On DBT, Art and Healing: A Joy That’s Mine Alone: Guest post by Violette Kay

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When I was little I wanted to become a violinist when I grew up. And I could have done it, I was actually really good, but unfortunately mental illness robbed me of that dream. I had my first bipolar episodes right when I started studying music in college, failed a bunch of classes, wronged a bunch of people, and watched my music career crash and burn before it had even begun.
It’s been almost a decade now, and I have a whole new life in which I’m stable and happy, yet I still can’t help but wonder if I could have done it. If I wasn’t bipolar, would I be a professional musician? This question haunts me, it follows me wherever I go, and no matter how far I run it always brings me back. A few years ago I bought a music school in a hypomania-fueled delusion that it would bring me closer to my childhood dream. It did not.
I’ve also written a play about violin teachers and nostalgia/regret, it was very therapeutic, but it didn’t fully heal the wound of my failed music career. Perhaps nothing ever will.
The first thing they teach you in Dialectical Behavioural Therapy is called the “Wise Mind”. It’s supposed to be this balance between your reasonable mind and your emotional mind, and that’s the place you want to be making decisions from. You want to consider both the facts and your emotions, and not ignore one or the other. For example, let’s say you have coworker who is making you angry, and you want to yell at them, throw things and storm out, that’s just what your emotional mind wants. So if you bring in a bit of reason and use your wise mind, you can probably come up with a better solution.
When I was learning this in DBT group I noticed that all the examples we were given involved using the Wise Mind to avoid acting on our emotional mind, so I asked the instructors if they could give me a situation where it’s the other way around, an example where your reasonable mind is what’s leading you astray. They gave some roundabout unclear speech about… something, I don’t remember. Basically they didn’t have an answer for me.
Well, it’s been over a year now and I think I finally found one: I should quit music. I should completely cut it out of my life, sell my violin, recycle all my sheet music, unfollow/unfriend everyone I met through music, and stop self-identifying as a musician. Music has caused me so much pain, and landed me in some impossible situations. So logically, if I want to stop feeling that pain I should just quit, right?
That’s my reasonable mind talking. But if I did quit music I would be ignoring my emotional mind, who likes music and has a lot of very meaningful music-related memories both good and bad, memories I wouldn’t want to lose.
So what’s the middle ground? I still play sometimes. I’ve gone busking during periods of unemployment. I record backing tracks for my singer friends. I take on background music gigs sometimes. And I bring music into my theatre and writing practice all the time.
I’m still shocked every time I get paid to play music, and though I do on occasion mourn the violinist I could have been, I’m also incredibly grateful that I still get to live out my childhood dream in small ways. It’s not what I wanted, but it’s still a good life.
My latest project is a film inspired by my experience of having bipolar disorder and buying a music school, and a first for me: a project born entirely out of self-love, rather than pain. I am so grateful I got the opportunity to make it and to share it with others.
I’ll always have bipolar disorder, it will always be a part of me, but it’s just one part. And I’ll always be a musician. That’s also just one part of me. Maybe they’re the same part.

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This guest blog was written by film maker and musician Violette Kay. Her film the Joy thats Mine Alone about life with art and bipolar disorder, can be viewed at : 

Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

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(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x

 

You can pre order Bring me to Light, my book on mental health, now!

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Hi friends, its now August and my book is out in the UK on October 30th and November 5th in the USA! I tell my life story with being hospitalised for bipolar disorder episodes twice, most recently in 2014 and how I found a form of recovery and have become a writer on mental health.
My book is called ‘Bring Me to Light’ because I found light in the darkness, hope where there was none. It took many years and this time was a challenge. I hope that reading my book will make you feel less alone. It talks about bipolar, psychosis, depression, anxiety and mania.
It also talks about my wonderful family and friends who have helped me along the way and teachers, doctors, psychiatrists and nurses. Team effort.
the Trigger website (my publisher). USA people you can order it on your Amazon too.
Book launches to follow later in the year, stay tuned for details!

