Category: writer

A Lovely Review Of My Book ‘Bring Me To Light’ By Deb Wilk at Living Bipolar Blog.

~ Eleanor Segall ~ 5 Comments
(image: https://www.pauladennan.com/reviews/)

Sometimes, you receive amazing book reviews on the internet and don’t realise they are there!

Yesterday, I stumbled upon Deb Wilk’s blog Living Bipolar – Deb has lived with bipolar disorder for many years and very kindly reviewed my book last year. She lives in the USA and is a talented blogger, sharing about her life living with bipolar.

I don’t always know what to expect with reviews, but this was so positive so thank you Deb for reading, enjoying and recommending my book Bring me to Light: Embracing my Bipolar and Social Anxiety. Heres some quotes from the review:

“Every word, paragraph and chapter of Bring Me to Light was utterly mesmerizing.  Eleanor Segall’s account of her battle with bipolar 1, panic attacks, and crippling social anxiety is so vibrant that the reader feels as though they are experiencing it right alongside her.

I would love to describe the book in detail, but I am not going to give anything away because this book is an absolute must-read.  Anyone who is bipolar or loves someone who is, should read this story.  It is a moving narrative that anyone, even those who do not suffer with mental illness, should read.  …

She is now an extremely forceful voice in the mental health community, and this accolade is incredibly well deserved.  Please read this book.  You will find it well worthwhile and, I am certain, as enthralling as I did.” (Deb Wilk, living bipolar blog)

To read more of Debs review click here

Bring me to Light is available now on Amazon and in all good bookshops (including Waterstones, W H Smith and Blackwells and is available globally).

Book Review: ‘Pushing Through The Cracks: In the Darkness of Her Family’s Mental Illness She Found Light’- Emily J. Johnson by Eleanor

~ Eleanor Segall ~ Leave a comment
(image: Emily J Johnson)

Pushing Through The Cracks: In the Darkness of Her Family’s Mental Illness She Found Light by Emily J. Johnson is an incredible book. It is a story that I don’t believe has ever been written about before in such a way in the mental health space, I have certainly never come across it. Its a true memoir that occurred here in the UK during lockdown.

Emily wrote to me and kindly sent me a free copy of her book. I was hooked from the first page- this is a story of survival against the odds, of how mental illness can rip a family apart but how healing and hope are possible. Of strength through immense difficulty. Of light winning over darkness.

Four years ago, in the UK, Emily, a divorced mother of two, was living her best life with a new partner and blended family of six. But then addiction and mental illness entered her home uninvited, threatening to tear the whole family apart.

With an alcoholic husband and two teenage sons – one a depressed gambler and the other with chronic obsessive-compulsive disorder (OCD)– Emily is left to cope alone. And when the Covid pandemic hits, Emily, a ‘serial people-pleaser, enabler and born rescuer’, almost breaks too.

This true story delves into the darkest sides of mental illness and addiction with raw, often harrowing honesty. It shines a light on taboo subjects including self-harm, suicidal feelings, gambling, alcoholism, depression, severe OCD and eating disorders, all exacerbated by an unprecedented global pandemic and dwindling support services.

This is a story of remarkable strength, self-realisation and reclamation of a lost identity. This is a story of finding hope, pushing through the cracks in the darkness. It is also a story that touches on the difficulties of accessing UK NHS mental health services at times, especially CAMHS.

I found Emily’s strength through such severe adversity – dealing with a husband and two sons with severe mental illness, whilst carrying on with her own life when mental illness permeated every part, to be so inspiring. Her marriage falls apart, her children are unable to attend work and education, the family embarks on several different recovery journeys- navigating NHS mental health care and all its difficulties. Her sons addictions and acute OCD worsen and add to the pressures for Emily. How does she as a mother fix it all? She realises.. she can’t fix anyone and its not her job too.

