Category: Anxiety Disorder

Fighting mental health stigma: a personal journey

~ Eleanor Segall ~ 2 Comments

I have had bipolar disorder for almost 13 years, along side depression, anxiety, psychosis, hypomania and manic symptoms- which ebb and flow and fluctuate. Now that I am on the right medication these bipolar symptoms are kept under control. For most of these 13 years, I didn’t feel I could speak out about my conditions.

My family and close friends have always been very supportive but I felt ashamed. Ashamed of where my brain could go to when unleashed and its chemistry got confused. Ashamed of why I was either suicidally depressed or hyper and manic to a point of having to be sectioned to a psychiatric ward. Ashamed of my illness, confusing my identity with the illness, which made me worried about others judgement of me.

I was diagnosed at a very vulnerable age- 16 years old and as we know teenagers can be cruel. Although I experienced a lot of kindness and empathy, after a hypomanic episode abroad where I was disinhibited, I experienced a lot of cruel rumours from other teens I knew. Rumours that were stupid but that called me many names and compared me to evil things that I do not want to repeat. What was at the most basic of these insults? In my opinion, fear.

People fear what they cannot see and cannot understand.

People in their teen years do not want to be different- and I was the embodiment of difference.

If people can’t comprehend something and it is threatening- they judge or use name calling to feel better.

At 16, I represented a world of chaos at which many could not understand. Perhaps now they will.

I have spent a long time coming to terms with my illness and what it means, finding the right treatment and medication and the right support networks around me. I have incredibly supportive friends and family.

So what does the above treatment boil down to?

Stigma.

Stigma is according to an online dictionary- ‘ A mark of disgrace associated with a particular circumstance , quality or person’

For so long, I felt this ‘mark of disgrace’ and until I was 25, although close friends and family knew about my illness, I didn’t write blogs the way I do now. This was because I wanted to hide this illness that lodged in my brain chemistry.

I don’t want to hide any more and neither should I.

In 2014, I was hospitalised and sectioned for a severe manic episode encompassing psychosis, delusions and hyperness/ disinhibition.

It was shortly after going through the most traumatic experience of my life that I realised. Life is short. I need to help others. If I can break down the stigma and help others through my writing and other work then I will.

Mental Illness must no longer be a ‘mark of disgrace’ but must be seen as a partly physical illness in the brain, deserving and worthy of good treatment and empathy from others.

This post is dedicated to those friends who asked me to write on this and all my friends for their love and support

Life is Possible: Guest Post by Megan

~ Eleanor Segall ~ Leave a comment

Megan is a blogger at http://www.themanicyears.com and writes about mental illness and bipolar disorder. She shares with us her positive outlook on life after overcoming adversity. 

I recently got asked a question that I have been asked quite a few times in my life before now. This question was asked by a distant acquaintance of mine; a person who was – until the past couple of months – previously a stranger to me.

The question was this;

“If you had the chance to go back in time, to redo any of your past choices, what would you change and why?”

I have thought about this in passing, at various points as I have progressed throughout my adult years. Usually, I shrug the question off with a   – ‘Yes, there’s probably lots of things I would change’ – without consenting to deeper reflection and proceed to let the thought slowly slip from my mind, like a shallow pool of water that gently drains through the gaps in my fingertips when I attempt to cup it in my hands, leaving its damp trace as a reminder to be embraced again at a later time.

In this occurrence, something about the flow of the conversation between me and this person, made me pause and take the time to delve deeper in to my  introspections, generating the need to deliver an open, raw and honest answer.

I looked back, escaping the present moment by retrograding through a virtual journey within my memories, my life, my youth, the relationships that I’d built and the ones that were torn down. And in that first instance; all I saw was pain.

Up until 2013, I endured a heart-wrenching and debilitating conquest to seek the right kind of help for my issues, and was finally diagnosed with Bipolar Disorder. After the herculean efforts that resulted in this conclusion, I couldn’t quite decide if I had been awarded with a victory badge, or had my autonomy snatched away from me and handed down a stigmatised label of shame.

I had always been a painfully anxious and emotional child, but my first ‘real’ symptoms began when I was 12 years old; I started suffering from psychotic breaks and harmful thoughts. As far as my fragmented memory takes me, I understand this came about as a result of my mothers illness and attempted suicide . It was an attempt for which the blame was placed on me, when I’d packed up my things and left home one day through the impact of her own mental illness. What once were just about manageable emotional waves, became uncontainable storms.

My teenage years to follow were a struggle. Inevitably withdrawing from my peers, I lost myself in my pain and in the midst of it all and I made a lot of wrong choices. By the age of 18, I had turned to risk taking and harmful behaviours in an attempt to seek some sort of alleviation and my mood swings were wildly out of control. The relationship with my mother, even with my friends, had turned in to a wreck of nothing but dysfunctional scraps. Connecting with others was a difficult task, especially when I went back to my studies. A slow withdrawal from society will eventually disconnect you completely from other people. It puts you in a glass box placed high upon the shelves of the unwanted. In those classrooms, I disappeared. I was invisible, slowly degenerating in to the ashes of battle that I had lost a long time ago.

For the last ten years of my life, I feel that I have lost and wasted my youth. Did I choose to turn my back to my own self worth, to my recovery? Did I make a comfy home in the land of unforgiveness in the attempt to punish myself? Did I regret making these – I could argue – deliberate choices?

But when I look back from this day, I find myself understanding the result and my reasoning to that fateful question. And my answer to the question is; I would not change it one bit.

In this moment, I see the value of what I have in my life now, as a result of what lead me here. I now see that I can thank myself that I did not give up on my studies, turning my hurt in to a driver to fuel my career – a notion that I did not realise at the time. I now see, that those people I distanced myself from who walked away, are those people which I’d unconsciously sifted out from the small circle of treasures I am blessed have in my life and who I call ’true’ friends. I now see, that although forever present, these scars that trace through my whole body have toughened and healed. I now see the infinite possibilities and the beauty of life within the depths of my child’s eyes, and I see a reflection of my own growth in there.

If I had not endured my past at all, would I have been in the place that I am now? Would I even dream of risking all the wealth that I have in my life in this moment in time?

I now see, that I won the battle all along. I now see, that life is possible.

On paper, I may be just an ‘unfortunate’ label of a chronic and debilitating mental health disorder, who drew the bad hand in life. But behind the diagnosis, behind the long term medication, hides an unbelievable journey that led me to this present day. And I wouldn’t change any of it for the world.

 

Monday Update: Rethink and Thank You

~ Eleanor Segall ~ Leave a comment

This is just a short update post- I just want to thank everyone who visited my blog as a result of my Rethink article and everyone who read the article and found it useful!
It is always a pleasure to write for such an important and caring charity and I love writing and partnering with Rethink.

I have also been receiving some brilliant guest posts to my inbox which will start going up soon.

Thank you for making the Be Ur Own Light community the shining light that it is and is becoming.

Love from a cold, grey London but with warmth 🙂

Surviving Depression and Suicidal thoughts: a blog for Rethink Mental Illness

~ Eleanor Segall ~ Leave a comment

beyourownlight
https://www.rethink.org/news-views/2016/12/surviving-depression-and-suicidal-thoughts

Thank you to Rethink for publishing my blog under a pseudonym, for the graphic and sharing my story of hope over adversity.

Rose is the blogger behind Be Your Own Light blog, which provides great articles about living with mental illness, from both herself and guest bloggers. Below she talks to us about how she has dealt with depression and suicidal thoughts. 

When I was 15 years old, I experienced my first depressive episode. I felt unable to leave the house or see friends as the depression brought about an increase in anxiety . My parents looked after me as best they could and I was taken to see an adolescent psychiatrist who put me on anti depressants coupled with therapy. I gradually got better again with time and managed to do well in my exams.

I was eventually hospitalised voluntarily after more periods of illness and at 16 years old, diagnosed with bipolar affective disorder. Understandably, the diagnosis changed my life. I am now 28 and have been taking medication since then. Not long ago, I survived a suicidal depression that I had in the winter of 2013, 6 months before I went into hospital.

At this time, It was apparent that for several years my medication was not controlling my low moods. I would get really depressed very quickly, feel overly emotional when stressed and felt like I had to hide myself away. I began sleeping too much to escape the inner turmoil and to get respite. Sleep became my balm and escape.

However, it was when I began sleeping from 9-5 pm with a quick break for food, not getting washed and dressed or answering my phone and not being able to get in to work, that the psychiatrist was called to the house to see me.

I remember crying and crying- in such pain in my mind. For me, the depression felt so chemical- I knew I needed to change my medication but I didn’t know why everything felt like ‘wading through treacle’. Why couldn’t I find the joy in life anymore, I asked myself? I just couldn’t cope with the painful negative thoughts and feelings and started thinking irrationally that I would be better off not here in the world.

These suicidal thoughts were extremely challenging to deal with.  I was so scared by them that I would tell my parents constantly how I was feeling. I wanted to get the thoughts out my head and so telling people became my salvation- I believe if I had bottled it up, I may not be here today.

Eventually, over time, my medical team worked together to put me on the right  medication- Lithium. The Lithium has changed and saved my life. My brain chemistry is stable, I no longer feel suicidal or depressed. I get up early in the morning and I want to do things with my day. This took a long time but to anyone feeling suicidal- please reach for help.

You can get better- it is your brain playing tricks on you with an illness. I want to spread a message of hope, recovery and survival- life can be dark but if you hold on there is hope. 

Monday Afternoon Thoughts

~ Eleanor Segall ~ Leave a comment

monologue3

Its strange to think that only two months ago I was working in a completely different career. I love children but teaching brought with it what felt like endless morning panic and panic attacks so I had to give it up.

However, since giving it up I have rekindled my love for writing and blogging and working as a social media manager. I love seeing social media grow and building presence for people and I love writing and sharing my message about mental health to the world.

I am pleased I have found something so fulfilling and I feel like this is what I am meant to be doing.

So, as I look forward to the week ahead, I must also remember to work hard and rest well also. To get enough sleep, eat good food and keep my spirits up.

Thankfully I have been so much better of late too in terms of my bipolar and general health.

Have a wonderful Monday to all my followers and readers! I hope you are all well and I send you love from London.

Surviving mental illness while practising Judaism

~ Eleanor Segall ~ 4 Comments

This post is being dedicated to my friend Helen Brown who wanted to know how being an Orthodox Jewish woman works and is compatible with having a mental illness. How supportive were the Jewish community when I was ill and what does Judaism mean to me?

So:

Let me start by saying that I was born into Judaism and raised Jewish, in a Modern Orthodox, United Synagogue Household- meaning I keep Kosher, rest on the Sabbath and observe all the festivals, learn and pray when I can. I also practise ‘tzniut’- dressing modestly and endeavour to live my life with the positive values of the Torah (Old Testament) bridging modern society .  I have a great love for and appreciation of Judaism and I have found that it has kept me going through many difficult times.

Prayer in particular has had a very important resonance in my story. When I was ill in hospital with a bipolar episode two years ago, my friend brought me a tehillim prayer book- the Book of Psalms. Another friend brought me a book of strengthening hopeful quotes from Rabbi Nachman. Every day, I prayed to God to release me from my illness, to give me strength and to give me a full and complete recovery. I prayed that the Doctors and nurses would support and help me, and they did. I found freedom through my religion, even if I couldn’t always understand why this particular test was in my life. My friends also lit candles on the Sabbath with a prayer that I would get better and prayed for me.

The support from the Jewish community during this time was incredible. Rabbis visited me with warm chicken soup, cakes, wisdom, advice and prayers. Friends and family rallied round to visit and bring me food, soft toys, cards and themselves. The kindness was immense and never will be forgotten.

However, there is still a stigma against mental illness in the Jewish community, as there is in most other communities.  When I first became ill at 16, I was ridiculed my many who did not understand the meaning of a bipolar manic episode. To this day, I believe there is a woeful misunderstanding and knowledge of psychosis- delusions or hallucinations. There is also a stigma when looking for a marriage partner, if using a matchmaker. I was taught by many to keep quiet about my illness and I still do not readily give the information unless it will help someone else.

Not everyone understands medication or psychotherapy and I am on a mission to educate everyone so the stigma can fall. I am a Modern Orthodox Jewish woman.  This means I love God and want to live by His laws, whilst enjoying the modern world of theatre, books, cinema and culture too.

I believe that I was ill for a reason, whether its brain chemistry, a test or both. What I do know is that the community now is changing- there is much more support and kindness.

We only have to look at the new Jami (Jewish Association of Mental Illness) Head Room Café (a social enterprise cafe raising money for the charity) to see that. The funding and support Jami is getting and its new prominence.

There is still more to do, but we as Jews (and non Jews) have a duty to support anyone who is ill- whether its in the mind or the body.

Guest Post by Richie: Dealing with anxiety, Live Your Now

~ Eleanor Segall ~ 4 Comments

everyday
(image:weheartit.com)

I was honoured to be asked to write a piece on anxiety for this wonderful blog.  I’m Richie, and I’m a mindfulness coach – one who happens to have had anxiety for as long as I can remember.  The thing is, I didn’t always know I had it.  I’ve been researching positive psychology methods etc for many years, but I wasn’t coping so headed to see a counsellor who referred me for a course of CBT after having pointed out – Sir, you have bad anxiety.

Me?

Yes I’d had panic attacks, people would describe me as quite reactive, amongst other things – and after all these years, to discover it was my “fight or flight” mechanism going into overdrive & attaching to situations in had no business being in, well, I was not impressed to say the least! How did I miss this? I felt initially extremely put out by this, I saw myself as a “fighter” – I got on with things, my panic attacks were just “stage fright” (I was in radio/music performance etc), my OCD a quirk of creativity and all that jazz! Right?

Wrong.

This is when I began to understand more fully the stigma associated to “mental health”. A somewhat wishy-washy term to people not familiar, or plain ignorant of the facts (as I myself was), as it’s often attributed to needing to just “chill out” or, “stop being so depressed” etc. At some point in life, many people will experience bouts of some kind of mental illness – after traumas, disappointments, or for some no seeming reason at all! But then, even the most healthy people can catch a cold.  And that’s the issue. Mental Health is a physical issue, that cannot be seen, and therefore for some is like trying to see oxygen.

My advice is simple on this matter; for brevity.

Acceptance & ownership

Firstly, accept it’s a physical thing, and take ownership and understand the physical things in the mind that are taking place. This helps separate you from the thought that you ARE your anxiety/depression etc. This is simply not the case.

If you catch a cold, you don’t say you ARE your cold. CBT helped me understand the mechanics of it, and have useful approaches, but for me (and we’re all different), I find mindfulness to have been the most helpful because it teaches to not identify as “being” depression/anxiety etc. This begins a process of dissociation of identifying as “being” depressed/anxious, and instead acceptance of what it is, how it functions, learning how it feels, and gradually gaining a level of understanding and feeling of when it’s occurring – and how it can shape/affect our feelings/emotions and therefore behaviours/reactions.

Experiment with techniques

Secondly, experiment with ways that can help you day to day – of course, seek professional help, but there’s also much that you can do independently. Breathing exercises (massively effective!), reminding yourself that the depression/anxiety doesn’t make you who you are, try things like mindfulness which teach us to detach from thought.

I also personally use meditations, guided or technological, hypnosis, even things like “EFT” (emotional freedom technique – or tapping), reading positive books, listening to uplifting music, and actively managing thought processes as and when I can.  Using mindfulness to compliment allows for being more in touch then, with which techniques are being more effective for you in the moment.

Is anxiety still there? Oh yes! But the more I practice these techniques (and you will find what works for you) and indeed, share them with others, the more aware I become of “anxiety”.

