Tag: Self Harm

What It’s Like To Go Through Severe Depression as a Bipolar Episode: Looking Back by Eleanor

~ Eleanor Segall ~ 14 Comments
(image of Eleanors book Bring me to Light: Eleanor Segall/ Trigger and Welbeck publishing)

TRIGGER WARNING- DISCUSSES SUICIDAL IDEATION, SELF HARM AND BIPOLAR DISORDER. PLEASE READ WITH CARE

This weekend, I went home to my mums to celebrate the Jewish festival of Pesach (Passover) and have some quiet, family time. It was wonderful and because our religious laws mean we don’t use the internet, our phone on our festivals, it meant I had time for digital detoxing and switching off. But with that silence, came space. To think and reflect.

Something you may not know about me is that as well as being a writer, throughout the years I have been a prolific diary (journal) writer. The act of putting pen to paper and type to keyboard has always been therapeutic for me in my darkest moments. I found a diary I had written in 2013, when I was living with depression, suicidal ideation and self harm thoughts and actions.

The journal was covered in butterflies- always my symbol of hope. I don’t want to trigger anyone so I will say this carefully- essentially, I was so unwell that for me, my symptoms were: sleeping until the afternoon with a slight break for a meal or tablets, not socialising, finding it hard to wash due to increased anxiety and lethargy, feeling like I didn’t want to wake up the next day and wanting to harm myself in various ways- but being so frightened by these thoughts (because i knew they weren’t really Eleanor) that i had to vocalise them to my family and psychiatrist to keep myself safe. Thats what I did and its why I am still here today, in recovery.

I lived with this depression for about 6 months- my psychiatrist was encouraging me to try Lithium to stablise the bipolar but I wasn’t ready and wanted to see if Quetaipine could halt that. As we know, I became hospitalised for mania soon after in 2014 which led me to recovery and writing my book Bring me to Light.

When you live with an illness like bipolar disorder, you can sometimes forget the nuances of all the details of how you were when you were unwell. For me, I always felt that I handled the depressive episodes ‘better’ than the mania- just because I was able to keep myself as safe as possible by telling my family and doctor and changing medication. My psychiatrist had to come out to see me at home with a nurse as I was so unwell and I wrote out how I felt for him to know.

So many people live with terrible episodes of depression so this blog is just looking back and giving you some knowledge of how it manifested for me. Essentially, depression is a slowing down of the mind towards inactivity, darkness, misery, anxiety, agitation and it is often triggered due to changes in hormones and brain chemistry (if you have a family history its more likely to happen). Depression is not just low mood. Its paralysing. Its not wanting to be in the world and being in so much emotional pain. You may think of ways to harm yourself and you may dream of not being in the world. Or you may be ‘high functioning’. I somehow managed to go to friends weddings during this time despite spending the other days in bed til 5pm- I have no idea how- anti depressants and support helped greatly. However, my depression was dark and invasive.


Now, I had forgotten a lot of these finer details. For me, I never truly wanted to die- I wanted the uncontrollable bipolar to go! The suicidal ideation was my bipolar brain chemistry but also an expression of not coping with life and the bipolar moods I had been given- I was 24 and I couldn’t enjoy life- i was wracked with anxiety too. My mental health was fragile and unstable and it is no way to live- but what saved me, was being hospitalised and finding medication and therapy that has helped me to live in remission (thank God) for 7 years now.

I can say now that my brain chemistry is balanced and even if i ever get sad or frustrated, I don’t have those awful thoughts and if they ever come up, I can deal with them. I have such a supportive partner and family- my family and psychiatrist saved me as well as me trying to save myself- I frightened myself with my thoughts and I had some semblance of being able to keep myself going, which is not possible for everyone. It helped that my Dad has bipolar and could really understand what was going on for me too- he understood exactly how I was feeling but he knew it was the illness and not Ellie. I feel so lucky for that because not everyone has this. My mum, step dad and sister and wider family also were so supportive and never blamed me for being unwell. That helped too. My faith also has helped me dearly,

(Me at 25 when I was going through depression. This photo was a selfie taken when I was dressed up to go to a friends wedding and my sister had done my make up. There were no photos with messy hair or red eyes and tears. I never looked this good when I was in bed til 5pm most days in my PJs).

