Fighting mental health stigma: a personal journey

I have had bipolar disorder for almost 13 years, along side depression, anxiety, psychosis, hypomania and manic symptoms- which ebb and flow and fluctuate. Now that I am on the right medication these bipolar symptoms are kept under control. For most of these 13 years, I didn’t feel I could speak out about my conditions.

My family and close friends have always been very supportive but I felt ashamed. Ashamed of where my brain could go to when unleashed and its chemistry got confused. Ashamed of why I was either suicidally depressed or hyper and manic to a point of having to be sectioned to a psychiatric ward. Ashamed of my illness, confusing my identity with the illness, which made me worried about others judgement of me.

I was diagnosed at a very vulnerable age- 16 years old and as we know teenagers can be cruel. Although I experienced a lot of kindness and empathy, after a hypomanic episode abroad where I was disinhibited, I experienced a lot of cruel rumours from other teens I knew. Rumours that were stupid but that called me many names and compared me to evil things that I do not want to repeat. What was at the most basic of these insults? In my opinion, fear.

People fear what they cannot see and cannot understand.

People in their teen years do not want to be different- and I was the embodiment of difference.

If people can’t comprehend something and it is threatening- they judge or use name calling to feel better.

At 16, I represented a world of chaos at which many could not understand. Perhaps now they will.

I have spent a long time coming to terms with my illness and what it means, finding the right treatment and medication and the right support networks around me. I have incredibly supportive friends and family.

So what does the above treatment boil down to?

Stigma.

Stigma is according to an online dictionary- ‘ A mark of disgrace associated with a particular circumstance , quality or person’

For so long, I felt this ‘mark of disgrace’ and until I was 25, although close friends and family knew about my illness, I didn’t write blogs the way I do now. This was because I wanted to hide this illness that lodged in my brain chemistry.

I don’t want to hide any more and neither should I.

In 2014, I was hospitalised and sectioned for a severe manic episode encompassing psychosis, delusions and hyperness/ disinhibition.

It was shortly after going through the most traumatic experience of my life that I realised. Life is short. I need to help others. If I can break down the stigma and help others through my writing and other work then I will.

Mental Illness must no longer be a ‘mark of disgrace’ but must be seen as a partly physical illness in the brain, deserving and worthy of good treatment and empathy from others.

This post is dedicated to those friends who asked me to write on this and all my friends for their love and support

As the year draws to a close…a round up

I can’t believe its almost 2017 and my blog is 9 months old!

So much has happened this year- there has been a lot of change. Most of it has been good change.

In the last 12 months:

– I worked in 2 new roles in schools working with primary age children with special educational needs.

– I left to become a social media manager and writer and leave teaching- a massive change and hopefully has been for the good. I now have my own website and have written for different charities and publications and this is so exciting.

– I went to Prague with my Dad for his 60th birthday and we had lots of fun visiting the castle. I also went to the sea side with my best friends family and her children and we had lots of lazy summer day fun, including visiting seals off the coast of England!

– I saw several awesome shows at the theatre- my other love:  Motown the Musical, In the Heights, Guys and Dolls with Rebel Wilson (for my birthday with Katie), Wonder.land at the National Theatre, Curious Incident of the Dog in the Night time and Dreamgirls the Musical. All were fab. I am very lucky to live in a country where I can see all of these amazing shows and loved them.

– 2 of my cousins got married this year which has been really amazing celebrating family weddings with those I love.

– I have been blessed with wonderful people in my life-you know who you are 🙂

Of course there have been hard times but writing and experiencing and sharing has been so wonderful. My bipolar and anxiety have at times been difficult in terms of panic attacks but I am generally much better and healthier at the moment.

Wishing you all a happy and healthy year ahead.

A Personal Note and Festive Appeal

beyourownlight
I can’t believe that its so very nearly the end of 2016! So many things have happened this year and it has been a remarkable year in so many ways.

Its hard to believe that only 2 and a half years ago, I was living on a hospital ward for 4 months receiving treatment for a bipolar manic episode that included psychosis, delusions and mania. I wasn’t well enough to be back at home for a long time and it was a turbulent process that ripped my whole world apart- I was only 25 and it had come out of the blue.

I look back and think that it has made me stronger and made me totally appreciate life and medication and support networks when I am well. It has meant  I can help others through my blogging and advocacy work and that I can have a better understanding of my own brain. I hope one day there will be more funded research into bipolar.

As it is almost Christmas and Chanukah, I just wanted to highlight Be Ur Own Lights Festive Appeal for Jami (Jewish Association for Mental Illness). Jami are a small charity operating to help people in the UK Jewish Community. I fundraise for them to help their services including day centres, hospital visits, work programmes and befriending. They are on the front line of battling stigma.

Please give whatever you can to the charity to help fulfill their incredible work. Without Jami, life would be a whole lot harder for so many.

