Coming Home For The Mental Health Awareness Shabbat And Self Care by Eleanor

Happy new year everyone! Gosh its nearly the end of January and I havn’t written a blog for a while so thought I would share some things that have been happening here and talk a bit about mental health stuff too.

Firstly, my mental health is fairly stable at the moment, as has been the case for a number of years. I don’t get typical bipolar depressive or manic episodes on my medications and this year is my 9th year out of hospital , which is always a positive. However, I still suffer with anxiety and stress and get overwhelmed so have to pace myself! I have bad days too where things feel too much but thankfully they don’t escalate into a depression.

So for the positives- I have achieved some huge anxiety wins for me. Since November, I have been on the tube (first time in 3 years), I have gone up to the West End with Rob to the theatre using public transport, my panic attacks have been lessening, I have been able to see more people in person and I also passed my probation at work and have been made permanent (huge win!). I am someone who struggles with agarophobia when I feel more anxious and stressed and going out alone can still be a challenge.

I have been allowing myself to venture into previously anxiety provoking situations- for example, I get cabs alone home from work. I had to start doing this last year and it helped me get back into the world again. It wasn’t easy due to many fears I had but I have been able to do it, slowly. My job is also hybrid so I can work from home too- but getting back out into the world and having kind work colleagues at an office has been such a vital part of my recovery too. My therapist has been so helpful in dealing with the panic attacks and anxiety and I do still get triggered but at the moment on a lesser scale. I still find blood tests, hospitals and general health stuff scary because of what I have been through. I really recommend therapy.

I sometimes do have to cancel arrangements when things feel too much so am sorry to anyone I have had to postpone… its not easy and I hate doing it as I feel bad… but I am learning the balance of looking after me and socialising too. I don’t always get it right but I am trying.

Then, my friend in Bushey, Lee, texted me a few weeks back and asked if I would like to speak in my childhood community for the Jami (Jewish charity) Mental Health Awareness Shabbat. I hadn’t done public speaking about my story since before Covid in 2019, when I spoke with my Dad Mike at Limmud and at Chigwell shul (synagogue, my husbands community). I have had drama training so for me speaking publicly as someone else is OK, but when I have to stand up and share my own story, I get nervous as its so personal. The first time I was asked to speak in a shul at Belsize Square, I made it to the community but my Dad had to give the talk by himself as i was too panicked to attend the service. I managed in time to dip my toe in slowly, always with the support of my Dad and my therapist.

This talk in Bushey felt significant. It’s the Jewish community I grew up in and was a part of until I was 23. I felt like I was going home. The Bushey team told me they had two other speakers, but would I like to speak and share my story with bipolar disorder?

I thought to myself… I am ready, my panic attacks and social anxiety are more under control. To me being asked to come home to Bushey shul was a sign. My Grandpa Harry passed away in 2021 from Covid- and he and Grandma had lived in Bushey since the 1990s, when we were little. Our family lived in both Bushey and Bushey Heath and I studied at Immanuel College, across the road from our home and my grandparents. The area contains so many happy memories for me. I knew the new senior Rabbi and Rebbetzen, as he had officiated at my grandparents funerals and was so kind to our family. My Dad is also still a member of the shul and I still know a lot of people who live in the community too. Its a very special community and one I am proud to be from (and still feel.a small part of despite not being a local anymore).

So, I decided, with my Dad and Rob’s support on the day (and anxiety meds), that I could stand up in shul and speak with the other two speakers on the Shabbat (sabbath) morning. My Mum and step dad were supporting from afar and looking after our guineapigs.

The senior Rabbi and Rebbetzen hosted us for the Friday night which was wonderful as we got to meet lots of new couples and see the Ketts, the other Rabbi and Rebbetzen! For lunch after the service, we went to Lee’s house, which was very special as she was my batmitzvah teacher and is a good family friend.

I was initially told the talk was going to be in a break out room- but on the day it was decided that it would be from the pulpit. Last time I ventured to that pulpit and stood up there was when I was 12 years old, sharing my batmitzva portion of the Torah. The year my Dad was very ill and diagnosed with bipolar. I became ill just 3 years later.

Now, here I was back as a married woman of 34, revealing about the mental illness that had found its way into my family and caused a lot of devastation. However, the main reasons I wanted to stand up and talk about bipolar disorder are because I know that this illness runs in families, many Jewish families struggle with it. I wanted to give the message that you can live with this illness but you can have periods of remission, recovery, you can find hope.

And as I spoke to the audience of people – many of whom I had known since my childhood, who saw me grow up and saw my family eventually leave Bushey for Edgware, I felt humbled. I felt honoured to be asked to speak and I hoped that by sharing my own journey with bipolar (being diagnosed at 16, in hospital twice, the last time in 2014 for a very serious manic episode), that I could touch someone who needed to hear it. My Dad gave me permission to tell his story too.

When I grew up in. the early 2000s, talking about mental illness and particularly in Jewish spaces, was not the norm. I hope that through sharing my own journey and my Dads (he was undiagnosed for 9 years until he was 44), that I will have helped someone.

Most importantly, I felt I had come home. The kindness and warmth shown to me by the members of the Bushey community who I have known since I was a little girl was something so incredibly special and touching. People confided in me after the service about their own struggles. Others thanked me for sharing my story. I was hugely touched by the other two speakers who spoke after me about their own journeys with mental health and their children’s. I won’t name them here in case they want to be anonymous but I learnt so much from them and their experiences.

So I want to say a huge thank you to Lee, to the Rabbis and Rebbetzens and to everyone in Bushey who I have known for years and have loved- for hosting us, for inviting me to talk about something so personal in such a special community. It touched my heart. I really hope it helps.

