Reflecting on a New Year 2022: Be Your Own Kind of Beautiful by Eleanor

(image: Neon Filter)

When I was a child, growing up in Hertfordshire, my biggest dream (other than being a wife and mummy one day, because yes even then I dreamt of that) was to be an actress in the West End. I could think of nothing more exciting than standing on a stage, performing and I wanted to go to drama school from age 11. I went in the end at age 23 to do my masters degree at Royal Central in London, after doing a 3 year degree featuring Drama at Goldsmiths. I was so excited to have achieved a dream of mine, even though for many reasons I decided not to act professionally.

However, sometimes, long held dreams, things that are part of the core of our being, of our inner identity, can be a little harder to achieve. Sometimes, we find ourselves on the less travelled path, we feel different from our friends and family because our lives, for whatever reason, are different. We have to consider our health in a unique way. We have to try and surrender our fears to the universe and hope that everything will work out OK.

When I was diagnosed with bipolar disorder at 16, I was still a child and I didn’t know what it would feel like to be an adult, needing a cocktail of medication daily in order to have stable brain chemistry. And how this medication might affect my body and mind- and considering children in the future as a woman with bipolar and all that brings- discussions with psychiatrists, difficult decisions to be made, do I carry my own baby, what will make things safer for me?

As I look ahead to 2022, I know that our dreams are there to be fulfilled. I know that I must trust and have faith that whatever happens, whatever 2022 brings to us, I will always have hope and I know my husband will too.

Wishing you all a happy and healthy 2022 – may all our dreams manifest for the good.

Eleanor x

7 Bipolar Disorder Facts Everyone Should Know by Ronnie Deno

(image: bphope.com)


Bipolar disorder affects roughly 46 million people worldwide in 2017, according to the Our World in Data. While there remain several challenges for people living with bipolar disorder and to their caregivers, health experts believe that current developments have reduced symptoms and improved quality of life.

Bipolar disorder is a very common cause of disability and needs treatment . It is ranked by the World Health Organization as the 6th leading cause of disability in the world with the inadequacy of treatment, resulting in higher rates of ill health and worsening of symptoms. The following are the seven 7 facts everyone should know about bipolar disorder.  

Fact No. 1 – Bipolar disorder looks a lot like classic depression.

Formerly called manic depression, bipolar disorder involves extremes of emotions, when not well controlled. It is associated with mania, depression, or both. People who have it may undergo a depressive state for some time – that is, weeks to months – before entering the manic state. The depression period usually comes afterward, and the cycle repeats. In some cases, people experience both. They appear very agitated and energetic and sometimes this can tip into psychosis.. 

Both mania and depressive episodes range from mild to severe patterns. Because the clinical manifestations of bipolar disorder mimic other psychiatric anxiety disorders, it takes years at times for doctors to find the correct diagnosis.

Fact No. 2 – Bipolar disorder is characterized by dramatic shifts in mood and behaviour.

Some people with bipolar disorder experience cycles of manic and depressive episodes, which can be sudden and occurring several episodes a year. The cycle can shift quickly depending on the type and severity of the condition. Elevated mood associated with mania is defined by irritability, euphoria, and labile mood, whereas depression is often expressed by loss of interest, inability to function day to day and extreme sadness.

Fact No. 3 – Bipolar disorder has symptoms of mania and depression at the same time.

There are different variations of bipolar disorder, namely bipolar I, bipolar II, cyclothymia, and bipolar unspecified. These conditions are marked by mania, depression, hypomania, or mixed manic and depressive episodes. In mixed bipolar type, there is a rapid and severe mood fluctuation in a quick sequence or simultaneous fashion without recovery in between. 

Fact No. 4 – The mood episodes of bipolar disorder can vary from person to person.

The diagnosis of bipolar disorder is based on the clinical presentation. However, the symptoms can be unspecific and variable from one person to another throughout the disease. Thus, making the prediction cycles of a person with bipolar difficult. 

For some people,. a person with bipolar disorder undergoes two (2) cycles of mood changes with mania taking place in spring or fall. However, mood stabilising medication greatly reduces episodes.

Fact No. 5 – There is no known single cause of bipolar disorder.

It is thought that bipolar disorder may run in families. In terms of biochemical cause, the manic and depressive cycles of bipolar disorder are associated with the excess or depletion of certain neurotransmitters in the brain, such as catecholamines, dopamine, and norepinephrine. 