Reframing

Lastly; I have also reframed my anxiety, because without that fight or flight mechanism, our species would not likely still be here! So it’s important! It’s evolved in our species to protect us – and there are times that flood of adrenaline etc is critical. We certainly would not wish to be without it, but the chances a tiger is going to jump out and eat us are hopefully not too prevalent in your neighbourhood…

My experiences prompted me to begin @LiveYourNow & @Rmindrs on Twitter where I post daily mindfulness reminders, engage, and encourage others to talk – and hopefully create a few laughs too! (Laughter releases great neuro-chemicals!)

Be forgiving of yourself, understand you’re on a journey, and when you find things that help you, share them with others. The more we speak openly, the less stigma is attached, and the more others who may be suffering in silence may feel comforted and confident to speak out and seek assistance.  I have been witness to that now multiple times, and it’s truly a wonderful thing when we accompany each other, in compassion, on our healing journeys.

Thank you for reading! I hope it brings even just one person comfort/hope.

To your greatest life,

Richie – @LiveYourNow

My Blogging Journey: An Update

~ Eleanor Segall ~ 4 Comments

All has been so busy here at Be Ur Own Light of late that I havn’t often had time to sit down and just breathe and be. I started this blog back in March time as a personal journal and a way for me to speak to friends and family about my struggles with bipolar and anxiety.

Since then, it has been read on almost every continent excluding the Poles (thank you), gained a larger following here on WordPress and on social media and led me to collaborate with a variety of mental health writers and bloggers, campaigners, charities and  health campaigns.

From there, I have also started blogging for the Huffington Post Lifestyle under my real name and am hoping to collaborate with many others. My dream would be to have a feature in Glamour UK Magazine, Stella Magazine or Grazia. I hope that by putting it out to the universe that this will happen!

I would also like to write my own Mental health book and memoir and become a published author and raise more money for charities.

Thank you so much for reading and being a part of my writing journey. Thank you for your likes, follows, comments, guest posts and Tweets/ Insta messages. Thank you for reading from your corner of the world.

I hope to make Be Ur Own Light a big magazine style blog, reaching as many people as possible. For now though, I am humbled by the love and support I have received so far. If you want to collaborate with me just email beurownlight@gmail.com or Tweet me. 

With gratitude and love x

Guest Post: How Deepdene Care helps support people with psychosis.

~ Eleanor Segall ~ Leave a comment

by Rhona Mackenzie, Clinical Director, Deepdene Care

For more please clink link above or see http://www.deepdenecare.org.uk/

Be Ur Own Light is happy to partner with Deepdene Care,a health provider in the UK


At Deepdene  we support people with severe mental health issues such as psychosis.

 

As mental health problems are often complex and involve an array of factors, the best course of action for any case is structured, multi-faceted approach that is rolled out over months and possibly years with the primary objective of reducing the impact of the condition on an individual’s life.

 

As a service provider we have to look at the bigger picture:

 

Staff have a deeper understanding

A high level of staff training is an intrinsic part of any treatment and care plan.

 

We train staff to understand and increase their knowledge of all mental health conditions. In the case of psychosis, they are taught to be aware of what hallucinations and delusions are, so that they can act in a proper, effective manner, and are also taught how brain chemicals can affect people. This gives them an educated insight, which not only helps with treatment, but allows them to understand what an individual is going through, ensuring empathetic responses.

 

In addition, staff have to have an understanding of the side effects of medication. So, again, they are properly equipped to be able to help the service users and approach them with understanding.

 

Therapies and activities

Therapies and activities are also a key factor in the recovery process, especially occupational therapies, where service users are able to fill their time with meaningful activities. This helps individuals gain routine in their lives, bringing a sense of direction back into what they do and acting as a representation of everyday life.

 

Getting to know the person and their symptoms 

It is essential that anyone with psychosis under our care is supported and treated as an individual, as each case is completely different from another and symptoms can vary quite dramatically. This is why we place a great deal of focus on listening to patients, observing their behaviours and supporting them in every way possible.