If youve got this far thank you for reading. My mission is to help others with these conditions feel less alone, through sharing my own experiences. I have been careful not to reveal what certain thoughts were here so I don’t trigger anyone.

If you live with depression and a host of other issues, you can recover again. Hold on. You will not feel like this forever and you can find a level of happiness and stability again. Reach for help, someone you trust, a help line, a psychiatrist and don’t give up.

Book Review: ‘Pushing Through The Cracks: In the Darkness of Her Family’s Mental Illness She Found Light’- Emily J. Johnson by Eleanor

~ Eleanor Segall ~ Leave a comment
(image: Emily J Johnson)

Pushing Through The Cracks: In the Darkness of Her Family’s Mental Illness She Found Light by Emily J. Johnson is an incredible book. It is a story that I don’t believe has ever been written about before in such a way in the mental health space, I have certainly never come across it. Its a true memoir that occurred here in the UK during lockdown.

Emily wrote to me and kindly sent me a free copy of her book. I was hooked from the first page- this is a story of survival against the odds, of how mental illness can rip a family apart but how healing and hope are possible. Of strength through immense difficulty. Of light winning over darkness.

Four years ago, in the UK, Emily, a divorced mother of two, was living her best life with a new partner and blended family of six. But then addiction and mental illness entered her home uninvited, threatening to tear the whole family apart.

With an alcoholic husband and two teenage sons – one a depressed gambler and the other with chronic obsessive-compulsive disorder (OCD)– Emily is left to cope alone. And when the Covid pandemic hits, Emily, a ‘serial people-pleaser, enabler and born rescuer’, almost breaks too.

This true story delves into the darkest sides of mental illness and addiction with raw, often harrowing honesty. It shines a light on taboo subjects including self-harm, suicidal feelings, gambling, alcoholism, depression, severe OCD and eating disorders, all exacerbated by an unprecedented global pandemic and dwindling support services.

This is a story of remarkable strength, self-realisation and reclamation of a lost identity. This is a story of finding hope, pushing through the cracks in the darkness. It is also a story that touches on the difficulties of accessing UK NHS mental health services at times, especially CAMHS.

I found Emily’s strength through such severe adversity – dealing with a husband and two sons with severe mental illness, whilst carrying on with her own life when mental illness permeated every part, to be so inspiring. Her marriage falls apart, her children are unable to attend work and education, the family embarks on several different recovery journeys- navigating NHS mental health care and all its difficulties. Her sons addictions and acute OCD worsen and add to the pressures for Emily. How does she as a mother fix it all? She realises.. she can’t fix anyone and its not her job too.

The front cover features a dandelion pushing through the cracks of the ground. Emily describes the moment she hits rock bottom but then saw a dandelion poking through- which symbolised hope and light for her,

‘(image: Emily J. Johnson)

‘I pick up my phone and call a crisis support line…I desperately want someone to listen to me, to ease my pain, to hear my stories…(of mental illness at home)

I throw my phone across the path in frustration… something catches my eye, a beautiful yellow dandelion is growing through a crack in the concrete. Its golden yellow petals cut through the greyness of the broken path and it overshadows the filth and discarded cigarette butts around it. Despite its surroundings, it has found ways to push up through that crack, to have life. it is. not complaining or giving up, it’s surviving and it will go on to finish flowering. One day soon, the wind will carry its dainty seeds somewhere else to carry on the cycle of its life.

Just like that dandelion, I have pushed through adversity and survived. …I close my eyes and raise my face to the sunshine… Even in the midst of all this chaos, this darkness, there is warmth and light. There is hope.” (from chapter Dandelion) (Emily J. Johnson)

This is also a book which exposes the difficulties and realities of living with mental illness. I will add a trigger warning- it doesn’t hold back on the reality of mental illness including self harm, addiction, alcoholism, suicidal thoughts etc- so please read with care.