Trauma may also trigger bipolar episodes.

Fact No. 6 – There is treatment available for bipolar disorder.

The goals for treatment available for bipolar disorder are stabilisation of symptoms, prevention of relapse, and improvement of social functioning.

Pharmacotherapy, particularly antipsychotics, antidepressants, mood stabilisers, are the mainstay treatments for bipolar disorder. The HHS Public Access cited Lithium as the best drug for relapse prevention. T

In addition to medications, long-term maintenance for people with bipolar disorders may include psychosocial treatments that focus on education, stress management, detection of relapse, and developing a healthy lifestyle.

Fact No. 7 – People with bipolar disorder can and do lead happy, healthy lives.

It is possible that people with bipolar disorder can have happy and healthy lives. Realistically speaking, the quality of life faced by people with bipolar can be challenging when they have episodes or if they dont take or find the right medicines. This is because they continue to face challenges on their way to recovery, such as availability and choosing the right medication, ease of access to non-pharmacologic therapies, and finding the right balance of the medicine and non-pharmacologic treatments. In a qualitative study conducted by the International Journal of Bipolar Disorder, researchers revealed that some people with bipolar disorders explicitly struggle with managing their symptoms, maintaining relationships, and continuing to experience some form of stigma. Thus, regular contact with their health care provider is essential, as it provides a supportive environment for them.

While the cause of bipolar disorder is unknown, certain factors contribute to its development. Bipolar disorder remains a global health challenge. At this present time, there is no cure for bipolar disorder, but the current treatments have proven to mitigate their symptoms and improve quality of life.

The Book of Hope is Out Now!

I have written here before but I am so excited to say that the Book of Hope, which features my essay ‘Of Hope and Sunflowers’ and put together by my friends Jonny Benjamin MBE and Britt Pfluger is out now!

Happy Publication Day!


It is such an honour to be in a book with so many incredible people in their own fields talking about overcoming their own adversity and mental health issues.

As I write, the book is currently 16th in the bestsellers chart for all books on Amazon.

Hugely thankful to Jonny and Britt for including me in such a great project.

You can get your copy here: https://www.amazon.co.uk/dp/1509846379/ref=cm_sw_em_r_mt_dp_3VAKJ0JC6HV05ZYMNHW2

Believe In Progress, Options, Laughter and Recovery: Some Thoughts on Bipolar and Life.

(image: Hannah Blum)


Hi everyone,

I havn’t done a personal blog for a while because things have felt pretty…. the same. We are all going through such a difficult year where we feel in limbo, stuck with the dark, cold nights and little to distract ourselves- we can’t travel, go on holiday, see friends indoors in person . It can all feel bleak and frustrating with Covid 19 and this new world we find ourselves in.

I am lucky that my mental health hasn’t taken a nosedive, although there have been days where I have felt low, anxious and overwhelmed. I love my work for the Body Shop and my writing, but there are times when I just want a break. We were planning on maybe going away somewhere in the UK, but then Tier 3 restrictions hit London, so we will be at home over the Christmas break. Instead, I have made sure I have taken time for myself and rested- so that things don’t get too much.

I opened my book Bring me to Light this morning- I don’t often read it as I wrote it. But, it fell on this page- a poem about Bipolar that a fellow friend and patient wrote when we were on the hospital day unit in 2014. She also had bipolar disorder and was in there for her recovery.

It said,

Believe

In

Progress

Options

Laughter

and

Recovery

She kindly let me keep her poem- at the time, I needed hope, healing and faith- that I could get better. That Bipolar wouldn’t ruin my life.

I did get better. I have been so much better on my new medication. I met an amazing man who is now my husband. I found a career I am able to do with my PTSD and new friends and a team of people around me who are wonderful. Life is good.

However, a small part of me is scared. Scared to get ill again or be hospitalised. Scared of the psychosis that wrecked my life. Scared of whether or how I can become a mother whilst on Lithium or whether we will need to look at surrogacy as the meds can cause birth defects and there is a strong risk of post partum psychosis and pre or post natal depression for me with my bipolar. I am scared that if I carried my own child, I could end up on a hospital ward again- but a mother and baby one. I don’t want that to happen.

In my book Bring me to Light I wrote, ‘ Sometimes I still feel like the scared sixteen year old, sitting in that psychiatry room at the Priory North London, being given a diagnosis of bipolar disorder. …I have learnt that thanks to Lithium and therapy, bipolar disorder does not have to be my life.’