 

We also promote therapeutic relationships between staff and service users, with the central goal being to build trust and respect among them.

 

Destigmatising mental illness

As a mental health provider, we have to advocate and educate people to destigmatise mental illnesses and accept the person the way they are – promoting empathy among team members and throughout the service as a whole.

 

If a person has had a mental illness they are usually more understanding and empathetic towards another mental health sufferer. If a service user/person is being discriminated against, we may need to support them on how to deal with that.

 

Outside support

We also support those with psychosis through outside professionals like psychologists.

 

But, and we can’t stress this enough, none of our work would be effective, if we don’t support, respect and accept the individual for the way they are.

 

Mental Health Recovery

Our ultimate goal is to have individuals be responsible for their own behaviours, which is why we look to educate them to self-support their own physical, emotional and social needs, while we are on hand to offer support when necessary. Almost like a safety net to cushion any falls individuals may have on their personal journey to recovery.

 

It’s important to dispose of any one-size-fits-all solution. This is about treating the person as an individual, accepting their illness as part of their individuality while at the same time seeing them as a whole person and not just defining them by their mental health condition.

 

Self-belief is a huge part of the recovery process and we’re able to help individuals develop their esteem, empowering them by educating them on relationships, finance, occupation, choices, diet, exercise and lifestyle. Placing control back into their own hands through guidance and advice.

 

It’s important to understand individuals so that we know when they are at their best, at which point we can work with them to develop crisis and relapse plans and find out exactly how they’d like to be treated. Essentially it’s a two-way street, and we place a great deal of importance on working with individuals to find the best path.

 

 

A Journey through Psychosis.

~ Eleanor Segall ~ 4 Comments

.

Trigger warning: discussion of psychosis and acute mental health. 

Psychosis is something that I have experienced but havn’t ever fully written about as it can be quite a confusing, painful and scary subject

However,  today I had some time to write a blog about it and thought I would share my experiences to educate others and raise awareness.

What is psychosis?

Psychosis takes many forms- its when your brain goes into a heightened  psychotic state- meaning you could start believing things that aren’t real (delusions), hearing voices or seeing hallucinations, talking to yourself, being convinced you are in grave danger- about to be attacked or killed for example (linked to delusional beliefs). Along side psychosis you may also get what is known as ‘grandiose’ beliefs. This means that you believe you can do absolutely anything or that you have super powers/ can run the world/are a religious saviour, for example.

What is important to note is that every human with psychosis is an individual with unique brain chemistry and so not everyone will present in the same way or have the same symptoms. Furthermore, you may be diagnosed with an illness such as bipolar affective disorder, schizophrenia or schizoaffective disorder which can trigger your unique symptoms or alternatively, psychosis can be brought on by drug use such as ‘skunk’ (a potent form of cannabis) or other hard drugs.

How can we treat psychosis?

Its likely that if your  symptoms are really bad you will be encouraged to  go into hospital so you can be treated under a psychiatrist and given anti psychotic medications. These medications (some older and some new drugs) work to stop the heightened thoughts, delusions, voices etc….. and slowly bring you down from the psychotic state.

This is even more important if psychosis was brought about by drug use, to be in an environment where you cannot take drugs. Furthermore, If you have a diagnosed illness or a suspected illness, the care you will receive in hospital by mental health nurses and psychiatric team is generally good and you will be monitored and watched.

I experienced bad psychosis in 2014 during a bipolar manic episode. While I never heard voices or saw hallucinations, I had very bad delusions about the world and was extremely fearful. I thought that I had been kidnapped and was being watched in hospital by a gang (including the nurses). This eased over time as I was given Haloperidol and tranquilisers to slowly bring me down over a few months by a medical team. Thankfully the medication expertly worked on my brain and I was monitored carefully.

I have written this to say- you can survive psychosis and go back to a relatively normal life. Everyone is an individual so this isn’t the same for everyone, especially if you have addictions. For me though as someone with bipolar disorder controlled on medication, I have been able to get back to a happier and normal, stable life.