Looking to the Future and Life Dreams: by Eleanor

 

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(image: 123RF.com)

Hi friends,

It has been a while since I have written a personal blog as there has been so much going on here that I was just focusing on getting through it all. Robs dad had surgery to remove a second brain tumour and is thankfully recovering well, the surgeon amazingly got all the cancer. Success.

Alongside this, I have been in therapy since November with a wonderful therapist and we are doing EMDR (Eye Movement Desensitisation and Reprocessing therapy). This therapy helps to process trauma that can get ‘stuck’ in the brain if not processed. That trauma can stem from childhood upwards- I was an anxious child from an early age even though I had a good childhood! I have also been through a lot due to my bipolar episodes and hospitalisations. So, I am working with my therapist to process memories and we are doing it slowly.

My therapist will either ‘tap’ on the side of my legs while I recall the memory to help process it or my eyes will follow a light or her finger as we process. Understandably, there has to be a lot of trust in this type of relationship as well as me being protected and not triggered by the therapy. For this, we have developed a ‘safe place’ memory that I go to when we bring up anything too distressing. We have just started to go deeper with this and I will update you with our progress. I am far less anxious than I was and it has been really helpful to build a positive, working relationship with my therapist.

The reason I started therapy was because I was having intense panic attacks and finding it difficult to manage my life due to it. I hope that by working on these triggers that I can react differently and live a healthier and better life. Stay tuned!

A month or so ago, I also went to see my psychiatrist for the first time in 2 years, mainly as I had worries about my weight and physical health. My medications means I have put on a substantial amount of weight and this is worrying me health wise more than anything. I have been advised to diet and exercise and maybe work with a nutritionist. So, this will also be a new journey and I will try my best with this, not easy as the meds may stop me losing weight due to slowing metabolism or encouraging cravings. We considered reducing my Quetaipine, a mood stabiliser and anti psychotic to help but because I have been more mentally stable, I have decided to keep it at the same dose for now.

Rob and I have also started to look at new homes, which has been good. There is a lot happening right now and important that I rest, look after myself and keep calm.

Life with bipolar disorder can be uncertain. I have some fears about the future, which I will talk about in another more detailed post. My medicines thankfully keep me mentally well, but coming off them for future life changes eg pregnancy could be a big risk for me and one I am not sure I should take due to being bipolar 1 (risk of mania and psychosis). This is not currently imminent, but is still a future fear, especially as I love children. A decision for a later date.

Overall though I am hopeful and excited about life and will keep you all updated with my therapy and health journey and news.

Thanks for reading and following Be Ur Own Light as we come up to our 4th anniversary,

With love,

Eleanor x

 

 

Living with an Eating Disorder: Guest blog by Sofie

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(image: Pinterest)

This is a first person, brave and honest account by Sofie of her feelings about her eating disorder, which are her personal views. Trigger warning: please be careful as this discusses eating disorders and real emotions around them. We promote healing and recovery, where possible. So here’s Sofie….

    

I miss it every day! My first thought as I wake up in the morning and my last before I drift off for the night. It is a visceral longing. That’s the burden of an eating disorder. It’s an imposter that invites itself into your life and fulfills a need. It seemingly bestows upon you new abilities and strips you of weaknesses. However, with every freedom that it grants, there is a toll to pay.

My story doesn’t begin with a girl unhappy with her body, not many eating disorder stories do. My story starts with a girl lost within her own life. A girl who longed to feel she had a purpose and a direction — a child who yearned to feel an ounce of control. Anorexia gave me that control.

It gave me the power to defy human nature. It gave me a harsh look that proved I was oozing with discipline. Each bone like a spear warding off feelings and disappointments. I was never clueless as to why I starved myself. I never thought I was on a diet gone wrong. I wept many tears over the fact that my death-defying mission for control had made me so susceptible to vanity and left me a slave to the numbers on a scale, but how else was I to measure my discipline?

I miss it every day! I forget the aches, the pains, the fights, the hopelessness. I long for the feeling of achievement and forget the complete and utter sense of THIS IS NOT ENOUGH. STILL, I AM NOT ENOUGH. I long to go back almost every moment. To flee the life I have, to rewind and go back. For me, disappointment is much harder to face without the false comfort of the hunger, without the excuse of the failing body and protective blanket of a hazy mind.