But knowing Lithium’s impact on my physical body too is scary. Weight gain. Acne. Water retention. Potential issues with kidney function/diabetes in future. Not being able to breastfeed on it or possibly carry a baby due to the severe risk – I have the most acute form of Bipolar and become very ill without medication.

These issues are so personal and I and Rob have been processing them for a while. We lost Robs dad to brain cancer in July and I didn’t feel able to blog about children before now. But, when the time is right and we speak to a perinatal psychiatrist and plan for a child, I want to write about it- maybe even a new book.

In the mean time, I am excited for new births in our family and I am just living and enjoying being well, being healthy.

I never see myself as someone with a disability- I always look for the Light. But, there are limitations and drawbacks to having this illness, even when it is in remission. It is biological and impacts on things I never realised when I was diagnosed in 2004. At the age of 32, these are becoming more real than ever and its scary. But, I want to smash the stigma and so I will write about what I can.

I wish you all a wonderful , relaxed festive season with good mental health- Happy Chanukah and Christmas.

Love,

Eleanor x

The Book of Hope- 101 Voices in Overcoming Adversity by Jonny Benjamin MBE and Britt Pfluger. by Eleanor

To readers of my blog,

(image: Pan Macmillan/ Jonny Benjamin)

I don’t really know where to start! I have been keeping this secret for almost two years.

Nearly 2 years ago, my friends, mental health campaigner/author Jonny Benjamin MBE and author and editor Britt Pfluger, approached me to be a part of their second book entitled ‘The Book of Hope: 101 Voices on Overcoming Adversity‘ (published with Bluebird/ Pan Macmillan in April 2021!).

They asked me to write a piece on how I found hope and recovery after being unwell and my (ongoing) journey with bipolar disorder that I wrote about in my own book Bring me to Light.

I won’t give too much away about the piece I wrote, but it does include my Dad’s story too and talks about life after being sectioned for a manic episode in 2014. It talks about hope, healing, recovery and living with mental illness. It talks about being afraid of the future, but finding light in the darkness.

Heres what Macmillan say about the book which is available for pre order on Bluebird Pan Macmillan website and Amazon. It also contains anecodotes from famous faces including Lemn Sissay, Zoella (Zoe Sugg), Joe Wicks and Dame Kelly Holmes.

There is always hope, even when we cannot seem to seek it within ourselves.

The Book of Hope is an anthology of 101 key voices in the field of mental health, who share not only their experiences with anxiety, psychosis, panic attacks and more, but also what helps them when they are feeling low. Compiled by award-winning activist Jonny Benjamin and author Britt Pflüger, the inspirational contributors in this book range from the likes of Lemn Sissay, Frank Turner and Zoe Sugg, to Elizabeth Day, Hussain Manawer and Joe Wicks; from authors, poets and musicians to charity workers, activists and psychiatrists.

Jonny Benjamin is known for his book and documentary film, The Stranger on the Bridge, which fought to end stigma around talking about mental health, suicidal thoughts and schizoaffective disorder. When his campaign to find the man who prevented him from taking his own life went viral, Jonny was one of a wave of new figures lifting the lid on mental health struggles. In this book, he brings together a range of voices to speak to the spectrum of our experiences of mental health and the power of speaking up and seeking help.”

It is a real honour and privilege to be a part of this project. A dream come true and I am so thankful to be able to share my story on this platform with truly important voices! We all have mental health and our voices deserve to be amplified.

The Book of Hope is available to pre order now and published in 2021.



My Book Bring me to Light turned 1!



Yesterday, on 5th November, my book Bring me to Light: Embracing my Bipolar and Social Anxiety (with Trigger Publishing) turned one!

Today, I got this lovely review from a Twitter follower Robin so I thought I would share it here:

It is an amazing book, really enjoyed reading it. An honest and open account of life with bipolar, your strength of character shone through. Thank you for being so open and writing it. – Robin Josephs

I wrote my book to help others and dispell the stigma about severe mental illness. Everyone is human and everyone has mental health. Whether you have never suffered or whether you have depression, anxiety disorders, eating disorders, schizophrenia, bipolar, OCD, BPD or EUPD, self harm, addictions, PTSD etc- I would love everyone to be more open if they feel able.

I hope my book explains what being in hospital can be like but that you can recover.

