Category: schizoaffective disorder

Befriending My Brain: A Psychosis Story. Exciting New Book by James Lindsay and Cherish Editions

~ Eleanor Segall ~ 3 Comments

(image: James Lindsay/Cherish Editions)

I first ‘met’ my Twitter friend James Lindsay online when he was first starting to talk about his schizoaffective disorder and psychosis. James also works for Mind doing important work in the mental health sphere and we both live locally to one another. I am really proud of James’s determination, not only in his own life, but to help others through his writing and his new book ‘Befriending My Brain’ with Cherish Editions (Trigger Publishing).

An eye-opening memoir about a young man’s descent into schizoaffective disorder– and the steps he took to regain control of his life.


It’s no secret that, in recent years, mental health has become a major topic of conversation. But just because many people feel comfortable discussing their depression, anxiety or other mental health conditions, doesn’t mean that we have removed all stigma from such diagnoses. This is especially true when it comes to psychotic disorders, which affect less than 1 in 100 people in the UK each year (Mind), thus leaving these disorders shrouded in mystery. It doesn’t help that what the media portrays as schizophrenia or psychosis is not always what the sufferer experiences in real life.


As such, it’s vital that we start to bring psychotic disorders, including psychosis, to the forefront. According to a 2016 report from Public Health England, “psychosis is one of the most life-impacting conditions in healthcare.” But with the proper treatment and understanding, it doesn’t have to be life-altering. The same report states that the sooner someone
is treated for their psychosis, the better the chances that they will recover and return to their normal
lives.


James Lindsay has experienced the ups and downs of schizoaffective disorder first-hand, and his book does the vital work of removing some of the mystery surrounding such a diagnosis. It includes the red flags he recognises in hindsight after psychosis landed him in hospital for the better part of a month, but it also retells the inspiring journey he took to recovery in all aspects of his life.

In his case, psychosis and his path to better mental health gave him a new passion in life: helping others through their own diagnoses and getting their lives back, just as he did. No matter where readers are on their journeys, James’ memoir will resonate and remind them, as he puts it, that “recovery is always possible, and hope is never far away.”

(image: Trigger Publishing/ Cherish Editions/James Lindsay)

I can’t wait to read it and review it too!

You can buy a copy of Befriending My Brain: A Psychosis Story by James Lindsay at Amazon, Trigger, Waterstones, WH Smith and all good bookshops.

MORE ABOUT THE AUTHOR
Hailing from Watford, Hertfordshire, James Lindsay works for Hertfordshire Mind Network and uses his free time to advocate for mental health care by blogging and appearing on podcasts and TV. James enjoys playing football, going to the cinema, spending time with friends and family, and exploring new places, with his partner, Holly. Befriending My Brain is his first book.


Learning to Accept and Embrace Having Schizoaffective Disorder This Mental Health Awareness Week by James Lindsay

~ Eleanor Segall ~ 6 Comments
(image: Mental Health Foundation)

I do often wonder how long I had schizoaffective disorder before my diagnosis, but I guess I will never know. Back in 2016, I had my first experience of displaying symptoms of Schizophrenia (such as delusions), when I suffered from my first psychotic episode.

Before that, I had not really heard of any of these medical terms. I used to wrongly associate schizophrenic people with characters from the film ‘One Flew Over the Cuckoo’s Nest’. I thought they were lost causes who needed constant care, I didn’t think they could be functioning members of society like everyone else, and I feel bad that I used to think that. But I had a lack of education and personal experience.

In late 2019, I suffered from a relapse and had another experience with psychosis (which can be defined as losing touch with reality with delusions and/or hallucinations).. In early 2020 I was finally diagnosed with Schizoaffective Disorder. For those who are unsure, this condition is where symptoms of both psychotic and mood disorders are present together during one episode. ‘Schizo‘ refers to psychotic symptoms and ‘affective’ refers to mood symptoms. It is often described as a cross between Bipolar Disorder and Schizophrenia, as it includes symptoms from both of those conditions.

For me, it is currently something I am able to keep at bay, mainly thanks to my medication but also through being self-aware and looking after my mental wellbeing. I take Quetiapine (200mg slow release) every single day and I am more than happy with that. I have my tablet in the evening, which then helps me fall asleep without much struggle.

Without my meds, I can tell you now that I would be in all sorts of trouble. Every now and then I might forget to take it until just before bed, which means I need much longer to fall asleep because it takes a couple of hours to kick in.

That is ok though, as long as it’s not every night. But I know for a fact that without the medication, I am much more likely to start having delusions (irrational thoughts) and have an episode. Both my 2016 and 2019 episodes happened because my sleep was terrible and at times non-existent. I used to take sleep for granted, which is easy for anyone to do, but if you don’t let the brain repair itself it can lead to all sorts of problems. Just remember that psychosis can happen to absolutely anyone, I would not wish it on my worst enemy.

I am learning new things about my Schizoaffective Disorder all the time. I have joined a few Facebook groups which are supportive communities full of people with (or supporting those with) the same condition, such as this one which has nearly 18k members. For example I discovered through this group that some people who take meds before dinner (e.g. 4/5pm), find themselves waking up around 3am when they’ve worn off. They realised taking them an hour or so after dinner can give them a better sleep.

I have read books by authors with mental illness and they really help normalise it and give me peace of mind. I recently read ‘The Stranger on the Bridge’ by Jonny Benjamin (who is also Schizoaffective) and this gave me so much comfort. When you read a story that has parallels to yours, it gives you so much more hope and confidence that you can overcome your own adversities. Podcasts are a great source of help too and there are plenty out there that cover all kinds of mental illnesses.

I am also fortunate that my job gives me more opportunities to enhance my understanding of the disorder. I am proud to work for Hertfordshire Mind Network (my local mental health charity) as Fundraising & Marketing Officer, who are really supportive and always ask if there is anything they can do to help with my condition. I would advise anyone with mental illness to make your employer aware, because that’s the first step to them being able to support you and make any adjustments you might need.

I think ever since I changed my attitude to being schizoaffective, I have been able to befriend it and realise it’s not my enemy, but part of who I am. I used to feel embarrassed and was maybe even in denial at first. When I had the shame, I was never in the right mindset to go out and learn what this illness actually is, what is it doing to me, what should I look out for, what are my triggers/warning signs, what help can I get from other people.

The reality is – millions of people are schizoaffective and they are some of the best people you can encounter. They are incredible for living through it every day and I am proud to be one of them.

I hope you found my post useful and big thank you to the wonderful Eleanor Segall for the opportunity to contribute to her fantastic blog! If you’d like to connect over mental health you can find me here –

(image: James Lindsay)

@JamesLindsay23– Twitter