Believe In Progress, Options, Laughter and Recovery: Some Thoughts on Bipolar and Life.

(image: Hannah Blum)

Hi everyone,

I havn’t done a personal blog for a while because things have felt pretty…. the same. We are all going through such a difficult year where we feel in limbo, stuck with the dark, cold nights and little to distract ourselves- we can’t travel, go on holiday, see friends indoors in person . It can all feel bleak and frustrating with Covid 19 and this new world we find ourselves in.

I am lucky that my mental health hasn’t taken a nosedive, although there have been days where I have felt low, anxious and overwhelmed. I love my work for the Body Shop and my writing, but there are times when I just want a break. We were planning on maybe going away somewhere in the UK, but then Tier 3 restrictions hit London, so we will be at home over the Christmas break. Instead, I have made sure I have taken time for myself and rested- so that things don’t get too much.

I opened my book Bring me to Light this morning- I don’t often read it as I wrote it. But, it fell on this page- a poem about Bipolar that a fellow friend and patient wrote when we were on the hospital day unit in 2014. She also had bipolar disorder and was in there for her recovery.

It said,

Believe

In

Progress

Options

Laughter

and

Recovery

She kindly let me keep her poem- at the time, I needed hope, healing and faith- that I could get better. That Bipolar wouldn’t ruin my life.

I did get better. I have been so much better on my new medication. I met an amazing man who is now my husband. I found a career I am able to do with my PTSD and new friends and a team of people around me who are wonderful. Life is good.

However, a small part of me is scared. Scared to get ill again or be hospitalised. Scared of the psychosis that wrecked my life. Scared of whether or how I can become a mother whilst on Lithium or whether we will need to look at surrogacy as the meds can cause birth defects and there is a strong risk of post partum psychosis and pre or post natal depression for me with my bipolar. I am scared that if I carried my own child, I could end up on a hospital ward again- but a mother and baby one. I don’t want that to happen.

In my book Bring me to Light I wrote, ‘ Sometimes I still feel like the scared sixteen year old, sitting in that psychiatry room at the Priory North London, being given a diagnosis of bipolar disorder. …I have learnt that thanks to Lithium and therapy, bipolar disorder does not have to be my life.’

But knowing Lithium’s impact on my physical body too is scary. Weight gain. Acne. Water retention. Potential issues with kidney function/diabetes in future. Not being able to breastfeed on it or possibly carry a baby due to the severe risk – I have the most acute form of Bipolar and become very ill without medication.

These issues are so personal and I and Rob have been processing them for a while. We lost Robs dad to brain cancer in July and I didn’t feel able to blog about children before now. But, when the time is right and we speak to a perinatal psychiatrist and plan for a child, I want to write about it- maybe even a new book.

In the mean time, I am excited for new births in our family and I am just living and enjoying being well, being healthy.

I never see myself as someone with a disability- I always look for the Light. But, there are limitations and drawbacks to having this illness, even when it is in remission. It is biological and impacts on things I never realised when I was diagnosed in 2004. At the age of 32, these are becoming more real than ever and its scary. But, I want to smash the stigma and so I will write about what I can.

I wish you all a wonderful , relaxed festive season with good mental health- Happy Chanukah and Christmas.

Love,

Eleanor x