The front cover features a dandelion pushing through the cracks of the ground. Emily describes the moment she hits rock bottom but then saw a dandelion poking through- which symbolised hope and light for her,

‘(image: Emily J. Johnson)

‘I pick up my phone and call a crisis support line…I desperately want someone to listen to me, to ease my pain, to hear my stories…(of mental illness at home)

I throw my phone across the path in frustration… something catches my eye, a beautiful yellow dandelion is growing through a crack in the concrete. Its golden yellow petals cut through the greyness of the broken path and it overshadows the filth and discarded cigarette butts around it. Despite its surroundings, it has found ways to push up through that crack, to have life. it is. not complaining or giving up, it’s surviving and it will go on to finish flowering. One day soon, the wind will carry its dainty seeds somewhere else to carry on the cycle of its life.

Just like that dandelion, I have pushed through adversity and survived. …I close my eyes and raise my face to the sunshine… Even in the midst of all this chaos, this darkness, there is warmth and light. There is hope.” (from chapter Dandelion) (Emily J. Johnson)

This is also a book which exposes the difficulties and realities of living with mental illness. I will add a trigger warning- it doesn’t hold back on the reality of mental illness including self harm, addiction, alcoholism, suicidal thoughts etc- so please read with care.

Thank you Emily for letting me read and follow the journey of your family. I hope your husband and sons are able to fully battle their demons and recover or stay in remission.

Pushing Through the Cracks by Emily J. Johnson can be bought from Amazon and good book shops.

(image: Emily J. Johnson)

We are a Top 10 UK Mental Health Blog 2020- Thanks Vuelio!

~ Eleanor Segall ~ 8 Comments

Today I received the most amazing news that top PR and communications company Vuelio have listed us as a Top 10 UK Mental Health blog for the second year in a row!

It is such an honour to make this list with other amazing blogs- everyone who runs them works so hard to provide content and keep updating them. Congratulations to everyone else on this list 🙂

We are at number 6 and you can check out the list here!

Thanks Vuelio!

The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

~ Eleanor Segall ~ 15 Comments

Trigger Warning: sexual assault, details of assault and severe mental illness

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

Mental Health Blog Awards 2020- Vote for Us! : by Eleanor

~ Eleanor Segall ~ 2 Comments

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(image: Mental Health Blog Awards)

Hi friends,

Voting is now open (first round) for the Mental Health Blog Awards 2020 and we have been nominated in the Blogger of the Year Category.

We would love you to vote for us, to recognise all of our hard work- including that of our guest bloggers, in battling mental health stigma.

I started the blog 4 years ago and it is an honour to be nominated.

You can vote for us- listed as Eleanor at Be Your Own Light here and please also vote for others in other categories if you are aware of their work! There are some incredible people nominated.

From Mike Douglas, founder of the awards:

“I am delighted to welcome you to the Mental Health Blog Awards. 

​I look forward to continuing to celebrate the amazing work, effort, energy, emotion and so much more you all put into raising awareness, supporting, signposting, explaining and comforting in 2020.”

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(image: Mental Health Blog Awards)

First round voting closes on 1st May and you can vote here: https://s.surveyplanet.com/bG5vzH_q

 

With love and thanks,

Eleanor 

x

‘The Meaning of Normal’: Living with a sibling with mental illness : Guest post by Shira

~ Eleanor Segall ~ 4 Comments

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(image: Thought Clothing)

It hasn’t been normal for so long that sometimes I forget what normal should feel like. When I try to think about it, it feels like a glimpse into someone else’s life, and I am an invasive stranger, trying to reach something that doesn’t belong to me.

What is normal?

Sometimes I think I remember it.

Sometimes I think that normal is that time when I was six and you were three and we didn’t fight. When we played hand in hand like every other child, and our entire world was pink and purple, and the most important thing to us was that our dolls had shiny blonde hair.

And we would play every game under the sun, from barbies to dollhouse to the convoluted imaginary ones that only we knew the rules to, and even then did we ever really know the rules?

I was a witch and you were the princess. We were both witches. We were both princesses. I stole your magic time machine but you found another one, and our living room became the entire universe as we ran through it, believing wholly in the pictures we created, the way that only children can.

But did we ever really exist like that? Were we ever those idyllic children, the children that every parent wishes to have?

Maybe our normal is all the times when I was ten and you were seven and we would push and shove and slap. You were my younger sister who could do no wrong and I was the older one, always blamed for both our shares of misdemeanours.

“You should know better!” They would shout

“But she started it!” I would pout.

“It’s not true!” your bottom lip would stick out.

I think we all know that I probably did start it.

We would fight and yell and cry and shout, never giving in, never admitting that we were wrong. Because we weren’t wrong. We were both right, all the time, every time, and the other was always painfully mistaken. And we roared and yelled and scratched each other, but knew only to cry when a parent was looking. And if nobody was looking, well then nobody would see if we punched back just one more time.

But were we ever really like this? Two demonic screaming children who were never silent and never content with just each other? Were we really the children that every parent dreads to have?

Maybe our normal is the way we grew apart as we grew older. When I was 15 and you were 12 and I would pretend not to know you as I walked past you in school. And maybe our normal is the way we would come home from the same school at the same time separately, both of us walking different routes from the bus because being seen with one another would be unacceptable. Maybe that’s what all teenagers do. Maybe that really was our normal.

Maybe our normal was what came next.

Maybe the years we didn’t talk to each other was what we were always heading towards. Because one day we would put down the dolls, and one day we would run out of things to fight about and we would just…exist.

One next to the other.

Sitting in silence.

Neither speaking.

Neither bothering to reach out first.

Because now I’m 18 and you’re 15 and I don’t remember the last time I spoke to you. The house is thick with anger, so thick that it poisons every interaction, and I couldn’t even tell you what I’m angry about. Because the sister I played with, the sister I happily fought with but would jump on anyone else who dared fight with her is in pain. So much palpable pain, and for the first time I couldn’t just make it go away.

Was I angry with you?

Yes.

Was I angry with myself?

Yes.

And so I let this become our normal. A normal where two siblings exist side by side, but don’t even know how to speak without offending. Where everything I say hurts you and everything you say angers me.

So we made this our new normal.

And I don’t care.

I don’t care.

I don’t.

I care.

And now I’m 20 and you’re 17 and I’m 3000 miles away. But this is our normal now. We don’t speak. We can’t speak. But it doesn’t even matter because there’s nothing to speak about anymore. How can I ask how you are when I already know the answer, and I know it’s not an answer I want to hear. How can you ask how I am when you’re too focused on making it through your own day without worrying about mine?

And anyway, it’s been a long time since we told each other how our day was. Not since I was 14 and you were 11 and we would awkwardly walk home from the bus stop together, backpacks moving up and down and up and down as we compared notes about school, neither of us loving it, neither of us willing to admit that out loud.

But we are not those children anymore, and we don’t have any shared experiences to talk about anymore.

I wonder if you miss me like I miss you. I wonder if you count down the days to my birthday too, hoping that we will both make it past 17 and 20, willing time to hurry up even though maybe all I really want to do is turn back the clock.

And then you are 18, and it’s been 18 years since I sat by your tiny cradle in the hospital and cried when we left, maybe because I wanted another chocolate bar from the hospital vending machine, or maybe because secretly I don’t want to leave my baby sister in a cold hospital far far away.

But now you are 18 and I’ve still left you in a hospital far away and it’s still just as hard to leave you there as it was all those years ago. But a 21 year old can’t lie down on the floor and have a tantrum so I keep going and keep going and this is our normal now.

A normal where you’re there and I’m here. A normal where we won’t speak for months on end but then I text you and tell you I miss you and now you answer me too, and I think you miss me too. A normal where we joke and laugh at stupid posts we see on Instagram,  tentatively, both of us till remembering when you were 14 and I was 17 and we ripped each other apart with words until neither of us said anything at all. Is this our normal now?

What is normal?

I looked it up for you.

 

NORMAL:

  • Conforming to a standard, usual, typical, or expected

 

But who gets to decide what that standard is? How do we know when something that once wasn’t normal now is, and if what was once normal is now anything but? Do we decide that? Or do others who stand by and watch get to decide that for us?

I’m sure someone could tell you the scientific answer. I’m sure there is a video out there with a detailed and meticulous answer laid out for us to study.

I’m sure somebody could tell us the answer. Maybe we haven’t even been normal, maybe we always were.

Maybe the imaginary games of our childhood were always meant to turn into imagined grievances causing real rifts. Maybe we were meant to grow apart and then come back together again, a little rougher but a little kinder. Maybe none of it was normal, or maybe all of it was.

Sometimes I wish I could change all of it. If I hadn’t said what I said that one day, or if I hadn’t slammed my door that one time, or if you hadn’t called me that name under your breath, things would all be different now.

But sometimes I know I can change none of it. And maybe that’s ok. Maybe if we hadn’t played all those games as children, if we had never walked down the road together from school, if I had never sent the texts you eventually answered, things would all be different now.

Normal isn’t for us to decide, it isn’t for me to determine. All I know is our normal is all we have, and I wouldn’t change us for the world.

About:

Shira is a writer living in Israel, drawing on every day life experiences. Her sibling lives with a diagnosed mental illness and she has bravely shared their story here.

 

 

 

Winter Cosiness: A very happy Festive Season to you!

~ Eleanor Segall ~ 13 Comments

(image: Pinterest)

Thank you for supporting Be Ur Own Light blog and our mental health mission this year. We wish you all- from Rob and I, a wonderful festive season- whether you celebrate Christmas or Chanukah (like us), whether you get together with family and friends for magical, cosy nights, good TV and a glass of wine, I hope you enjoy it!

We will be spending time with family and friends, lighting our menorahs and eating doughnuts. This year we will be visiting my in laws, which should be lovely.

If you need help because you are struggling with your mental health, the Samaritans line is always open for free,non judgemental listening: 116 123 is the UK number.

Wishing you all a wonderful break, a cosy, happy, safe and peaceful one,

Love.

Eleanor x

 

Taking care of your child’s mental health: Guest blog by Chloe Walker

~ Eleanor Segall ~ 6 Comments

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(image: Power of Positivity)

Mental health is extremely important and has a significant impact on a person’s overall health and wellbeing. According to a recent survey by the NHS, one in eight 5 to 19 year olds had at least one mental disorder when assessed. As a parent, you play a crucial role in your child’s mental health. Fortunately, you can help improve your child’s mental health by creating a supportive family environment at home and learning the early warning signs of common mental health disorders, for example. With this in mind, here are some top ways to care for your child’s mental health. 

Develop a good bedtime routine 

Sleep plays a vital role in a child’s mental health. Research shows that there is a strong link between sleep problems and an increased risk of developing certain mental illnesses. In fact, one study found that four-year olds with sleep disorders have a much higher risk of developing symptoms of mental health conditions as six-year olds, when compared with children without sleep problems. Experts at Little Lucy Willow add – “Sleep keeps you calm, your mind alert, and recharges your body to enable you to get up and face each day.” For that reason, you must try and get your child into a good bedtime routine from a young age. Here are some top tips to help your child sleep better:

  • Create an ideal sleeping space by providing a comfortable bed, installing blackout curtains, and minimising any outdoor noise. 
  • Encourage your child not to use electronics like smartphones before bed. 
  • Get your child into a consistent routine where they go to sleep and wake up at the same time each day. Try to keep this the same on school days and weekends. 
  • Make sure that your child avoids any caffeine in the afternoon or evenings. 
  • Visit your GP if your child has been experiencing sleep problems for more than two weeks, or if the symptoms are interfering with their daily life. 