So am I in recovery? I don’t know. I feel a sense of helplessness in my recovery like I have been dragged here by circumstance, and for now, my situation doesn’t sit comfortably with me. However, I know what I have to tell myself when it stings that my body no longer hurts: I can’t be a nice person while starving. I replay in my mind countless occasions where I behaved more like an animal than a human. I so desired to be successful, but I never wished to be a monster.

So, for now, this realisation is the guard I wear against the intrusive longing. It isn’t a bulletproof armour. The thoughts still wound, but for now, I am still standing, and I don’t need to judge the situation further than that.

And so, the greatest gift any therapy has given me is the clarity to place my love of others above my hatred of myself.

I can live a healthier life as a gift to those I love, who don’t deserve to be tortured by my demons. I must try and look after myself for my family and friends.

 

This blog was written by guest blogger Sofie, to discuss the truth around living with an eating disorder. If you are worried someone you love has an eating disorder, you can contact charities including Beat and speak to a GP or psychiatrist.

Talking for the Jami Mental Health Awareness Shabbat 2020 by Eleanor

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As some of you will be aware, back in 2017-2018, I helped as a volunteer with fellow volunteers (Lisa Coffman and others) to found the Mental Health Awareness Shabbat (Jewish sabbath) in our communities across the country here in the UK. The initiative, led by the mental health charity Jami and conceived by Rabbi Daniel Epstein, now runs in 150 Jewish communities.

This year, my dad Mike and I were delighted to be asked to share our father and daughter journey with bipolar disorder to Chigwell and Hainault Synagogue.

I have social anxiety- which includes at times a fear of public speaking. In December, I had a breakthrough, where I spoke for a short time at a conference called Limmud alongside my Dad and read from my book Bring me to Light. So, when we were asked to do this talk at Chigwell, I felt it could be possible.

I armed myself with the fact that I knew kind people in the community including the Rabbi and his wife and friends of my husband Rob (its the community he grew up in). I also wanted to share my story to help other people.

So, we stayed with a lovely lady in the community and had friday night dinner with the Rabbi and his family. On Saturday morning, I woke up feeling a little nervous but took my trusted anxiety medication for when I need it- Propranolol, and walked to the synagogue with Dad.

I managed not to have a panic attack and the thought of speaking to help others got me through (as did distraction, deep breathing and drinking a glass of water).

So, at the end of the service, we were called up to speak. Dad went first and talked about his journey with bipolar disorder from when it started for him in 1991 to finding recovery. Then, it was my turn.

I stood up there in the pulpit speaking to a packed audience with a prepared speech. I felt scared but also empowered and began to relax into the talk. I knew that by sharing what happened to me, being sectioned and so ill and talking openly, that I could break stigma and touch others. I was also so proud of my Dad for speaking so openly.

It was only after, when talking to people after the service, that we realised that about 150 people came to listen to our talk! We had some important conversations with people after our talk including someone very newly diagnosed and someone else whose niece had bipolar and is currently very ill.

I couldn’t and still can’t believe I was able to do that. However, since I have been very tired so trying to de-stress and rest as much as I can!

We just want to thank everyone who came to hear our talk and supported us, to every person who thanked us for coming and shared their stories with us. We are so grateful for such a positive reception and thank Rabbi Davis and the Chigwell community for having us.

The Mental Health Awareness Shabbat has had events in communities all across the country. It runs yearly and you can find out more here 

Taking care of your child’s mental health: Guest blog by Chloe Walker

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(image: Power of Positivity)

Mental health is extremely important and has a significant impact on a person’s overall health and wellbeing. According to a recent survey by the NHS, one in eight 5 to 19 year olds had at least one mental disorder when assessed. As a parent, you play a crucial role in your child’s mental health. Fortunately, you can help improve your child’s mental health by creating a supportive family environment at home and learning the early warning signs of common mental health disorders, for example. With this in mind, here are some top ways to care for your child’s mental health. 