You can get your copy on Amazon and in all good book shops now 🙂

Happy bookversary to me! Thank you to YOU for supporting my blog, reading this and helping get my book deal. To everyone who has bought a copy and to my fab editors Stephanie and Katie.


On DBT, Art and Healing: A Joy That’s Mine Alone: Guest post by Violette Kay

violettekay1
When I was little I wanted to become a violinist when I grew up. And I could have done it, I was actually really good, but unfortunately mental illness robbed me of that dream. I had my first bipolar episodes right when I started studying music in college, failed a bunch of classes, wronged a bunch of people, and watched my music career crash and burn before it had even begun.
It’s been almost a decade now, and I have a whole new life in which I’m stable and happy, yet I still can’t help but wonder if I could have done it. If I wasn’t bipolar, would I be a professional musician? This question haunts me, it follows me wherever I go, and no matter how far I run it always brings me back. A few years ago I bought a music school in a hypomania-fueled delusion that it would bring me closer to my childhood dream. It did not.
I’ve also written a play about violin teachers and nostalgia/regret, it was very therapeutic, but it didn’t fully heal the wound of my failed music career. Perhaps nothing ever will.
The first thing they teach you in Dialectical Behavioural Therapy is called the “Wise Mind”. It’s supposed to be this balance between your reasonable mind and your emotional mind, and that’s the place you want to be making decisions from. You want to consider both the facts and your emotions, and not ignore one or the other. For example, let’s say you have coworker who is making you angry, and you want to yell at them, throw things and storm out, that’s just what your emotional mind wants. So if you bring in a bit of reason and use your wise mind, you can probably come up with a better solution.
When I was learning this in DBT group I noticed that all the examples we were given involved using the Wise Mind to avoid acting on our emotional mind, so I asked the instructors if they could give me a situation where it’s the other way around, an example where your reasonable mind is what’s leading you astray. They gave some roundabout unclear speech about… something, I don’t remember. Basically they didn’t have an answer for me.
Well, it’s been over a year now and I think I finally found one: I should quit music. I should completely cut it out of my life, sell my violin, recycle all my sheet music, unfollow/unfriend everyone I met through music, and stop self-identifying as a musician. Music has caused me so much pain, and landed me in some impossible situations. So logically, if I want to stop feeling that pain I should just quit, right?
That’s my reasonable mind talking. But if I did quit music I would be ignoring my emotional mind, who likes music and has a lot of very meaningful music-related memories both good and bad, memories I wouldn’t want to lose.
So what’s the middle ground? I still play sometimes. I’ve gone busking during periods of unemployment. I record backing tracks for my singer friends. I take on background music gigs sometimes. And I bring music into my theatre and writing practice all the time.
I’m still shocked every time I get paid to play music, and though I do on occasion mourn the violinist I could have been, I’m also incredibly grateful that I still get to live out my childhood dream in small ways. It’s not what I wanted, but it’s still a good life.
My latest project is a film inspired by my experience of having bipolar disorder and buying a music school, and a first for me: a project born entirely out of self-love, rather than pain. I am so grateful I got the opportunity to make it and to share it with others.
I’ll always have bipolar disorder, it will always be a part of me, but it’s just one part. And I’ll always be a musician. That’s also just one part of me. Maybe they’re the same part.

violette1

This guest blog was written by film maker and musician Violette Kay. Her film the Joy thats Mine Alone about life with art and bipolar disorder, can be viewed at : 

The Road to Recovery: On PTSD, Trauma and the Future… by Eleanor for Mental Health Awareness Week

Trigger Warning: sexual assault, details of assault and severe mental illness

Hi everyone,

Its been a while but I thought I would put type to keyboard and write a blog for more mental health awareness.

Since my book was published, I haven’t written many follow up personal blogs, purely because the launch of my life story into the public domain felt overwhelming and scary. 6 months on, I am used to it being out there but I have been working hard in EMDR trauma therapy to help myself.

See, the truth is that right now the Bipolar Disorder for me is stable and under control on my medicines. I still get side effects- weight gain, dry mouth and thirst, but my mind is generally healthy in terms of the Bipolar- no mania or depression. Anxiety and panic yes but Bipolar, not really at the moment.