Thank you Emily for letting me read and follow the journey of your family. I hope your husband and sons are able to fully battle their demons and recover or stay in remission.

Pushing Through the Cracks by Emily J. Johnson can be bought from Amazon and good book shops.

(image: Emily J. Johnson)

Living with ‘Quiet’ BPD- Guest post by Cordelia Moor for Time to Talk Day

~ Eleanor Segall ~ Leave a comment

BPDq

Trigger warning: talks about BPD symptoms

 

There are many misconceptions about having Borderline Personality Disorder/Emotionally Unstable Personality Disorder.

I do not say that lightly, and I am more than a little convinced that most people who have BPD would agree with me. Personality disorders in general suffer under the stigma of being completely misunderstood by the majority of the general public. Hell, I completely misunderstood personality disorders until being told that I had one.

‘Ah’, said I. ‘That explains a lot. But not everything.’

And it did explain a lot. I thoroughly enjoy (in a very, very weird way) telling people that I am emotionally unstable. Diagnosed. Got the paperwork. Makes them quite uncomfortable, makes me cackle like a little pixie. Obviously, I don’t just go around telling strangers that, it’s always in context of the situation. But for some reason, although the people I love are more than happy to discuss depression and anxiety, when it comes to personality disorders they start ‘shuffling’.

But I’m not about to shy away from talking about BPD and my lived experience of it, because it’s only through understanding other people’s experiences that we learn anything.

I came here today to bust through one misconception in particular. One that I definitely held for a long time, and one that I only dropped when I read more about Borderline Personality Disorder and how it can manifest in different people.

Most people think of BPD as the person ‘acting out’.

They think of the disorder as being very outwards and visible. There’s horror story after horror story sensationalising the ‘classic’ borderline personality disorder on the internet – all written from the perspective of someone who doesn’t actually have it. But knows someone who does. It’s horrendous, and it’s awful, and it taints many people’s perceptions of what BPD actually is.

My lived experience is very different, and it wasn’t until I came across some articles on The Mighty detailing what ‘quiet’ BPD is that I truly began to understand how my brain works, and how my BPD manifests. This is not to say that it’s any ‘better’ than classic BPD.

This is just to say that nobody has the same lived experience as everyone else, and that’s why we need a mix of stories and voices all telling their own unique stories about the same disorders. That new coat of fresh paint on the same topic adds something to the narrative.

This is my lived experience.

For me, my BPD manifests itself internally. On the outside, I look reasonably ‘sane’ and ‘put together’. The inside is a maelstrom of thoughts and emotions that are hard to understand, hard to deal with, and consistent. Honestly, if I could crack my head open and let all the thoughts that are constantly throwing themselves around my brain out, everyone I know would be shocked.

I still have the same impulsivity, self-injurious behaviours, fears of being abandoned, mood swings, and black and white feeling that people with classic BPD have. But instead of ‘acting out’, I ‘act in’.

I often describe BPD as having no emotional skin. Where something might affect you slightly, it affects me completely. Like touching an exposed nerve ending, every feeling is intensely strong and always too much. It’s exhausting to always feel everything to such an intense level.

It does make relationships hard. But I don’t lash out at the person, I lash out at myself. It’s self-destructive in a way that nothing else really is. I’ve had to work very hard to keep my thoughts and feelings internal in the fear that if the people I love knew how I truly felt, they’d leave me immediately. My life is a constant whirlwind of convincing myself that everyone hates me, that everyone is going to leave, and then finding a rational moment and remembering that people don’t hate me.

I’ve been told enough times.

I want to believe I am a good person, but I don’t yet know if it’s true. Quiet BPD is just as hard to deal with as classic BPD, but you probably wouldn’t know it from the outside. I would never take out my feelings on people I know, because that’s just not me. I will, however, take them out on myself. I will distance myself from people without them realising why.  I will be trying, 90% of the time, to please people to make them like me.

