Letter to my MP: On Mental Health and Talking Therapy Waiting Lists

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(image: Imperial College)

I have just responded to a letter that my MP replied to me today. The other day I wrote to my MP here in London about the Mental Health Units (Use of Force) Bill which aims to stop dangerous restraint in mental health hospitals. This was a campaign through the charity Rethink Mental Illness.

I was sadly less than impressed with the response I received even though it was quick, my MP quoted a lot of figures at me. Now, one of these figures, ‘750,000 more people accessing talking therapies since 2009/10’ really got to me. In 2015, I had a short course of NHS cognitive behavioural therapy which was useful but didnt help my anxiety. However, since late 2015/ early 2016, I have been on the therapy waiting list for talking therapy to help me process the trauma I have been through, Almost 2 years later, I am still on the list and have had to go privately which is less than ideal as you will see in my letter below. I hope it resonates with you and that my MP will use my case study in parliament ( one can only hope):

Dear MP,

Thank you for your swift response to my letter regarding the Mental Health Units Use of Force Bill. In your letter to me, you stated ‘more people accessing mental health services every day….as well as around 750,000 more people accessing talking therapies since 2009/2010’.

As someone with Bipolar disorder who was hospitalised (and sectioned) in 2014 for 4 months, with another 4 months in day hospital due to psychosis and mania, I have been on the waiting list for talking therapy since 2015- almost 2 years ago. When I recently went to a review with my psychiatrist, he said he would speak to psychology for me but that because the service is over stretched I may have to seek therapy via local charities or go privately. Being that I am currently waiting to start work and on ESA, I couldn’t afford private therapy without help from my family and I have had to go private which is grossly unfair due to the trauma I have faced. However, as you state, more people are accessing mental health services meaning that even in someone with a case such as mine, I have had to wait for talking therapy and effectively given up on NHS support in that regard.

I hope you will use my case study as an example in parliament when discussing mental health with Theresa May and your party and would appreciate a response. 

Yours sincerely,

Eleanor Segall

New Look Site on Be Ur Own Light: a Mental Health Recovery Blog!

I wanted to make Be Ur Own Light clearer to access and easier to read aesthetically. I hope you like some of the minor changes to make it more accessible.

Welcome too to all our new followers- we are nearly at 300 on WordPress and over 3,000 on Twitter and over 2,000 on Instagram.

Be Ur Own Light is written to challenge mental health stigma and more posts will be published shortly.

Thanks,

Eleanor, founder of Be Ur Own Light

We have won the Sunshine Blogger Award!

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Thank you to Sue at http://www.myloudbipolarwhispers.com for nominating Be Ur Own Light as one of their Sunshine Bloggers! Sue wrote, ‘I believe this great group of people and their blogs bring a lot of joy and sunshine and education into the lives of many people and I also pray these lovely people have a lot of joy and sunshine in their lives every day.’

Thank you so much Sue for this beautiful accolade and for paving the way in battling stigma against bipolar disorder and mental health in general! You are a star in a dark world 🙂

So these are the rules except I can’t think of 11 people to nominate, so I will do 4!

Rules for “The Sunshine Blogger Award”

  1. Thank the blogger who nominated you and link to them.
  2. Answer the eleven questions asked.
  3. Nominate 11 other bloggers. (I am doing 4)
  4. Create 11 new and different questions for them to answer.
  5. List the rules.
  6. Include the “Sunshine Blogger Award” logo in your post somewhere

    Sue has asked me to provide answers to the following questions:

    How old are you?  29

    How old were you when you were diagnosed with mental illness, or other type of chronic and/or invisible illness or grief?  Diagnosed with bipolar affective disorder at 16, lived with anxiety disorder from 17/18

    Where do you live? London, UK

    What makes you happy? Sunshine, sunflowers, autumn leaves, chocolate, Reading books and of course my boyfriend, friends and family.

    What makes you angry: War, refugees still having to flee, terrorism and mental health stigma

    When was the last time you experienced mental illness stigma or any other type of stigma or discrimination? A few years ago when someone refused to set me up on a date with someone they knew due to my illness being disclosed.

    What is your favorite kind of candy?  Cadburys chocolate

    What is your favorite season and why? Autumn (Fall)- because its so cosy and I love fairy lights, hot chocolate, snuggling in blankets, autumn leaves etc.

    How long have you been blogging? Here on WordPress for almost 2 years and before that on Blogger and elsewhere for 2 years. I am a writer so am always blogging.

    Do you prefer a sunny or a cloudy/rainy day? Usually sunny but there is something very cosy about watching the rain from inside.

    I nominate the following because they are rays of light in the blogging world, sharing, writing and wearing their hearts on their sleeves. They sparkle in tackling mental health stigma and I am so proud to have them as Followers of my blog.

    Alexis Rose-  https://atribeuntangled.com/

    Paul McGinley- https://paulmcginleymentalhealth.wordpress.com/

    Christina at Sea of Words- https://seaofwordsx.wordpress.com/

    Happiness Hunt Blog      https://thehappinesshunt.wordpress.com

    These are the following questions they must answer:
    1) Why did you start your blog?
    2) How long have you been blogging and what is your passion?
    3) Which country are you based and what is mental health care like there?
    4) What is your favourite movie?
    5) If you could chose one actor to play you in the film of your life who would it be?
    6) What has helped you on your recovery journeys?
    7) Where would you most want to travel to?
    8) What is your favourite food?
    9) Why do you like writing?
    10) Which song makes you smile?
    11) If you could pick a spirit animal who would you pick?

    Congratulations on the award !

Monday Motivation: Update on Mental Health Life

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(image by blossom and leap via Pinterest)

Last week, I saw my new psychiatrist. He is the kindest man and so helpful. He signposted me to several private mental health services as I very much need therapy for my anxiety disorder. What was sad to see though that these services are not provided by the National Health Service NHS- they are provided by charities, as the NHS service where I live is at breaking point. This is because there are so many people needing psychological input and not enough staff and money. Ultimately it comes down to funding I think. In the past, I have had excellent NHS therapy- although it did not seem to help with the anxiety long term.   So far, I have been on the waiting list for therapy for almost 2 years and I have realised I can’t rely on the NHS for therapy, which is sad.

However, I am grateful I was able to sit down with my new consultant (and Mum) and discuss my life and where I go from here. I am looking into various options for my health and which psychotherapy can help me move forward, get back to work and feel good again.

I am trying to be as positive as I can and think about a happy future. My priority is working on myself so that I can truly thrive. Have a great Monday friends.

Living with Bipolar Disorder: my True story- for Counselling Directory Website

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Be Ur Own Light author Eleanor tells her story for Counselling Directory. 

Article: http://www.counselling-directory.org.uk/experience_236.html

I was diagnosed with bipolar affective disorder at just 16 years old. I had been admitted to hospital after a year of depressive and anxious episodes, followed by a hypomanic episode (a lesser episode of mania). People with bipolar have a mood disorder which means our moods can become extreme and oscillate between low and high.

After a year of not understanding what was happening, I finally came to accept the diagnosis. You see, bipolar runs in my family. There is evidence it can be genetic but, as I was so young, no one suspected that my depression and hypomania could be bipolar disorder. I was hospitalised as a teenager in 2004 due to a mixed state of depression and psychosis (where your mind loses touch with reality).

Luckily, with medication and support, I was able to live a fairly ‘normal’ life for several years. Despite having to go down a year at school, I made it to University and completed a Bachelors and Masters degree. I went travelling with friends to India and Ghana, regularly took my medication – mood stabilisers and antidepressants – and was supported by various psychiatrists and therapists, as well as my wonderful family and friends.

But the trauma of what I went through caused an increase in my anxiety levels and I developed social anxiety, fearing what others thought of me. I also became slightly agoraphobic and suffered from panic attacks. Bipolar is such a complex disorder and sometimes anxiety can be a part of the depressive side of the illness.

Over time, I believe that my main medication stopped working. This coupled with several life events, meant I became unwell fast. In 2013, I began to sink into a very low depressive state which led to suicidal thinking. I became very unwell, but supported by my family and upped dosages of medicine, I got better again. However, this was short lived.

In 2014, I spiralled into the worst manic episode of my life. I had racing thoughts and pressured speech, was very fearful of those around me and began to experience delusions (false beliefs about the world). I was incredibly vulnerable and unwell. Unfortunately, the episode happened very quickly and although I hadn’t been in hospital for 10 years, suddenly I found myself there, waiting to be treated.

Being in hospital this time was hard; it took a while for the psychiatry team to bring me down from the manic state. I was in hospital for four months, attending therapy groups (I loved art therapy) and working with occupational therapists, nurses and a wonderful psychiatrist who believed I would get well again.

I did get better again in time. I had a further four months of support when I left hospital, where I was put on the correct mood stabiliser for me – Lithium – which has helped keep the moods at bay. I attended day therapy sessions on anxiety management, recovery, art and social groups and I slowly came out of my shell again. I was in shock and quite traumatised at what had happened to me. However, over time and with support, I accepted it and began to recover.

Since that difficult time, I have worked for and volunteered with mental health charities and supported communal projects. I also started my blog, Be Ur Own Light, in 2016 to explain to family and friends about my mental health. It has been read worldwide and its aim is to tackle mental health stigma and share real-life stories.

I also began to write for the Huffington Post UK, Rethink Mental Illness, Time to Change and Bipolar UK, amongst others. Writing is therapy for me.

My message would be that the right medical team, coupled with support networks, psychotherapy, medication and doing things you love to do, can help you feel much better and find recovery. I, like so many with mental health issues, am still a work in progress but to reach any form of recovery is a big milestone and I will fight to remain well. You can too.

Guest post: What can the UK government do to cultivate good mental health? by Ann Heathcote at Worsley centre of Psychotherapy

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According to statistics revealed by mentalhealth.org.uk 65% of people in the UK have experienced a mental health problem in their lives at one time or another. What’s more revealing is that just a mere 13% of us say that we live with high levels of good mental health in our daily lives.

These stats suggest there is much to do to improve the state of our mental wellbeing, but to turn things around will require help from the powers that be, namely Government.

But is the UK Government doing enough to ensure that current and future societies have good mental health. And if you believe they could more, what action can be taken to fix this prevailing problem?

We reached out to some of the leading voices on mental health issues to get their opinion.

See full article at https://theworsleycentre.com/what-can-the-uk-government-do-to-cultivate-good-mental-health/

 

Ann Heathcote opened The Worsley Centre for Psychotherapy and Counselling in 2001, as a centre for the provision of professional psychotherapeutic services.

The Worsley Centre is a warm and welcoming environment for people wishing to undertake counselling and psychotherapy. The practitioners at the Centre care deeply about each individual’s mental health and well-being. They all share a passion for providing high quality therapeutic services.

Experts share strategies to stop Binge Eating. Guest post by Jasmine Burns

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Binge eating is a very serious disorder. Someone who has binge eating disorder will most likely be of normal weight, therefore making it hard to recognize if they have it by just looking at them. Signs and symptoms that you or someone you love have this disorder can include of the following:

  • Eating a lot of food in one sitting
  • Keep eating even when you are physically full
  • Dieting often without losing weight
  • Keeping food around you at all times

Binge eating can have vastly negative effects on your health and life. The impacts are not just physical but also emotional. Binge eating generates shame, guilt, anxiety and depression. These are emotional stressors that can cause your blood sugar levels to go awry.

We have sought out the expertise of professionals who share ways you can have control over this disorder. Please read through them to learn coping mechanisms.

https://www.thediabetescouncil.com/53-experts-share-life-changing-tips-strategies-stop-binge-eating/

Smiling through the rain: Early morning anxiety and life with bipolar.

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Its been almost a week or so since I have written a blog and thats because life has been hard lately. Due to my early morning panic attacks and increased anxiety about leaving the house at that time, I couldn’t get in to work. Luckily, I can do online work on home doing social media and writing, so that is one major plus point. However, currently I am seeking extra support about my morning anxiety and fears.

I have lived with my anxiety disorder for most of my life- it comes in times of stress or times when I get triggered by something I can’t always explain- having to get up early and achieve, having to show up in the morning despite feeling so quivery and vulnerable, having to feel like I can cope- when inside I feel so scared. For reasons I can’t always pinpoint.

I have tried so many therapies and I would say with me, I have to use things in combination like breathing techniques, meditation, distraction, colouring and exposure therapy. However, now I would very much like  to find a psychological therapy that works for me. I have had 3 lots of cognitive behavioural therapy, which for me doesn’t seem to take away the fear. It is helpful for understanding limiting beliefs  like ‘I’m not good enough’  or ‘ I can’t do this, I will mess up’  and then understand where these fears come from and how they impact on life.

Briefly I will explain that I believe these limiting beliefs have come about because of trauma. The trauma of being hospitalised a few years ago for my bipolar disorder and having to learn to live life and get back to normality again despite disruption. The trauma of not feeling good enough, not feeling like I can live up to my perfectionist standards- not wanting to let people in my life down or me down . Feeling like I have to really achieve and be good at everything I do, because this belief has helped me fight, fight, fight for life and everything in it.

I, like many others with mental health issues, am hard on myself. I have a little voice though that won’t be tamed and is constantly pushing me to achieve and help people, help myself, be better. This is because I know the pain of setback. I know the pain of fear. and I know the pain of being confined to a hospital ward. So when I am well- nothing will stop me. The panic attacks may stop part of my life, but they won’t stop me from telling my story and reaching others. They wont stop me from being able to live and being able to touch peoples hearts through my writing (this is what I strive for).

Right now, I am dreaming about so much and hoping to put these dreams into reality. I will get therapy and I will get better with much effort and time. I will not let this keep me down- because I, like so many with my conditions, am a fighter and I will make sure that I live life to the full.

And part of this therapy is writing on my blog and being authentic, real and honest. And being blessed and thankful for my medical team, family, boyfriend, friends and support networks. Support is everything and I am so lucky.

Thanks for reading <3.

Nobody’s Perfect: An Update on life with Anxiety

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I have put off writing for several weeks just because its so hard to make sense of everything going on in my brain, in terms of my anxiety disorder.

I have had so many good things in the past few weeks but I am also battling anxiety around work. I love my job but past events relating to employment have made me afraid subconsciously. I very much need to unpack these fears with a therapist- I have been on the therapy waiting list for a year and a half. In a few weeks, I will be seeing my new psychiatrist (roughly the 12th/13th one in 13 years due to high staff turnaround!)  and I hope that he will escalate my therapy. I desperately need help with this as I get morning panic attacks around these fears. Despite using self help methods like meditation, these fears can be all consuming and stop me from going into work.

It is incredibly difficult for me to write about this because its so personal and because I love what I do. However, I have been struggling and I hope by writing that yes, I do get panic attacks about my fears, I can also make others feel less alone.

I did get some respite from these fears and work have been very supportive of me. I was able to go with my friend for a week on holiday to Madeira, a Portugese island off the main land near North Africa. Its a beautiful island, filled with terracotta roofed houses, turquoise seas, dolphins, whales and  turtles, friendly people, bright sunshine and palm trees. We went on a boat trip and got to see some spotted dolphins and relaxed in and by our hotel swimming pools. Not to mention the love for Cristiano Ronaldo on the island, as he is from there and the airport is named after him! It was a really restful and fun trip. I wasn’t anxious all week- as it seems to get triggered by specific fears and situations.

I just hope to get back to full health again and get some extra support around the fears that are fuelling my panic.

I tend to beat myself up about having an anxiety disorder and feeling ‘incapable’ of doing certain things. I am learning self love and to be calmer and to just see my anxiety as a hurdle to be overcome. I may be a perfectionist who hates letting others down
– but I am learning, like the Jessie J song, that Nobodys Perfect. 

Guest post: 5 Tips to Survive Opiate Withdrawal by Bill Weiss

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Bill Weiss shares his knowledge about drug and opiate addiction and how to recover, talking us through the withdrawal process in a safe way. It must be done under medical supervision.

An addiction to heroin or one of the many prescription opiates, such as Vicodin or Percocet, comes with intense withdrawal symptoms. For many, the withdrawal symptoms are what drive them into an early relapse, in hopes of ending the symptoms rather than enduring them.

 The withdrawal process can be unbearable, but there are ways to make it easier. In order to prevent early relapse, let’s break down the opiate withdrawal timeline and how a person can alleviate some of those symptoms.

The Opiate Withdrawal Timeline

One thing that’s important to keep in mind is that each person’s withdrawal process will be a bit different from the other. Withdrawal symptoms fully depend on the individual, his or her habits while using, and the addict’s brain chemistry. Opiate withdrawal symptoms can range from mildly uncomfortable to severe and debilitating.

 The reason opiates cause such intense withdrawal symptoms is because of the effect they have on the user’s brain. Opiates impact the opioid receptors, which are found in the central nervous system. By targeting the opioid receptors, they adjust the brain’s response to pain while the drug is in the user’s system. This causes both physical and emotional effects, numbing the pain both physically and emotionally. Medically, this is why many doctors prescribe opiates as a pain killer.