Yet, almost lurking unseen after I left hospital in 2014 and began my recovery was the fact I was traumatised by my experiences of going into psychosis (losing touch with reality via delusions, false beliefs) and my experiences when being sectioned. I will just give an overview as the rest is in my book- but this included- being restrained, being attacked by other patients and seeing them self harm, being injected with Haloperidol (an anti psychotic) in front of both male and female nurses in a part of the body I didn’t want, being chased round A and E by security men in genuine fear of my life, dealing with lawyers and going to tribunals while ill, thinking I had been abused by family and was locked up by a criminal gang and fearing my family were against me. My bipolar mind could not cope.

Just before this all happened, I was very vulnerable and was sexually assaulted by a man I knew through friends and all of this trauma stayed with me.

I did what most of us with severe mental illness and assault survivors do- I tried to rebuild my life. I tried to work in schools helping children with special educational needs. I tried to work for a mental health charity as a peer support worker for people like me. I began to blog and write and share as therapy- from charities to national newspapers. Bit by bit, as I wrote out what I has been through, I started to slowly heal. But, the symptoms of the extreme panic remained. I lost jobs because of it. I became depressed. I started dating but I often had to cancel dates- (before I met Rob, my husband who listened to me talk about it all and didn’t bat too much of an eyelid.)

I was in a state of flux, a state of transition. I knew I had trauma still living in my brain and body. I had been physically and sexually assaulted, I had been mentally violated- I had been sectioned twice in a few months and now I was sent home to try and rebuild my life as a 25 year old single woman.

I share this important blog, not to share that I am a victim- because I am not. I want to share that I believe for about 5 years, I have been suffering with some of the symptoms of Post Traumatic Stress Disorder (PTSD). My therapist believes the same.

The panic attacks that grip me with fear before work or the day ahead when I have to leave the house. The fear of going out or travelling at night alone. The fear of being taken advantage of and having to trust men again (thank you to my husband for helping ease this pain). The fear of exploitation, of losing my mind, of not trusting mental health professionals any more.

My panic attacks get triggered by certain events- it could be having to speak about my life or book, or seeing people I don’t feel comfortable with, of feeling exposed, of worrying about others judgement. I am still healing from all I have been through and experienced. The PTSD means that I have to take medication (Propranolol) to function sometimes. It means that I experience flashbacks in my body- I feel gripped with fear, I get chest pain and shallow breathing and I start to cry. I had one the other day at 4am….. thank the lord for meds so I could calm down and sleep.

My therapist is incredible and we have been working since October to process the roots of my trauma and panic disorder. We use a combination of rapid eye processing with talking therapy which helps to tackle each and every trauma- and we are still at the tip of the iceberg. It takes time to process the deep rooted experiences in my brain- we are getting there slowly.

For me, in many ways my future is uncertain. My medicines have long term physical side effects. Motherhood will be more of a challenge due to medication and my mental health- I am still processing the choices I will have to make, which I will write in another blog.

I want to end this blog by saying- if you know someone with anxiety, PTSD, another anxiety disorder or something like bipolar or schizophrenia- Be Kind. You never know what someone has gone through.

The NHS waiting lists for help are too long, services are too underfunded- all my treatment has been private provided by my family due to being stuck on a list for years. I am lucky, not everyone is. 

I hope this blog gives some information about my experiences of PTSD since leaving hospital 6 years ago. It is by far the most personal thing I have posted since publishing my book but I hope it helps you feel less alone.

Positivity and Hope are key.  Meeting my husband and my therapist changed my life for the better as I slowly rebuild and find an equilibrium again.

Love,

Eleanor x

Looking to the Future and Life Dreams: by Eleanor

 

Dream big lettering on watercolored background

(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

9 Years Undiagnosed: My Life with Bipolar Disorder, for Time to Talk Day: Guest blog by Mike Segall

timetotalkdaydad1

(image: Time to Change)

*Trigger warning: discusses thoughts of suicide and mania, please read with care *

This blog has been courageously written by my Dad, Mike, about his journey with bipolar disorder and the hurdles he faced in getting a diagnosis. For those of you who have read my book, you’ll know some of this. This is the first blog that Mike has written for us and I want to share it on today, Time to Talk Day by the charity Time to Change.  So here is Mike’s story….

 

My experience of Bipolar 1 Disorder was that I was undiagnosed for 9 years. I was never sent to a psychiatrist and was put on the wrong medication (I hadn’t heard of mood stabilisers and seemingly neither had my doctor).