I genuinely did not know how I stood up there to speak to 90 odd people- what kept me going is knowing I was doing this to help eradicate the stigma of mental illness but also I hope that the words I spoke gave comfort to anyone going through mental illness, that it does get better. It can improve. You won’t be ill forever.

When I was unwell in 2014, Jonny Benjamin MBE was speaking and sharing about mental illness. He taught me that sharing your story to help others is vital. So thanks Jonny for all your support too (whether you knew you gave me the courage or not :).

I also want to thank Jami charity, Laura Bahar and Rabbi Daniel Epstein. I was part of the volunteering team that helped set up the first mental health awareness shabbat. The project has blossomed and is now annual and it is truly wonderful to see.

What I want to clarify is that although I am currently a lot better with my anxiety, it is very much a grey area, day by day thing. That can be hard for people to understand- how one day you can be great with loads of energy and the next you have to stay home and recuperate- self care. But I think knowledge of mental health is increasing now, so do check in with your friends and family and offer a safe space without judgement- its so helpful.

Thank you again for reading this if you got this far. You can do whatever you put your mind too- reach for help from medical teams, medication, therapists and never give up.

With gratitude and love,

Eleanor

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Bipolar Minds Matter: CEO of Bipolar UK and Co-Chair of the Bipolar Commission, both reflect on UK Government Mental Health Funding Announcement.

(image: Sway Communications)

Simon Kitchen, CEO of UK mental health charity Bipolar UK, says: 

“Today’s announcement by the Prime Minister that mental health will receive £40.2 million in funding is a positive step in the right direction for the one in four adults experiencing mental illness in the UK.

Although the Government funding announcement does not include bipolar specifically, we are hopeful that the high prevalence and the enormous burden of the condition will mean the bipolar research community receives much needed boost from this announcement.

The Bipolar Commission Report we took to policy makers on 8th November, found that bipolar accounts for 17% of the total burden of mental health but traditionally only received 1.5% of mental health research funding. This needs to change.

There are over a million people living with bipolar in the UK and every day one person with the condition takes their own life. Ensuring bipolar gets its fair share of mental health research funding is critical for reducing the 9.5 years it takes on average to get a diagnosis and for improving patient outcomes.   

Bipolar UK is the collective voice for people living with bipolar. Our clear position is that it is vital those living with the condition have as many treatment options available to them as possible and receive greater continuity of care so they can have a better quality of life.

It is possible for everyone with bipolar to live well and fulfil their potential.

Strong long-term relationships between individual clinicians and patients is a critical factor in this and there are currently not enough specialists in bipolar in the UK which leads to symptoms often being missed.

People living with bipolar have a suicide risk that’s 20 times higher than people without bipolar, a figure that could be significantly reduced with adequate funding.

There are more than a million people with bipolar in the UK — 30% more than those with dementia and twice as many as those with schizophrenia. Millions more are impacted through close friends and family.

Re-allocation of the funding that is already available will provide a significant improvement to people’s lives which is why we are asking for bipolar to be seen as a standalone mental health condition that requires its own share of the overall funding allocated to mental health.

People can live well with bipolar, but only if they have access to a clinician who knows them, their symptoms, their triggers, medical history, their family situation and their living arrangements to ensure on-going, effective care.”

(image: Bipolar UK: Simon Kitchen, CEO with this pledge )

Dr Guy Goodwin, Emeritus Professor of Psychiatry, University of Oxford and co-chair of The Bipolar Commission adds: “I have been treating people with bipolar for more than 40 years. Over that time, I have frequently been astonished by the stories of patients who have been poorly served by services ostensibly designed to help them live better lives.

“Bipolar accounts for 17% of the total burden of disease attributable to mental illness and yet there is no priority given to its specialist treatment in policy documents produced by the Department of Health.

“Instead, since the 1999 National Service Framework, bipolar has been lumped into policy documents as the invisible twin of schizophrenia. Worse still, bipolar gets a mere 1.5% of research resources.

Ignorance of the price paid for this policy neglect is no longer a defence.”

Please go to bipolaruk.org/bipolarcommission to read more about the work of the commission, fighting to get fair funding for bipolar disorder- Bipolar Minds Matter.

Petition with Bipolar UK: Speed up Bipolar Diagnosis to Save Lives. Lets Talk Bipolar by Eleanor

(image: Bipolar UK charity)

Please sign this petition to the NHS to speed up bipolar diagnosis to save lives. As I write in my book, my Dad Mike was diagnosed 9 years after he got ill and just 4 years before me. I believe I was only diagnosed at 16 years old because my Dad received his diagnosis. Additionally, my Dad was pushed to the brink of suicidal ideation (thoughts and plans of suicide) but was able to control this once he saw a psychiatrist finally after nearly 10 years- so many can’t. My Dad was saved just in time. He often says the love for his family stopped him, but for some, they are even more ill and cannot focus on this.

A new campaign by the amazing Bipolar UK charity and the new government Bipolar Commission to tell the NHS:

Speed up bipolar diagnosis to save lives
· There’s an average delay of 9.5 years between people first contacting a health professional about symptoms and getting an accurate diagnosis of bipolar
· 60% of people said this delay had a significant impact on their life
· 84% of people said a diagnosis was ‘helpful’ or ‘very helpful’

A diagnosis makes it possible for someone to get effective treatment and support, and to live well with bipolar.

It’s estimated that at least 5% of people who take their own life have a diagnosis of bipolar. The shorter the delay in diagnosis, the sooner someone can empower themselves with effective self-management and foster a positive circle with fewer relapses in both the short and long-term.

In my own family, myself and other relatives here and abroad have been diagnosed with this condition. It is so important to get correct treatment.

#letstalkbipolar

Please sign here, thank you: