and give him a hug, so that was very important. There is also family illness occurring, my father in law to be is very unwell with cancer and mid treatment- and this is very hard for us all but trying to be a positive as possible!

Back in February, My Dad and I went to Romania to the town of Iasi, to explore where our ancestors lived. There was a lot of snow and walking around palaces and churches and finding the synagogues. When we came back, we discovered that my Great grandpas sister and family died in Moldova across the border, at the hands of the Nazis (via the Yad Vashem online database) A very bittersweet trip but we were pleased to see Iasi.

In happier news, after celebrating our engagement with those we love, in July, my fiance Rob and I went on holiday to Israel which was really wonderful. We stayed with close friends and family and also in hotels and had a really special, meaningful, fun and sunshine filled trip! A personal highlight – the swimming pool at the InterContinental hotel in Tel Aviv and of course, walking through the Old City while sipping iced coffee (it was so hot) and visiting the Kotel. When we came back, we spent a weekend in the Cotswolds at my dad with family- a lovely escape. This year too, I also read some great books (like Michelle Obamas autobiography) and watched some fab films/ theatre shows.

In July, I celebrated my 30th birthday with friends and family (thanks Katie for my delicious birthday cake) and then this December, we celebrated Robs 30th birthday at London Zoo light trail.

This year work wise, has been a blessing- I managed (somehow) to secure a book deal which has been a lifelong dream and am working with the fab team at Trigger Publishing and my patient editor Stephanie- thanks to her, Katie and James for their support as I continue to tap away at my keyboard.

Before 2018 began I was in touch with Naomi Greenaway at the Telegraph (Stella Magazine). Thank you Naomi for helping me to tell and share my story in a sensitive way. It was an honour for me to be featured online at the Telegraph and for my story to reach new readers.

Back in January, I met a wonderful editor on Twitter, Yvette Caster, who was looking for new writers for Metro Blogs (as it was then). She looked at this here blog after I sent her a pitch email and commissioned me to write my first ever article for Metro.co.uk on mental health, weight gain and medication. From there, she and her colleagues continued to commission me to write and when she and they left in the summer, I have continued to pitch articles and be published. Thank you to Ellen Scott, Aimee Meade and the current team at Metro too. Being published online by Metro has been an amazing journey and I am proud to write for them on lifestyle topics and mental health, my favourites this year being about the Royal wedding, homelessness and mental health and sharing my Grandpas story.

Thanks also to Bianca London for commissioning my two Glamour articles, this was another amazing bucket list dream ticked. The one on dating and mental illness, bipolar and how I met my fiance (when I wrote the article, he was my boyfriend) was something very close to my heart and it was a genuine honour to be featured in a magazine I had a read as a teenager and one of the biggest womens magazines in the UK. Still can’t believe it.

Thanks to Rebecca Thair, editor of first ever mental health magazine, Happiful magazine for not only being first to publish my story with bipolar back in January (which was so important to me) but also publishing my later articles on social anxiety and a guide to bipolar. I love working with you and the Happiful team and hope to write more for you.  Thanks also to Sonja at UIO Podcast and Sarah Cardwell for interviewing me.

Thanks to Francine Wolficz, Richard Ferrer and Jack Mendel at the Jewish News for all the articles and positive support of my mental health work in and outside of the Jewish community this year.  And to Rabbi Ari Kayser at Aish for including my story in Perspectives Magazine with the Jewish Weekly newspaper.

Thanks to writer Olivia Blair at Cosmopolitan/ Hearst for featuring my thoughts on bipolar in several articles which were also published across Hearst publications like Elle Magazine, Prima Magazine and Netdoctor.co.uk . Thanks also to the team at Refinery 29 for featuring me in an article on Seasonal affective disorder and to the fantastic charity No Panic for publishing my personal story with bipolar disorder.

This year I was also a shortlisted finalist for a UK Blog Award for the Health and Social Care Category  in March (thank you Lauren and team)  and invited to come to the Mind Media Awards as a highly commended journalist in my category. (This was incredibly magical).

