Yesterday, 9th Feb, my dad Mike and I were honoured to be interviewed by his friends of many years, Penny Power OBE and Thomas Power of Business is Personal- live on Linkedin, Youtube and Facebook.
They asked us to come on their weekly show to talk about our hereditary journey with bipolar disorder and anxiety and shed light on all things mental health.
It was a real pleasure to talk all about our lives and how my Dad was diagnosed with bipolar just 4 years before me.
Trigger warning: discusses suicidal ideation and psychosis.
Thanks Penny and Thomas! We hope it battles stigma around this much misunderstood illness. Watch here:
(image: Readers Digest)
This has to be the strangest time in all our lives. Not being able to leave the house for fear of passing on a deadly virus, all the family working from home, worrying that symptoms are indeed Covid 19.
This outbreak has already infected friends and potentially family. I think I may have had a mild version and have been isolating for at least a week already, and now until the danger passes. Thinking of all my friends who are affected and anyone who has the virus or whose life is being disrupted because of it.
There are good things happening- acts of kindness, communities pulling together, sunshine and flowers and spring blooming. Supermarkets opening for NHS workers and the vulnerable, the homeless being housed in hotels, financial help from the government (although can we please help our self employed workers more?).
I do worry though about the impact the virus will have on those with mental health conditions. My appointment with a psychologist to help me with my PTSD has been postponed and no new date given. I can’t go to see my therapist either but I think will organise a Skype call so that we can continue the EMDR trauma therapy I have been having. Medication supplies are so far unaffected.
I am lucky to live with family at the moment and have the support of my husband, mum and step dad and wider family too. For those living alone, having to buy groceries and navigate this new and scary world alone is terrifying for them. I was heartened to see this week, the Jami appeal for the vulnerable in the Jewish community. Mental illness does not discriminate and with all the pressures at present, suicide remains a real risk. We can combat this through checking in on friends and family regularly and signposting them to emergency support such as the Samaritans or crisis teams.
It is a scary time but we all must pull together and reach out to each other, by video call, phone call, whatsapp message or more and try, from our homes, to look after the vulnerable and our neighbours.
Most importantly, we must look after ourselves and our households and try to stay well.
How are you coping?
Charlotte Underwood, writer and mental health campaigner, shares her courageous story with us. Trigger warning: discussions of suicide and substance abuse.
Life has not been especially easy for me. I’ve got more layers than an onion due to this, though my mental health really took a turn for the worst when my father went missing for over a month. He was found, suicide was confirmed.
It was hard to process, suicide was supposed to be for movies, not for real life, right? I went through a lot of things after that, blaming others, blaming myself, creating conspiracy theories, just so I didn’t have to accept that my best friend, my daddy, was gone.
Losing a loved one to suicide is so hard because it’s often sudden and leaves a lot of questions and nuclear damage that domino effects into every single person who knew and loved the victim. I’m all reality, it is no ones fault for a suicide, not even the victims.
There are so many possible causes and things that can trigger a suicidal episode that it is impossible to always know that someone is at risk, we often miss signs even when they are right in front of us.
My dads death led me to substance abuse and my own suicide attempt, I didn’t want to live without him, I was a daddy’s girl and he was the only one who helped me with my own mental health. For three years I refused to grieve and my life was looking to be pretty similar to my fathers demise, a life of hiding my feelings because I didn’t want to upset anyone or cause a problem.
It wasn’t until I met my husband and learnt to think about myself that I realised through it all, I had lost track of who I was. I decided then and there to start being selfish (without being mean) and to love myself and fight back and work with my own mind.
It’s been a rollercoaster since, recovery isn’t linear, my mood changes in seconds and each day is a battle, I may look fine but there’s always so much going on inside my head and body (mental health has physical effects too!).
What I have learnt though is to not be ashamed of who I am, to demand the help and support I need and to not let my mental health limit me because it does not define me, I am Charlotte, plain and simple.
It’s important to remember that all your feelings are valid, it’s ok to hurt and be angry and to have all this going on because it’s your body responding to trauma or something in your environment eg stressors.
That’s why it’s so important to talk and to be reminded that it’s ok not to be ok and that you are not alone!
Charlotte is an author, is on Twitter and can be found at https://charlotteunderwoodauthor.wordpress.com/
Sam shares her incredible story of living with bipolar disorder and how she recovered and now helps others as a student mental health nurse. As a student, Sam has worked on a child and adolescent unit, has volunteered for Mind with a theatre project for people with mental health issues and shares her amazing story with us here.
Trigger Warning: Piece speaks about self harm and suicide, please read with care.
I started to experience anxiety at the age of 10. I remember feeling extremely overwhelmed at the thought of moving to secondary school and although I was very bright in other areas, I struggled with maths and this often reduced me to tears. At the age of 11, I started to struggle to fit in with my peers and became increasingly socially anxious. By the age of 13, I began to experience severe emotional bullying within my school. I had many friends and I was a talented dancer but the effects of the bullying eventually led to feelings of low self-esteem and self-worth. I wish I had had the confidence to speak to my parents about the bullying at the time but I felt ashamed and ultimately believed that there was something wrong with me as a person.
Additionally, I was a high achiever in a high achieving school, in a good area, so I felt the pressure of these expectations. I had big expectations of myself too, which added to my stress and made life difficult. As I turned 14, I had already had three episodes of what I now know to be depression. I would go for weeks without eating and felt physically unable to speak. I would spend hours in bed and did not feel able to attend school. One day, I decided that I could not cope any longer, I felt suicidal and alone, taking an overdose. My parents took me to hospital and I later saw a psychiatrist at the child and adolescent mental health outpatient’s facility.