Develop a good bedtime routine 

Sleep plays a vital role in a child’s mental health. Research shows that there is a strong link between sleep problems and an increased risk of developing certain mental illnesses. In fact, one study found that four-year olds with sleep disorders have a much higher risk of developing symptoms of mental health conditions as six-year olds, when compared with children without sleep problems. Experts at Little Lucy Willow add – “Sleep keeps you calm, your mind alert, and recharges your body to enable you to get up and face each day.” For that reason, you must try and get your child into a good bedtime routine from a young age. Here are some top tips to help your child sleep better:

  • Create an ideal sleeping space by providing a comfortable bed, installing blackout curtains, and minimising any outdoor noise. 
  • Encourage your child not to use electronics like smartphones before bed. 
  • Get your child into a consistent routine where they go to sleep and wake up at the same time each day. Try to keep this the same on school days and weekends. 
  • Make sure that your child avoids any caffeine in the afternoon or evenings. 
  • Visit your GP if your child has been experiencing sleep problems for more than two weeks, or if the symptoms are interfering with their daily life. 

Exercise as a family 

Exercise plays an important role in a child’s overall health. Along with the physical benefits, regular exercise can greatly improve mental wellbeing. This is because physical activity releases endorphins in the brain which creates feelings of happiness and alleviates stress and anxiety. According to advice on the NHS website, children should get at least 60 minutes of moderate intensity exercise every day.

To give you an idea, examples of moderate intensity exercise include walking to school, riding a bicycle, and playground activities. Exercising as a family is an excellent way to encourage your child to be active. It also allows you to spend quality time together as a family and build closer bonds. Playing games in the garden, going for a walk in the park, or going on a bike ride, are all fun ways to exercise together as a family. You could also encourage your child to start playing a team sport they’re interested in, such as football, rugby, or hockey. 

Encourage open communication

You must create a welcoming family environment that is built around trust and understanding. This will help your child feel comfortable telling you about any issues surrounding their mental health. Encourage open communication in your family and make sure you check on your child if you notice any changes in their behaviour i.e. they become distant or their eating habits change.

Remember that children tell people how they are feeling in several ways, not always verbally. A sudden change in behaviour may signal that your child is struggling and needs support. Always listen to your child and empathise with their feelings. Let them know that it’s natural to feel down from time to time and offer support in any way you can.

If you’re still worried about your child’s mental health, then speak with your GP or contact a mental health specialist for further advice. 

Final thoughts 

Mental health illnesses in children are becoming increasingly common and can lead to several serious long-term effects. Fortunately, there are plenty of ways for you to care for your child’s mental health. Encouraging healthy habits is a simple yet effective way to improve your child’s mental well-being. This should include exercising regularly, getting enough quality sleep, and following a nutritious diet. Along with this, you should also educate yourself on the symptoms of common mental health conditions in children and create a warm, trusting home environment that encourages open communication. Speak to a medical professional if you need to.

This guest blog was written by professional writer Chloe Walker.

 

Why I wrote my book, ‘Bring me to Light: Embracing my Bipolar and Social Anxiety’ by Eleanor

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(image: Trigger Publishing)

This blog has been a long time coming. I have been so busy promoting my book on social media and in the press that I havn’t actually sat here and told you WHY I decided to write this book. So, here goes.

Firstly, can I just express so much gratitude to this here WordPress blog because without it, I would not have got commissioned at Metro.co.uk (thank you Yvette) or for other places online. This blog gave me the confidence to write and to expand my writing’s reach and for that I will be forever grateful.

In 2013/ early 2014, I sat on the couch, crying and living with a suicidal depression. My bipolar was unstable and all over the place- I felt so low and like there was no way out. However, as I sat and cried- a friend of mine’s face peered up from the newspaper. He was looking for the man that saved him from suicide and was launching a campaign called Find Mike to find him. That man was Jonny Benjamin (who now has an MBE). I had known Jonny for many years as a teenager through friends, but he became my inspiration and my hope that I too could do good things despite having mental illness. He very kindly has provided an endorsement too for my book- thank you Jonny!

With the help of my psychiatrist, I recovered temporarily from the depression but then spun very fast into mania and psychosis (possible due to a large dose of anti depressant). I was sectioned and in hospital for 4 months as an inpatient and a further 4 as an outpatient.

Throughout this time, I could not think about writing because my mind wasn’t stable enough. But as I pieced my life back together, started taking a new mood stabiliser to help control the bipolar episodes and started to recover slowly, I found the power of blogging about my social anxiety due to trauma of the bipolar, to be so helpful. I found that others would share their stories and would reach out to me about their mental health too.