Wishing everyone a happy and healthy Festive period.

To donate just click on this just giving link and follow the instructions:
https://www.justgiving.com/fundraising/BeUrOwnLight

As Christmas and Chanukah Approaches…

Its that time of year again and I can already feel my body winding down as the days get shorter and all I want is to rest. So I am going to listen to my body and rest properly.

I am always worrying about my readers- whether I have posted enough, shared enough, been reached wide enough and so I have decided merely to stop worrying and just say this. Thank you- with so much gratitude for reading Be Ur Own Light from your part of the world. I can’t tell you how amazing it has been for me to add a new country to my Reader list and to see it being read in different continents and time zones, makes this all worthwhile.

Thank you too for leaving positive comments on my posts and for the general support of you all. I am feeling very tired and lethargic of late, which is a sign I have been working too hard in general. I am looking forward to a nice little break as Christmas approaches.

This year, the festival I celebrate, Chanukah falls on the same day as Christmas Eve, Christmas Day, Boxing Day etc. So I will be lighting my Chanukah candles, eating traditional foods and spending relaxed evenings with friends and family.

Its been a life changing few months for me- career wise and personally. Life has changed so much for the better since this time last year and I just hope it continues!

I send my love to you wherever you are.

xx

Life is Possible: Guest Post by Megan

Megan is a blogger at http://www.themanicyears.com and writes about mental illness and bipolar disorder. She shares with us her positive outlook on life after overcoming adversity. 

I recently got asked a question that I have been asked quite a few times in my life before now. This question was asked by a distant acquaintance of mine; a person who was – until the past couple of months – previously a stranger to me.

The question was this;

“If you had the chance to go back in time, to redo any of your past choices, what would you change and why?”

I have thought about this in passing, at various points as I have progressed throughout my adult years. Usually, I shrug the question off with a   – ‘Yes, there’s probably lots of things I would change’ – without consenting to deeper reflection and proceed to let the thought slowly slip from my mind, like a shallow pool of water that gently drains through the gaps in my fingertips when I attempt to cup it in my hands, leaving its damp trace as a reminder to be embraced again at a later time.

In this occurrence, something about the flow of the conversation between me and this person, made me pause and take the time to delve deeper in to my  introspections, generating the need to deliver an open, raw and honest answer.

I looked back, escaping the present moment by retrograding through a virtual journey within my memories, my life, my youth, the relationships that I’d built and the ones that were torn down. And in that first instance; all I saw was pain.

Up until 2013, I endured a heart-wrenching and debilitating conquest to seek the right kind of help for my issues, and was finally diagnosed with Bipolar Disorder. After the herculean efforts that resulted in this conclusion, I couldn’t quite decide if I had been awarded with a victory badge, or had my autonomy snatched away from me and handed down a stigmatised label of shame.

I had always been a painfully anxious and emotional child, but my first ‘real’ symptoms began when I was 12 years old; I started suffering from psychotic breaks and harmful thoughts. As far as my fragmented memory takes me, I understand this came about as a result of my mothers illness and attempted suicide . It was an attempt for which the blame was placed on me, when I’d packed up my things and left home one day through the impact of her own mental illness. What once were just about manageable emotional waves, became uncontainable storms.

My teenage years to follow were a struggle. Inevitably withdrawing from my peers, I lost myself in my pain and in the midst of it all and I made a lot of wrong choices. By the age of 18, I had turned to risk taking and harmful behaviours in an attempt to seek some sort of alleviation and my mood swings were wildly out of control. The relationship with my mother, even with my friends, had turned in to a wreck of nothing but dysfunctional scraps. Connecting with others was a difficult task, especially when I went back to my studies. A slow withdrawal from society will eventually disconnect you completely from other people. It puts you in a glass box placed high upon the shelves of the unwanted. In those classrooms, I disappeared. I was invisible, slowly degenerating in to the ashes of battle that I had lost a long time ago.

For the last ten years of my life, I feel that I have lost and wasted my youth. Did I choose to turn my back to my own self worth, to my recovery? Did I make a comfy home in the land of unforgiveness in the attempt to punish myself? Did I regret making these – I could argue – deliberate choices?

But when I look back from this day, I find myself understanding the result and my reasoning to that fateful question. And my answer to the question is; I would not change it one bit.

In this moment, I see the value of what I have in my life now, as a result of what lead me here. I now see that I can thank myself that I did not give up on my studies, turning my hurt in to a driver to fuel my career – a notion that I did not realise at the time. I now see, that those people I distanced myself from who walked away, are those people which I’d unconsciously sifted out from the small circle of treasures I am blessed have in my life and who I call ’true’ friends. I now see, that although forever present, these scars that trace through my whole body have toughened and healed. I now see the infinite possibilities and the beauty of life within the depths of my child’s eyes, and I see a reflection of my own growth in there.

