Bereavement, PIP, Promotion and Panic by Eleanor

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Hi lovely readers,

So much has been going on that its been a little overwhelming so I didn’t feel able to sit here and type out my feelings. But today, I feel like I can share so here goes.

My dear father in law passed away from brain cancer at the age of just 67 last month. This was expected, after a two year battle, rounds of surgery and chemo and radiotherapy and being told they could do no more treatment as he had two aggressive tumours and they couldn’t operate further. However, it was still immensely painful when it happened (although we were all with him at a nursing home) and we had the funeral and week of mourning (shiva) as per Jewish tradition. I moved in to my in laws home that week to be there to support my husband, brother in law and mother in law.

We will all miss him terribly- a truly wonderful man and it was a privilege to know him.

Despite this sadness in our family, some positive news has followed. I had applied and been awarded a disability benefit called PIP (Personal independence payment) and been awarded it due to my bipolar disorder and panic attacks impacting on my mental health and ability to work outside the home. This greatly helps our situation and means I can work alongside it too in my role at the Body Shop from home and around my writing (my book Bring me to Light is available here) . We also found out that Rob is being taken off furlough and returning to work on the 1st September- he has been furloughed for 6 months and this was a huge relief for us, as you can imagine.

Additionally, a few weeks ago I got promoted to Area Manager of my Body Shop team, team Hope. This means I manage a team of consultants/ manager in training and help them to develop their businesses too. I feel incredibly lucky to do a job that I love from home and be so supported by my manager Sarah and all my wonderful team mates too. I truly love this job and hope to make it my full time career eventually. The products are so good for self care too.

Now on to my mental health. My anxiety has returned with a vengeance these past few weeks. One night I was up til 5am with panic and insomnia (feeling tearful, restless and pumped with adrenaline) so took some prescribed anxiety medication. I also use a lavender pillow mist which helps me to sleep better too. I have had to cancel and reschedule things. I am not good with change and my anxiety is being triggered. I have a wonderful therapist and so I will definitely book in another session with her soon because I can feel myself dipping a little.

The guineapigs are adorable and good for cuddles and I have had a lot of support from friends and family, so thank you for that, and from Rob too.

How is everyone?

Eleanor xx

The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

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(image: Eleanor Mandelstam (Segall))

 

Trigger Warning: sexual assault, details of assault and severe mental illness

 

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

Lockdown and Dealing with Mental Health: Guest blog by author Graham Morgan MBE

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(image of Ardmore, Scotland by http://scotlandwildlife.blogspot.com/2011/07/tobermory-to-ardmore-bay-isle-of-mull.html )

My name is Graham Morgan. This is my story of how I’m coping under lockdown.

I have just got back from walking Dash the dog round Ardmore. There was not a person in sight; just the sound of the curlews and the crows, the roar of the cold wind in the trees and the sound of the waves on the seashore. It gave me a chance to think and ponder on this first day of lockdown. It blew my tiredness away. As I reached the point; I looked along the Clyde to Dunoon; where my sister works as a midwife and hoped she was ok and thought about my brother, a medical director and psychiatrist;  having to make decisions about the future that no one should have to make.

Driving the two minute journey home I passed the post office van ; strange to see the postie with his mask and blue gloves. I felt slightly guilty for being out and had to remind myself that we are allowed one exercise session a day; that walking the dog counts as that.

I am so lucky compared to others. My friend phoned last night to say he had just managed to get home after breaking the news to his friend’s sister that that friend had killed himself days ago. Back to an email saying he was sacked from his job and that his tenant. who he shares his house with, was leaving the house as London, feels too unsafe. To deal with that?

I found out recently a Twitter friend was passing round my book on a psychiatric ward. The thought of being back in hospital but with no visitors and all the restrictions that happen now, fills me with horror; makes my last hospital stay feel pleasant. 

Yesterday a young man contacted me on Facebook to say how much he enjoyed my book START and how he was now in self isolation. I remembered he had been in hospital for months and months; was just getting used to his first flat; getting back to education, finding joy in his creativity. I remembered the loneliness I felt when I lived alone; those days when there was no one to speak to, to share a smile with. How it tore at me! Slapped me to the ground with sadness. I think of so many friends who are already lonely; lost in their lives, lacking the energy to even make a cup of tea.

I am indeed lucky. So far in our tiny household we have got over the twin’s meltdowns when we took them out of school last Monday. How frightened they were and how much they miss their friends. Home schooling for the moment is fun, I imagine, as the weeks go, by it will get harder. We are lucky we still have perspective; not to get angry and argue because of our own anxiety.

I am used to being awake in the early hours, yet somehow I am sleeping OK at the moment and have decreased my drinking. 

My understanding of the world (due to my beliefs at the moment) is that I am evil and bringing about its destruction; I think I am partly responsible for the fires and floods; the wars but, for some reason, coronavirus seems to have nothing to do with me. I have no idea why, but it is a relief.

I have more realistic worries, like the special care my Mum made to get a long tight hug when I left her in England to go back up to Scotland. 

We have been working from home and have been more or less self- isolated since Monday because my partner has asthma and yet her separated husband is a key worker  and looks after the kids too. There is relief that these are ‘real’ worries that I can grasp; not my usual ones.

The most pressing concerns are how to work from home as well as home schooling the children; how to get bread and eggs. The biggest inconvenience has been having to queue outside the chemist for my anti depressants; thankful that my GP realised I was taking them too infrequently and that now I am back up to the required dose I feel so much more relaxed.

I have one quandary; a minor one. I went to get my jag (injection) yesterday for my mental illness. The CPN (community psychiatric nurse) who gave me it had no more protection than normal. It was quick and painless.

He said he didn’t know where the community mental health team would be soon; they may be based with another more urban one by my next appointment. He said that if I, or anyone else near me, got any symptoms I was to phone in but that he had no idea what they would do if I did; that I might have to take oral medication.

At that I was lost because, of course I would have to;  not doing so at such a time would cause so much trouble but, at the same time; I am on a community section because I cannot make myself take medication, how can I agree to that, if it happens?

I have my work, I have food, my lovely family and Dash the dog who cuddles tightly up to me every night. I have my writing, my books, my music. So many people I know have nothing approaching that. 

I think I am glad I don’t have the imagination to see the scale of what is happening and am not torturing myself with the ‘what ifs’. Good luck to all of you who may not be in such a good place. Let us all help each other as best we can over the coming weeks.

 

Graham Morgan has an MBE for services to mental health and is the Author of START (by Fledgling Press) a memoir of compulsory treatment, love and the natural world. Available from Amazon and Waterstones on line.

He can be found at @GrahamM23694298 on twitter and at Graham Morgan – author; on facebook or at the Scottish Booktrust Live Literature database at https://www.scottishbooktrust.com/authors/graham-morgan