Going to the Mind Media Awards in November with my Dad at the Queen Elizabeth Hall and hearing peoples stories of mental health across the UK media was just incredible. It was also a fun night of celebrity spotting- Fearne Cotton, Bryony Gordon, Dame Kelly Holmes, Kim-Joy from Bake Off, Stacey Solomon and Loose Women team, Frankie Bridge and many more. Stephen Fry presented the awards and was just remarkable, humble and funny as always. I was so pleased I managed to attend, it was a privilege to meet people. I met Yvette, Ellen and their producer at Mentally Yours podcast and fellow blogger Katie Conibear. My Dad and I were honoured to attend.

This blog has been a joy at times alongside the hard work. Thank you to all my guest bloggers and all sending submissions- you’ll get a proper individual thank you at our 3rd anniversary in March, but I couldn’t run the blog without your articles and careful attention. Thanks To Vuelio and Feedspot for awards too. Heres to a 2019, our third year of Be Ur Own Light! Thanks also to my Twitter followers who make it so easy for me to share thoughts and ideas with them- and for all the online friendships I have made- you know who you are!

This year has been hard at times but there has been SO much beauty and I feel so grateful and thankful for it all. My mental health has taken a hit at times, but I have found a really good therapist for talking therapy- who has helped me so much and I have also spoken to my GP. Its OK to reach out for support. Thankfully I have a good support network.  I have been a little more anxious and battling mild depression but I am slowly getting better again and starting to see the light :).

I just want to wish you all a happy and healthy new year 2019- this will be the year that I please God get married and my best friend Katie (as well as my fiances cousin too!). May it be a year of better health, wellness and joy for us all. And heres to keep fighting stigma!

May the new year be one of dreams coming to fruition and love and laughter.

Love always and thank you for reading,

Eleanor x 

engagedfb

Mental health, work and the realities of freelancing: by Eleanor

~ Eleanor Segall ~ 8 Comments

 

mentalhealthquote

This article was voted for on my Facebook group last month but as always, there has been a lot going on and I wanted to give this one the time it deserved.

Mental health and work is a huge topic. Mental ill health affects peoples ability to work at times- depression, anxiety, panic attacks and other symptoms can stop us from working and disrupt careers. It is one of the biggest causes of sickness, with people being signed off work by their doctors- from stress or other mental health issues. However, some  people are able to manage their health symptoms and work through it. For me, and many others, I had to switch to self employment, in order to work more effectively.

I started off at uni studying English Literature and Drama at Goldsmiths here in London, got a 2:1 degree and then worked for a year as a teaching assistant in a primary school. I decided then that it may not be for me and I applied to study a masters degree in Applied Theatre at the Royal Central drama school. This was amazing and eye opening- but I was suffering from anxiety and panic attacks (possibly part of my bipolar disorder or just general..).

The anxiety attacks were debilitating for me at times- but I managed to get my Masters. However, I have often found that certain work places are far less forgiving of people with mental health issues- if they are still symptomatic.

I always thought that I would work as a teaching assistant and become a Reception teacher. I worked in several schools and I loved working with the children. I also tried working for a mental health charity. However, I found that my anxiety was getting worse and worse (despite taking medication and having therapy) and that the career just wasn’t working for my health.

So,  I decided to go self employed and become a freelance writer. The perils of freelancing can include: late payment of invoices from clients, having articles pulled at the last minute because the editor changes their mind, clients wanting you to write for free, waiting months for work to be published and some clients only paying on publication- so you don’t get a regular ‘salary’. Income is less stable, its harder to trust people and that you are often sending out pitch emails for writing work- only to get ignored, as editors are often busy with their in house team and work.

The pluses of freelancing: some regular gigs (Thank you Metro!), being featured in Glamour UK is a huge honour and in Happiful and Cosmopolitan/ Elle. I have written a lot this year and I am grateful every day for the editors who have taken a chance on me and commissioned my work.

However, its a balance. Yes working from home is great. Yes setting own hours is good. But, it means that income is less stable for sure. I have far less anxiety and panic working like this. Thats a major plus.