If I had not endured my past at all, would I have been in the place that I am now? Would I even dream of risking all the wealth that I have in my life in this moment in time?

I now see, that I won the battle all along. I now see, that life is possible.

On paper, I may be just an ‘unfortunate’ label of a chronic and debilitating mental health disorder, who drew the bad hand in life. But behind the diagnosis, behind the long term medication, hides an unbelievable journey that led me to this present day. And I wouldn’t change any of it for the world.

 

Monday Update: Rethink and Thank You

This is just a short update post- I just want to thank everyone who visited my blog as a result of my Rethink article and everyone who read the article and found it useful!
It is always a pleasure to write for such an important and caring charity and I love writing and partnering with Rethink.

I have also been receiving some brilliant guest posts to my inbox which will start going up soon.

Thank you for making the Be Ur Own Light community the shining light that it is and is becoming.

Love from a cold, grey London but with warmth 🙂

Surviving Depression and Suicidal thoughts: a blog for Rethink Mental Illness

beyourownlight
https://www.rethink.org/news-views/2016/12/surviving-depression-and-suicidal-thoughts

Thank you to Rethink for publishing my blog under a pseudonym, for the graphic and sharing my story of hope over adversity.

Rose is the blogger behind Be Your Own Light blog, which provides great articles about living with mental illness, from both herself and guest bloggers. Below she talks to us about how she has dealt with depression and suicidal thoughts. 

When I was 15 years old, I experienced my first depressive episode. I felt unable to leave the house or see friends as the depression brought about an increase in anxiety . My parents looked after me as best they could and I was taken to see an adolescent psychiatrist who put me on anti depressants coupled with therapy. I gradually got better again with time and managed to do well in my exams.

I was eventually hospitalised voluntarily after more periods of illness and at 16 years old, diagnosed with bipolar affective disorder. Understandably, the diagnosis changed my life. I am now 28 and have been taking medication since then. Not long ago, I survived a suicidal depression that I had in the winter of 2013, 6 months before I went into hospital.

At this time, It was apparent that for several years my medication was not controlling my low moods. I would get really depressed very quickly, feel overly emotional when stressed and felt like I had to hide myself away. I began sleeping too much to escape the inner turmoil and to get respite. Sleep became my balm and escape.

However, it was when I began sleeping from 9-5 pm with a quick break for food, not getting washed and dressed or answering my phone and not being able to get in to work, that the psychiatrist was called to the house to see me.

I remember crying and crying- in such pain in my mind. For me, the depression felt so chemical- I knew I needed to change my medication but I didn’t know why everything felt like ‘wading through treacle’. Why couldn’t I find the joy in life anymore, I asked myself? I just couldn’t cope with the painful negative thoughts and feelings and started thinking irrationally that I would be better off not here in the world.

These suicidal thoughts were extremely challenging to deal with.  I was so scared by them that I would tell my parents constantly how I was feeling. I wanted to get the thoughts out my head and so telling people became my salvation- I believe if I had bottled it up, I may not be here today.

Eventually, over time, my medical team worked together to put me on the right  medication- Lithium. The Lithium has changed and saved my life. My brain chemistry is stable, I no longer feel suicidal or depressed. I get up early in the morning and I want to do things with my day. This took a long time but to anyone feeling suicidal- please reach for help.

You can get better- it is your brain playing tricks on you with an illness. I want to spread a message of hope, recovery and survival- life can be dark but if you hold on there is hope. 

Monday Afternoon Thoughts

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Its strange to think that only two months ago I was working in a completely different career. I love children but teaching brought with it what felt like endless morning panic and panic attacks so I had to give it up.

However, since giving it up I have rekindled my love for writing and blogging and working as a social media manager. I love seeing social media grow and building presence for people and I love writing and sharing my message about mental health to the world.

I am pleased I have found something so fulfilling and I feel like this is what I am meant to be doing.

So, as I look forward to the week ahead, I must also remember to work hard and rest well also. To get enough sleep, eat good food and keep my spirits up.

Thankfully I have been so much better of late too in terms of my bipolar and general health.

Have a wonderful Monday to all my followers and readers! I hope you are all well and I send you love from London.

Surviving mental illness while practising Judaism

This post is being dedicated to my friend Helen Brown who wanted to know how being an Orthodox Jewish woman works and is compatible with having a mental illness. How supportive were the Jewish community when I was ill and what does Judaism mean to me?

So:

Let me start by saying that I was born into Judaism and raised Jewish, in a Modern Orthodox, United Synagogue Household- meaning I keep Kosher, rest on the Sabbath and observe all the festivals, learn and pray when I can. I also practise ‘tzniut’- dressing modestly and endeavour to live my life with the positive values of the Torah (Old Testament) bridging modern society .  I have a great love for and appreciation of Judaism and I have found that it has kept me going through many difficult times.

