5 Years, Anxiety and Keeping Well (by Eleanor)

hopedark1

(image https://mandibelle16.wordpress.com/2016/08/10/poem-free-verse-hope-scarred-amwriting-poetry/:)

Thanks to all who voted for this article on Facebook and who have supported me these past 5 years and beyond. I love you all.

I cannot believe that this year (in March) is 5 years since I was hospitalised as a 25 year old for my bipolar disorder. For those of you who know my story, I became unwell with an episode of severe mania within a number of days, which featured psychosis-losing touch with reality and agitation. Its likely that my old medicines stopped working and I started believing delusions that werent real.

When I was hospitalised, I eventually went to the QE2 hospital in Welwyn, Hertfordshire (which has now been knocked down and now based in Radlett!). The support I had from the psychiatrist, nursing team, OTs, ward manager and all the staff was incredible and they   really believed that I would get well again. I cannot have been easy to deal with, due to the mania and the fact I was pacing around all the time, singing and in my own little world. Their kindness and help really helped me recover properly- as did the visits and love from family and friends.

I spent 4 months as an inpatient at Welwyn and then a further 4 months in outpatient treatment at a Day Hospital unit in Watford. The day hospital was very beneficial to me and helped me to start on my new medication and process all that had happened. I had help from a very special care coordinator and support worker once I had been discharged from day hospital. My care coordinator helped me so much and was so kind and caring.

Recovery is never linear and its something I have to work at every single day. There will always be life stresses that can trigger my anxiety and depression (and potentially a lesser manic episode, although the mania hasn’t happened yet thank g-d). I still struggle with my anxiety disorder and panic attacks in the mornings sometimes. I believe this is as a result of all the trauma that is involved with being sectioned, being an inpatient and having to rebuild my life after. I had social anxiety anyway, as part of the depressive part of the bipolar, but I still believe that even though I have had talking therapy, that my brain is still processing the trauma. Mental health wards are not fun places to live, as you can imagine and despite the staff trying to make it as calm as possible.

I will get triggered with my panic by certain things- like social events or job interviews and I may not always know fully why- it could be subconscious, or I realise it after. I am still rebuilding my self esteem and the love for myself. Anyone who goes through a severe episode of mental illness will tell you that its hard to separate the illness from yourself. Bipolar from Eleanor.

I have incredible friends, my fiance and family who can separate it. Yet, there are times where we all don’t feel good enough. Where  we want to hide even though we are capable of more than we know.

So in these 5 years I have been learning to love me, to think and act on hope, recovery and the future. I have learnt to build self care tools and relaxation into my days if I feel overwhelmed or to stop me from getting too stressed. I have been blessed to have found my life partner and developed my career- although my illness has put my career on hold many times and I have had to reinvent myself. However, I am starting slowly to find the light in the dark.

This is where the phrase ‘Be Ur Own Light’ comes from- to find the inner strength to carry on.

There have been many times when I have wanted to give up. Where I have been hurting and have felt inadequate. When I felt no one would want to date me  or that I wasn’t good enough for a career. Because how could I tell people what had happened to me without them thinking I was a ‘fruitloop’? That was my logic.

Thats why I started to write. I write to heal. I write to explain, educate and battle stigma. I write to make sense of my own mind. I write as a job but also to make a difference in the world and I hope I will do that through my book and blogs/ articles.

In the past 5 years, aside from work and my mental health advocacy, I have been travelling again which always brings me joy. I have been to Rome (Italy) , Prague (Czech Republic), Madeira (with Charlotte), Israel (with Rob), Portugal and Romania. I have stayed at my Dads and explored the Cotswolds and gone on holiday to the beach at Broadstairs with Anna and family. I have seen theatre shows, amazing movies and read some fantastic books. I have found a life partner. I have secured a book deal, volunteered for Jami to launch their mental health shabbat, worked with the Judith Trust and my blog is growing. Being published in Glamour, Metro, Happiful, the Telegraph and the Jewish News were major highlights and finding an incredibly supportive community on Twitter too.

Life is not all hard and sad. Yes, there are times when I have found it a nightmare with my anxiety disorder. I am 100% still a work in progress- recovery isnt easy.

I have had to work on my self esteem in therapy. I have had 6 months of psychodynamic therapy. I read self help books. I should exercise and go out more (working on this).

But:

I am not severely depressed or manic. I can hold down part time work, often from home. These 5 years have taught me that I may always have some degree of anxiety- particularly about past events which effect how I react currently. I need to learn how to heal from this and I hope in time I will.

If you had told me 5 years ago I would be writing a book of my life story and been published in national newspapers I would have laughed at you. I am getting married in July and I can’t wait (and also would have probably laughed at you too).

Anxiety is horrible by the way. Your heart races, you get flooded with adrenaline, you fixate on the fear and want it to go away. You feel sweaty and clammy and you may shake. You need to rush to the toilet. It stops you from sleeping. It stops you from living your best life. So I don’t want to trivialise it here. Its a struggle at times and its disruptive to life.

The pain of anxiety, depression and bipolar is matched by my hope and my belief that I will still achieve despite it. Yes there will be difficulties and bumps along the way, but today I am choosing to look towards the sun. 

          

Copy of my Mask: (On Depression): Guest poem by ‘N’

depression1blog

(image: Sweety Texts)

 

This is a poem/ thoughts written by a guest poster with depression who wanted to share their thoughts. Please read with care as it discusses exactly what depression is like 

 

When everyone sees rainbows and flowers, I am trapped, suffocating in the darkness, alone.

As everyone laughs and smiles, I pull my mask, over my face, over my soul, yet again.

My mask is what I hide behind, and shield everyone else from the unbearable dark cloud that follows me everywhere.

My hair hasn’t been washed in a week, and I don’t have the energy to shower. My teeth aren’t brushed and my house is a mess. Everyday, I sit, in the darkness, alone. This feeling is crippling.

It slowly sucks the life out of me, and I fear the day my eyes no longer open.

I hide behind my mask, because the truth is just too scary for most, that the demons haunt me all day and everyday, and suck my soul to shreds.

I hide behind my mask because it’s easier than hearing how I am in a rut, or mind over matter.

I hide behind my mask because it makes me the same as all the other moms. It makes me more relatable. It gives me the illusion that I am not alone.

I am careful to put my mask on each and everyday, and while I carefully balance it, I am being beaten down by the darkness that follows me.

My smile isn’t real, nor is my laugh.

Deep inside when I remove my mask, the clouds take over and it’s simply too much to bear.

Demons swirl around faster and faster, weighing heavily on my body, crippling me until I can no longer move.

I lay numb, soulless, and alone.

And my depression has won again.

 

N

The secret is out: I’m writing a book and am going to be an Author!

triggerlogo

I can’t fully believe that I am typing this as its a dream I have had for my entire life. I had been asking God for this to happen when I was ready and for me to be able to write to share and help others.

At my lowest ebb, I dreamt that if I survived the depression and mania that I would like to help others in similar places. Writing has become my therapy and I hope it helps others too.

So… the secret is out…

I am going to be an author and my life story with bipolar disorder and anxiety and how I have overcome adversity will be told in a book written by me for Trigger Publishing.

Trigger ‘the voice of mental health’ are an independent publisher whose work I have followed for some time now,. They are the publishing arm of mental health charity The Shaw Mind Foundation.

In 2016, The Shaw Mind Foundation set up Trigger, a global trade publishing house devoted to opening conversations about mental health. They say ‘We tell the stories of people who have suffered from mental illnesses and recovered, so that others may learn from them.’

In order to get my book published, I had to write three chapters and work with an editorial team. I had admired many of their books, especially those by Hope Virgo, Karen Manton and Terri Cox about their lives with mental illnesses and how they overcame them. I knew Trigger was the right place to share my story of recovery.

My book may not be out til late 2019/ early 2020 but I will keep you all updated. The title will also be revealed at a later stage.

With thanks to the incredible people at Trigger: Stephanie, Katie and James for believing in me and for Hannah for all your help!

Now I just have to get writing! I will write further blogs (or share vlogs) to update on how writing is going.

Love,
Eleanor x

Grey Clouds… Inspirational Lyrics by Stephen M Galloway.

This set of song lyrics/ poetry was sent to me by an amazing person on Twitter- Stephen Galloway who wanted me to share it to help others. He has his own mental health issues but wants to help readers of Be Ur Own Light. I hope you enjoy reading, please note: you may feel emotional reading, so read these beautiful words with care!

shutterstock1
(image: shutterstock)

Grey Clouds…

If you get lost along the road
Let me be the hand you hold
I swear I’ll help you bear your load
And lead you safely back to home
If this world should seem too dark
Let me show you where
To heal all of those painful scars
Make whole again that broken heart
You’ve been there for me, now please believe I won’t leave until your skies are clear
And those grey clouds have disappeared
If your words just won’t come out
Let me be the voice with which you shout
If your fragile mind is filled with doubt
I’ll hold you tight; I’ll hold you proud
If your shoulder’s sore from all the weight
If the path you walk just won’t stay straight 
Just call my name and right away
I’ll be back by your side again
You’ve been there for me, now please believe I won’t leave until your skies are clear
And those grey clouds have disappeared
I want to help for you saved me
From a loneliness like you won’t believe
I was blind until you helped me see
I was numb until you made me feel
You were there for me, now please believe I’m not leaving ’til your skies are clear
And those grey clouds have disappeared
Please believe I’ll be right here
Until those grey clouds disappear
Just like you did for me Oh, just like you did for me

© Stephen M Galloway – 11th August 2017