Exercise as a family 

Exercise plays an important role in a child’s overall health. Along with the physical benefits, regular exercise can greatly improve mental wellbeing. This is because physical activity releases endorphins in the brain which creates feelings of happiness and alleviates stress and anxiety. According to advice on the NHS website, children should get at least 60 minutes of moderate intensity exercise every day.

To give you an idea, examples of moderate intensity exercise include walking to school, riding a bicycle, and playground activities. Exercising as a family is an excellent way to encourage your child to be active. It also allows you to spend quality time together as a family and build closer bonds. Playing games in the garden, going for a walk in the park, or going on a bike ride, are all fun ways to exercise together as a family. You could also encourage your child to start playing a team sport they’re interested in, such as football, rugby, or hockey. 

Encourage open communication

You must create a welcoming family environment that is built around trust and understanding. This will help your child feel comfortable telling you about any issues surrounding their mental health. Encourage open communication in your family and make sure you check on your child if you notice any changes in their behaviour i.e. they become distant or their eating habits change.

Remember that children tell people how they are feeling in several ways, not always verbally. A sudden change in behaviour may signal that your child is struggling and needs support. Always listen to your child and empathise with their feelings. Let them know that it’s natural to feel down from time to time and offer support in any way you can.

If you’re still worried about your child’s mental health, then speak with your GP or contact a mental health specialist for further advice. 

Final thoughts 

Mental health illnesses in children are becoming increasingly common and can lead to several serious long-term effects. Fortunately, there are plenty of ways for you to care for your child’s mental health. Encouraging healthy habits is a simple yet effective way to improve your child’s mental well-being. This should include exercising regularly, getting enough quality sleep, and following a nutritious diet. Along with this, you should also educate yourself on the symptoms of common mental health conditions in children and create a warm, trusting home environment that encourages open communication. Speak to a medical professional if you need to.

This guest blog was written by professional writer Chloe Walker.

 

Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

~ Eleanor Segall ~ 4 Comments

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(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x

 

Guest Interview with Mark Simmonds: Author of ‘Breakdown and Repair’ mental health book.

~ Eleanor Segall ~ 2 Comments

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(image: Mark Simmonds and Lucy Streule)

 

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What inspired you to write a book about yours and your daughter’s journey with mental health?

It was July 2017 and I was attending a summer party, hosted by the Marketing Society, the organisation that brings together business people working together in the areas of marketing and advertising. Gemma Greaves, the CEO, was delivering a speech, during which she announced that the Society was going to join the mental health crusade. This seemed odd, slightly incongruous. But then it dawned on me that times had changed. Mental health was no longer the taboo topic it was when I suffered my mental breakdown back in 2001.

Everyone was talking about it now. I also had another 16 years’ experience under my belt, including caring for Emily, my daughter, who suffered from anorexia from 2012 until 2018. So, I had no excuse but to come out of the mental health closet and leave a legacy of sorts to the world. And even if that book helped just one person, then it would have been worth the effort.

 

How did you manage to recover from your stress, anxiety and break down, what helped you?

It was the 19th July 2001. Extreme stress at work had brought on the panic attacks, which were soon followed by a mental breakdown and the onset of severe agitated depression. I was no longer communicating with my wife or my three young children, even though we were all living under the same roof. That morning, I went cycling down a country road. My brain felt like a jumble of spaghetti when I collided with a 10-ton truck. It appears I tried to take my own life.

That’s how I recovered from the breakdown, because when I woke up in the John Radcliffe Hospital in Oxford a few hours later, the dense fog seems to have lifted. From that point onwards, I began to behave like a normal human being. No idea why. The physical impact caused by the accident to my brain? The awful realisation that I had come within a whisper of losing my life, my wife and my kids. There are far more conventional ways of recovering from breakdowns, but that was mine.