Prayer in particular has had a very important resonance in my story. When I was ill in hospital with a bipolar episode two years ago, my friend brought me a tehillim prayer book- the Book of Psalms. Another friend brought me a book of strengthening hopeful quotes from Rabbi Nachman. Every day, I prayed to God to release me from my illness, to give me strength and to give me a full and complete recovery. I prayed that the Doctors and nurses would support and help me, and they did. I found freedom through my religion, even if I couldn’t always understand why this particular test was in my life. My friends also lit candles on the Sabbath with a prayer that I would get better and prayed for me.

The support from the Jewish community during this time was incredible. Rabbis visited me with warm chicken soup, cakes, wisdom, advice and prayers. Friends and family rallied round to visit and bring me food, soft toys, cards and themselves. The kindness was immense and never will be forgotten.

However, there is still a stigma against mental illness in the Jewish community, as there is in most other communities.  When I first became ill at 16, I was ridiculed my many who did not understand the meaning of a bipolar manic episode. To this day, I believe there is a woeful misunderstanding and knowledge of psychosis- delusions or hallucinations. There is also a stigma when looking for a marriage partner, if using a matchmaker. I was taught by many to keep quiet about my illness and I still do not readily give the information unless it will help someone else.

Not everyone understands medication or psychotherapy and I am on a mission to educate everyone so the stigma can fall. I am a Modern Orthodox Jewish woman.  This means I love God and want to live by His laws, whilst enjoying the modern world of theatre, books, cinema and culture too.

I believe that I was ill for a reason, whether its brain chemistry, a test or both. What I do know is that the community now is changing- there is much more support and kindness.

We only have to look at the new Jami (Jewish Association of Mental Illness) Head Room Café (a social enterprise cafe raising money for the charity) to see that. The funding and support Jami is getting and its new prominence.

There is still more to do, but we as Jews (and non Jews) have a duty to support anyone who is ill- whether its in the mind or the body.

Guest Post: Inner Self Talk The 7 Words that hold you back

Michael J. Russ- Author and Adversity Coach

Your inner conversation, also known as self-talk, exerts more influence over your attitude, achievement, time, success, happiness, relationships, and overall prosperity than you can imagine. Self-talk is best defined as the thoughts and words you use to describe you and what you are doing.

Regardless of whether your inner dialogue remains in your head or is expressed in conversation, there are seven words that can hold you back. These words are: hard, difficult, tough, impossible, can’t, try and never, and usually make an appearance when referencing current and future actions, especially those related to adversity.

Why should you stop using these seven words? Aside from focusing on the negative, they generate unnecessary additional mental adversity and sow seeds of doubt that prevent you from fully committing.

Do you occasionally find yourself saying, this is going to be hard, it’s tough for me, or I will never finish this? Is there some rule that says something will be hard, tough or difficult, or that you will never get something done?

Have you ever heard a coach tell their team a game will be tough, difficult or impossible to win? Of course, not. A coach would never plant such a thought virus into the heads of their players.

When you approach tasks, goals, and intentions, use self-talk that affirms and supports what you want to happen, instead of what you do not. Thinking and saying, I can do this, is a great example of affirmative self-talk that opens pathways to producing your best effort. The phrase is simple, yet very empowering!

Right about now, you are probably wondering what I suggest you think and say in place of the seven words I recommend you drop from your self-talk vocabulary. In my view, simply referring to a response or future action as a challenge is more appropriate because it does not generate additional mental adversity. Examples of its use would be, cleaning this garage is going to be a real challenge or my health is my greatest challenge. These statements position you for what you must accomplish on the road ahead—igniting strength, will, creativity, and inspiration, as opposed to mountains of negative feelings and emotions that hold you back.

Framing actions as challenges might seem trivial, ridiculous, or even uncomfortable at first. What you will soon experience, however, is a noticeable difference in the way you
think and feel. Viewing actions as challenges sets the stage for mental clarity, optimism, possibility thinking, inspired actions, and miraculous aha moments.

Establishing clear goals and intentions and then crafting an inner conversation that supports them is crucial to making self-talk your most important resource and greatest ally for achievement and designing the life you envision. If you find it too great a challenge to keep the seven words I mentioned unsaid, remember this sage advice, if you can’t say something positive, don’t say anything at all.

About the author:
Michael J. Russ is an international bestselling author, inspiring speaker/trainer, and the founder of Zero AdversityTM Coaching & Training. This article was adapted from his international bestselling book, Zero Adversity: 3 Practical Steps to Freedom, Fulfillment, and Creating an Authentic Life, where he outlines a practical 3-step method everyone can use to experience balance, freedom, and prosperity in their life. Michael can be reached via email at inquiry@michaeljruss.com. http://www.michaeljruss.com