Although life is not perfect and I am still living with an anxiety disorder, I have found a way to write and speak about mental illness. I was diagnosed with bipolar at 16 and there was a lot of shame for me about it back then in 2004. These days, I tell my story for other scared 16 year olds newly diagnosed but also to break down barriers and stigma against mental illness. To explain you can have bipolar or be sectioned or have psychosis but you can recover and you don’t need to spend life in hospital forever. To explain that while this cruel illness runs in families, that with the right healthcare, staying more stable is possible.

I started writing my book with Trigger Publishing because they believed in my story when I sent them my proposal. They are part of the mental health charity the Shaw Mind Foundation and royalties go towards the charity as well as some to me.

I hope that when you read my story, you won’t see it as a despairing ramble- but rather a story of hope, of life, of light triumphing over the darkness- but the darkness making the good times shine brighter. I also bring my bipolar to light, I share it with the world- as scary as this is, so that others can also tell theirs.

I wrote this book too provide a place to talk, start conversation and help heal myself through writing it but sharing that feeling of hope with others too. The book cannot change things that are so needed like urgent mental health funding of the NHS so we have parity of esteem. Yet, i hope it is a starting point about how important mental health treatment is for people to move forward in their lives.

Bring me to Light is out on 5th November 2019 in the UK and is available worldwide. It will be out in the USA in 2020. It can be purchased on Amazon, in book shops and at triggerpublishing.com

I will be sharing press articles and more about the book as it happens, but I hope this blog explains why I wrote my book. Thank you all for your ongoing love and see some of you at the book launch!

Love,

Eleanor x

 

Dear NHS: The Search for EMDR Therapy by Eleanor

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(image: Freepik)

Today I am writing because I have had enough with the NHS mental health services.  Firstly, I was told that in my area of London, the NHS- national health service doesn’t fund EMDR (rapid eye movement processing therapy- for trauma and PTSD). Why, I have no idea as it is desperately needed. However, I was referred to IAPT wellbeing service (still under NHS), who do have EMDR therapists. Some telephone questionnaires later and I have found that I have been discharged from IAPT – to another team that doesn’t provide the therapy I so dearly need.

I have had years of therapy- CBT x3 and psychodynamic- most had to be privately funded due to the waiting lists in NHS. I need vital treatment for the trauma I faced of becoming so unwell,being in hospital and all I faced during mania and psychosis. My trauma comes out in anxiety and panic attacks which disrupt my daily living. EMDR helps process trauma and I am hoping it will help me to live fully again.

Due to this, the only option with therapy may be to go privately- which is expensive and not ideal for me- I can’t afford it alone. However, I have found an accredited therapist online so this will have to be the route I go down I think. I will speak to the psychiatrist in the other team but don’t hold out any hope as they don’t fund EMDR and there is a 2 year psychology waiting list. Yup, you heard that correctly, 2 years.

I am not doing so well- I have been feeling lower in the mornings and more anxious since having to leave my job. This was another blow today.

Yet….

I am trying to keep myself positive and focused and going. But some days, I just feel like hiding away.

Some positives- I am grateful for:

  1. My new bright pink cardigan is making me smile
  2. Our wedding photos and video come back today
  3. Finding a therapist
  4. Bipolar UK sharing about my book
  5. Love and support from others
  6. Job interviews and book promotion

When people say fund our NHS mental health services, they mean it. People like me are denied access to vital support and put on waiting lists or fobbed off. Its not OK.

Eleanor x

 

Looking to the future: Life and Positivity by Eleanor

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(image: Pinterest)

‘The only thing constant in the world is change‘- India Arie

In the past few weeks, it hasn’t been the easiest of times. My anxiety has come back on some days, leaving me feeling pretty low and unable to do certain tasks. However, as each day passes it is slowly improving and I am looking towards the future, both in my life and career.

I am making the transition again to being self employed. For me, this is difficult to blog about- but as we look towards the Jewish New Year, I am holding on to hope.

Hope that all will improve.

Hope that good things are on their way.

Hope that the light is coming back again.

My book will be published in just over a month’s time and I am so excited to hold the paperback in my hands! Thank you everyone who pre ordered the book and made it into a best seller.

I am grateful for every blessing that has come my way. I also have more writing projects planned, stay tuned for further details :). I know it all will lead to good in the end.

I’m currently looking into therapy and further support- EMDR therapy if possible, which helps to process trauma through rapid eye movements and images.