How did I recover from stress and anxiety? To be honest, I haven’t! I have simply learned to manage it over the years. I have put banisters in place that help keep me on the straight and narrow: I pick the right working environments, I manage my own expectations and set realistic goals. I satisfy my needs as an introvert. I take medication. I sleep well, eat well, exercise enough. But like all mental illnesses, be aware that it’s always lurking in the bushes, ready to pounce at moments you don’t expect.

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(image: Mark Simmonds and Lucy Streule)

Did you find that Emily received good care and how did you help support her?

Yes, Emily received excellent help and support both from the NHS (Buckinghamshire Child and Adolescent Mental Health Services, the Highfield Unit and Cotswold House, Oxford) and from the Cardinal Clinic near Windsor. The dedication and professionalism of all the staff was outstanding and they did their absolute best to help Emily through the illness. But here is the thing. The quality of the support and the hours spent coaxing a patient back to health have little effect or impact until that patient wants to recover.

It took Emily 6 years to decide that she had had enough of anorexia. and it was only then she finally got better. Anorexia (or Ana as we ‘affectionately’ called her) was a brutal enemy, unforgiving and merciless. More than a match for even the most qualified, most experienced doctors, psychiatrists and counsellors.

 

As a father, what was it like to see Emily struggle with anorexia and to try and save her at the time?

I have suffered from depression at various stages in my life and have experienced living at the bottom of the dark pit where Emily found herself. So, it was painful to watch her suffer because I knew exactly what she was feeling. The upside was that I was able to empathise and sympathise with her. I got it. And the way in which I talked to my daughter and tried to support her was more in line with what she needed. People who are suffering from mental ill health don’t respond very well to rational or logical arguments because their brains are temporarily ‘broken’. The neurotransmitters are not connecting with one another. They need lots of hugging, hand holding, being listened to and loved. An irrational and emotional approach is more effective than a rational one.

Where are you both now in terms of recovery?

As far as my daughter was concerned, it was just 12 months ago when the full-blown Anorexia Wars came to an end. We are all fully aware that war could break out again sometime in the future. As a good friend described it, all we could hope was “that Ana will get incarcerated and gagged in small section deep in Emily’s brain, a high security area from which she can never escape.”

Thankfully, at the moment, our daughter is flying high. She is living and working in London for ITV, eating well, drinking alcohol in moderation (trust me that is a positive thing!), firmly back on track.

As far as I am concerned, life is great. As I mentioned earlier in this piece, I don’t think that you ever escape fully from either stress or anxiety, but I am determined not to let it get in the way of doing great things, trying new stuff, taking risks, saying things that you might regret, taking on people with whom you don’t agree. I want to make sure I end up under the right tombstone.

 

How has reaction to the book been and how was the writing process?

The writing process was a joy! I loved more or less every minute of it. Working closely with Kasim, my editor at Trigger to agree the overall shape and structure of the book, researching stories and expert perspectives/points of view to add colour, collaborating with the wonderfully talented graphic designer, Lucy Streule, around the illustrations. And spending hour after hour with my wife and family editing, tweaking, improving the book. A wonderful experience.

The reaction has been great, both from friends and from people I have never met.

Alastair Campbell comes into the latter category and he kindly agreed to endorse my book. This is what he said: “I loved this book and devoured it in a single day. Whether on his own illness, his mother’s or his daughter’s struggles, Mark writes clearly and without sentimentality. He is brutally honest about the reality of mental illness across the generations with important insights about how to survive it. Though it is filled with sadness and heartbreak, ultimately his story is a testimony to the power of love and of the human spirit.”

 

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Mark Simmonds published his first book, Breakdown and Repair, with Trigger Publishing, in March 2019 (https://www.amazon.co.uk/Breakdown-Repair-Fathers-Success-Inspirational/dp/1912478994). It provides a full account of his daughter’s struggle against anorexia and is illustrated by Lucy Streule. It also talks candidly about his own experiences with mental ill health.

You can also follow Mark on Instagram (mentalhealthmark).