 Unfortunately, if a person uses opiates long enough, it alters the chemistry of the brain. Eventually, the brain relies on the drug to control any amount of pain, big and small. When a person abruptly stops providing this supply of opiates to the brain, everything suddenly becomes unbearably painful as the body is no longer able to regulate pain. This sudden onset of pain signals flooding the brain is withdrawal.

 The early stage of withdrawal typically lasts for 24 to 48 hours, and it can start anywhere from a few hours to 30 hours after the last use of the drug. This can include muscle soreness, irritability, trouble sleeping, sweating, a rapid heartbeat and a lack of appetite.

 Fortunately, that earliest stages are the toughest. Later withdrawal symptoms can also be difficult, though, as cramping, shaking, nausea and vomiting may continue. The worst of these later withdrawals usually ends within a few days of sobriety, though for some may continue on for several weeks.

 Most people find that the majority of their withdrawal symptoms are gone after about a week. There may be some lingering anxiety and nausea afterwards, which can lead to a lack of appetite. Cravings for opiates, however, often last much longer.

Getting Through the Withdrawal Process

Opiate withdrawal is no picnic, but finding the right strategy to get through it can help. These are five of the best ways to get past those withdrawals for a successful detox and recovery.

1. Try Tapering

A popular method for people to stop using opiates is the taper technique. As the name suggests, it involves the person slowly tapering down the amount of opiates he uses. The benefit of this technique is that it causes less severe withdrawal symptoms than if the person simply decided to quit abruptly. However, it requires the mental discipline to keep reducing the amount of opiates used and eventually stopping use entirely.

 Just like a user will develop a tolerance for opiates and keep needing larger doses to get high, that process also works in reverse. If he can cut those doses down gradually, he’ll need less of the drug and his brain chemistry will start getting back to normal. For many, another option is to supplement the detox with Vivitrol. Vivitrol breaks the cycle of opioid addiction by lessening the symptoms of withdrawal.

2. Join a Support Group

One of the hardest parts of withdrawal is going through it alone. They can break a person down mentally and physically. A great way for the person to get support and stay on the right track is finding an addiction support group in his area.

 There are many ways that a support group can help with opiate withdrawal. Other members of the group can provide suggestions on what helped them get through the withdrawal process. Support groups also offer constructive activities, such as boosting self esteem during addiction recovery. These activities are crucial to surviving the withdrawal process and preventing relapse.

 Most importantly, being part of a group lets the person know that he is not alone in his struggle. If he has felt down on himself, a group of people who understand what he’s going through can help him maintain high self esteem.

3. Try Over-the-Counter Medications

Many of the most common symptoms of opiate withdrawal can be reduced by using popular over-the-counter medications. Tylenol and ibuprofen are two options that can help a person deal with the fevers, muscle aches, chills and sweating that come with withdrawal. Keep these medications on hand so that you can take them as needed.

4. Keep Getting Nutrients

Because of the nausea caused by opiate withdrawal, it’s often hard to eat or drink. This can make withdrawal even more difficult due to the lack of nutrients being consumed.

 Stocking up on foods that are easy to eat is a smart move before detoxing. Bananas are one option that tend to go down easy, or the person can purchase meal-replacement shakes. Multivitamins are a great choice for ensuring the person gets all the nutrients he needs even during withdrawals.

5. Set Up a Schedule in Advance

As the withdrawal process is an intense one, it is best to clear your schedule in advance. There are two key points to clearing your schedule during withdrawal.

 First, clear your schedule of any important responsibilities. Besides the fact that the symptoms will prevent you from doing anything at all, anything that you do during withdrawal will likely be of very low quality. If you are working then take time off of work, if possible. Find a safe, quiet, and secluded place in which you can focus on getting through the detox without any added stress.

 Second, is to set up a different daily routine. Routine is a problem when it comes to drug use because people often get used to their drug habits based on their daily routines. Many grow accustomed to using at a specific time of day, such as before bed or after getting home from work. Adjusting that daily routine can help the person avoid specific triggers that make him crave opiates.

 It may not be possible to avoid withdrawal symptoms entirely, but you can at least make them more bearable. With the right approach, you will be able to get and stay clean of opiates, rebuild your life and develop better coping habits to deal with life.

 Bill Weiss is an advocate of long-term sobriety. As a member of the recovery community, he feels it is important to spread awareness of alcohol and drug misuse in America and beyond. Being personally affected and having family members struggling, it is a personal quest of his to get the facts about substance misuse to light, ultimately enlightening people about this epidemic.

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