So- What is Bipolar Disorder? (formerly known as Manic Depression)

To me, Bipolar symbolises the two extreme poles of mood- mania and depression. The North Pole is Mania. Mania is wonderful for me- you think you can be anyone, you think you can do anything, achieve anything, You are flying. You think ‘why can’t everyone be like this and experience everything?’. You are much more uninhibited. You may shop more, you spend more money, You think you can FLY!

But you can’t fly and you fall, you fall off a cliff into varying degrees of  deep, dark depression, which can last for months.

Bipolar disorder is  a chemical imbalance in the brain that causes periods of depression and periods of abnormally elevated mood, mania. The elevated mood is significant, known as mania or hypomania depending on its severity and whether symptoms of psychosis are present. Psychosis means when your mind lose touch with reality, with delusions or hallucinations.

During mania, someone feels abnormally, happy, energetic, irritable and not requiring sleep they often appear to be bouncing off the walls, starting new projects, trying to achieve too much. In some cases, addictions during mania may also present.

During depression, someone with bipolar disorder may be crying, experiencing negative thoughts and giving poor eye contact. You will notice this if you ever have a conversation with someone who is depressed. They may also be suicidal or talk about self harm.

My Story:

My first manic episode occurred in 1991 and I went to the doctor and was prescribed Valium (an anti anxiety calming medication), which was handed out like sweets in those days.

The Valium didn’t do me any harm but they certainly didn’t do me any good. In the next 9 years, I had three manic episodes followed by three increasingly devastating depressive and suicidal episodes, the last of which lasted 5 months.

In my first manic episode I was going out a lot late at night to clubs and bars and spending too much money. My second and third manic episodes were much more controlled as I recognized what was going on but I was still much more outgoing than usual and spending too much money.

My depressive episodes were serious and eventually suicidal and lasted 3, 4 and 5 months respectively. I often stood on the edge of a London Tube platform thinking about ending it all. I would drive down the motorway at speed not turning the corners until the last possible moment. I would stand in the bathroom with hands full of tablets thinking about overdosing and ending my life. Mostly, I was at home in bed doing nothing but sleeping , eating and surviving.

The person you would meet today is not the person you would have come across at that time.

Looking back there was no real connection made between these episodes and I wonder 1. Why I was never hospitalised and 2. Why I wasn’t diagnosed more quickly.

First of all, 30 years ago far less was known about Bipolar Disorder so the doctors weren’t quick to diagnose it. Secondly, it was only after 9 years that my GP reviewed my file and noticed that I had never been referred to a psychiatrist.

This was the breakthrough that changed and saved my life.

I went to The Priory hospital to see a psychiatrist, describing my episodes. Within 45 minutes I had a diagnosis,

”You have a mental illness. It has a name, It is Bipolar 1 Affective Disorder. You have it for life and it is treatable with the drug Lithium.”

Lithium balances out the chemical imbalance so you end up between the poles and mood is then stabilised. I am pleased to say that in the past 20 years, the medication has worked for me and has stabilised my bipolar disorder, so I no longer get episodes of mania or depression.

I am also pleased to say that as quite an emotional person I still experience the normal feelings and emotions that come with everyday life.

Starting on Lithium is not easy as you have to be weaned onto it. There are side effects, the most common being weight gain and you have to have regular blood tests to make sure the level of Lithium in your bloodstream is correct (non toxic) and it is not affecting your kidneys.

I do wish that I had been diagnosed earlier and not had to suffer manic and depressive episodes as I did.

These are the 4 takeaways I would like you to have from reading this, this Time to Talk Day:

1. With mental health it’s good to talk about it , It’s good to fight stigma and it’s good for your own healing.

My journey started in 1991 and I would hear things like ”you’ve got a weakness. Why don’t you pull yourself together?”, which were unhelpful

2. Think about how you can help people in your community by recognizing the signs that someone has depression or mania.

3.  Live a positive life- I am an example of a bipolar sufferer who can maintain a positive life. Bipolar is an illness that needs treating. It is treated with medication but it can take time for the medication to be right as each person has individual brain chemistry.

4. Listen to those who are struggling. Most of us listen to reply. If you watch two people deep in a conversation or you are in one yourself your focus will be very much on the other person and you will be listening at 90%.

But if you are listening to understand and you are feeling and sharing their emotions then you are truly listening at 100%. Check out the Samaritans help line too.

 

mikesegall

(image: Mike Segall)

Mike Segall is a professional speaker and mental health advocate, sharing his lived experience with bipolar disorder to groups in the UK. He is also the father of the founder of this blog, Eleanor.