It’s hard to admit what’s going on in my head. But it’s because it’s so hard that I do it, and I continue to push through and talk about the really difficult bits of mental illness. Without these conversations, none of us would know what people go through – and then we’ve got a problem.

This article was written by Cordelia Moor for Time to Talk Day 2019. Cordelia can be found at www.cordeliamoor.com

Light Beyond Self Harm by Kaitlyn W at withbeingalive.wordpress.com

~ Eleanor Segall ~ 16 Comments

selfharmselflove
(image: Dare to Live SOS) 

The author Kaitlyn blogs at www.withbeingalive.wordpress.com . Trigger warning: talks about self harm behaviours (but not graphically), please be careful when reading.

When you are curled within the cradling, spiked tentacles of self-harm – one wrapped around each wrist, and another brushing away any tears – those pesky alternatives of “holding an ice cube!” or “colour in!” can seem shallow; laughable even. You are shoulder-deep in the swampy mud that is self-harm, the goop surrounding you can feel ever-rising, and there is a stigma of wading in this particular swamp – you should be ashamed that you are.

 

During self-harm, it can feel impossible to have hope. A hope for a different reality can feel light years and stone barricade walls away. It can feel like the darkness (or swamp mud, whichever you would prefer to call it) is all consuming, your actions are all that you are, and the glittery, floaty wings of change have no way to weave in.

 

However, it is my privilege to share today that you are so much more than self-harm tells you that you are. Consequently, that there is hope beyond self-harm, and that this hope is yours. Ultimately, self-harm does not need to have a role in your life.

 

Despite how inherently wrongly created and badly designed for life you may feel, this is not who you truly are. Despite the mess, the exhausting racket that constantly parties too hard in your brain, remember that you are only witnessing this all from one perspective. You exist not only to yourself, right now, but also to child you and future you, to other people, and you exist beyond the darkness you feel. In all these other ways, you are who you are, and you are not the engulfing darkness. You have the potential to be who you are, to live the life you deserve to live; to be in the light beyond self-harm.

 

It’s safe to say that self-harm exists as a little bundle of menace, born from doubts, fears, life experiences, unhealthy coping strategies, and maybe a few other things thrown into the mix too. Although that can feel like an awful lot, or perhaps literally everything, which is an incredibly heavy load to carry, it really isn’t everything. Your doubts and fears can simply be. They inherently don’t have to control your behaviour. As for a way to cope, there are plenty of other ways to cope too. Self-harm isn’t the sole solution or the only option.

 

In a grumbling, gravelly voice, self-harm can mutter about how you won’t be able to survive without it. That you deserve the constricting boundaries that self-harm makes you believe you are worthy of. In these times, it can really help to recognise that this is self-harm talking. That these thoughts aren’t you, and that you don’t need to act upon them. You could imagine that self-harm is a preteen yelling at the Xbox, or maybe you like the swamp monster with tentacles idea. Either way, give self-harm an identity that’s not you. Self-harm then becomes an annoying, whining brat whose tantrums you can work on ignoring, rather than indulging. Do you really think self-harm deserves a brownie?

 

What also really helps to pry yourself free from self-harm’s sticky little claws, is finding out what works for you. Go to therapy or a support group and engage in professional help; they have spent several years training to help people in exactly the same situation. Find someone you can talk to; a small yarn can go a long way. Try out those alternatives (and there are so many more too) that were mentioned at the beginning; they can seem plain kooky, but give them a go! I guarantee that there will be at least one that can ease self-harm’s whinging, taking it down from a full-blown tantrum in the middle of the supermarket, to perhaps a soft snivel on the bottom step of the staircase.

 

To end with, there is light and hope in having a life beyond self-harm. You have the potential to exist as bigger and brighter, as vast and brilliant, than what self-harm croaks about you. Go out there and stomp and shout, and simply be – be loud, be radiant – you are greater than what self-harm tells you that you are