I often feel bad for not earning enough. Or because you have to develop a thick skin to deal with rejection.

In terms of mental health at work- there is SO much that needs to be done. Sickness records mean employees are still penalised, despite their genuine need for a mental health day. Each work place should be trained in signs to spot and have a mental health first aider. Some work places are disability friendly, but many just see you as a worker and if you have a mental illness, will only tolerate so much time off.

I don’t really know what to suggest if you are also in my position. In the UK, we have the benefits system which has been very important for me due to my illness. However, I would love to get to a stage where I can earn enough not to need it.

If you are struggling with your mental health at work, speak to a trusted colleague. HR will not always be supportive – it depends on the organisation, but don’t suffer alone. Just be aware that if you are off sick a lot, some companies will see you as unreliable. This may be 2018, but outdated attitudes at work still exist unfortunately.

There are positives and its important to know  there are good, wonderful people out there. I have met many. 

What is your experience?

Eleanor x

On Turning Thirty. My Bucket List and dreams

~ Eleanor Segall ~ 28 Comments

picturequote

(image: picturequotes.com)

As many of you know. I entered my fourth decade (!) on 1st July. I am now 30! This is weird because I don’t feel it at all. I remember turning 20 on holiday with my friends in India in 2008 and feeling like I didn’t feel ready to be in my twenties. I even felt old back then. (What was I thinking?)

Turning thirty has been bittersweet. Its been amazing and I am grateful to have made it here, older, wiser and still with hope intact. I have an incredible fiance, family and wonderful friends. But truthfully this has been one of the hardest months of my life- with my Grandma passing away and illness in the family. I have had to focus on some very sad and challenging situations in the past few weeks and spent the morning of my birthday visiting a family member in hospital- which was hard but important.

I did get spoiled with presents and cards and spent the majority of the day with my fiance, so that was lovely and he got me a chocolate cheesecake yum.

I am going to celebrate with friends at a later date too. Hoping to escape on holiday to Israel also with my fiance and just see family and friends, go to the beach and pool, see the Old City and have a much needed break in the Holy land! My best friend has just had a baby so will be good to see her too and meet the baby.

When  I turned 20, I could never have foreseen that I would achieve so much personally – my degrees, travelling, new jobs, making new friends, dating and meeting my one, fundraising and volunteering- but also that there would be many years of heartache due to ill health.

The past decade, my mental health and heart were ripped in two and I had to piece myself back together after being in hospital and suffering from the worst depression (and mania) that I had ever faced. It is frightening because you never know when you will get ill as bipolar is chronic, but being on good medication to hold moods as well as extensive therapy really helps.

I have been learning to seize the day and embrace a positive mindset. As I am typing this, James Arthur is singing on youtube and the lyrics ‘The sun will rise, thank the lucky stars that you’re alive.. beautiful life ‘ just played.
The sun rises after darkness and will continue to again. I know as long as I have my support network and team around me, I will be OK.

This decade I want to achieve- my bucket list:

  1. Be a published author and have a successful book which helps me become a speaker and advocate on mental health
  2. Travel to the USA, Maldives, Thailand and Vietnam, more countries in Europe- islands, Croatia and go back to Madeira! Also go on safari in Southern Africa and see Zimbabwe
  3. I would love to become a mother, with my husband
  4. Get on the property ladder if possible
  5. Write for the BBC, Cosmopolitan and other newspapers and continue my freelance writing career
  6. Meet the Duke and Duchess of Cambridge re mental health work
  7.  Be happy, live well and live fearlessly. Seize and love each day
  8. Study more Jewishly and deepen spirituality
  9.  Finally pass my driving test!!

(image:  favim.com)

sayyes

Heres to a new decade, with dreams manifesting and love abounding. I hope G-d blesses me and some or all of the dreams come true! We make plans and He laughs… but I think its important to clarify vision.

Thank you to all who raised money for Gigdev Ghana for my birthday and raised £520. It will help women there so much.

How am I 30?!  I still feel 18 in my heart :),

 Eleanor x