Everything will work out for the good, just some days it is hard to see. A note to self: keep positive and keep going. Good, happiness and dreams are on it’s way even if temporarily hidden.

 

An Increase in Anxiety: Panic attacks and Therapy thoughts.

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(image: Your Tango)

Hi friends,

It has been a while since I’ve shared a personal blog and I want to be as honest as possible.

It has been a whirlwind of a time- I got married to my wonderful husband in July- we really had the best day, I have been editing and finishing writing my book Bring me to Light and I also started a new job at a charity in May- which has meant I have been blogging less. I love my new job however I am much busier!

This has meant an increase in my anxiety levels and panic attacks in the mornings at times, related to social anxiety. I worry about the day ahead and sometimes don’t feel able to leave home. I have been trying to combat this but its been really hard and is still ongoing for me.

I have had a lot of CBT and talking therapies but believe my anxiety to be trauma based re what happened to me 5 years ago, being sectioned and in hospital. As such, I would like to have EMDR therapy, a type of therapy that helps to process trauma through focusing on images and rapid eye movement. It is hard to describe but I believe this is what I need in order to keep my anxiety disorder under control- and get rid of most of it.

In the mean time I have been leaning on my support network and have been prescribed beta blockers for when the anxiety is at its highest. I have also been referred back to psychiatry in order to get a referral for EMDR.

Except…. my NHS borough don’t fund EMDR therapy so the only route in is via a service called IAPT. It may be that I have to go privately if the NHS standard of therapy is not good enough but there we are. There is still a 2 year waiting list to even have an assessment for therapy, but via IAPT it is quicker, so I hope I can get some form of help for me. The funding for mental health in the UK is atrocious and I hope this will improve….

Having the support of my parents, Rob and family has been hugely helpful to me and my new amazing colleagues who believe in me and have been very supportive.

But, it has been exhausting.

Panic attacks make me want to sleep, blank out and sometimes you can’t do that. You have to face the day and fight. That’s where the beta blocker meds come in for me right now as they calm the body down when you need to show up to something (deep breathing doesn’t do it for me). Usually, I feel better once I don’t react to the anxiety negatively and try to dig deep and push through, but its not easy.

This week, we are going on honeymoon in Italy and I am looking forward to a relaxed, sunshiney break by and in the pool, beach and spa with Rob and eating lots of delicious Italian food. A break is desperately needed and I hope I won’t have any panic attacks on holiday, but have a restful time!

Here’s hoping I will find something that will help ease the panic. I have tried so many things for so many years and it’s still here.

Eleanor x

 

Mental Health Awareness Week: The Mental Health Foundation: Body Image 13th-19th May 2019

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(image: Mental Health Foundation)

This week, starting today is the Mental Health Awareness Week by the UK charity the Mental Health Foundation. Its theme is looking at Body Image, how we think and feel about our bodies.

Mental Health Foundation say ‘Body Image can affect us all at any age- during this week we are publishing new research and campaigning for change’    .

They continued,

Last year we found that 30% of all adults have felt so stressed by body image and appearance that they felt overwhelmed or unable to cope. That’s almost 1 in every 3 people.

Body image issues can affect all of us at any age and directly impact our mental health.

However there is still a lack of much-needed research and understanding around this.

As part of Mental Health Awareness Week:

  • We will be publishing the results of a UK-wide survey on body image and mental health.
  • We will look at body image issues across a lifetime – including how it affects children and young people, adults and people in later life.
  • We will also highlight how people can experience body image issues differently, including people of different ages, genders, ethnicities and sexualities.
  • We will use our research to continue campaigning for positive change and publish practical tools to help improve the nation’s relationship with their bodies.’
  • The good news is that we can tackle body image through what children are taught in schools, by the way we talk about our bodies on a daily basis and through policy change by governments across the UK.’

For more on how you can get involved see : https://www.mentalhealth.org.uk/campaigns/mental-health-awareness-week

 

World Bipolar Day is Tomorrow!

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Tomorrow, join in and learn what you can about bipolar disorder.

As many of you know, I have bipolar 1 disorder and when not on medication, have episodes of high mood- mania/ psychosis and low mood- severe depression. Thankfully I am in recovery but it affects so many people and is thought to run in families.

Remember you are not alone.

Bipolar UK-  https://www.bipolaruk.org/

Bipolar in USA: http://www.mentalhealthamerica.net/conditions/bipolar-disorder