The attempt on my life made me feel really ashamed but I did not know why I felt that way and had those thoughts. I couldn’t explain everything to the doctor. I continued to have periods of depression and at age 15, I experienced my first manic episode following a break up with my boyfriend and a significant life trauma. I also had my first episode of psychosis (when your mind loses touch with reality) following this. I was taken into hospital and then sent to a psychiatric unit. Here I received a diagnosis of bipolar disorder (type 1) and was prescribed Lithium to stabilise my mood and anti-psychotics to treat the mania and psychosis. I found this diagnosis really difficult to accept but I was relieved to finally know why I had felt the way I did- and what was causing the depression and mania. It would have been very helpful to have someone tell me at this point that recovery is possible. It is possible to have a fulfilling life despite my condition, but I didn’t know it then.
I returned to school for my last year and I had to drop one of my GCSE subjects to catch up on the work that I had missed. I felt ashamed of my situation- I found school and socialising really hard and because of the greater stigma that was attached to mental health back then, many of my school peers were not very understanding or supportive. I failed most of my exams and felt like a failure. I had aspirations to go to university but due to my grades this was not possible so I had to do an NVQ instead.
I decided to study counselling as my experiences had given me an interest in this area. Unfortunately, I found life with my new diagnosis increasingly difficult and fell into the wrong crowd and turned to substances, alcohol and self-harm as a way of coping. I did not take my medication as prescribed- so consequently had another manic episode at age 17. I became so unwell that I was sent to a psychiatric hospital out of area and sectioned under the mental health act. Here I had high doses of rapid tranquilisation to treat my mania and psychosis.
I recovered from this episode and went back to work. At 18, I was working in a call centre and moved out of home into a shared house. I spent large amounts of money maxing out credit cards. I began to sleep around and had unhealthy relationships, putting myself in dangerous situations. Unfortunately, the people I moved in with were also using substances and this exacerbated my mental health symptoms further. I moved onto using harder drugs. I really didn’t care about myself and felt like my life was over before it had begun- I felt like I had nothing to live for. I started to harm myself again – culminating in an overdose. Then, I was admitted to an adult psychiatric unit on a section 3 (a longer hold in hospital).
By the age of 23, I had had several admissions into this hospital and had also lived in supported accommodation. I had many traumatic experiences in hospital as some of the care I received was not positive. Each episode of mania followed an episode of depression.
At 24, I met a boyfriend who did not use substances and he also had had his own mental health experiences, I fell pregnant and we decided to keep the baby. I then stopped taking substances and began to take care of myself for the first time as I realised my actions would now not only affect my life but another’s too. This was a big turning point in my life. I had a baby girl and came off all my medication. I had an emergency caesarean which was traumatic and I tried to breast feed which was unsuccessful.
However, being a mother with bipolar has its own challenges. I became very low after the birth and had an episode of postpartum psychosis, where you can suffer from delusions and/ or hallucinations. I had to spend time in a psychiatric unit for three months to be cared for and to get well again. Fortunately, my family took care of my daughter during this time. I recovered from this episode and my daughter, my boyfriend and I moved into a two bedroomed flat to make a fresh start.
I had some difficult news that year that spurred me in in my recovery and to make positive change for those of us with bipolar and mental health issues. My close friend that I met whilst living in supportive housing, who also had bipolar disorder, passed away from suicide. This inspired me to then start volunteer work within the mental health services and try to use my own experiences to help other people. My support worker at the time put me in contact with MIND and a local theatre group.
At the theatre group, I met many people who became a positive influence on my life. I started a course in mental health at college in the evenings and helped run the hearing voices group at MIND. I also volunteered in secondary schools educating young people about mental health, the effects of bullying and substance misuse. I also took A level psychology at evening school and completed a year’s social science course at university. My mental health improved and so had my self-esteem and confidence. I finally had purpose in my life as a mum and volunteer with positive friends and family around me. I also had a stable prescribing routine of medicaion- Sodium Valproate, to help keep my moods stable and no longer going between depression and mania.
This spurred me on to apply for a job on the National Health Service (UK) Nursing bank as a Nursing assistant. I worked in different mental health settings including the hospital that I spent time in as a patient. This felt awkward at first but a Nursing assistant who had cared for me in the past took me under her wing. I really enjoyed the work and realised that this was the career for me as I loved working with people and helping them through their distress. When my daughter started pre-school I applied for a permanent job in one of the hospitals that I did agency shifts in.
That year, my boyfriend and I got married. After working in low secure unit, I moved on to working in a recovery unit and eventually applied for a job in a child and adolescent unit. I continued to have an interest in performance arts and my friend told me about a local theatre project which aimed to challenge stigma and discrimination surrounding mental health. This seemed to be right up my street so I volunteered! We devised two plays during the time that I worked with them. I enjoyed acting and spending time with others that had experience of mental health. We also wrote a book with stories and poems related to mental health which was later published. It felt great to be back challenging stigma and using the arts as a way of doing this.
I spent five years working at the child and adolescent unit and really enjoyed working in early intervention with young people. I had my son during this time and although I had another caesarean and a low period post natal, the overall experience was much more positive as I had stability and a good insight into my mental health.
As my son grew up, I decided to start my access to nursing and maths GCSE at evening school. It was hard to look after two children, work and attend college but I passed and gained a place on the mental health nursing degree at University. My manager also advised me to apply for the nursing scholarship and I was successful. My trust is paying for my training and I will have a job as a mental health nurse on qualifying.
15 years ago, I really didn’t think I would be where I am in my life today. It really does show that with the right support, lifestyle and for some, medication that recovery is possible. Remember your diagnosis is just one small part of you it doesn’t define you and unlike some people in society mental illness does not discriminate – it could happen to anyone of us.