World Bipolar Day: Extract from my blog for the Centre for Mental Health by Eleanor

 

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(image: Centre for Mental Health)

‘Like so many sharing their stories this World Bipolar Day, I have lived experience of bipolar disorder. I am now 30, but was just 16 when I was diagnosed with bipolar 1 (the most severe form of the mood disorder) as an inpatient at the Priory Hospital North London. It was hard to deal with this diagnosis at such a young age and I didn’t know then what my future would hold. I was hospitalised due to having three episodes of illness: mania and depression in one year, which led to psychosis, where my mind lost touch with reality.

Bipolar is a serious mental illness that causes a change in mood states to either big manic highs or devastating depressive lows, with a normal state of functioning between episodes. As someone living with this, I also have experienced psychosis during my mania which needs quick hospitalisation as my mind spirals wildly out of control. I have been hospitalised twice for my bipolar (in 2004 and 2014), both times due to an extreme episode of mania and psychosis.

As a teenager in hospital, I was depressed, anxious, fearful and vulnerable. I believed (falsely) that I had been sexually abused and my reality became based on this false belief (delusions). The doctors got me back to full health through a combination of starting on new medicine (mood stabilisers) and giving me anti-psychotic medication to bring me down from the mania. Over four months I also had one to one therapy, group therapy with the other teenagers in the adolescent unit and was supported by an incredible team of nurses and a psychiatrist who believed I could get well. I eventually went home once my mind was stable and started a long process of counselling and recovery.

I was able to go to university and get my degrees, travel, make friends, date and live my life. However, in 2013, after some life stressors, I began to experience a depression which featured suicidal thinking. It was very scary and we believe it is because my medicine Carbamazepine wasn’t working any more as I got older.

Depression of this kind is incredibly hard to deal with. I stayed in bed all day most days with breaks for meals. I had no energy, no hope, no reason to get up. I was unmotivated and couldn’t cope with life. I barely washed or spoke to friends. Luckily, due to my fears about the suicidal thoughts, I shared this with my family and medical team. I didn’t want to act on it, just escape from the pain my mind was in.

Unfortunately, a few months later, the depression turned into a period of mania, possibly caused by my mood stabiliser not working and taking anti-depressants. This is always a risk with bipolar, that medicine can send you high. I was agitated, speaking very fast, with racing thoughts, raised libido and was vulnerable as a result. The psychosis then started, with my mind starting to believe falsely that I was being held by a criminal gang orchestrated by my family. It was so scary. I was sectioned, treated with medication again and over several months engaged with therapy in hospital, while they tried to bring my mood and mind back to lucidity.’

Read full blog here: 

https://www.centreformentalhealth.org.uk/blog/centre-mental-health-blog/bipolar-disorder-eleanor

 

World Bipolar Day is Tomorrow!

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Tomorrow, join in and learn what you can about bipolar disorder.

As many of you know, I have bipolar 1 disorder and when not on medication, have episodes of high mood- mania/ psychosis and low mood- severe depression. Thankfully I am in recovery but it affects so many people and is thought to run in families.

Remember you are not alone.

Bipolar UK-  https://www.bipolaruk.org/

Bipolar in USA: http://www.mentalhealthamerica.net/conditions/bipolar-disorder

‘A Unpredictable manic episode meant I was hospitalised for my bipolar disorder’: for Happiful Magazine February 2018 Issue

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(image: E Segall and Happiful Magazine)

Hi everyone,

I am thrilled to be able to share my story of recovery from bipolar disorder for the first time in print (!) at Happiful magazine, a UK magazine solely dedicated to mental health.

You can read it online here:  https://subscribe.happiful.com/ click read e-magazine and turn to pages 50-51. If you live in the UK, you can also order the magazine there by post or buy a copy in most major UK supermarkets!

As I say in my article,

Having bipolar is not a curse, I look on it as a life lesson and something I will always live with. My dream would be to publish my life story as a book and share it with others across the world… The girl who lay on that ward so frightened and scared is only a small part of me. Now, I want to raise my voice even more to help others, so stigma falls’   

I hope you enjoy reading it and leave a message for me in the comments if you do.